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Author Topic: About G6PD  (Read 91701 times)

ysa

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About G6PD
« on: May 16, 2008, 01:19:53 PM »
im just curious ano po yung G6PD deficiency in layman's term.
ano ang symptoms?
sympre before walang new born screening for babies, parang kelan lang ito.
How would you know if you or your child has G6PD Deficiency. thanks.
« Last Edit: December 21, 2010, 02:35:07 PM by Mommyjazz »

czar

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Re: G6PD deficiency
« Reply #1 on: June 17, 2008, 03:32:07 PM »

the G6PD had the scare of me! kasimy son ng pina newborn screening ko siya lumabas na G6PD positive siya!
nag panic ako! i have to take him to UP PGH to have him re examine because that is S.O.P but i have to wait for 2 weeks for the results

while waiting super sa research ako sa internet kung ano yun
in layman's term, parang iron deficiency that in results eh bawal ang taong mayroon nito to a certain kind of medicines as in strictly bawal kasi pwedeng makasama sa ang effect ng medicine sa kanya, and bawal ang certain foods like beans basta ng daming bawal it can also cause death

and then i got the results of 2nd newborn screening ang nag NEGATIVE ANG ANAK KO FOR G6PD... THANK GOD ANG CAUSE LANG PALA KAYA NAG POSITIVE NUNG UNA AY DAHIL CONTAMINATED UN PAPER NA GINAMIT SA KANYA....

aj

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Re: G6PD deficiency
« Reply #2 on: June 17, 2008, 11:09:47 PM »
im not particularly sure of a layman's term for G6PD.
G6PD is actually an enzyme, something that hastens a process in our body. it hastens conversion of carbo to energy. it also protects red blood cells from  being easily destroyed.In its absence, red blood cells are easily destroyed such that one may be noticed to be pale. too much rbc destruction leaves much wastes, causing the urine to be tea-colored and the skin and eyes yellow (jaundice)
The attacks are usually trigerred b stress and infection
Treatment of attacks, transfusion and steroids

myralmedo

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Re: G6PD deficiency
« Reply #3 on: June 30, 2008, 08:47:26 PM »
halu mommies! am scanning yung mga posts buti i read this one.. i have a 2 yr old son and G6PD Deficiency cia.. Actually yung ang pinaka least ma maddetect sa new born screening (mas indi cia ganun ka grabe like retardation and so on).

may site akong naresearch bout this one G6PD deficiency severe case niya is FAVISM bec yung mga bawal na food is beans nga pro particulary fava beans eh sbi ng pedia ng anak ko wala naman dito sa phils. at wala ciang medication or whatever basta avoid lang ang bawal na food.

the G6PD had the scare of me! kasimy son ng pina newborn screening ko siya lumabas na G6PD positive siya!
nag panic ako! i have to take him to UP PGH to have him re examine because that is S.O.P but i have to wait for 2 weeks for the results

while waiting super sa research ako sa internet kung ano yun
in layman's term, parang iron deficiency that in results eh bawal ang taong mayroon nito to a certain kind of medicines as in strictly bawal kasi pwedeng makasama sa ang effect ng medicine sa kanya, and bawal ang certain foods like beans basta ng daming bawal it can also cause death

and then i got the results of 2nd newborn screening ang nag NEGATIVE ANG ANAK KO FOR G6PD... THANK GOD ANG CAUSE LANG PALA KAYA NAG POSITIVE NUNG UNA AY DAHIL CONTAMINATED UN PAPER NA GINAMIT SA KANYA....


buti sau mmy czar it turned out na negative, kami kc indi na pa second test :( tska sbi nga if boy ang bby mo carrier ang mommy, korek din c mmy ysa ala naman b4 yung generation natin ang new born screening. by the way why are you asking mmy ysa bout g6pd?

this is the site nagregister na rin ako.. as of now avoid ko talaga sa bby ko yung mga food na indi puwede yung mga may content ng soya, nakakatakot din kasi pag indi naagapan. :(


just visit the site pra may know how din kung ano talaga cia, pano maiwasan na lumala and food to be avoided ;)
http://www.g6pd.org/favism/english/index.mv?pgid=intro

Godabless 0=)
« Last Edit: June 30, 2008, 08:51:05 PM by myralmedo »
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jacas

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Re: G6PD deficiency
« Reply #4 on: July 03, 2008, 03:43:38 PM »
hello mommies!!!
I'm a mother of 1 son and 1 daughter. My son is 2 y/o and my daugther is 7 mon old. I gave birth to my second baby who has an infection because she adopt my infection. I left my baby in NICU for 1 week. Before kami umuwi I asked her Pedia for newborn screening but the film they used were not available. During our visit to her pedia after 1 month, that's only time na na-newborn screning. Im so eager to know the result for after 1month. My daughter newborn screening got a positive result which is G6PD. Im so worried and natatakot ako kasi baka kung ano na un. The pedia explained to us what we will do. For the confirmation pinapapunta kami UP-PGH ata un institute na un. Di kami naka pag pa-confirm dahil sa work namin ng husband ko. Dito ako sa lipa siya jan sa manila. It's hard for us to have the same sched. as per my brother in-law G6PD is the cause of anemia and avoid foods like beans, soya, Vitamin K and madami pa e.
1. Ok lang ba na di ko na pina-confirm?
2. What are the formula milk without Vitamin K?
Sana lahat ng ngpositive sa newborn screening sa G6PD pansamantala lang....
I love my family....

jonsly26

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Re: G6PD deficiency
« Reply #5 on: July 04, 2008, 07:59:56 PM »
hi jacas! my daughter issey is g6pd postive kht pinaconfirm namin. better na paconfirm mo nrin baby mo para matahimik loob mo. iwas nalang talaga sa bawal na food. hindi na daw nwwla yun sabi sa research
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ysa

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Re: G6PD deficiency
« Reply #6 on: July 07, 2008, 11:02:37 AM »
wala naman.. just want to know.
wasn't able to get the result of my baby's NBS.
after a month, i went back to my  baby's pedia for my baby's BCG vaccine, wala naman siyang sinasabi. since her charges a bit pricey, so i decided to transfer to another pedia. so on the 2nd month ng chek up hindi nako bumalik sa pedia ng baby ko.
so yun.

and tama ba, Hindi puwede ang paracetamol for kids with G6PD?


cheiz

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Re: G6PD deficiency
« Reply #7 on: July 07, 2008, 03:12:39 PM »
It's still best to have it confirm para they can also give you a low down on the precautions and what to expect.

lhanz

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Re: G6PD deficiency
« Reply #8 on: July 09, 2008, 12:15:09 PM »
wala naman.. just want to know.
wasn't able to get the result of my baby's NBS.
after a month, i went back to my  baby's pedia for my baby's BCG vaccine, wala naman siyang sinasabi. since her charges a bit pricey, so i decided to transfer to another pedia. so on the 2nd month ng chek up hindi nako bumalik sa pedia ng baby ko.
so yun.

and tama ba, Hindi puwede ang paracetamol for kids with G6PD?




Kapag nag positive ang baby thats the time na inform k agad ng pedia mo.  Kung wala pang result NBS mo most probably negative baby mo.

Mas maganda pa rin mg pa confirm sa UP PGH kasi dun lang malalaman kung talagang G6PD baby and me ibibigay list ng mga dapat iwasan pagkain, inumin, chemical & kung ano dapat gawin kapag lumabas symptoms

Paracetamol is safe to be taken by a person with this condition only in therapeutic doses.

bawal menthol, tofu, antibiotic in sulfa group, medicines for malaria

By the way my son is G6PD deficiency. bwal soy sauce pero favorite niya sawsawan toyo and likes adobo

myralmedo

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Re: G6PD deficiency
« Reply #9 on: July 10, 2008, 01:16:46 PM »
By the way my son is G6PD deficiency. bwal soy sauce pero favorite niya sawsawan toyo and likes adobo

halu mommy... diba bwal soya content?  ??? hehe.. gulat ako  :) mnsan nkaawa kc gusto rin nila at paexpereince what's the taste../:D actually ang son ko like din yung sauce ng adobo ang ginagawa ko kpag un yung ulam super konti lang yung mlasahan niya lang, pro supe minimal tas sa pancit canton yung instant diba? i suggest na don't mix yung soy sauce, powder seasoning and oil nalang may flavor pa rin naman  ;D pra maavoid lang yung fud products na bwal talaga.

Godabless 0=)
« Last Edit: July 10, 2008, 01:20:00 PM by myralmedo »
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Laugh as much as you breathe and love as long as you live. ♥♥♥

mommy-T

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All about G6PD
« Reply #10 on: October 11, 2008, 11:25:51 PM »
hi mga mommies, my son is g6pd , yung eldest is not... kawawa nga baby boy ko kasi maraming gamot na di sya pwede.. b4 ng nalaman ko na g6pd according sa newbron screening, kahit  twice for confirmatory, yung hindi ko pa tanggap, iyak ako ng iyak. kasi di ko ma accept. but ngayon ok na ako. heheh  careful lang talaga sa mga foods and gamot. then i dont give him medicines na akin akin lang. consult muna talaga ky doc.

mamommy

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Re: G6PD babies!
« Reply #11 on: October 12, 2008, 11:01:24 AM »
hi mommy-t, our secretary's baby boy is also positve of g6pd, she's asking me nga ano daw un, e d naman ako dr, what ba ibig sbihin nun is it grbe ba?

cpasfri

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Re: G6PD babies!
« Reply #12 on: October 12, 2008, 11:28:41 AM »
hi mommy T..same situation din..i know hoe you felt, ganyan din the firsttime na nalaman ko eh first baby ko pa siya, worried din ako nung first tapos sobrang baba pa yung result ng confirmatory test niya, but since may mga mommies akong nakausap dito rin sa SP re:g6pd medyo ok nako..basta you know lang talaga yung mga bawal na food, also sa meds importante talaga na don't give meds as long hindi pwede sa baby..nakakalungkot lang hindi nila matitikman angsarap ng adobo, ang taho..etc..pero kahit ganun ok lang lahat naman ng babies na kilala kong may g6pd healthy naman sila..so with my baby.. ;o) hes now 6month old today and hes healthy..
i hope this link would give much info re: G6pd
http://www.g6pd.org/favism/english/index.mv?pgid=intro

to mamommy : hi i hope this link would help you give an idea what is G6pd..in short ko lang..may topic he re sa SP re: g6pd heres the link hope it will give you an idea
http://www.smartparenting.com.ph/parentchat/index.php?topic=949.0
http://www.g6pd.org/favism/english/index.mv?pgid=intro
cherry ;o))

mamommy

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Re: G6PD babies!
« Reply #13 on: October 12, 2008, 12:00:26 PM »
hi mommy cpasfri, thanks so much, at least i can gve further xplanation to our secretary, 1st baby din kc niya n shes kinda worid, prand d din niya matangap so gsto niya ulit ipa 2nd test
anyway, cute bib der, san mu nbili hahaha  :D

mommy-T

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Re: G6PD babies!
« Reply #14 on: October 12, 2008, 10:53:14 PM »
mommy thanx sa website. ngayon ko lang nalaman from u na meron pala website sa mga g6pd. heheh
hay na remember ko talag yung ime nalaman ko na meron g6pd anak ko. 1 week p lang baby kapapanganak ko lang. iyak ng iyak ako ng tumawag hospital. kasi hindo ko pa naintindihan.. nag nternet agad ako pero hindi na ako mkabasa kasi nga puro lang luha mata ko. kaya ayon si hubby na na researxh hehe. then inixplain rin sa pedia. yung pedia ko ngayon meron syang daughter na 5 yrs old na g6pd then healthy naman. kaya i like my pedia kasi alam niya anong gamot ibigay, etc kasi meron syang anak na g6pd rin.. now yung son ko is 1 year ld na. i have 2 kids. yung eldest daughetr ko who is 2 yrs old, ok naman wlang g6pd. ito lang talagang bunso ko. yung anak rin ng cousin ko sabay kami ng month nanganak. nauna lang sya ng 1 week, ganun din meron g6pd anak niya. lahi siguro namin.. buti ngayon meron ng newborn screening! noong araw wala. baka nga siguro meron ako. hehe wala lang symptoms. kasi noon sa panahon natin wala yan newborn screening eh.

 

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