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Health => Your Kid's Health and Safety => Topic started by: ysa on May 16, 2008, 01:19:53 pm

Title: About G6PD
Post by: ysa on May 16, 2008, 01:19:53 pm
Basahin sa Smart Parenting. Click any topic title below for full information.
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G6PD Deficiency sa Newborn Screening (https://www.smartparenting.com.ph/parenting/baby/g6pd-deficiency-mahalaga-newborn-screening-a00026-a1810-20190818-lfrm?ref=parentchat)
What To Do With A G6PD Deficiency Diagnosis (https://www.smartparenting.com.ph/health/your-kids-health/parent-s-quick-guide-what-you-need-to-know-about-g6pd-deficiency-a00026-20171009?reg=feed_1?ref=parentchat)
G6PD Confirmatory Test (https://www.smartparenting.com.ph/parenting/baby/iya-villania-leon-g6pd-confirmatory-test-a00041-20181002?reg=feed_1?ref=parentchat)
Newborn Screening Guide (https://www.smartparenting.com.ph/parenting/baby/new-parents-guide-newborn-screening-a00026-20171004?ref=parentchat)
premature baby (https://www.smartparenting.com.ph/parenting/baby/premature-baby-myths-a00061-20190514-lfrm?ref=parentchat)
autism screening test (https://www.smartparenting.com.ph/parenting/kids-with-special-needs/autism-screening-early-diagnosis-a00286-20190506-lfrm?ref=parentchat)

im just curious ano po yung G6PD deficiency in layman's term.
ano ang symptoms?
sympre before walang new born screening for babies, parang kelan lang ito.
How would you know if you or your child has G6PD Deficiency. thanks.

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Title: Re: About G6PD
Post by: czar on June 17, 2008, 03:32:07 pm

the G6PD had the scare of me! kasimy son ng pina newborn screening ko siya lumabas na G6PD positive siya!
nag panic ako! i have to take him to UP PGH to have him re examine because that is S.O.P but i have to wait for 2 weeks for the results

while waiting super sa research ako sa internet kung ano yun
in layman's term, parang iron deficiency that in results eh bawal ang taong mayroon nito to a certain kind of medicines as in strictly bawal kasi pwedeng makasama sa ang effect ng medicine sa kanya, and bawal ang certain foods like beans basta ng daming bawal it can also cause death

and then i got the results of 2nd newborn screening ang nag NEGATIVE ANG ANAK KO FOR G6PD... THANK GOD ANG CAUSE LANG PALA KAYA NAG POSITIVE NUNG UNA AY DAHIL CONTAMINATED UN PAPER NA GINAMIT SA KANYA....
Title: Re: About G6PD
Post by: April Lachica on June 17, 2008, 11:09:47 pm
im not particularly sure of a layman's term for G6PD.
G6PD is actually an enzyme, something that hastens a process in our body. it hastens conversion of carbo to energy. it also protects red blood cells from  being easily destroyed.In its absence, red blood cells are easily destroyed such that one may be noticed to be pale. too much rbc destruction leaves much wastes, causing the urine to be tea-colored and the skin and eyes yellow (jaundice)
The attacks are usually trigerred b stress and infection
Treatment of attacks, transfusion and steroids
Title: Re: About G6PD
Post by: myralmedo on June 30, 2008, 08:47:26 pm
halu mommies! am scanning yung mga posts buti i read this one.. i have a 2 yr old son and G6PD Deficiency cia.. Actually yung ang pinaka least ma maddetect sa new born screening (mas indi cia ganun ka grabe like retardation and so on).

may site akong naresearch bout this one G6PD deficiency severe case niya is FAVISM bec yung mga bawal na food is beans nga pro particulary fava beans eh sbi ng pedia ng anak ko wala naman dito sa phils. at wala ciang medication or whatever basta avoid lang ang bawal na food.

the G6PD had the scare of me! kasimy son ng pina newborn screening ko siya lumabas na G6PD positive siya!
nag panic ako! i have to take him to UP PGH to have him re examine because that is S.O.P but i have to wait for 2 weeks for the results

while waiting super sa research ako sa internet kung ano yun
in layman's term, parang iron deficiency that in results eh bawal ang taong mayroon nito to a certain kind of medicines as in strictly bawal kasi pwedeng makasama sa ang effect ng medicine sa kanya, and bawal ang certain foods like beans basta ng daming bawal it can also cause death

and then i got the results of 2nd newborn screening ang nag NEGATIVE ANG ANAK KO FOR G6PD... THANK GOD ANG CAUSE LANG PALA KAYA NAG POSITIVE NUNG UNA AY DAHIL CONTAMINATED UN PAPER NA GINAMIT SA KANYA....

buti sau mmy czar it turned out na negative, kami kc indi na pa second test :( tska sbi nga if boy ang bby mo carrier ang mommy, korek din c mmy ysa ala naman b4 yung generation natin ang new born screening. by the way why are you asking mmy ysa bout g6pd?

this is the site nagregister na rin ako.. as of now avoid ko talaga sa bby ko yung mga food na indi puwede yung mga may content ng soya, nakakatakot din kasi pag indi naagapan. :(


just visit the site pra may know how din kung ano talaga cia, pano maiwasan na lumala and food to be avoided ;)
http://www.g6pd.org/favism/english/index.mv?pgid=intro

Godabless 0=)
Title: Re: About G6PD
Post by: jacas on July 03, 2008, 03:43:38 pm
hello mommies!!!
I'm a mother of 1 son and 1 daughter. My son is 2 y/o and my daugther is 7 mon old. I gave birth to my second baby who has an infection because she adopt my infection. I left my baby in NICU for 1 week. Before kami umuwi I asked her Pedia for newborn screening but the film they used were not available. During our visit to her pedia after 1 month, that's only time na na-newborn screning. Im so eager to know the result for after 1month. My daughter newborn screening got a positive result which is G6PD. Im so worried and natatakot ako kasi baka kung ano na un. The pedia explained to us what we will do. For the confirmation pinapapunta kami UP-PGH ata un institute na un. Di kami naka pag pa-confirm dahil sa work namin ng husband ko. Dito ako sa lipa siya jan sa manila. It's hard for us to have the same sched. as per my brother in-law G6PD is the cause of anemia and avoid foods like beans, soya, Vitamin K and madami pa e.
1. Ok lang ba na di ko na pina-confirm?
2. What are the formula milk without Vitamin K?
Sana lahat ng ngpositive sa newborn screening sa G6PD pansamantala lang....
Title: Re: About G6PD
Post by: jonsly26 on July 04, 2008, 07:59:56 pm
hi jacas! my daughter issey is g6pd postive kht pinaconfirm namin. better na paconfirm mo nrin baby mo para matahimik loob mo. iwas nalang talaga sa bawal na food. hindi na daw nwwla yun sabi sa research
Title: Re: About G6PD
Post by: ysa on July 07, 2008, 11:02:37 am
wala naman.. just want to know.
wasn't able to get the result of my baby's NBS.
after a month, i went back to my  baby's pedia for my baby's BCG vaccine, wala naman siyang sinasabi. since her charges a bit pricey, so i decided to transfer to another pedia. so on the 2nd month ng chek up hindi nako bumalik sa pedia ng baby ko.
so yun.

and tama ba, Hindi puwede ang paracetamol for kids with G6PD?

Title: Re: About G6PD
Post by: cheiz on July 07, 2008, 03:12:39 pm
It's still best to have it confirm para they can also give you a low down on the precautions and what to expect.
Title: Re: About G6PD
Post by: lhanz on July 09, 2008, 12:15:09 pm
wala naman.. just want to know.
wasn't able to get the result of my baby's NBS.
after a month, i went back to my  baby's pedia for my baby's BCG vaccine, wala naman siyang sinasabi. since her charges a bit pricey, so i decided to transfer to another pedia. so on the 2nd month ng chek up hindi nako bumalik sa pedia ng baby ko.
so yun.

and tama ba, Hindi puwede ang paracetamol for kids with G6PD?




Kapag nag positive ang baby thats the time na inform k agad ng pedia mo.  Kung wala pang result NBS mo most probably negative baby mo.

Mas maganda pa rin mg pa confirm sa UP PGH kasi dun lang malalaman kung talagang G6PD baby and me ibibigay list ng mga dapat iwasan pagkain, inumin, chemical & kung ano dapat gawin kapag lumabas symptoms

Paracetamol is safe to be taken by a person with this condition only in therapeutic doses.

bawal menthol, tofu, antibiotic in sulfa group, medicines for malaria

By the way my son is G6PD deficiency. bwal soy sauce pero favorite niya sawsawan toyo and likes adobo
Title: Re: About G6PD
Post by: myralmedo on July 10, 2008, 01:16:46 pm
By the way my son is G6PD deficiency. bwal soy sauce pero favorite niya sawsawan toyo and likes adobo

halu mommy... diba bwal soya content?  ??? hehe.. gulat ako  :) mnsan nkaawa kc gusto rin nila at paexpereince what's the taste../:D actually ang son ko like din yung sauce ng adobo ang ginagawa ko kpag un yung ulam super konti lang yung mlasahan niya lang, pro supe minimal tas sa pancit canton yung instant diba? i suggest na don't mix yung soy sauce, powder seasoning and oil nalang may flavor pa rin naman  ;D pra maavoid lang yung fud products na bwal talaga.

Godabless 0=)
Title: Re: About G6PD
Post by: mommy-T on October 11, 2008, 11:25:51 pm
hi mga mommies, my son is g6pd , yung eldest is not... kawawa nga baby boy ko kasi maraming gamot na di sya pwede.. b4 ng nalaman ko na g6pd according sa newbron screening, kahit  twice for confirmatory, yung hindi ko pa tanggap, iyak ako ng iyak. kasi di ko ma accept. but ngayon ok na ako. heheh  careful lang talaga sa mga foods and gamot. then i dont give him medicines na akin akin lang. consult muna talaga ky doc.
Title: Re: About G6PD
Post by: mamommy on October 12, 2008, 11:01:24 am
hi mommy-t, our secretary's baby boy is also positve of g6pd, she's asking me nga ano daw un, e d naman ako dr, what ba ibig sbihin nun is it grbe ba?
Title: Re: About G6PD
Post by: cpasfri on October 12, 2008, 11:28:41 am
hi mommy T..same situation din..i know hoe you felt, ganyan din the firsttime na nalaman ko eh first baby ko pa siya, worried din ako nung first tapos sobrang baba pa yung result ng confirmatory test niya, but since may mga mommies akong nakausap dito rin sa SP re:g6pd medyo ok nako..basta you know lang talaga yung mga bawal na food, also sa meds importante talaga na don't give meds as long hindi pwede sa baby..nakakalungkot lang hindi nila matitikman angsarap ng adobo, ang taho..etc..pero kahit ganun ok lang lahat naman ng babies na kilala kong may g6pd healthy naman sila..so with my baby.. ;o) hes now 6month old today and hes healthy..
i hope this link would give much info re: G6pd
http://www.g6pd.org/favism/english/index.mv?pgid=intro

to mamommy : hi i hope this link would help you give an idea what is G6pd..in short ko lang..may topic he re sa SP re: g6pd heres the link hope it will give you an idea
http://www.smartparenting.com.ph/parentchat/index.php?topic=949.0
http://www.g6pd.org/favism/english/index.mv?pgid=intro
(http://farm4.static.flickr.com/3243/2928939741_4c7160ccd9.jpg?v=0)(http://farm4.static.flickr.com/3172/2928939733_b42d76b9eb.jpg?v=0)
Title: Re: About G6PD
Post by: mamommy on October 12, 2008, 12:00:26 pm
hi mommy cpasfri, thanks so much, at least i can gve further xplanation to our secretary, 1st baby din kc niya n shes kinda worid, prand d din niya matangap so gsto niya ulit ipa 2nd test
anyway, cute bib der, san mu nbili hahaha  :D
Title: Re: About G6PD
Post by: mommy-T on October 12, 2008, 10:53:14 pm
mommy thanx sa website. ngayon ko lang nalaman from u na meron pala website sa mga g6pd. heheh
hay na remember ko talag yung ime nalaman ko na meron g6pd anak ko. 1 week p lang baby kapapanganak ko lang. iyak ng iyak ako ng tumawag hospital. kasi hindo ko pa naintindihan.. nag nternet agad ako pero hindi na ako mkabasa kasi nga puro lang luha mata ko. kaya ayon si hubby na na researxh hehe. then inixplain rin sa pedia. yung pedia ko ngayon meron syang daughter na 5 yrs old na g6pd then healthy naman. kaya i like my pedia kasi alam niya anong gamot ibigay, etc kasi meron syang anak na g6pd rin.. now yung son ko is 1 year ld na. i have 2 kids. yung eldest daughetr ko who is 2 yrs old, ok naman wlang g6pd. ito lang talagang bunso ko. yung anak rin ng cousin ko sabay kami ng month nanganak. nauna lang sya ng 1 week, ganun din meron g6pd anak niya. lahi siguro namin.. buti ngayon meron ng newborn screening! noong araw wala. baka nga siguro meron ako. hehe wala lang symptoms. kasi noon sa panahon natin wala yan newborn screening eh.
Title: Re: About G6PD
Post by: cpasfri on October 12, 2008, 11:41:48 pm
hi mommy cpasfri, thanks so much, at least i can gve further xplanation to our secretary, 1st baby din kc niya n shes kinda worid, prand d din niya matangap so gsto niya ulit ipa 2nd test
anyway, cute bib der, san mu nbili hahaha  :D

your welcome..the bib was bought at multiply site heres the link
http://brusselsprouts.multiply.com/

mommy thanx sa website. ngayon ko lang nalaman from u na meron pala website sa mga g6pd. heheh
hay na remember ko talag yung ime nalaman ko na meron g6pd anak ko. 1 week p lang baby kapapanganak ko lang. iyak ng iyak ako ng tumawag hospital. kasi hindo ko pa naintindihan.. nag nternet agad ako pero hindi na ako mkabasa kasi nga puro lang luha mata ko. kaya ayon si hubby na na researxh hehe. then inixplain rin sa pedia. yung pedia ko ngayon meron syang daughter na 5 yrs old na g6pd then healthy naman. kaya i like my pedia kasi alam niya anong gamot ibigay, etc kasi meron syang anak na g6pd rin.. now yung son ko is 1 year ld na. i have 2 kids. yung eldest daughetr ko who is 2 yrs old, ok naman wlang g6pd. ito lang talagang bunso ko. yung anak rin ng cousin ko sabay kami ng month nanganak. nauna lang sya ng 1 week, ganun din meron g6pd anak niya. lahi siguro namin.. buti ngayon meron ng newborn screening! noong araw wala. baka nga siguro meron ako. hehe wala lang symptoms. kasi noon sa panahon natin wala yan newborn screening eh.

your welcome.. ;D , as ive read sa site na when your first baby boy daw has g6pd sa nanay daw nakuha yun but when you first baby girl has g6pd sa tatay naman daw..
by the way san ang pedia mo and where is it?
Title: Re: About G6PD
Post by: melandriaromero on October 12, 2008, 11:55:36 pm
i have also seen that in Sp magz but i am not yet aware about that virus.  I will read your posting so that i would be enlighten.  Thanks for the info.
Title: Re: About G6PD
Post by: mhellaizkie on October 13, 2008, 03:42:14 pm
meron ba kayong alam na seminars or any websites on g6pd? my officemate's son is positive din, lahat ng minty stuff bawal, soya bawal and i guess pati ang berries..
Title: Re: About G6PD
Post by: mommy-T on October 13, 2008, 11:09:09 pm
meron ba kayong alam na seminars or any websites on g6pd? my officemate's son is positive din, lahat ng minty stuff bawal, soya bawal and i guess pati ang berries..

ito mommy www.g6pd.org
Title: Re: About G6PD
Post by: marcroswell on October 14, 2008, 06:00:49 am
i have a son turning three this nov 27. when he had his new born screening, he's positive for the g6pd deficiency. we're asked to go to UP-manila for re-confirmation. but, due to our hectic sked, we're not able to go there. right now, i am not sure if he's positive or negative for g6pd deficiency since we never got the chance to reconfirm it. but, i still make precautions, i don't give meds or foods prohibited to g6pd deficient. now, that he's turning three, is it still possible to reconfirm if he's really positive for the deficiency?
Title: Re: About G6PD
Post by: mhellaizkie on October 15, 2008, 08:21:17 am
meron ba kayong alam na seminars or any websites on g6pd? my officemate's son is positive din, lahat ng minty stuff bawal, soya bawal and i guess pati ang berries..

ito mommy www.g6pd.org

thanks sis refer ko yan sa officemate ko..  ;)
Title: Re: About G6PD
Post by: rubyrandkervierwin on October 15, 2008, 10:57:33 pm
hi mommy T..same situation din..i know hoe you felt, ganyan din the firsttime na nalaman ko eh first baby ko pa siya, worried din ako nung first tapos sobrang baba pa yung result ng confirmatory test niya, but since may mga mommies akong nakausap dito rin sa SP re:g6pd medyo ok nako..basta you know lang talaga yung mga bawal na food, also sa meds importante talaga na don't give meds as long hindi pwede sa baby..nakakalungkot lang hindi nila matitikman angsarap ng adobo, ang taho..etc..pero kahit ganun ok lang lahat naman ng babies na kilala kong may g6pd healthy naman sila..so with my baby.. ;o) hes now 6month old today and hes healthy..
i hope this link would give much info re: G6pd
http://www.g6pd.org/favism/english/index.mv?pgid=intro

to mamommy : hi i hope this link would help you give an idea what is G6pd..in short ko lang..may topic he re sa SP re: g6pd heres the link hope it will give you an idea
http://www.smartparenting.com.ph/parentchat/index.php?topic=949.0
http://www.g6pd.org/favism/english/index.mv?pgid=intro
(http://farm4.static.flickr.com/3243/2928939741_4c7160ccd9.jpg?v=0)(http://farm4.static.flickr.com/3172/2928939733_b42d76b9eb.jpg?v=0)

ang cute ng baby mo! tabachingching! it really shows that ure an excellent mom! (sabi nga ni sweet may cellulite ang cheek..hehhehe  :)))

sana soon pag malaki n sila may new invention ng gamot for g6pd. wawa nmna baby panu pag skul n siya. can u still able to avoid fud na bawal?

god bless momsies.
Title: Re: About G6PD
Post by: myralmedo on October 16, 2008, 09:23:28 am
halu mommies!

haay indi ako ngiisa hehe :D

same procedure with mmy cpasfri... my son my son is 2 yrs old na from the time na nalaman namin todo research talaga ako and gumwa ako ng folder for him pnrint ko un meaning ng g6pd down sa lahat ng bwal na food/meds etc. tas nakalgay lang sa baby bag niya...may mga advices din kapag nagschooling inform ang staff ng school as well the teacher lalo na sa ganun na indi natin monitored ang mga kiddos peeps 'round them should be aware din.

bad thing when we found out once lang kami ngpanew born ewan ko ba indi ko naisip mgparetake... pro una ciempre bat ganun anythings wrong with me kasi ako carrier pag bby boy, anyways as the time goes by naaccept and now na eating na my son my son ko ng solid food we trained him kapag nakakita sia ng toyo,offer namin cia to eat ssbhin indi mee bawal toyo tetet (kurt-kurt) hehe kaya kami at ease na.. if you'll ask him ano bwal sbhin niya soya :D..ngaun thank God, palagi kong pinagppray he's healthy and un naman ang nkikita ko... ;) super avoid lang talaga pro minsan kahit minimal pinapatikim ko cia pro cia na rin umaayaw :D... and want ko nga kasi sa blood un naaffect we decided na once a year papaCBC ko kurt pra monitor namin.

ngshare din ako sa link na bngay ni mmy cpasfri.. keep in comin' and keep on sharing mommies! it really helps!  ;)

Godabless!0=)
mwah.mwah  :-*
Title: Re: About G6PD
Post by: mommy-T on October 16, 2008, 09:47:32 am
halu mommies!

haay indi ako ngiisa hehe :D

same procedure with mmy cpasfri... my son my son is 2 yrs old na from the time na nalaman namin todo research talaga ako and gumwa ako ng folder for him pnrint ko un meaning ng g6pd down sa lahat ng bwal na food/meds etc. tas nakalgay lang sa baby bag niya...may mga advices din kapag nagschooling inform ang staff ng school as well the teacher lalo na sa ganun na indi natin monitored ang mga kiddos peeps 'round them should be aware din.

bad thing when we found out once lang kami ngpanew born ewan ko ba indi ko naisip mgparetake... pro una ciempre bat ganun anythings wrong with me kasi ako carrier pag bby boy, anyways as the time goes by naaccept and now na eating na my son my son ko ng solid food we trained him kapag nakakita sia ng toyo,offer namin cia to eat ssbhin indi mee bawal toyo tetet (kurt-kurt) hehe kaya kami at ease na.. if you'll ask him ano bwal sbhin niya soya :D..ngaun thank God, palagi kong pinagppray he's healthy and un naman ang nkikita ko... ;) super avoid lang talaga pro minsan kahit minimal pinapatikim ko cia pro cia na rin umaayaw :D... and want ko nga kasi sa blood un naaffect we decided na once a year papaCBC ko kurt pra monitor namin.

ngshare din ako sa link na bngay ni mmy cpasfri.. keep in comin' and keep on sharing mommies! it really helps!  ;)

Godabless!0=)
mwah.mwah  :-*

so far my 1 yr old son ngayon, he's ok naman. wala ko naman sya pinagbawal like toyo, etc. wala naman tayong fava beans dito.. then yogurt di pwede rin. yun lang so far avoid ko sa kanya.
Title: Re: About G6PD
Post by: mhellaizkie on October 16, 2008, 05:06:06 pm
sis MY..g6pd pala si kurt? ang hirap talaga yan..yung anak ng officemate ko d puwede sa eucalyptus..nangingitim and ng faint pag naka amoy..bawal din soya talaga na meron sa toyo..

mishoo na sis MY..mwah  :-* hope to see you soon!
Title: Re: About G6PD
Post by: mommy-T on October 16, 2008, 05:10:08 pm
bawal din yung parang mothballs ba yan? yung puti na ilalagay ng iba sa cabinet sa damit? di talga pwede yan
Title: Re: About G6PD
Post by: mhellaizkie on October 16, 2008, 05:23:46 pm
oo sis bawal din daw yun pati yung albatross daw yung scent para sa CR..
Title: Re: About G6PD
Post by: cpasfri on October 16, 2008, 10:03:11 pm
to mommy ruby: hi thanks..ingat lang talaga siyaka tutok ka for all the bawals..may time din kasi na mapapansin mo ngfafaint yung color niya but ..pray lang lagi for good health para kay baby saka monitor talaga and inform ko na lang baby curt pagschooling wawa lang talga di matitikman ang adobo..puting adono hehe, ang cute naman nun natawa ako hehe may cellulite sa cheeks..funny hahaha..

to mommy myra: hello mommy myra...2 years old mo na pala nalaman na may G6pd na baby mo?how come..question ko nga kung pwede bang mgpa repeat confirmatory test para malaman kung may improvement ba yung level ng enzyme niya kasi kay baby curt sobrang baba as in .20 lang siya ang normal is 4.6..kaya may time na maputla siya aware nako nun as advise nung pedia na always check kung maputla yung labi, under ng eye, palms of hands and feet tapos ng DOB siya...possible daw na naexpose siya sa bawal..and true talga na pinakamalakas is yung moth balls sabi ng pedia niya na once naexpose siya sa anything bawal lalo na moth balls or anything like sabi ni mommy mhel and mommy T..yung red blood cells niya magpuputukan at baba yung enzyme ng body niya...hayy..pero no need to worry basta importante aware tayo sa bwal...sabi nga ng cousin ko there is this baller na they put para marecognize if the baby has g6pd..ill check with that.. :)
Title: Re: About G6PD
Post by: rubyrandkervierwin on October 16, 2008, 11:05:58 pm
to mommy ruby: hi thanks..ingat lang talaga siyaka tutok ka for all the bawals..may time din kasi na mapapansin mo ngfafaint yung color niya but ..pray lang lagi for good health para kay baby saka monitor talaga and inform ko na lang baby curt pagschooling wawa lang talga di matitikman ang adobo..puting adono hehe, ang cute naman nun natawa ako hehe may cellulite sa cheeks..funny hahaha..
Quote

very cuddly c BABY CURT! sana nga soon may gamot n dyan un ang pag pray ko pra sa lahat ng g6pd! ask ko lang sa new born screening sure b na de detect yan? kc bkit c mom myra 2yrs old n niya nlaman?

go go go momsies!
(buti n lang may SP may sharing like dis it really helps.) :-*

Title: Re: About G6PD
Post by: myralmedo on October 21, 2008, 10:13:20 am
halu mommies!

mmy-T thanks uu avoid lang talaga and super monitor... haaay super extra care ;)

mmy mhellai, mishu mishu *hugness* hehe... uu g6pd kurt ko buti my newborn screening diba? hehe.... best cure eh avoid lang talaga ang bawal buti cia recognize na niya, kita lang cia dark na liquid sbhin bwal toyo tetet/kurt2 hehe.. hope to see u soon.. prettyness talaga caine mo hehe... ;) :-*

mmy cpasfri and rubyrandkervierwin, to mmy cpasfri same pa name bbies ntin "c" nga lang sau akin "k" hehe galing! naaliw?! hehe  ;D indi po 2 yrs old na cia ngaun hehe newborn screening ko na cia after ilabas, indi ko lang cia na paretest un ang indi ko nagwa sayang pro avoid lang talaga ;)... ay talaga bwal ang moth balls? naku meron pa man din sa house nun... mmy alam ko included ang mga beans satin indi ko cia pinapkain ng sitaw and beans bsta may buto na veges yung stringbeans ganun... safetyness na rin kasi under ng legumes ba u? bsta pra sureness tska mga berries... ano pa ba? anakis ko feeling ko kapag nakakaeat kasi minsan diba kahit small conetnt lang hyperness sila? nung wed ng friend ko ewan ko ano nakain sa menu nila kasi tumbling sa red carpet ayaw paawat isip ko soup kasi medyo creamy bka may soya hehe... mmy cpasfri udpate mo ko bout sa baller ah gusto ko nun hehe... thanks! mwah mwah.. :-* :-* :-*

Godabless!0=)
Title: Re: About G6PD
Post by: rubyrandkervierwin on October 21, 2008, 11:29:18 am
ah ganun b momi myra..
kala ko kasi occur siya first n second
yr of age..xempre medyo kinabahan ako nun..
eniwey coordination din sa baby ang
kelangan tingin mo c baby lam
n niya bawal..matalinong bata..hehhe

god bless SP moms
Title: Re: About G6PD
Post by: casgalanido on October 22, 2008, 03:34:40 pm
G6PD or Glucose-6-phosphate dehydrogenase deficiency, is the most common "inborn metabolic disorder". Meaning, from the time a baby is born, there is already something wrong with how the baby's body makes and breaks important substances.

Babies with G6PD deficiency have very little or no enzyme called Glucose-6-Phosphate Dehydrogenase (G6PD). An enzyme is a kind of protein that speeds up chemical reactions in the body. The enzyme G6PD is especially important to red blood cells. If this enzyme is lacking or missing, red blood cells are easily destroyed.

FOOD AND DRINKS THAT MUST BE AVOIDED
Fava Beans - Dingdong nuts, Mr. Bean
Redwine
Legumes - Habitswelas, Garbanzos, Kadyos or Black Beans, Monggo
Blueberry
Soya Food - Taho, Tofu or Tokwa, Soy Sauce
Tonic Water
Bitter Melon or Ampalaya

Common signs and symptoms of hemolytic anemia: paleness, diziness, headache, difficulty in breathing, rapid and strong heartbeats, tea-colored urine, and abdominal or back pain. Bring your child to his pediatrician as soon as these signs and symptoms appear.

Hope this helps.
Title: Re: About G6PD
Post by: myralmedo on October 25, 2008, 08:27:57 am
halu again mommies! :-*

halu mmy casgalanido, thanks for the infos..yes noted lahat yan my son my son doesnt eat nga ng mga peanuts din ssbhin niya bwal tetet/kurt-kurt hehe.. pati mongo nga susme kawawa naman junakis namin hehe... WAIT! pati amplaya? minsan lang naman cia naeat kasi pait daw...kasi pala un? naku kaylngan mainform ang mga tao sa house :D.. ako lhat ng beans to be safe pati nga baguio beans kasi under din ng legumes... haaay! super thanks for sharing! ;) dr po ba kayo? hehe  ;D ano po ba ang mga pdeng iexamine papa CBC? ok po ba un? pra mamonitor yung red blood cells niya haay motherness hehe

Godabless!0=)
Title: Re: About G6PD
Post by: anne_011 on November 05, 2008, 12:49:20 pm

Hi Mommy!

My son is also positive for G6PD, we've made the confirmation @ UP-manila when hes 5mos i think. Try to check the website or call contact info below for re confirmation.

Good thing you have avoided food/drugs for g6pd.

Hope info below will help you though late na reply ko. bago lang kasi ako dito.

thanks

E-mail address: info@nsrc-nih.org.ph
Website: www.nsrc-nih.org.ph
Phone number: (632) 522- 4396
Cell number: (0920) 9142687
Our office is located at:

NEWBORN SCREENING REFERENCE CENTER
National Institutes of Health,
University of the Philippines Manila
Pedro Gil, Ermita, Manila.
Office Hr: 8:00am - 5:00pm M-F

FOR G6PD Confirmatory at NIH
Schedule: 8:30 - 11:00am Tue - Thu
First Come First Serve
Fee: Php 750.00
Tel. No 525-5171
Title: Re: About G6PD
Post by: mhara on December 03, 2008, 03:40:57 pm
 my baby was diagnose with g6pd syndrome and was confirmed nung ngpatest kami sa NHI.any idea of what is it or can you share some important things or reminders about it.
Title: Re: About G6PD
Post by: ❤ ♏o♏y_η_Rαηe ❤ on December 03, 2008, 03:47:06 pm
hi mommy mhara,

you may look on below link..baka makatulong sayo..konti lang kasi ang knowledege ko about it eh..

http://www.smartparenting.com.ph/parentchat/index.php?topic=949.0
http://www.smartparenting.com.ph/parentchat/index.php?topic=2520.0
http://www.smartparenting.com.ph/parentchat/index.php?topic=2541.0
Title: Re: About G6PD
Post by: mhara on December 03, 2008, 04:09:45 pm
 be specific ano ano nga po ba yung mga bawal na foods sa g6pd positive na baby?
Title: Re: About G6PD
Post by: myralmedo on December 03, 2008, 04:57:53 pm
halu mommy mhara!

my son my son is a g6pd deficiency... is it sa newborn screening ba? alam ko yung hospital will give u do's dont's re g6pd. don't worry mmy bsta follow lang na wag silang pakainin ng mga soya products anything na may soya and legumes. dun po sa link ni bingay ni mmy bautiir masaming insights from mommies na may ganun ang anakis. read nalang po ;)

Godabless!0=)  
Title: Re: About G6PD
Post by: mhara on December 03, 2008, 06:19:35 pm
 Mmy myra di ba bawal din yung naphtalene o yung moth balls kahit madikit lang sa skin nla bawal po yun.safe po ba ang vicks sa g6pd positive babies/
Title: Re: About G6PD
Post by: myralmedo on December 03, 2008, 06:23:17 pm
Quote
Mmy myra di ba bawal din yung naphtalene o yung moth balls kahit madikit lang sa skin nla bawal po yun.safe po ba ang vicks sa g6pd positive babies/

halu mmy mhara... yung nga din i just knew it dito re sa naphtalene pro indi pa naman naeencounteer ni kurt ko...i used vicks mmy ala naman side effects mas hiyang kc c kurt lalo na kapag may colds ngpapalagay talaga cia. yogurt bwal talaga? umapela pa haha...

Godabless!0=)
Title: Re: About G6PD
Post by: mhara on December 03, 2008, 06:32:22 pm
 so far mga antibiotics lang talaga ang mga delikado sa knila esp yung my sulf sa name.pinapakain mo sya ng my sabaw ng sinigang? (knowing na may sitaw un)
Title: Re: About G6PD
Post by: myralmedo on December 03, 2008, 06:36:06 pm
Quote
so far mga antibiotics lang talaga ang mga delikado sa knila esp yung my sulf sa name.pinapakain mo sya ng my sabaw ng sinigang? (knowing na may sitaw un)

kakalurky noh? hehe akin mmy pinapaeat ko cia kahit sabaw lang pro kc ang gwa ng MIL ko bago ilagay yung sitaw separate na yung sabaw niya special treatment talaga kapag adobo ulam may separate na egg cia haaay super avoid lang talaga ;)

Godabless!0=)
Title: Re: About G6PD
Post by: mhara on December 03, 2008, 06:45:07 pm
 huh hope na very obedient mga babies natin paglaki at talagang maiwasan nila yung mga foods na dapat iwasan esp pagnapasok na sila sa school.
Title: Re: About G6PD
Post by: myralmedo on December 04, 2008, 09:27:30 am
uu nga mmy eh train mo na c bby mo yung bunso ba? ako kc c kurt kapag nakakaita ng dark liquid ssabhin niya bwal toyo tetet kahit anung pilit namin yaw niya talaga..sabi ko nge very good cia sana pati sa school..may nabasa ako kapag schooling yung anak na may g6pd iinform yung teeahcer and yung sa canteen nila iba na talaga yung nag-iingat for their health din kc un.. ;)

Godabless!0=)
Title: Re: About G6PD
Post by: mhara on December 04, 2008, 02:49:31 pm
 Hallu mmy Myra! naku not only the teachers and canteen personels kundi pati yung school nurse dapat ma inform sa sakit nila.
 nung hindi pa namin na confirm na positive na talaga sya napakain namin sya ng Cerelac na SOYA AND MILK ata yun ang epekto nung conspitated sya nakakaawa huh!
Title: Re: About G6PD
Post by: icecoolit on December 13, 2008, 12:53:29 am
Hi!

  My youngest is almost 15 months old, and he has G6PD too.  I've read from a thread before na ok lang naman daw ang fava beans (hindi kailangan iwasan) kasi wala daw dito sa pinas.  At first I had that mentality, but my stepmom informed me na meron na dito sa atin kasi nga part yan ng mediterranean food and that there are stores daw that sell fava beans.  So be very vigilant mommies, kasi super nakakatakot yung hemolytic crisis pag nangyari.  Though my doctor (he specializes in hematology so super kampante ako that I got the right doctor) tries to downplay it, takot pa rin ako.  Praning na kung praning pero I always keep an oxygen tank handy (the smallest one lang, and very convenient kasi yun ang business namin  :D) pag may sipon/ubo/lagnat.  I've read somewhere it helps (or it might) pag may hemolytic crisis na, instant help ko lang if it happens para meron on the way to the hospital.

  My doc always reminds me (1) tea-colored urine, and (2) almost cream-colored poop ang mga indications ko bukod dun sa paper-white skin.  I know the drill already pero bumabalik pa rin ako lagi kay doc may kaunting ubo/sipon/lagnat lang siya.  It's better safe than sorry  ;D

  Pati daw mothballs pala bawal, naphthalene kasi yung bawal...  So yung mga kamag-anak niyo na madalas niyo bisitahin, make sure na walang mothballs sa mga cabinets hehe  ;D)

  And my baby had to go back to the hospital after a month nung pag-uwi namin because of neonatal jaundice.  Since birth may jaundice siya na tumagal to more than a month.  Sabi din ng doctor ko buti na lang daw naibalik ko kaagad kasi kung tumaas yung bilirubin levels baka magka-mental retardation.  Super na lang yung fear ko kasi nung umuwi kami (nagpa-phototherapy na kami sa hospital nito before going home), hindi ko siya mapa-arawan kasi nga wala masyadong araw and I keep it between 6am-7:30am kung may araw man. 

  I hope I was able to help  :)
Title: Re: About G6PD
Post by: sheal_22 on December 13, 2008, 11:49:33 pm
My pmangkin is also positive in g6pd pro yung sis k bnbgyan naman niya ng taho kaya tnanong k sya kz bka nkalimutan lang niya pro sbi niya ok lang naman daw un bsta wag lang msyado mdami & hndi evryday... so far la naman bad effect sa pmangkin k yung pgkain ng taho, his now 4 y/o, active & hlthy... thank God!  :D
Title: Re: About G6PD
Post by: mhara on December 22, 2008, 10:20:14 pm
 Mga Mommies out there na my baby na positive sa G6Pd....nilalagyan nyo ba si baby ng OFF Lotion?
 I mean safe po ba sa kanila yun? lagi ko nakakalimutan ask sa pedia eh uuwi na uli kami sa Laguna.
 Advance Merry Christmas sa inyong lahat
Title: Re: About G6PD
Post by: myralmedo on December 23, 2008, 10:12:00 am
Quote
Mga Mommies out there na my baby na positive sa G6Pd....nilalagyan nyo ba si baby ng OFF Lotion?
 I mean safe po ba sa kanila yun? lagi ko nakakalimutan ask sa pedia eh uuwi na uli kami sa Laguna.
 Advance Merry Christmas sa inyong lahat

halu mmy mhara! (again hehe)

ay bawal ba un? c kurt ko nillgyan ko eh.. ala naman sinabi pedia (indi ko pa ask :D) ala naman akong nakikitang side effects

Merry Christmas!  ;) :-*

Godabless!0=)
Title: Re: About G6PD
Post by: mhara on December 23, 2008, 07:33:00 pm
Quote
Mga Mommies out there na my baby na positive sa G6Pd....nilalagyan nyo ba si baby ng OFF Lotion?
 I mean safe po ba sa kanila yun? lagi ko nakakalimutan ask sa pedia eh uuwi na uli kami sa Laguna.
 Advance Merry Christmas sa inyong lahat

halu mmy mhara! (again hehe)

ay bawal ba un? c kurt ko nillgyan ko eh.. ala naman sinabi pedia (indi ko pa ask :D) ala namana kakong nakikitang side effects

Merry Christmas!  ;) :-*

Godabless!0=)
Naku masdyado na akong napaparanoid jan sakit na yan.kasi daming mga may menthol na bawal sa kanila db.like nung mga omega,alaxan kahit mga mouthwash my bawal din kaya halos malahat ko na.
 Since ginagamitan mo si Kurt at sabi mo safe sa kanya sige gagamit na din ako.I'll take it from you Mommy Myra.Hay 5 days akong walang computer huh!
Title: Re: About G6PD
Post by: cheche on December 24, 2008, 11:57:51 am
hi mga mommies! ako dn ang 2nd bby ko G6pd positive dn. sa 22o lang parang ang hirap nga nito kc lahat nlang ng ippkain mo sa kanya tlagang tinitignan mbuti pati na dn mga pinapahid sa knla.. ble 16mos. na cia nw. ang mhrap pa nito kpag mron me nkkusap na ibang mother hnd nla alam kng what yung G6Pd, kaya dme mkarelate kaagad. msta mga bby nyo? what age na nla at what na mga pagkain ang bnibgay nyo sa knla?
Title: Re: About G6PD
Post by: myralmedo on December 25, 2008, 01:55:58 pm
Quote
Naku masdyado na akong napaparanoid jan sakit na yan.kasi daming mga may menthol na bawal sa kanila db.like nung mga omega,alaxan kahit mga mouthwash my bawal din kaya halos malahat ko na.
 Since ginagamitan mo si Kurt at sabi mo safe sa kanya sige gagamit na din ako.I'll take it from you Mommy Myra.Hay 5 days akong walang computer huh!
halu mmy mhara!

merry christmas!  :-*
uu nga eh lahat nalang pro minsan sabi ko minsan lang naman cia eat kaya patry ko rin pro pag lam niya na bawal sa kanya ayaw talaga kahot anung pilit mo hehe... pro ask ko rin sa pedia pro ala naman effect kay kurt nid kc nila insect repellant lalo na sa mga mosquitos. update kita sis :) kisses to ur bby! mwah

Godabless!0=)

Quote
hi mga mommies! ako dn ang 2nd bby ko G6pd positive dn. sa 22o lang parang ang hirap nga nito kc lahat nlang ng ippkain mo sa kanya tlagang tinitignan mbuti pati na dn mga pinapahid sa knla.. ble 16mos. na cia nw. ang mhrap pa nito kpag mron me nkkusap na ibang mother hnd nla alam kng what yung G6Pd, kaya dme mkarelate kaagad. msta mga bby nyo? what age na nla at what na mga pagkain ang bnibgay nyo sa knla?

halu mmy cheche,

ako rin dati gnyan the first time na ininform ako ng hosp regarding g6pd super kaba ako sabi ako na ba un hehe pro nung may orientation and everything ayun may mga ibang mommies din ako na alam un yung iba nga indi nila knows so mega explain pa talaga hehe pro kc c kurt ko 2 yrs and 7 mos na cia medyo big boy na talaga iwas lang yung soya products kahit nga konting content lang ng soya bwal talaga pro minsan naawa ako hehe pinapatikim ko pro cia rin naayaw bwal soya kurt-kurt :D... mdaming insights dito sis kc may mga ibang mommies na anak nila has g6pd extra ingat lang talaga and sbi ng pedia ni kurt ala naman fava beans dito sa pinas un talaga ang pinakabwal pro kahit na safety na rin for our kiddos. Pray lang ntin ang health nila! :)

Merry Christmas!

Godabless!0=)
Title: Re: About G6PD
Post by: mhara on December 29, 2008, 11:11:20 pm
I've been to Kuya's  pedia kanina kasi nilalagnat sya 2 days na galing kasi kami sa liliw eh napakalamig dun hindi sya sanay kaya ayun sinipon nung napaliguan.Napaaga tuloy uwi namin dito.
 I asked if okey lang ba ang vicks sa g6pd positive knowing na metholated yun.Sabi ng pedia okey lang daw yung mga topical na ganun ang dapat iwasan daw talaga is mga medicines at foods na bawal.sa milk naman daw eh walang mga bawal kasi balak ko mgshift sa lactum.Taz ngdagdag sya ng Zinc.
 (wala lang po additional info lang po sa mga mommies out there)
Title: Re: About G6PD
Post by: Zyaj on December 30, 2008, 08:29:25 pm
so what is G6PD????
anybody can explain this to me ? pls...
Title: Re: About G6PD
Post by: nicobee on January 03, 2009, 09:33:20 am
hi mga mommies! ako dn ang 2nd bby ko G6pd positive dn. sa 22o lang parang ang hirap nga nito kc lahat nlang ng ippkain mo sa kanya tlagang tinitignan mbuti pati na dn mga pinapahid sa knla.. ble 16mos. na cia nw. ang mhrap pa nito kpag mron me nkkusap na ibang mother hnd nla alam kng what yung G6Pd, kaya dme mkarelate kaagad. msta mga bby nyo? what age na nla at what na mga pagkain ang bnibgay nyo sa knla?
hello mommy cheche!wala ako baby n may g6pd pro may pamangkin naman ako bale 2years old n sya ngayn,dami bawal n pagkain minsan naaawa nga ako s kanya kc d niya nka2in mga naka2in ng mga cousins niya at parang wlang lasa,pag maysakit d pwede bigyan ng kung anong gamot lang at may binigay ang pedia s mommy niya ng mga bawal n pagkain s kanya,ingat n ingat ang mommy niya s kanya s pagbigay ng pagkain kc bk mkasama s kanya kahit ako minsan d rin ako basta nagbi2gay s bata mahirap n db?
Title: Re: About G6PD
Post by: myralmedo on January 05, 2009, 10:14:42 am
Quote
o what is G6PD?
anybody can explain this to me ? pls...

halu ddy Zyaj (tama ba? hehe)

G6pd is a least sakit sa new born screening bwal ang mga kiddos na nadetect ng may G6PD sa soya products walang gamot dun ang gamot lang is to avoid food/products na may soya content ;)

here's the link may thread din bout g6pd dito sa SP mas madaming info bout it :D

http://www.smartparenting.com.ph/parentchat/index.php?topic=2520.0 (http://www.smartparenting.com.ph/parentchat/index.php?topic=2520.0)

and more of g6dp here : http://www.g6pd.org/favism/english/index.mv (http://www.g6pd.org/favism/english/index.mv)

Godabless!0=)
Title: Re: About G6PD
Post by: Zyaj on January 06, 2009, 08:54:40 am
Quote
o what is G6PD?
anybody can explain this to me ? pls...

halu ddy Zyaj (tama ba? hehe)

G6pd is a least sakit sa new born screening bwal ang mga kiddos na nadetect ng may G6PD sa soya products walang gamot dun ang gamot lang is to avoid food/products na may soya content ;)

here's the link may thread din bout g6pd dito sa SP mas madaming info bout it :D

http://www.smartparenting.com.ph/parentchat/index.php?topic=2520.0 (http://www.smartparenting.com.ph/parentchat/index.php?topic=2520.0)

and more of g6dp here : http://www.g6pd.org/favism/english/index.mv (http://www.g6pd.org/favism/english/index.mv)

Godabless!0=)

Thank you mama myra, i actually read some article about that too, medyo nkk alarm lang kasi, and dito ko lang sya narinig...
thnx for the info....
happy new year!

Title: Re: About G6PD
Post by: mhara on January 17, 2009, 07:02:27 pm
 Ask ko lang po yung mga Mommies out there having a g6pd positive child.....medyo delay din po ba ang mga developments ni baby? (sa paglalakad at pagsasalita)
 Kasi Jaiz almost 1 year and 4mos na sya nung lumakad tapos now he is turning 2 this May pero hndi pa sya nakakabuo ng salita but he is madaldal sobrang haba nga ng sinasabi niya pero wala kaming maintindihan.
 Pagtinuturuan ko sya kahit simpleng Mommy o Daddy iba sinasabi niya ang haba hahaha
Title: Re: About G6PD
Post by: myralmedo on January 19, 2009, 10:21:40 am
Quote
Ask ko lang po yung mga Mommies out there having a g6pd positive child.....medyo delay din po ba ang mga developments ni baby? (sa paglalakad at pagsasalita)
 Kasi Jaiz almost 1 year and 4mos na sya nung lumakad tapos now he is turning 2 this May pero hndi pa sya nakakabuo ng salita but he is madaldal sobrang haba nga ng sinasabi niya pero wala kaming maintindihan.
 Pagtinuturuan ko sya kahit simpleng Mommy o Daddy iba sinasabi niya ang haba hahaha

halu mmy mhara! :)

for me indi naman siguro..kasi si kurt mga ganun age din cia naglakad mga 1 yr&2 mos as in walang alalay..and sa pagsasalita mga 2 yrs old naman pro medyo bulol naiintindihan naman :D.. i think iba iba lang ang development stage ng mag kiddos but if u think na nddelay si bby jaiz better pacheck sa pedia or specialist pro sakin mukang it doesn't effect yung pagiging G6PD nila ;)

hope this helps :D

Godabless!0=)
Title: Re: About G6PD
Post by: mhara on January 19, 2009, 01:42:36 pm
 thanks Mommy Myra You're my hero talaga hehe.
 Siguro nga po if after his 2nd bday at hindi pa talaga i better see a specialist na nga.
 thanks again!
Title: Re: About G6PD
Post by: ahyzeyuh on February 11, 2009, 07:37:00 am
yung anak ng kasin ko my g6pd din, alam ko , bawal yung milk na my soya, basta marami, mga beans, nuts bawal..basta ubod dami ng bawal
buti yung baby ko wala naman.. saka mga moms di ba parang di naman nauso yang g6pd,mga tyms ng nanay,lolal natin at mga ninono and sabi ng pedia ng kasin ko genetics yan, so it cud be frm mom or dad, sbi ng kasin ko both sila dey eat naman any typ of fuds and wlang allergy or bad things na ngyari..
 if yung parents meron di po ba dapat something had happened na to dem since dey werent aware na meron sila?
actually yung anak ng kasin ko eat lang ng eat kht  bawal and as of dis time his still doing good.. walang masamng epekto yung g6pd
Title: Re: About G6PD
Post by: jvfrodriguez on February 25, 2009, 11:28:13 pm
My kids don't have g6pd but my son with autism, tina try namin gawin yung gluten free casein free diet.  And may hawig ng konti sa mga bawal na foods with g6pd.

If you need to get more items for your kids' foods check this site:
www.freelivingfoods.com

--------------------------------
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 All products are readily available, no pre-order required!

 FreeLiving Foods Chicken Favorites:

Chicken Nuggets

Chicken Fingers

Chicken Hotdogs

Chicken Longganisa

Chicken Tocino

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Bacon Strips

Pork Longganisa

Italian Sausage

Pork Tocino

Pork Hotdogs

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Beef Hotdogs

Korean Beef Sirloin

Hamburger Patties

 free Living ready-to-eat Cookies, Breads, Snacks, Treats!

GFCF Waffles

GFCF Bread Rolls

GFCF Vanilla Coco Cookies

GFCF Hershey's Choco Cookies

GFCF Chocolate Gelato Ice Cream

GFCF Vanilla Gelato Ice Cream

 ENVIROKIDZ Cereals - Gorilla Munch, Amazon Flakes

ENVIRO KIDZ Rice Bars - Peanut Butter

Barkatt GFCF Pacake Mix

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Title: Re: About G6PD
Post by: joyz310 on April 20, 2009, 07:09:21 am
my son has g6pd also.so far ok pa naman.bawal ang soya, mga beans and avoid any contact with sulfur based products like napthalene balls.yung mga moth balls.

we were able to talk to a pedia na may specialization sa genetics.she was able to explain why Wolfie has the deficiency and how to cope with it. try to ask your own pedia if they can refer you to somebody.

according to her, i might be the carrier.pero i am not deficient. my hubby and i will need to check kung sino sa amin ang may g6pd.magpapatest pa kami.
Title: Re: About G6PD
Post by: myralmedo on April 20, 2009, 09:07:12 am
Quote
thanks Mommy Myra You're my hero talaga hehe.
 Siguro nga po if after his 2nd bday at hindi pa talaga i better see a specialist na nga.
 thanks again!

haha  :-* you're always welcome mmy mhara  ;) kisses to your baby!  

my son has g6pd also.so far ok pa naman.bawal ang soya, mga beans and avoid any contact with sulfur based products like napthalene balls.yung mga moth balls.

we were able to talk to a pedia na may specialization sa genetics.she was able to explain why Wolfie has the deficiency and how to cope with it. try to ask your own pedia if they can refer you to somebody.

according to her, i might be the carrier.pero i am not deficient. my hubby and i will need to check kung sino sa amin ang may g6pd.magpapatest pa kami.

halu mmy thanks ay talaga may specialist for this kind of situation? anyways, nung binigay yung result samin ciempre todo basa ako hehe nakita ko yung process niya or should i say pano nakukuha ng kiddo natin kasi may x and y chorva na picture criss cross ganyan sabi dun kapag boy ang baby sa mother nakuha or carrier forgot ko na term (sa isip ko nga ano un may g6pd din ako? bawal ang mga soya products kasi sabi nga ng some moms here na nung panahon natin eh wala pa yung newborn screening thankful nga ako na meron na nyan ngaun eh anemic ako eh so baka cause din cia  ;D) and if baby girl naman sa daddy, hay naku if nakapagtest na kayo and ano ang result and sbi ng doctor share nio dito ah? hehe pra maenlighten pa taung mga parents.

super thanks! ;)

Godabless!0=)
Title: Re: About G6PD
Post by: g6pdph on April 22, 2009, 09:08:20 am
 :)
http://g6pdph.multiply.com/


G6PDd simplified:
http://g6pdph.multiply.com/photos/album/5/Hemolytic_Anemia

Photo album of forbidden food, herbs & chemicals for G6PDd kids:
http://g6pdph.multiply.com/photos/album/1/Food_drinks_chemicals_herbs_that_must_be_avoided_by_G6PDds

 
Title: Re: About G6PD
Post by: myralmedo on April 22, 2009, 11:02:42 am
:)
http://g6pdph.multiply.com/


G6PDd simplified:
http://g6pdph.multiply.com/photos/album/5/Hemolytic_Anemia

Photo album of forbidden food, herbs & chemicals for G6PDd kids:
http://g6pdph.multiply.com/photos/album/1/Food_drinks_chemicals_herbs_that_must_be_avoided_by_G6PDds

i see... glad that you invite me hehe bighelp sya promise! :) thanks g6pdh :D

see you at multi account!
ayan mga mommies may account na ang g6pd hehe :D

Godabless!0=)
Title: Re: About G6PD
Post by: Inay_Mae on April 23, 2009, 12:38:58 am
Hello! I'm a newbie here and especially being part in an online forums.Good thing  there's a forum that talks about g6pd. My only son Heart is positive of G6PD, the time na nalaman ko, in denial pa ang beauty,so pina confrmatory test,kahit di pa maliwanag info about it, as far as i know my son have deficiency.Super iyak ang drama while pedia explains to me the do's and dont's. After that research sa net,Ayun di ko na dinibdib,he's now 8 mos old,in god's grace he's healthy so far.
Naintindihan ko na alang med to cure it,alternative is blood tranfusion or correct the genes,cympre ala pa siguro yan sa mundo ng pilipinas. Bantayan lang talga ang bawal,d ma enjoy ni Heart ang taho. Ask ko sa mga mommies na toddlers na mga kiddos, pag ma expose sa bawal what will happen,it varies ba? tsaka yung level ng deficiency sa result, who among you guys can explain?
Title: Re: About G6PD
Post by: myralmedo on April 23, 2009, 10:57:11 am
Quote
pag ma expose sa bawal what will happen,it varies ba?

hi there mommy :) yes super helpful ang mga site na ganito parang d ka nagiisa ang drama diba? hehe my son is turning 3 this May and super avoid lang talaga yung bawal na food. based rin sa mga friends na may gantong case sa mga kiddos nila yung effect kapag nakakain sila is super hyper nakita ko yun kay kurt one time  kasi ayaw ko naman ideprive sa kanya kahit konti matikman niya yung lasa (sabi ng pedia niya puwede naman un once in a while makatikim eh once lang talaga namin ginawa hehe..) hala grabe ang hyper mga past 1am na gising pa din so far un lang naman yung iba sbi ngkakaroon daw ng bruise/pasa, i dunno ano pa sa ibang case. un lang... regards kay bby heart mo  ;)

and Welcome here at SP! :D

Godabless!0=)
Title: Re: About G6PD
Post by: Inay_Mae on April 24, 2009, 06:05:12 pm
thanks mommy myra, cute kiddos... as a first time mom, this space helps and even to many moms out there... i'll promote this to my mom friends... Ciao! God Bless everybody...
Title: Re: About G6PD
Post by: Inay_Mae on April 24, 2009, 06:29:11 pm
Photo album of forbidden food, herbs & chemicals for G6PDd kids:
http://g6pdph.multiply.com/photos/album/1/Food_drinks_chemicals_herbs_that_must_be_avoided_by_G6PDds

After knowing that my son had G6PD, then I surf over the net about it, until I opened the website of Newborn Screening Reference Center, it helped me lot 'coz they are the organization who developed NBS here in the Philippines. However, no pictures included sa mga food and meds to be avoided. The site you gave meron, na shock ako sa methol na pics,di lang pala manufactured methol meds but also herbs na may methol. kaloka! pinapa inom ko pa naman kiddo ko ng oregano for his cough 4 over a week yun! alam nyo na mga mommies,ayaw ko pag may sakit si baby painom agad cough syrup for babies,di naman sa nagtitipid but un ang na impart ng oldies ko at  ayaw kung baby pa lang marami na synthetic sa katawan. Yun pala bawal din herbs w/ methol, iba talaga pag may visuals...Ok pa naman baby ko.
Thank god you shared that web add. God Bless everyone...
Title: Re: About G6PD
Post by: ♫ ♏☻♏Hεη ♥ ℜLįƎ ♫ on June 01, 2009, 05:19:53 pm
huhuh.. We already had a confirmatory test for my baby last May 19, nakuha na rin namin yung result and positive c baby ko.. Punta pa kami pedia niya for further explanation regarding g6pd. Pero nagbigay na ang NIH ng lists ng mga bawal.. Dami bawal..
Title: Re: About G6PD
Post by: riddermark on June 01, 2009, 05:40:27 pm


thanks to the mommies who shared the website. BIG help  ;)

my son is also G6PD. i presumed ako din kasi nagmanifest yung symptoms ng g6pd when i was given Bactrim, isa sa mga bawal na meds, when i was 8 months old. nag blood transfusion ako. yun ang nagsave saakin. so far hindi pa namin alam yung g6pd at mga bawal kaya until i gave birth panay pa rin an kain ko ng mga bawal na foods pala. good thing walang medicines na pinatake saakin. satin naman daw di gaano intense yung sakit na to. tolerable kumbaga pero umiwas pa rin dapat.

just like everyone else, im also searching for more info and updates.
Title: Re: About G6PD
Post by: dej on June 01, 2009, 06:05:36 pm
mga sis my son is also g6pd positive.. nung hndi p siya ng 1 year old hndi ko talaga siya expose sa mga bawal n food pero ngayon medyo medyo sa soya.. baka nga namamana siya kase when i was a kid i used to experience nose bleeding.. as in sobrang nose bleeding..ayun.. pero nothing to worry naman about g6pd as long as hndi siya maeexppose sa mga bawal..ingtan n lang yung sa mga meds..dapat pg mgpapatsek up/mahohospitalize c baby, iinform ang pedia/doctor in charge n g6pd positive c baby.. :)
Title: Re: About G6PD
Post by: dej on June 10, 2009, 02:08:22 pm
tapos sis kagagaling lang kase namen sa pedia today.. sabi ng pedia namen nalilink daw ang g6pd sa antibiotic..kung nagantibiotic tayo during our pregnancy..
Title: Re: About G6PD
Post by: prhea on June 10, 2009, 02:25:22 pm
mga mommies!

what causes G6PD sa mga babies po ba? ano talaga root causes? kasi for sure sa mommies yan nag manifest during on their pregnancies, tama po ba? any idea, mommies? share naman pls...

im preggy kasi and as much as possible gusto kong iwas sa sakit ang baby...

thanks a lot!
Title: Re: About G6PD
Post by: ♫ ♏☻♏Hεη ♥ ℜLįƎ ♫ on June 10, 2009, 02:32:31 pm
I think sa pagiging anemic ko.. When I was preggy before may vitamins ako for Iron kaya lang makakalimutan talaga ako uminom ng mga gamot.
Title: Re: About G6PD
Post by: Inay_Mae on June 10, 2009, 02:43:33 pm
mga mommies!

what causes G6PD sa mga babies po ba? ano talaga root causes? kasi for sure sa mommies yan nag manifest during on their pregnancies, tama po ba? any idea, mommies? share naman pls...

im preggy kasi and as much as possible gusto kong iwas sa sakit ang baby...

thanks a lot!

G6PD Deficiency
What is G6PD deficiency?

Glucose 6-phosphate dehydrogenase (G6PD) deficiency is an enzyme deficiency of the red blood cells. G6PD deficiency leads to an abnormal rupture (breakage) of the red blood cells called hemolytic anemia (abnormally low red blood cell count).

G6PD deficiency is the most common known human enzyme disease, affecting 10% of the world's population.

What is the cause of G6PD deficiency?

The abnormal gene responsible for this inherited enzyme deficiency is located on the X-chromosome. Therefore, the illnesses associated with G6PD deficiency occur more frequently in males than females, since males only have one X-chromosome. There are different degrees of G6PD deficiency, which vary according to the magnitude of the missing enzyme.

G6PD deficiency occurs more frequently in African Americans, Italians, Greeks, Asians, and other Mediterranean peoples.

The degree of red blood cell rupture (hemolysis) varies according to the degree of enzyme deficiency and the drug exposure. Usually, the hemolytic anemia occurs after exposure to certain compounds with oxidant properties, including drugs such as malaria medications (such as primaquine and hydroxychloroquine), sulfonamides, antiitching drugs, dapsone, and others. Compounds with the property of inducing hemolysis in G6PD deficient persons are also found in the fava bean. This condition, known as favism, occurs within a day of ingestion of the fava bean. Favism can cause fever, back pain, headache, nausea, and chills.

Infections, such as pneumonia, can also precipitate the hemolytic anemia in persons who are G6PD deficient.


How is G6PD deficiency diagnosed?

Patients with G6PD deficiency and hemolytic anemia can develop jaundice (yellowing of the eyes). Sometimes jaundice can occur in newborn babies who are G6PD deficient.

The diagnosis is made by blood testing which can demonstrate the inadequate levels of the G6PD enzyme activity by blood testing.

What is the treatment for G6PD deficiency?

Treatment of G6PD deficiency involves discontinuing the offending drug or compound and treating any accompanying infection. Recovery is the rule. Sometimes blood transfusions are needed when the anemia is severe.


So mommies it's nothing to do of what you are taking or doing during pregnancy.
You can check this site too: http://en.wikipedia.org/wiki/Glucose-6-phosphate_dehydrogenase_deficiency
Title: Re: About G6PD
Post by: zoei on June 13, 2009, 04:17:30 pm
hi everyone..question lang. yung eucalyptus ba bawal din sa g6pd deficient? kasi i used to apply this body warming with eucalyptus to my baby before taking a bath, para di sya lamigin..filing ko kasi related to sa menthol. tama ba? is it ok to apply ba?  thanks...
Title: Re: About G6PD
Post by: Inay_Mae on June 14, 2009, 10:48:48 am
hi everyone..question lang. yung eucalyptus ba bawal din sa g6pd deficient? kasi i used to apply this body warming with eucalyptus to my baby before taking a bath, para di sya lamigin..filing ko kasi related to sa menthol. tama ba? is it ok to apply ba?  thanks...

Yes sis bawal eucalyptus pero opinion ko lang topical application lang naman yan, di naman siguro makaka apekto. 
visit this site: http://g6pdph.multiply.com/photos/album/1/Food_drinks_chemicals_herbs_that_must_be_avoided_by_G6PDds 
and also this thread: http://www.smartparenting.com.ph/parentchat/index.php?topic=949.0
Title: Re: About G6PD
Post by: momkate on June 16, 2009, 10:35:08 am
 helo po... i have a 4 y/o son and a 7 mos. old baby girl. pd p bang madetect un at present age of my children?
Title: Re: About G6PD
Post by: ♫ ♏☻♏Hεη ♥ ℜLįƎ ♫ on June 16, 2009, 12:41:28 pm
helo po... i have a 4 y/o son and a 7 mos. old baby girl. pd p bang madetect un at present age of my children?

Nasa result ba ng newborn screening sis if g6pd deficient si baby u sis? try to call NIH #525-5171.
Title: Re: About G6PD
Post by: riddermark on June 17, 2009, 11:17:37 am
mga mommies!

what causes G6PD sa mga babies po ba? ano talaga root causes? kasi for sure sa mommies yan nag manifest during on their pregnancies, tama po ba? any idea, mommies? share naman pls...

im preggy kasi and as much as possible gusto kong iwas sa sakit ang baby...

thanks a lot!

mommy it's in the genes.  X-chromosome link sya. namamana ito.
Title: Re: About G6PD
Post by: my_yaeish on June 17, 2009, 06:52:43 pm
 
Hello Mommies,,, My son is now 8 years old and with G6PD...mahirap...but with God's help he's ok...i just want to share some things like NOT giving him ADOBO...You can give him ADOBO (instead of soy sauce,use PATIS or oyster sauce..it's also delicious...) :)
Title: Re: About G6PD
Post by: ..chey.. on June 18, 2009, 09:21:32 am
sori... ano yung g6pd?
Title: Re: About G6PD
Post by: mommy daryl on July 07, 2009, 11:19:07 am
hi mga sis, sino sa inyo ang may G6PD + na baby/ies? kasi yung dalawang chikitings ko both G6PD + and sobrang ang daming bawal sa kanila na food, meds, at kung anik anik.  Ano po ang ginagawa nyo na prevention para hindi makakain si baby ng mga bawal sa kanila kasi diba lahat ngayon halos ng food may soy lecithin na? Eh bawal sila ng SOY.. haaayyy...
Title: Re: About G6PD
Post by: chill on July 07, 2009, 12:30:11 pm
mommy daryl i suggest u have a copy nun mga bawal and have it laminated. un parang credit card lang para u  can use it as key chain para lagi mo bitbit. have one in your bag all the time, wallet, a bigger copy posted on your ref door and save copies for your hubby and baby. oo nga halos lahat ng food meron soya, pero kailangan mo talaga ieliminate un kc nga hazard un k baby. also educate your baby about her condition, the soonest the better. d naman G6PD c baby ko pero un cousin niya and yan naobserve ko. 3 yrs old pa lang pero alam na niya un bawal sa kanya, amazed nga ako kc sobrang disciplined imagine pag lumaki mas lalo siguro. i also noticed that whenever we get together they bring their own food " good food" for their baby kc nga d maiwasan un mga soya soya na yan. namemorize na nga niya mga bawal k baby niya.
Title: Re: About G6PD
Post by: mommy daryl on July 07, 2009, 12:56:38 pm
hi sis, yun nga eh.. may nabasa pa nga ako na may parent pinagawan niya ng bracelet yung baby niya tas nakalagay dun na GGPD+ sha.  At least, para daw makita ng ibang tao and to remind ren the child about her condition.  Ang hirap talaga sis kasi dalawa pa sila pero iniisip ko mas mahirap siguro kung yung isa eh walang ganung condition baka magkainggitan pa sa mga food na pwede makain. Thanks sa advise sis.
Title: Re: About G6PD
Post by: mama anne on July 18, 2009, 01:24:56 pm
hello mga mommy.... may other way po ba para maipacheck din ang bata if g6pd positive din... yong dalawang anak ko walang new born screening...pero yung youngest ko na newborn screening siya... thanks...God Bless to all mommy!!!!!!!!
Title: Re: About G6PD
Post by: mommy daryl on July 18, 2009, 02:19:19 pm
hello mga mommy.... may other way po ba para maipacheck din ang bata if g6pd positive din... yong dalawang anak ko walang new born screening...pero yung youngest ko na newborn screening siya... thanks...God Bless to all mommy!!!!!!!!

hi mommy, yes there's actually a blood screening kun gusto mo malaman na mag g6pd ren yung 2 kids mo.  You can ask your pedia about it.  My two daughters are G6PD positive though sa newborn screening sha nakita but in your case pwede pa ren naman.
Title: Re: About G6PD
Post by: mama_dona on July 18, 2009, 07:17:58 pm
Yong anak ng officemate ko G6pd positive din. Nomal naman development niya. Kaya lang dami daw bawal na food and even w/ some meds. Basta no, no daw tla sa mga soya products.
Title: Re: About G6PD
Post by: bonbon on August 18, 2009, 05:49:03 pm
hi mga mommies..my son baby nathan is turning 2 months old next week..i just got the result of his confirmatory test for g6pd deficiency yesterday and it turned out positive.13.22 yata ang normal and yung sa baby ko 2.++ lang..parang d nga ako maka2log eh.pero wala na ako magawa, accept ko na lang and face the fact na ganun na talaga. sabi ng nurse sa akin all i have to do is to prevent and avoid yung mga bawal..nakalimutan ko itanong yesterday sa kanya if ok lang gumamit ng anti-flatulent or yung aceite de manzanilla?madalas ko kasi gamitin yun sa tummy ni baby nate..hope you can help me moms...my email add is ambok_98@yahoo.com.thanks!! DADDY BONBON FROM BACOLOD
Title: Re: About G6PD
Post by: mumy-jan on August 18, 2009, 07:09:05 pm
yung pinsan ni papa bear ganyan din, mga 3-4months old na .. daming bawal na food..

nalaman ng parents niya that he's g6pd positive nung nagpa-newborn screening sila..
Title: Re: About G6PD
Post by: style on August 18, 2009, 07:50:39 pm
hi mga mommies..my son baby nathan is turning 2 months old next week..i just got the result of his confirmatory test for g6pd deficiency yesterday and it turned out positive.13.22 yata ang normal and yung sa baby ko 2.++ lang..parang d nga ako maka2log eh.pero wala na ako magawa, accept ko na lang and face the fact na ganun na talaga. sabi ng nurse sa akin all i have to do is to prevent and avoid yung mga bawal..nakalimutan ko itanong yesterday sa kanya if ok lang gumamit ng anti-flatulent or yung aceite de manzanilla?madalas ko kasi gamitin yun sa tummy ni baby nate..hope you can help me moms...my email add is ambok_98@yahoo.com.thanks!! DADDY BONBON FROM BACOLOD

 
 mommy d po b may binigay n list ng mga bawal?kasi kami nung naconfirm n g6pd positive anak ko may binigay sila,,,tapos d n rin ako gumamit ng mga ganyan para sure...kasi nakalagay lang ata dun mga menthol based d b?like mga vaporrub...efficascent...pakicheck mo dun.... :)
Title: Re: About G6PD
Post by: jvfrodriguez on August 18, 2009, 09:37:51 pm
Our moderator in another forum shared this website:

http://www.g6pd.org

It contains daw an extensive list of medications to avoid including Chinese herbs

Another site with an extensive list of what food to avoid daw is
http://g6pddeficiency.org/index.php?cmd=legumes

hope this helps.
Title: Re: About G6PD
Post by: bonbon on August 18, 2009, 10:11:05 pm
mommy d po b may binigay n list ng mga bawal?kasi kami nung naconfirm n g6pd positive anak ko may binigay sila,,,tapos d n rin ako gumamit ng mga ganyan para sure...kasi nakalagay lang ata dun mga menthol based d b?like mga vaporrub...efficascent...pakicheck mo dun.... :)
[/quote]

mommy style, daddy po hehe..if bawal yung aceite de manzanilla, meron po ba kayong ma recommend na substitute?
Title: Re: About G6PD
Post by: mommy daryl on August 19, 2009, 09:57:12 am
mommy d po b may binigay n list ng mga bawal?kasi kami nung naconfirm n g6pd positive anak ko may binigay sila,,,tapos d n rin ako gumamit ng mga ganyan para sure...kasi nakalagay lang ata dun mga menthol based d b?like mga vaporrub...efficascent...pakicheck mo dun.... :)

mommy style, daddy po hehe..if bawal yung aceite de manzanilla, meron po ba kayong ma recommend na substitute?
[/quote]

hi daddy bonbon, g6pd positive yung two daughters ko pero I never used manzanilla na kasi hindi na ren inadvise ng pedia.  :)
Title: Re: About G6PD
Post by: bonbon on August 19, 2009, 10:29:43 pm
mommy d po b may binigay n list ng mga bawal?kasi kami nung naconfirm n g6pd positive anak ko may binigay sila,,,tapos d n rin ako gumamit ng mga ganyan para sure...kasi nakalagay lang ata dun mga menthol based d b?like mga vaporrub...efficascent...pakicheck mo dun.... :)

mommy style, daddy po hehe..if bawal yung aceite de manzanilla, meron po ba kayong ma recommend na substitute?

hi daddy bonbon, g6pd positive yung two daughters ko pero I never used manzanilla na kasi hindi na ren inadvise ng pedia.  :)
[/quote]
meron po ba kayong substitute na ginamit mommy?
Title: Re: About G6PD
Post by: style on August 22, 2009, 08:52:55 pm
mommy d po b may binigay n list ng mga bawal?kasi kami nung naconfirm n g6pd positive anak ko may binigay sila,,,tapos d n rin ako gumamit ng mga ganyan para sure...kasi nakalagay lang ata dun mga menthol based d b?like mga vaporrub...efficascent...pakicheck mo dun.... :)

mommy style, daddy po hehe..if bawal yung aceite de manzanilla, meron po ba kayong ma recommend na substitute?
[/quote]
 
 sorry po...daddy k pala he he he ;D ;D ayos yan daddy!!!
 wala ako alam daddy e..basta pag ganyan pinapadapa ko n lang si baby,,,para mautot..
Title: Re: About G6PD
Post by: Inay_Mae on August 22, 2009, 09:28:14 pm
^my son is also diagnosed w/ g6pd...
one of the thread here aside fron aceite de manzanilla, you can use Virgin Coconut Oil. Di ko pa na try, di naman kasi kabagin baby ko... pero sabi ng other moms effective daw..
Title: Re: About G6PD
Post by: yheng25 on September 02, 2009, 03:48:54 pm
hi to all the mommies!
my eldest is a g6pd patient as well...he's 9yrs old now.i'm so happy that he is surviving the fact that they are not allowed to eat foods with ingredients like soy sauce...but you know what? Adobo is his favorite viand.. but i still ask him not to eat too much...i always thank God kasi kahit ganon ok naman sya until now...the first time i learned about g6pd i was really crying and asking myself why Josh, but in God's will my son is a very healthy big boy. :) ;) ;)
Title: Re: About G6PD
Post by: charmom on September 03, 2009, 04:09:30 am
mga moms, my 2 sons are g6pd positive din po. my eledest is 7 y/o na and my youngest is 4 y/o. ok naman sila and healthy kaso hirap talaga ako kasi bantay to the max ang mga food nila especially yung eldest ko kasi grade 2 na sya. pinapagbaon ko na lang ng food sa school baka ano pa mabili niya. ask ko lang po ano-ano po ba yung legumes? aside from monggo and stringbeans?
Title: Re: About G6PD
Post by: piglet on September 03, 2009, 03:02:24 pm
hi mommies.. baby ko din may g6pd.. he's already 7months old.. you may want to check this site www.g6pd.org  (http://www.g6pd.org) dami matututunan about this site.. ako din sobrang sad pero the pedia said naman na normal pa din si baby it's just that may mga bawal na food and medicines sa kanila.. like ampalaya and toyo.. i think madami na din naman ngayon ang aware dito :)
Title: Re: About G6PD
Post by: vheckiness on September 03, 2009, 03:15:08 pm
mga mommies, my son is also g6pd def. he is only 3weeks old. unang anak namin siya.. The time na tumawag yung hospitl sa bahay to nform me bout the NB screening result at positive nga anak ko sa g6pd, wala akong nagawa kundi umiyak.. until now hindi pa ko makamove on. parang ang hirap kc tanggapin kahit na sinabi pa ng pedia niya na he is normal, magbabago lang ng diet. everytime na tinitignan ko siya, naiiyak ako. yellowish yung skin color niya, yung lips niya napaka-pale.. naiiyak n naman ako right now.. haay.

Title: Re: About G6PD
Post by: vheckiness on September 03, 2009, 03:49:31 pm
hi mga mommies..my son baby nathan is turning 2 months old next week..i just got the result of his confirmatory test for g6pd deficiency yesterday and it turned out positive.13.22 yata ang normal and yung sa baby ko 2.++ lang..parang d nga ako maka2log eh.pero wala na ako magawa, accept ko na lang and face the fact na ganun na talaga. sabi ng nurse sa akin all i have to do is to prevent and avoid yung mga bawal..nakalimutan ko itanong yesterday sa kanya if ok lang gumamit ng anti-flatulent or yung aceite de manzanilla?madalas ko kasi gamitin yun sa tummy ni baby nate..hope you can help me moms...my email add is ambok_98@yahoo.com.thanks!! DADDY BONBON FROM BACOLOD

 
 mommy d po b may binigay n list ng mga bawal?kasi kami nung naconfirm n g6pd positive anak ko may binigay sila,,,tapos d n rin ako gumamit ng mga ganyan para sure...kasi nakalagay lang ata dun mga menthol based d b?like mga vaporrub...efficascent...pakicheck mo dun.... :)

mommy, puwede po ba makahingi nung list mo? wala po kc ako. hindi ko na binalak na maapaconfirmatory test pa. super down ako at this time... parang lagi wala ko s sarili.
Title: Re: About G6PD
Post by: vheckiness on September 03, 2009, 09:20:50 pm
Mga mommies, ask ko lang din po if pinabago ba ng pedia nyo yung formula milk niya? kc my son's milk is S-26 goLd, den when we found out that he is g6pd def., pinachange ng pedia niya yung s-26 to frisolac. hindi daw kc soy based milk ang frisolac.. any comments po or suggestions? what po ang milk ni babies nyo? TIA.
Title: Re: About G6PD
Post by: piglet on September 07, 2009, 08:50:37 am
hi mommy vheckiness.. baby ko milk niya from nb to 6mos is s-26 pero yung hindi gold.. ang pinagbawal lang ng pedia na milk sa kanya is pediasure... ok naman si baby until now kahit nag change na kami ng milk promil na gamit niya..wala namna naging side effect sa kanya.. pero kung gusto mo na sure follow mo na lang si pedia mo :)
Title: Re: About G6PD
Post by: vheckiness on September 07, 2009, 12:01:54 pm
hi mommy vheckiness.. baby ko milk niya from nb to 6mos is s-26 pero yung hindi gold.. ang pinagbawal lang ng pedia na milk sa kanya is pediasure... ok naman si baby until now kahit nag change na kami ng milk promil na gamit niya..wala namna naging side effect sa kanya.. pero kung gusto mo na sure follow mo na lang si pedia mo :)


Thanks mommy piglet.. super ligalig me talaga ngyon kc every night n lang grabe umiyak c isaiah, as in 4hours na iyakan, namamaos na siya kakaiyak kaya naaalarma me if it has something to do with his g6pd case din,. :'(
Title: Re: About G6PD
Post by: piglet on September 08, 2009, 07:12:19 am
^ganun ba mommy.. better check mo kay pedia si baby.. kasi baka may dinaramdam si baby.. sana ok na si baby mo.
Title: Re: About G6PD
Post by: ilovegabe on October 03, 2009, 04:03:39 pm
Same topic threads merged.
Title: Re: About G6PD
Post by: ♫ ♏☻♏Hεη ♥ ℜLįƎ ♫ on October 03, 2009, 10:08:19 pm
wala naman pinagbawal yung pedia ng bebe ko regarding sa milk.. Nung Newborn sya S26 regular tapos now Promil na.. G6PD Def din bebe ko..
Title: Re: About G6PD
Post by: iyah_82 on October 05, 2009, 12:11:23 pm
g6pd din si reese turning 4 months na siya at ang milk niya s26 gold kung may pera kung wala s26 regular. na observe ko lang ngayon sa kanya mahina na siya dumede kaya hindi yung weight niya nung 3mos nsa 5.1kgs lang. unlike before nung 2 mos siya 4.5 kgs siya ngayon tlaga payat siya. napansin ko lang humina siya dumede nung pina take ko siya vitamins cherifer. binilhan ko din siya ceelin kaso sinusuka niya yun natakot ako kaya dko na pina take. ngayon alternate na lang cherifer ska yung zinc ng unilab.
Title: Re: About G6PD
Post by: vheckiness on October 05, 2009, 05:33:30 pm
matapos ang maraming ulit na pagpapalit ng gatas,(s-26 goLd, similac, frisolac, enfalac) ngyon eh stick n kami ni isaiah sa NAN1 H.W. (my skin allergy pla c bebe) Ok naman yung NAN1 HW s kanya, though masasabi kong mabilis makagain ng weight ang enfalac, kaso nagkaka-allergy naman siya dun kaya nan1 hw n kami. tanong ko din kay pedia if ok yung similac hw, if ever bka i-try ko din s kanya un hehe...
Title: Re: About G6PD
Post by: charmom on October 06, 2009, 06:25:47 am
sis, my 2 kids are g6pd def. milk nila is from similac, gain, gainplus, then gainplus school or grow. safe daw un sa may g6pd
Title: Re: About G6PD
Post by: riddermark on October 06, 2009, 10:06:35 am

my baby kuya is g6pd. before we knew it, buti na lang NAN HW binigay na milk ng pedia (because me allergic rhinitis si dad). then she said buti di sya nagbigay ng ibang milk kasi hindi pwede yung iba ke kuya. pero eventually nung nagstart na kaming mag solids, sabi niya soya lecithin is very minimal so ok daw kahit meron. pero soya in general is bawal.
Title: Re: About G6PD
Post by: mgrace1198 on October 12, 2009, 02:21:29 pm
hi sis,
panu u po nalaman na contaminated lang pala yung paper na ginamit
Title: Re: About G6PD
Post by: slaprinoa on November 09, 2009, 07:49:04 am
elow poh sa mga smart parents dito.. im newbie in this site. my daughter has a g6pd.. ask ko lang poh kng anung safe medicine for cough ang dapat ipainum sa kanya.. my daughter is 5months. and first time niya mgkaroon ng cough. thanks!!! p-add n lang poh sa ym nyo for fast communication. charles_mitsui14@yahoo.com.. more power and god bless....
Title: Re: About G6PD
Post by: prettyahyeigh on January 04, 2010, 12:27:56 pm
baby ko din G6PD..natatakot ako for him..
Title: Re: About G6PD
Post by: ahyzeyuh on January 05, 2010, 07:33:05 am
mga mommies, kahit po ba diagnosed with g6pd ang bata pwedi pa rin magtake ng heraclene??
Title: Re: About G6PD
Post by: prettyahyeigh on January 06, 2010, 05:54:27 am
yung baby ko, S-26 Gold siya hanggang nag Promil Gold kami.. kaso pagdating ng 8 months niya nagpoopoo siya ng nagpoopoo palit tuloy kami ng Gain..nga pala i use Baby Oil instead of aciete manzanilla.. bawal po kay baby yung menthol eh..
Title: Re: About G6PD
Post by: riddermark on January 27, 2010, 02:38:10 pm

what's your G6PD baby's milk at 1 yo?
NAN HW3 kami but kuya isnt gaining weight. lately, very poor ang appetite niya tapos milk intake niya hindi rin gaano malakas. his pedia suggest Pediasure. we're quite hesitant kasi sobrang mahal ng pediasure (we now have 2 babies pa and is also taking NAN HW).  so any suggestions or ano experience nyo with other brands?
Title: Re: About G6PD
Post by: prettyahyeigh on January 29, 2010, 07:39:28 am
baby ko, gain xia and talagang maganda siya.. sis I advise more on solid food na siya like rice. baby ko kasi di lang siya gatas rice na din. he cant sleep with out eating rice. 3x a day na po siya magrice. we have been doing this since 7mos siya. ayun tipid din sa gatas, imagine kung walang rice siya eh ngayong may rice nakaka2 1.8k siya for 15days.. sakit sa bulsa ah..
 ;)
Title: Re: About G6PD
Post by: Inay_Mae on February 11, 2010, 12:41:49 am
mga mommies, kahit po ba diagnosed with g6pd ang bata pwedi pa rin magtake ng heraclene??

mommy ahyzeyuh,,, di pa sana ito late reply...ni recommend sa baby ko na may G6PD ang heraclene...1 week ko na syang binibigyan...ok naman...wala namang kakaibang nangyayari kay Heart...
Title: Re: About G6PD
Post by: momgraze24 on February 12, 2010, 07:31:34 pm
youngest ko g6pd din lumabas sa newborn screening mommies, he's already 1yr and 4months old..prob is hindi na namin naipaulit yung test that time dahil naging busy ako..nung sinabi namin sa pedia kahit daw hindi na confirm yung initial screening kelangan pa rin niya iavoid yung bawal there's no way na raw to make sure kung positive or negative siya..so sad lang..daming bawal talaga..
Title: Re: About G6PD
Post by: eramata on February 23, 2010, 07:45:42 pm
anybody in the house knows what brand of milk without SOYA content, para po s may G6PD deficiency babies.
Title: Re: About G6PD
Post by: janice_mc05 on February 26, 2010, 05:24:14 am
there's no way na raw to make sure kung positive or negative siya..so sad lang..daming bawal talaga..

sis..pwede pa kayo magpaconfirmatory test sa UP NIH.. nag-attend ako ng seminar dun before at sinabi nila na pwede pa naman kahit pa ilang taon na si baby..mas maganda kung sigurado ka kung G6PD deficient ba sya or hindi..
Title: Re: About G6PD
Post by: momgraze24 on February 26, 2010, 02:15:24 pm
^talaga sis? panu? need ko ba pumunta sa office nila?
Title: Re: About G6PD
Post by: janice_mc05 on March 03, 2010, 11:18:19 pm
^yup sis..dun mismo sa NIH sa pedro Gil..tas tanong mo na lang sa guard kung saan yung sa new Born screening ia-assist ka na nila..kahit naman daw anong age pwede magpa-test
Title: Re: About G6PD
Post by: riddermark on March 12, 2010, 11:15:07 am
accdg to my mom, when i was 8 months old i had diarrhea. she gave me BACTRIM and my red blood cells reacted. i had severe anemia. the doctors from our province could not diagnose my case. they had to lift me to manila, just the same they say they it was mysterious. i had to undergo blood transfusion. im type AB+ my parents had a hard time looking for donors until a certain janitor from the hospital offered his blood (i wish i was able to know him) and so i was saved.

when i had my first born, he was diagnosed positive for G6PD. upon reading what it is, i came to a conclusion that what happened to me 30 years ago was the same as what G6PD sympotms is when triggered. Bactrim is one of those forbidden drugs for G6PD patients. so i pressumed i am also G6PD positive. years ago we dont have newborn screening yet. people were not informed. i eat all those bawal i even touch and use mothballs. good thing nothing bad happened to me after that incident 30 yrs ago. according to my son's pedia, filipinos can tolerate this disease but is advised to still be cautious and for me to start controlling what i eat. she doesnt want my son to take those bawal and never experiment (though my cousin who is taking medicine said his professor mentioned that it "may" be fixed because when our brain sees that there is an enzyme lacking, the brain tends to order production of it).

now that i have my second son, we were expecting he will also be G6PD positive but to our surprise he isnt!!!!  ;D  so now i am thinking, positive ba talaga ako? because this is X-linked so that means i have one X chromosome that is normal pala! so, carrier lang ako? hmmm, i dont know if i'll still confirm this if yes, i have to undergo tests din. kung mahal, wag na lang  :)
Title: Re: About G6PD
Post by: mommyonsale on March 12, 2010, 01:14:35 pm
Me also sis my son is positive in G6PD.. I am not shocked the first time coz i already knew that kasi yung pamangkin ko meron.. Pero naawa lang ako sa baby ko kasi marami siya hindi maeexperience na kainin but i still give him pakonti konti lang hindi ko kasi matiis ang anak ko.. Kasi s totoo lang yung mga tumitingin n pedia sa anak ko parang hindi naalarma kapag cnasbi ko sa kanila na may G6Pd ang anak ko.. Un bang kapag ask ko sila na "Doc yan po bang gamot na nireseta nyo pwede sa anak ko kasi may G6PD po sya" sasabihin lang oo pwede daw un hindi na titingnan yung mga list na bawal kay baby.. iniicp ko na lang na memorize nila lahat ng bawal.. Hayzzz. Even me sometimes nawawala na tiwala ko sa mga pedia kasi they dont mind it everytime I ask them if pwede.. Lalo na po nung nagpunta ako s isang matanda ng doctor.. Sarado kasi yung clinic before kaya sa kanya kami nagpunta.. Dati daw kasi wala naman newborn screening e e bakit wala naman daw nangyayari sa mga carrier before ng G6PD??? hayzzz Doctor siya sa akin tinanong... Ano b naman ang alam ko dun diba??? Sa ngaun super healthy c baby at pray ko na magtuloy tuloy.. Gatas niya is Pediasure ok b po un??? ano po mga gatas ng baby nyo??? Vitamins na din po???
Title: Re: About G6PD
Post by: riddermark on March 12, 2010, 01:34:38 pm
sis, sa baby ko NANHW sya from the very beginning. di lang sya tabain. nung humina sa milk at huminto sya ngpagkain ng solids at 1yr 4mos, nagvitamins na sya ng appebon pero dati ceelin at nutrillin lang. now he's into pediasure kasi kailangan bumigat ang weight. nalulungkot din ako kasi nakaksawa na ang kinakain niya. sabi ko sa yaya bawal ang me toyo na seasoning. kaya puros rice at konting gulay lang fish din pero very few variety lang.
Title: Re: About G6PD
Post by: momgraze24 on March 12, 2010, 03:37:10 pm
sis ako pinapakain q baby ko ng adobo kahit positive pero minimal intake lang, hindi ko siya pinagttry ng taho..minsan iniisip ko din totoo ba talaga ang g6pd? haay ewan
Title: Re: About G6PD
Post by: lady_torque on March 13, 2010, 12:06:18 am
hi po! my youngest is also G6PD deficient. yung older 2 siblings niya no problem naman.  i'm glad may forum na ganito... what worries me is her 3 week old cough ( productive naman ) but she has no runny nose, less mucus secretions sa nose.  my pedia gave her ambrolex & i continue daw till the cough subsides.

her ate also has this kind of cough pero due to allergens since cats abound our area. my pedia & the eent advised me that the only way to remove the allergy is of course to remove the source pero pasaway na in-laws, mas mahal pa ata ang mga pusa kesa sa mga kids.  is that may be the source of the cough?
Title: Re: About G6PD
Post by: maivy on March 13, 2010, 12:50:47 am
Hi mga mommies! ako naman i have two kids...both boys at both din may G6PD. ang eldest ko ay 6 at ang bunso ay 3. When I gave birth to my panganay, at na-New born screening na siya, nag-positive siya..dinala pa namin siya sa NIH(National Institute of Health) sa may Manila. grabe ang liit pa niya noon,nag-travel kami kahit taga-Laguna pa kami. :( Need kasi i-reconfirm yun test,at ayun nag-positive talaga.  :( :( :(
 Scary for me kasi first baby e.Nung nakita ko yun mga bawal, naawa ako sa anak ko kasi ang dami niya ma-mimiss na pagkain.  :-\ :-\ At ako na-praning naman kasi tuwing may bibilhin ako for my baby,lagi ko check sa list.
  Awa ng Diyos ayos naman siya. Nagkaroon lang ako ng isang episode na siguro related nga sa pagkakaroon niya ng G6PD..hindi din kasi nasabi ng pedia niya nuon yun...1 year old  baby ko nun..hindi ko na matandaan ano ba nakain niya noon, pero naging matamlay siya,at iyak ng iyak..tapos ang IHI niya noon ay naging TEA COLORED..isa sa symptoms ng attack ang TEA COLORED URINE.
   Yun bunso ko naman, positive din.pero ayos din siya at with God's help, hindi nangyari sa kanya yun nangyari sa kuya niya noon..healthy at malikot naman.
     Noong naka-1 year pld na sila pareho, unti-unti ni-introduce ko sa kanila yun mga food na may toyo (adobo, pansit..etc..) tapos observe ko sila, okay naman. Pero hanggang ngayon,hindi ko sila pinapakain ng TAHO..at siyempre sa mga medicines dun talaga ako sobrang carefull at paranoid.
     Naku, ang haba na nito mga mommies.. thank you sa pag-read!
      I also joined this group: g6pd_phils@yahoogroups.com   
    Baka nga may mga mommies dito na naka-join na din sa group na ito.
   
Title: Re: About G6PD
Post by: ahyzeyuh on March 16, 2010, 12:13:37 am
Yung anak ng kasin ko who is diagnosed with g6pd he is now eating taho, he is 2yrs old and 3mos.
At 1st takot din syempre, if g6pd is hereditary then dapat yung parents niya my nangyari na masama sa kanila.


mga mommies, kahit po ba diagnosed with g6pd ang bata pwedi pa rin magtake ng heraclene??

At ako na rin sasagot sa tanong ko, OO pwedi ang heraclene, they asked the pedia ok , its safe
Title: Re: About G6PD
Post by: ♥_caramel_♥ on March 18, 2010, 04:02:47 pm
 my baby is diagnosed with g6pd ,. kasi accdg to his pedia mbaba lang naman daw po ang level but still i worry a lot ,. tas isa p po ngbebreastfeed ako ,. hmmm ,. bwal b q kumaen ng chichirya gya ng piattos Vcut kc my traces sila ng soya ?  :-\ ,.
im willing to sacrifice all for my baby hheheh kht d n q kumaen maski kapirasong chocolate ,.
Title: Re: About G6PD
Post by: mrsbueno on March 18, 2010, 04:07:58 pm
http://kidshealth.org/parent/general/aches/g6pd.html
sis try this link, na search ko lang sya just now...

better kung kakain ka ng healthy since nagbe-breastfeed ka nga. hanggat maari iwasan or i limit mo yung intake sa mga foods na sinabi na me mga content na di pwede ke baby...

hope everything get well....
Title: Re: About G6PD
Post by: mrsbueno on March 18, 2010, 04:09:53 pm
eto yung content...

G6PD deficiency is an inherited condition in which the body doesn't have enough of the enzyme glucose-6-phosphate dehydrogenase, or G6PD, which helps red blood cells (RBCs) function normally. This deficiency can cause hemolytic anemia, usually after exposure to certain medications, foods, or even infections.

Most people with G6PD deficiency don't have any symptoms, while others develop symptoms of anemia only after RBCs have been destroyed, a condition called hemolysis. In these cases, the symptoms disappear once the cause, or trigger, is removed. In rare cases, G6PD deficiency leads to chronic anemia.

With the right precautions, a child with G6PD deficiency can lead a healthy and active life.

About G6PD Deficiency
G6PD is one of many enzymes that help the body process carbohydrates and turn them into energy. G6PD also protects red blood cells from potentially harmful byproducts that can accumulate when a person takes certain medications or when the body is fighting an infection.

In people with G6PD deficiency, either the RBCs do not make enough G6PD or what is produced cannot properly function. Without enough G6PD to protect them, RBCs can be damaged or destroyed. Hemolytic anemia occurs when the bone marrow (the soft, spongy part of the bone that produces new blood cells) cannot compensate for this destruction by increasing its production of RBCs.

Causes of G6PD Deficiency
G6PD deficiency is passed along in genes from one or both parents to a child. The gene responsible for this deficiency is on the X chromosome.

G6PD deficiency is most common in African-American males. Many African-American females are carriers of G6PD deficiency, meaning they can pass the gene for the deficiency to their children but do not have symptoms; only a few are actually affected by G6PD deficiency.

People of Mediterranean heritage, including Italians, Greeks, Arabs, and Sephardic Jews, also are commonly affected. The severity of G6PD deficiency varies among these groups it tends to be milder in African-Americans and more severe in people of Mediterranean descent.

Why does G6PD deficiency occur more often in certain groups of people? It is known that Africa and the Mediterranean basin are high-risk areas for the infectious disease malaria. Researchers have found evidence that the parasite that causes this disease does not survive well in G6PD-deficient cells. So they believe that the deficiency may have developed as a protection against malaria.

G6PD Deficiency Symptom Triggers
Kids with G6PD deficiency typically do not show any symptoms of the disorder until their red blood cells are exposed to certain triggers, which can be:

illness, such as bacterial and viral infections
certain painkillers and fever-reducing drugs
certain antibiotics (especially those that have "sulf" in their names)
certain antimalarial drugs (especially those that have "quine" in their names)
Some kids with G6PD deficiency can tolerate the medications in small amounts; others cannot take them at all. Check with your doctor for more specific instructions, as well as a complete list of medications that could pose a problem for a child with G6PD deficiency.

Other substances can be harmful to kids with this condition when consumed or even touched such as fava beans and naphthalene (a chemical found in mothballs and moth crystals). Mothballs can be particularly harmful if a child accidentally swallows one, so ANY contact should be avoided.

Symptoms of G6PD Deficiency
A child with G6PD deficiency who is exposed to a medication or infection that triggers the destruction of RBCs may have no symptoms at all. In more serious cases, a child may exhibit symptoms of anemia (also known as a hemolytic crisis), including:

paleness (in darker-skinned children paleness is sometimes best seen in the mouth, especially on the lips or tongue)
extreme tiredness
rapid heartbeat
rapid breathing or shortness of breath
jaundice, or yellowing of the skin and eyes, particularly in newborns
an enlarged spleen
dark, tea-colored urine
Once the trigger is removed or resolved, the symptoms of G6PD deficiency usually disappear fairly quickly, typically within a few weeks.

If symptoms are mild, no medical treatment is usually needed. As the body naturally makes new red blood cells, the anemia will improve. If symptoms are more severe, a child may need to be hospitalized for supportive medical care.

Diagnosing and Treating G6PD Deficiency
In most cases, cases of G6PD deficiency go undiagnosed until a child develops symptoms. If doctors suspect G6PD deficiency, blood tests usually are done to confirm the diagnosis and to rule out other possible causes of the anemia.

If you feel that your child may be at risk because of either a family history or your ethnic background, talk to your doctor about performing a screening with blood tests to check for G6PD deficiency.

Treating the symptoms associated with G6PD deficiency is usually as simple as removing the trigger that is, treating the illness or infection or stopping the use of a certain drug. However, a child with severe anemia may require treatment in the hospital to receive oxygen, fluids, and, if needed, a transfusion of healthy blood cells. In rare cases, the deficiency can lead to other more serious health problems.

Caring for Your Child
The best way to care for a child with G6PD deficiency is to limit exposure to the triggers of its symptoms. With the proper precautions, G6PD deficiency should not keep your child from living a healthy, active life.

Reviewed by: Steven Dowshen, MD
Date reviewed: November 2009



Title: Re: About G6PD
Post by: Aragtrz on March 18, 2010, 04:12:15 pm
This topic has been moved to Child's Health (http://www.smartparenting.com.ph/parentchat/index.php?board=26.0).

http://www.smartparenting.com.ph/parentchat/index.php?topic=15012.0
Title: Re: About G6PD
Post by: Aragtrz on March 18, 2010, 04:21:24 pm
Please go to All about G6PD (http://www.smartparenting.com.ph/parentchat/index.php?action=post;topic=949.0)
Title: Re: About G6PD
Post by: ♥_caramel_♥ on March 18, 2010, 04:22:52 pm
 thank u po mami ,. =) ,. kakaen n lang ako ng mdme hehe ,. how shud i col u po momi ? ,.  8) ,.
Title: Re: About G6PD
Post by: Aragtrz on March 18, 2010, 04:34:50 pm
caramel_delarosa welcome to Smart Parenting.
Please take time to read our SP Rules (http://smartparenting.com.ph/parentchat/index.php?topic=115.0) and please refrain posting in textspeak. thanks.
Title: Re: About G6PD
Post by: ♥_caramel_♥ on March 18, 2010, 04:46:45 pm
 oh my im sorry for that thank u for the reminders ^^
Title: Re: About G6PD
Post by: yurie on March 22, 2010, 06:17:52 am
 :)..helllo mommies!!! just wana ask ano po yung safe formula milk n pdng gmtin sa baby n may g6pd? may baby is 3 months old and im very worried about the milk she drink..hope those mommies who have the same situation like me... plsss..help me..and also sa mga ngpaconfirmatory test sa up manila ng baby nila n may g6pd...na may pamphlet...(correct spelling??? ;D)..sana naman po mbigyn nyo q...hope you can help me with my problem..sobrang praning n ako sa sakit ng baby q.... :-[...thank you!!!
Title: Re: About G6PD
Post by: yurie on March 22, 2010, 07:35:59 am
:)...elow mommies..im newbie..nbsa q yung mga comments nio about sa g6pd..same with my baby girl..chanelle ...she's positive g6pd defecient..mdyo praning n nga ako..now she's turning 3 months..mommies.??!!!.can you help me..ano po bang safe formula milk ang pd sa may g6pd?? d kc ako ngbrestfed sa baby q..kc siya n rin mismo ang umayaw..ngaun nestogen one yung gmit q..okie po b un..hope you can suggest any formula milk n pd inumin ng baby q...?
Title: Re: About G6PD
Post by: Aragtrz on March 22, 2010, 08:08:13 am
yurie, welcome to Smart Parenting.
Please take time to read our SP Rules and please refrain posting in textspeak. thanks.
Title: Re: About G6PD
Post by: ♥_caramel_♥ on March 22, 2010, 02:15:34 pm
mommy yurie; my baby has g6pd 2.01 lang naman yun nasa result ,. pero ang binigay saken ng pedia ni baby ay similac ,.
Title: Re: About G6PD
Post by: ♥_caramel_♥ on March 25, 2010, 06:07:38 pm
:)...elow mommies..im newbie..nbsa q yung mga comments nio about sa g6pd..same with my baby girl..chanelle ...she's positive g6pd defecient..mdyo praning n nga ako..now she's turning 3 months..mommies.??!!!.can you help me..ano po bang safe formula milk ang pd sa may g6pd?? d kc ako ngbrestfed sa baby q..kc siya n rin mismo ang umayaw..ngaun nestogen one yung gmit q..okie po b un..hope you can suggest any formula milk n pd inumin ng baby q...?

--- sis baby ko din my g6pd nirecommend ng pedia niya similac
Title: Re: About G6PD
Post by: yurie on March 27, 2010, 06:57:05 am
 ;D..mommy caramel..thank you for your replay!!! same lang pala tau..similac..yun din kasi yung binigay ng pedia niya..worried kasi ako..kasi pagbinasa mo yung label niya..may soy oil..so naicp ko..pwede kaya un..kaya super ask ako kong anung brand yung pwede...so now..panatag mom na ako...thank you so much mommy caramel!!!..hope this is not the last time we can have this kind of forum...God Bless YOu and your Family!! :-*
Title: Re: About G6PD
Post by: yurie on March 27, 2010, 07:11:37 am
;D..mga mommies!!! may i ask!! panu nyo po nagagawa yung may pic. ng baby nio na parang ngslideshow..yung lumalabas sa ilalim ng mga message nio? turuan nio naman ako...inggit ako hahaha...thanks!!!!
Title: Re: About G6PD
Post by: ♥_caramel_♥ on March 28, 2010, 03:44:39 pm
;D..mommy caramel..thank you for your replay!!! same lang pala tau..similac..yun din kasi yung binigay ng pedia niya..worried kasi ako..kasi pagbinasa mo yung label niya..may soy oil..so naicp ko..pwede kaya un..kaya super ask ako kong anung brand yung pwede...so now..panatag mom na ako...thank you so much mommy caramel!!!..hope this is not the last time we can have this kind of forum...God Bless YOu and your Family!! :-*


**of course sis this isn't the last time that we're going to talk hehe right now pinalitan na milk ni baby FRISOMEL na ,. pk lang yung similac tinanong ko sa pedia before yung about sa soya oil content sabe niya  ok lang kasi pint lang o isang patak lang halos yung soya content na yun tsaka mababa lang daw g6pd rate ni baby 2.01 lang ,. sa baby mo ?  8)
Title: Re: About G6PD
Post by: idd1005 on March 30, 2010, 12:36:41 am
hi momsies! my baby's now drinking enfalac a+ & it has a very positive effect to her.  shes 5.9kls, 4 months na sya this april 30.  i've also tried s26 gold & s26 lactose free & ok din sya (trusted brand pa).  pls try to visit www.g6pddefiency.com . i switched to enfalac a+ kasi sabi pedia medyo matamis daw ang s26.

very helpful ang facts dun & may mga printables to guide us lalo na sa mga contraindicated drugs & foods.  as per our pedia, iwas lang sa mga bawal as our baby's growing up kasi ang effect pag mali ang na intake o nagka contact sila sa bawal is hemolytic anemia agad.
Title: Re: About G6PD
Post by: ♥_caramel_♥ on March 30, 2010, 01:42:16 pm
moomy idd1005: i agree on that yun din sabe ng pedia ng baby ko iwas lang sa mga bawal  para safe si baby  8)
Title: Re: About G6PD
Post by: yurie on April 05, 2010, 08:53:02 am
 ;)..naku mommy caramel..10. yung lumabas sa result ng baby ko nung ngpaconfirmatory test ako..ngayon nga may sipon and ubo yung baby ko..mild lang naman..kaso bilis niya pumayat..naawa na nga ako sa baby ko..kc di sya tulad ng ibang baby n chubby...ok lang yung katawan niya...5.5 kilos nga lang siya..ei kakasimula pa lang naman niya sa similac kaya try ko kong mag-gain sya ng weight..and medyo tumaba..di kc sakin nangbreastfed yung baby q..kc from the very start..sa bottle ko napainum..kasi nung nasa hospital kami..di agad ako nagkagatas..so naawa naman ako sa baby q..umiiyak kaya pinag-fed ko sya sa bottle agad hanggang doon na sya nasanay... :(...sana kahit sa formula milk..tumaba yung baby ko and maging healthy.... :(
Title: Re: About G6PD
Post by: yurie on April 05, 2010, 08:58:11 am
mommy idd1005..buti pa yung baby mo..5.9 kls...sana maging ganyan din kabigat yung baby q..talaga!!?? enfalac a+ yung milk ng baby mo..sakin kasi similac..di ko pa naman nakikita yung result ng milk sa baby ko..kasisimula pa lang kasi namin..pag di effective..ask ko yung pedia ko kung puwede kami magpalit ng milk,,anyway,,ano nga bang vit. ng baby mo?
Title: Re: About G6PD
Post by: ♥_caramel_♥ on April 05, 2010, 04:29:55 pm
sis yurie nag-gain naman ng weight yung baby ko sa similac ,.  ;D ,. naku minsan naiinggit din ako sa ibang mga batang chubby pero ok lang ,. may sipon din si baby ko ,. nabasa ko before na madali talagang magkasaket ang mga babies with g6pd ,. they are prone to viral infection at mahina ang immune system ,. kaya dapat ingat talaga ,.
Title: Re: About G6PD
Post by: mommy_riza on April 06, 2010, 02:56:53 pm

Hi! to all moms out there i just wanna share my worries kasi yung baby k ng positive siya s G6PD ang dmi ng bwal s kanya medecine, food like taho evrthing with soya,  amplaya, monggo. hay, I can't  imagine kung ano nalang yung puwede nyang kainin.... need some advice thanks and more power to all of us....
Title: Re: About G6PD
Post by: ♥_caramel_♥ on April 06, 2010, 04:56:22 pm
my son too,. i was worried till now pero mabuti na lang at 2.01 lang ang result ni baby sabe ng pedia ,. mild lang daw pag ganun ,. at ok lang daw kasi most children who has g6pd can live a normal life basta wag lang maeexpose sa mga bawal sa may g6pd ,. ok lang yan sis dapat tatagan mo lang loob mo
Title: Re: About G6PD
Post by: Aragtrz on April 06, 2010, 04:57:06 pm
This topic has been moved to Child's Health (http://www.smartparenting.com.ph/parentchat/index.php?board=26.0).

http://www.smartparenting.com.ph/parentchat/index.php?topic=15502.0
Title: Re: About G6PD
Post by: alvz on April 06, 2010, 06:37:37 pm
hi.. dont worry hindi naman prob talaga yan and normal lang yan mag panic ka when my defficiency syndrome and baby mo but actually just be careful lang sa bawal esp the moth ball/nepthalene before ako umuwi frm hospital pinatanggal ko lahat yun at may na aamoy ako pinapagalitan ko hubby hihi but ok naman baby 5 months na siya ngayon just be aware of those bawal lang talaga. sabi nga nang ibang ka kilala ko bakit daw noon wala naman yan bat ngayon meron nag ganyan2x. but no worries...
Title: Re: About G6PD
Post by: mommy_riza on April 08, 2010, 08:26:34 am

Hi! to all moms out there i just wanna share my worries kasi yung baby k ng positive siya s G6PD ang dmi ng bwal s kanya medecine, food like taho evrthing with soya,  amplaya, monggo. hay, I can't  imagine kung ano nalang yung puwede nyang kainin.... need some advice thanks and more power to all of us....
Title: Re: About G6PD
Post by: mommy_riza on April 08, 2010, 08:35:00 am
                               Hi! ;D  yurie! ano nga b yung milk n    puwede s baby n my g6pd kasi yung baby q we tried promil stage 2 gold i think ok naman yung weight na b4 kc nd p q ng wo2rk ngbbreast feeding ako infainess ang taba ng baby q eh ngaun ngwo2rk n ko hnd k n siya m breast fed kaya ng formula kami he's 7 months now.. some advice naman thanks! ;D
Title: Re: About G6PD
Post by: thirdysmom on April 08, 2010, 02:54:27 pm
hi mommy_riza,

pina-confirmatory test niyo na po ba si baby sa UP Manila?

kasi si Tri ko, 22months old na siya pero hindi na namin dinala sa UP Manila for the 2nd test. Dun sa NBS niya, nagpositive din siya sa G6PD but his pedia said na mild case lang daw yung lumabas na yun at mataas ang possibility na magnegative siya sa confirmatory test. sinabi din sa amin ang mga bawal na food. actually, ang nabanggit lang sa amin ay yung certain type of potato at pea na sa ibang bansa available. Ganun din yung pamangkin ko na 4yrs old na nagyon. positive din sa NBS niya, pero ngayon healthy naman. kumakain ng taho, mongo, patatas, etc. I dont think you should be worried, sis.  :)
Title: Re: About G6PD
Post by: ♥_caramel_♥ on April 09, 2010, 06:01:33 pm
                               Hi! ;D  yurie! ano nga b yung milk n    puwede s baby n my g6pd kasi yung baby q we tried promil stage 2 gold i think ok naman yung weight na b4 kc nd p q ng wo2rk ngbbreast feeding ako infainess ang taba ng baby q eh ngaun ngwo2rk n ko hnd k n siya m breast fed kaya ng formula kami he's 7 months now.. some advice naman thanks! ;D


sis ok naman yung similac eh ,. nung 2-5 months sya yun ang binigay ng pedia niya eh tumaba naman si baby at bumigat ,. ngayon pinalitan na yung gatas ni baby kasi 6mos. na sya ,. ang milk niya ngayon ay frisomel ., ayun po ^^
Title: Re: About G6PD
Post by: niezl on April 12, 2010, 10:46:02 am
is NAN 1 HW ok for g6pd babies.  yun kasi give ng pedia ng baby ko, pero i read somewhere na hindi daw. pls. enlighten me. thanks.
Title: Re: About G6PD
Post by: riddermark on April 12, 2010, 10:51:50 am
^ our baby's pedia probably knows best. kung yun yung binigay niya na milk and he/she knows that you baby is G6PD then there's nothing to worry.

my boy (G6PD) is also taking NAN HW ONE derederetso yan to TWO and THREE. it is safe and mas recommended pa ng pedia niya kasi may allergy si dada, kahit papano maiwasan ang early manifestations kung mamana niya yung allergy ng daddy niya.  ;)
Title: Re: About G6PD
Post by: niezl on April 12, 2010, 10:57:27 am
hi, super un aware ako that g6pd exist before, kaya na depressed ako when i found out my baby is positive. just gave birth a month ago. nag research ako sa internet, pero nakaka praning reading articles with medical terms.  I'm glad i saw this site. talking to mommies with same case.  i hope you can help me sa mga practical tips pati basic needs ng baby ko.
best formula milk for g6pd. kasi wala ako breastmilk eh. say ng friend ko maybe because of stress.  Thank you.
Title: Re: About G6PD
Post by: niezl on April 12, 2010, 11:07:24 am
@ mum_li$$ :
Thanks for the reply. ilang buwan na baby mo? my history din ng allergy both my husband & I. kaya daw NAN 1 HW ang ok.

Right now may cough & colds na din si baby.  i'm worried kasi yun eldest ko, nag start lang magkaron ng C&C after 6 months. does this mean mahina ang katawan ng mga G6pd babies. sana naman hindi. thanks.
Title: Re: About G6PD
Post by: ♥_caramel_♥ on April 12, 2010, 01:33:54 pm
@ mum_li$$ :
Thanks for the reply. ilang buwan na baby mo? my history din ng allergy both my husband & I. kaya daw NAN 1 HW ang ok.

Right now may cough & colds na din si baby.  i'm worried kasi yun eldest ko, nag start lang magkaron ng C&C after 6 months. does this mean mahina ang katawan ng mga G6pd babies. sana naman hindi. thanks.


*** pasingit lang ,. sis tama ka mashina nga ang immune system ng mga may g6pd ,. they are prone to viral infections which is dapat maiwasan as much as possible ,. ganyan din baby ko lage may sipon at ubo ,. inga tlang tayo kasi pwede pa matuloy sa hika yun always follow our pedia's advise ., tapos regarding sa milk ok naman yung NAN sa baby eh  that was my baby's milk when he was 2 mos. kaso di niya hiyang so pinalitan ng pedia niya ^^ ,. hope this helps  ;)
Title: Re: About G6PD
Post by: ♥_caramel_♥ on April 12, 2010, 01:39:57 pm
hi, super un aware ako that g6pd exist before, kaya na depressed ako when i found out my baby is positive. just gave birth a month ago. nag research ako sa internet, pero nakaka praning reading articles with medical terms.  I'm glad i saw this site. talking to mommies with same case.  i hope you can help me sa mga practical tips pati basic needs ng baby ko.
best formula milk for g6pd. kasi wala ako breastmilk eh. say ng friend ko maybe because of stress.  Thank you.


*** hi sis ^^ welcome sa SP ,. when i also found out that my baby has g6pd iyak ako ng iyak sa hubby ko ,. i learned how to be strong na , instead of worrying a lot i try to protect my baby and take good care of him. Praning din ako when he has sipon or cough kasi nga nabasa ko before na prone nga ang may g6pd sa ganung saket, I researche da lot also and from time to time chinecheck ko yung mga bawal na food or gamot sa kanya ,. maski sa formula milk tinitignan kong maigi yung mga ingredients .. and i follow every word of my baby's pedia ,. so masasabi ko lang sis wag ka masyado mag-worry nowadays common na sa lahat ng bata yung g6pd ,. we have to be strong for our babies ,. iwas lang tayo sa mga bawal kay baby para safe ^^
Title: Re: About G6PD
Post by: niezl on April 12, 2010, 03:59:14 pm
@ Caramel_delarosa
Thank you. super appreciate ko yun advise & support.  I'm glad i found this site.
Nag inquire na ako sa NHI for parent seminar. I call them daw ulit this June for possible slot sa seminar. They prioritize daw mga 6 months baby.

PS... I like the baby calendar/milestone that I see below sa post niyo. its' cute. paano yun na attach? Thanks again
Title: Re: About G6PD
Post by: ♥_caramel_♥ on April 12, 2010, 05:08:59 pm
@ Caramel_delarosa
Thank you. super appreciate ko yun advise & support.  I'm glad i found this site.
Nag inquire na ako sa NHI for parent seminar. I call them daw ulit this June for possible slot sa seminar. They prioritize daw mga 6 months baby.

PS... I like the baby calendar/milestone that I see below sa post niyo. its' cute. paano yun na attach? Thanks again

*** sis the parent seminar san at when po yun? i want to attend mga ganun ,. pwede ba kahit hindi na NHI user? ,. PM kita on ohw to mkae lilypie ^^
Title: Re: About G6PD
Post by: niezl on April 13, 2010, 02:42:43 pm
@Caramel -
National health institute , tel no. 307-07-80 local 103, Newborn screening admin.
parents with g6pd babies can join naman daw. between june-july daw ang next seminar. pero limited slot. bale by june mag inquire daw kung may vacant. priority daw nila kasi mga 6 months na ang baby, since mag start na sa solid food.  They'll explain daw the g6pd, tapos they'll answer questions from parents. 
Title: Re: About G6PD
Post by: niezl on April 14, 2010, 06:27:31 pm
Hi to all.  Does anybody know where to buy MILA goats milk? I read an article that MILA is good for g6pd babies. Thank you
Title: Re: About G6PD
Post by: niezl on April 16, 2010, 11:08:38 am
went to a hema-pedia yesterday.  I felt better hearing a specialized doctor explain the situation of my son.  kahit papaano less guilt & stress na ako.  Hope everything turns out good for all mommies like us.
Title: Re: About G6PD
Post by: niezl on April 16, 2010, 02:58:17 pm
@ Caramel_delarosa:
National Institute of Health
University of the Phil., Manila
625 Pedro Gil, Ermita Manila
1000
Title: Re: About G6PD
Post by: ♥_caramel_♥ on April 17, 2010, 01:56:13 am
niezl: sis thanks po i'll try to inquire po thanks
Title: Re: About G6PD
Post by: niezl on April 17, 2010, 07:21:46 pm
@caramel:
naku sis caramel, huwag mo ako e "PO". feeling ko ang tanda ko na... madadagdagan ang post partum ko. hehe
Title: Re: About G6PD
Post by: ♥_caramel_♥ on April 17, 2010, 07:36:44 pm
@caramel:
naku sis caramel, huwag mo ako e "PO". feeling ko ang tanda ko na... madadagdagan ang post partum ko. hehe


*** sis natawa ako hahah ,. ilan taon ka na ba?  ;D
Title: Re: About G6PD
Post by: Jannah Louise Marqueses Ramirez on April 18, 2010, 09:14:43 pm
hi caramel ang baby ko may g6pd din.. bona nga pinapainom ko eh.. hindi ko alam na may ingredients pala syang soya hindi kona kasi nabasa.. na try mo na ba yung similac na sinabi sau nung isang sender? aus lang ba na yung ang gamitn?
Title: Re: About G6PD
Post by: ♥_caramel_♥ on April 18, 2010, 09:36:23 pm
hi caramel ang baby ko may g6pd din.. bona nga pinapainom ko eh.. hindi ko alam na may ingredients pala syang soya hindi kona kasi nabasa.. na try mo na ba yung similac na sinabi sau nung isang sender? aus lang ba na yung ang gamitn?


*** sis baby ko nga po yung nagamit ng SIMILAC,.but that was before ngayon kasi pinalitan na nga pedia yung milk ni baby to FRISOMEL na po ,. okay naman yung similac sa baby ko eh,. ^^
Title: Re: About G6PD
Post by: ♥_caramel_♥ on April 18, 2010, 09:54:13 pm
sis jannah: not relly naman may effect agad paliwanag kasi ng pedia ng babyko kasi nagtanong nga akosa kanya kasi i saw the soya content sa milk ni baby, sabe niya it's ok naman daw kasi isang pint lang naman daw yung soya content g milk ng mga bata. . .pero most of the time it really depends sa result ng g6pd confirmatory test, kasi sa baby ko 2.01 lang ang g6pd niya ,. sa baby mo po?
Title: Re: About G6PD
Post by: Jannah Louise Marqueses Ramirez on April 18, 2010, 09:55:05 pm
hi caramel ang baby ko may g6pd din.. bona nga pinapainom ko eh.. hindi ko alam na may ingredients pala syang soya hindi kona kasi nabasa.. na try mo na ba yung similac na sinabi sau nung isang sender? aus lang ba na yung ang gamitn?


*** sis baby ko nga po yung nagamit ng SIMILAC,.but that was before ngayon kasi pinalitan na nga pedia yung milk ni baby to FRISOMEL na po ,. okay naman yung similac sa baby ko eh,. ^^

ay ganun ba sis... bago lang kasi ako dito buti nga may nakita akong gantong site.... 6 months ko kasi sya na bona.. may epefto na kaya un? medyo madilaw na din ihi niya... please help.. laking tulong talaga pag may kausap ka na ganun din sitwasyon
Title: Re: About G6PD
Post by: Jannah Louise Marqueses Ramirez on April 18, 2010, 09:58:54 pm
sis jannah: not relly naman may effect agad paliwanag kasi ng pedia ng babyko kasi nagtanong nga akosa kanya kasi i saw the soya content sa milk ni baby, sabe niya it's ok naman daw kasi isang pint lang naman daw yung soya content g milk ng mga bata. . .pero most of the time it really depends sa result ng g6pd confirmatory test, kasi sa baby ko 2.01 lang ang g6pd niya ,. sa baby mo po?

i forgot e.. nasa bahay kasi yung result... sis i back to you tom.. sobrang thank you... kanina ko lang kasi nakitang may content na soya yung gatas niya.. balak kona kasi i cerelac si baby kasi gusto na sya pakainin ng nanay ko.. pag tingin ko may soya din pala ang cerelac kaya naisip ko tignan yung bona tapos aun nga meorn nga... by the way my name is anna marie.. i just used my baby name kasi love na love ko sya.. u have fb account? can i add u up? or ym instead
Title: Re: About G6PD
Post by: ♥_caramel_♥ on April 18, 2010, 10:10:06 pm
sis my username here is also my username in FB and YM heheh you can add m up po ^^
Title: Re: About G6PD
Post by: Jannah Louise Marqueses Ramirez on April 18, 2010, 10:11:41 pm
caramel add kita as fb... till tom.. see yah
Title: Re: About G6PD
Post by: ♥_caramel_♥ on April 18, 2010, 10:14:28 pm
 okay po ^^ ,. hope to chat or talk to you some time mommy anna marie ^^
Title: Re: About G6PD
Post by: peaches on May 19, 2010, 05:25:10 pm
have you tried na dalhin sa dentist ang g6pd kids nyo? may bawal ba?
Title: Re: About G6PD
Post by: ♥_caramel_♥ on May 19, 2010, 05:33:28 pm
i haven't tried po sis since my baby is just 7 mos. old ,. ^^
i think di naman masama kung dalhin sa dentist ang anak mo po , or to be sure you can ask your pedia ^^
Title: Re: About G6PD
Post by: riddermark on May 20, 2010, 10:52:45 am
^^ i think there's nothing wrong in seeing a dentist, no correlation with G6PD.  but to be sure, you may inform your dentist about his condition just to be aware kung meron content yung gamot niya or anything na ibibigay sa baby mo na bawal sa G6PD patients.  yes, ask your pedia din.
Title: Re: About G6PD
Post by: caelebsmom on June 16, 2010, 01:06:55 pm
Hi! My 2.5 month-old son is G6PD deficient and I am exclusively breastfeeding him. Should I avoid soy products as well since my baby is nursing from me?
Title: Re: About G6PD
Post by: ♥_caramel_♥ on June 16, 2010, 01:35:12 pm
Hi! My 2.5 month-old son is G6PD deficient and I am exclusively breastfeeding him. Should I avoid soy products as well since my baby is nursing from me?


yes sis you should ,. even nuts ,. that was what i did when i was still breastfeeding my son ,. ^^ even now, my family members try to avoid the food  that are not good for my baby's health para kalakihan niya ^^
Title: Re: About G6PD
Post by: septamush on June 17, 2010, 04:14:17 pm
Hi! My 2.5 month-old son is G6PD deficient and I am exclusively breastfeeding him. Should I avoid soy products as well since my baby is nursing from me?


Tama mommy... avoid nuts soya and anything na beans... kahit hindi fava beans... avoid din anything na my sulfur for you baby.. sabi sa web sulfur kasi can cause internal bleeding sa head niya...

yes sis you should ,. even nuts ,. that was what i did when i was still breastfeeding my son ,. ^^ even now, my family members try to avoid the food  that are not good for my baby's health para kalakihan niya ^^
Title: Re: About G6PD
Post by: kaela on June 27, 2010, 10:51:29 pm
pang fourth baby ko na ito pero siya lang ang g6pd positive...mixed fed siya...breastfeeding and powdered milk pag umaalis ako ng bahay..will it affect her? she's already 2month old.
Title: Re: About G6PD
Post by: ♥_caramel_♥ on June 28, 2010, 01:43:33 pm
pang fourth baby ko na ito pero siya lang ang g6pd positive...mixed fed siya...breastfeeding and powdered milk pag umaalis ako ng bahay..will it affect her? she's already 2month old.


not really unless you eat stuffs na bawal din sa baby mo ,. and yung powdered milk, you can ask your babys pedia kung ano yung mas mainam na milk for your baby
Title: Re: About G6PD
Post by: prettyahyeigh on July 01, 2010, 12:41:50 am
as for my previous post.. my baby was drinking s26 gold then promil gold but nung nag 7 mos xia nahirapan siya magpoo poo tapos nagLBM siya so nagpalit kami Gain until now Gain na po siya.. so far so good.. kahit mahal ok lang kasi maganda naman.. yung vits niya nutrillin..

meron lang po akong isang question:

1. mga sis, natry niyo na ba na ipatest ulit yung baby niyo? buko d pa dun sa confirmatory bale pang 3rd test? gusto ko sana ipacheck kung me problema pa ba siya o wala na.. if natry niyo na po please post naman po the result.. tia
Title: Re: About G6PD
Post by: ♥_caramel_♥ on July 01, 2010, 01:14:04 am
sis i haven't tried ,. kasi di ko din alam kun san eh hehe sa UP pa din ba papatest?
Title: Re: About G6PD
Post by: prettyahyeigh on July 01, 2010, 03:27:05 am
don po yata ulet.. sa NIH..
Title: Re: About G6PD
Post by: ♥_caramel_♥ on July 01, 2010, 02:09:37 pm
hmm pagisipan ko yan sis thanks
Title: Re: About G6PD
Post by: riddermark on July 06, 2010, 12:16:45 pm
good suggestion, pero ano naman kaya masasabi ng mga pedia natin about this? is it necessary?

if ever, naku! mahihirapan ako pakuhaan ng dugo si kuya.  :(
Title: Re: About G6PD
Post by: ♥_caramel_♥ on July 06, 2010, 02:51:34 pm
good suggestion, pero ano naman kaya masasabi ng mga pedia natin about this? is it necessary?

if ever, naku! mahihirapan ako pakuhaan ng dugo si kuya.  :(


let's ask ou babies' pedia first if they would recommend us to do so then go! =)
Title: Re: About G6PD
Post by: angelsofia on July 06, 2010, 11:09:46 pm
hi everyone..my baby has a g6pd she is now 9months old and i stil breast fed her (pure)....she is 9.7kg....npapansin ko lang pumapayat na sya dahil d na sapat yung milk ko sa age niya at pure pa,,,ntry ko na yung enfalac a+ and s26 kaya lang ayaw niya talaga,,,,di ko din alam foods na pwede ipakain skanya bawal naman kasi yung cerelac....please help me moms sobra nakakadepress ano kayang milk ang pwede kaso nakita ko sa market galos lahat ng milk contains soy...which is other term for soya,,,,help me thanks poh!!!
Title: Re: About G6PD
Post by: prettyahyeigh on July 08, 2010, 04:24:16 am
good suggestion, pero ano naman kaya masasabi ng mga pedia natin about this? is it necessary?

if ever, naku! mahihirapan ako pakuhaan ng dugo si kuya.  :(


let's ask ou babies' pedia first if they would recommend us to do so then go! =)

actually, sa next visit namen ni baby ill ask my pedia.. medyo busy pa kasi ako..
Title: Re: About G6PD
Post by: ♥_caramel_♥ on July 08, 2010, 10:29:49 am
same here  ;D
Title: Re: About G6PD
Post by: mommybeth on July 09, 2010, 11:29:49 am
Hi moms,

My son has g6pd and congenital heart disease, he's 9 mos. old now. He's slightly gaining weight. Sobrang hirap kasi meron good for the heart na food na di naman pwede kasi bawal sa G6pd like yung mga antioxidants na food (grapes, prunes, berries).  Ask ko lang kung what vitamins are good for him, kasi now he's taking vitazinc, sa panahon ngayon lagi syang inuubo at sipon. Gusto ko sana sya iswitch sa pedzinc or ceelin and nutrilin/growee kung pwede sa kanya yun. Thanks.
Title: Re: About G6PD
Post by: prettyahyeigh on July 14, 2010, 10:55:37 pm
Hi moms,

My son has g6pd and congenital heart disease, he's 9 mos. old now. He's slightly gaining weight. Sobrang hirap kasi meron good for the heart na food na di naman pwede kasi bawal sa G6pd like yung mga antioxidants na food (grapes, prunes, berries).  Ask ko lang kung what vitamins are good for him, kasi now he's taking vitazinc, sa panahon ngayon lagi syang inuubo at sipon. Gusto ko sana sya iswitch sa pedzinc or ceelin and nutrilin/growee kung pwede sa kanya yun. Thanks.

sis, bit confused.. medyo naguluhan ako kasi hindi ko matandaan kung bawal yung grapes?? not sure talaga kasi di ko naman yun nakita sa lists ng bawal.. mga sis.. pahelp naman for some clarification..

thanks
Title: Re: About G6PD
Post by: bebezeth on August 03, 2010, 02:40:56 pm
hi po sa lahat ng moms!

my son has g6pd din... hindi ko pa alam noon na meron cia kc after
one month pa yung results before makuha tapos nagwork na rin me
yung pedia sahospital na pinanganakan me did not inform me that my son was positive also kaya nagulat din yung pedia on duty sa nursery na bakit hindi daw ako inform! :(  tapos un sabi sakin ng pedia on duty there na mag paconfirmatory test me & un talaga confirm talaga positive based in my backreads naman hindi naman cia ganun as in kalala pero ciempre i'm still worid pa rin lalo na its my first baby. nung wala pa ciang one month pinainom ng mother ko ng katas ng dahon ng ampalaya meron po ba sa inyo na gumawa nun? ok naman c baby ska ok po ba yung milk na enfalac A+.

thanks po for taking time to read kahit mahaba & to for the
replies na rin many thanks!
Title: Re: About G6PD
Post by: ♥_caramel_♥ on August 03, 2010, 03:08:21 pm
sis mommybeth: i'm not sure about grapes eh pero alma ko lang na bawal mga berries tapos red wine legumes, soya products, better wag mo na lang pakainin ng grapes kasi we know naman wines are made from grapes so since nkalista yung red wine let's just consider grapes as bawal , though not really sure about it,


sis bebezeth: naku ha bad yang doctor mo ha di sinabe sayo pero ang alam kong mag-iinform sayo ng result ng new born screening test eh yung mga nurse on duty,. i mena yung mismong nagpapirma sayo ng mga papers mo before you check out of the hospital, kasi saken sa gnaun eh after a month eh nagtext sila na positive nga daw =( ,. then they gave me a recommendation letter for confirmatory test ayun that's why we went to pedro gil ,. with regards to ampalaya eh i haven't tried na painumin sya sis ,. may mga food na nakalista na bawal po di ba so next time sana di na maulit ;) para sa safety ni baby ,. watch out ka na din sa mga bawal na drinks or food ha ,. and inform teh whole family about it para alam nila , kasi ako i informed every one eh para pag sila nag-alaga eh they know ,. even my parents in law eh nanghihingi sila ng mga lists sabe ko sige bigyan ko sila ,.
Title: Re: About G6PD
Post by: bebezeth on August 03, 2010, 05:37:10 pm
sis mommybeth: i'm not sure about grapes eh pero alma ko lang na bawal mga berries tapos red wine legumes, soya products, better wag mo na lang pakainin ng grapes kasi we know naman wines are made from grapes so since nkalista yung red wine let's just consider grapes as bawal , though not really sure about it,


sis bebezeth: naku ha bad yang doctor mo ha di sinabe sayo pero ang alam kong mag-iinform sayo ng result ng new born screening test eh yung mga nurse on duty,. i mena yung mismong nagpapirma sayo ng mga papers mo before you check out of the hospital, kasi saken sa gnaun eh after a month eh nagtext sila na positive nga daw =( ,. then they gave me a recommendation letter for confirmatory test ayun that's why we went to pedro gil ,. with regards to ampalaya eh i haven't tried na painumin sya sis ,. may mga food na nakalista na bawal po di ba so next time sana di na maulit ;) para sa safety ni baby ,. watch out ka na din sa mga bawal na drinks or food ha ,. and inform teh whole family about it para alam nila , kasi ako i informed every one eh para pag sila nag-alaga eh they know ,. even my parents in law eh nanghihingi sila ng mga lists sabe ko sige bigyan ko sila ,.

uu nga sis caramel ganyan din ginawa nagstart n me magsabi ng mga bawal na foods & meds. tas maglalagay na rin ako sa walls ng bahay para reminder na rin. as of now medyo natatangap ko na cia kc nung una i was devastated talaga...
Title: Re: About G6PD
Post by: honey-ecclaire on August 03, 2010, 06:03:41 pm
possible bang magkaroon si baby ko nito?last visit kase namin sa pedia and had CBC test last feb pa ang it turned out na mababa sa normal yung blood ni baby...last week nagpunta kami sa pedia niya pero hindi naman sya test sa blood..and i read some articles about it im worried na baka possible syang maglaroon(knock on wood,wag naman sana)
Title: Re: About G6PD
Post by: ♥_caramel_♥ on August 03, 2010, 06:38:57 pm


uu nga sis caramel ganyan din ginawa nagstart n me magsabi ng mga bawal na foods & meds. tas maglalagay na rin ako sa walls ng bahay para reminder na rin. as of now medyo natatangap ko na cia kc nung una i was devastated talaga...


sis korek ako din maglalagay ng mga ganyan pag malaki na si baby kasi now naman kame lang ni mama nagpapakaen sa kanya so we both know kung ano mga bawal and we always check yung list ,. wag ka madevastate, i was ganyan before tapos naisip kop i have to be strong, tsaka una iniisip ko na lang di naman bibigay saken yun kung di ko kaya, tapos sunod i have to be strong for my baby, third eh di naman saket na malala kung tutuusin lifetime niya dala ang g6pd pero pag naiwasan mga bawal he can live a normal life naman sis , and lastly eh mababa lang naman g6pd ni baby kaya kahit pano thankful na di ganun kalala



 
possible bang magkaroon si baby ko nito?last visit kase namin sa pedia and had CBC test last feb pa ang it turned out na mababa sa normal yung blood ni baby...last week nagpunta kami sa pedia niya pero hindi naman sya test sa blood..and i read some articles about it im worried na baka possible syang maglaroon(knock on wood,wag naman sana)


sis i think you have to always remind your pedia about blood test pero alam ko ang pedia eh magbibigay lang ng recommendation or referral para sa espesyalista ka talaga sa dugo pupunta , tapos yung g6pd nadedetermine sya sa newborn screening, pag negative sa test eh baka ibang saket po ,. hmm try mo po hingin ng referral from your pedia and go to the nearest hospital for blood testing po
Title: Re: About G6PD
Post by: honey-ecclaire on August 03, 2010, 06:46:06 pm
unfortunately hindi nag new born screening baby ko..kaya nung first time na nag blood test and sinabi nga na mababa sa normal count ng red blood cells niya nag-worry ako..i used to have low blood too...kaya next week sa pagbalik namin sa pedia niya i'll discuss this to her..

thanks sis!
Title: Re: About G6PD
Post by: ♥_caramel_♥ on August 03, 2010, 08:34:28 pm
unfortunately hindi nag new born screening baby ko..kaya nung first time na nag blood test and sinabi nga na mababa sa normal count ng red blood cells niya nag-worry ako..i used to have low blood too...kaya next week sa pagbalik namin sa pedia niya i'll discuss this to her..

thanks sis!


ang alam ko sis sa san juan de dios eh pwede magpanewbron screening po or sa UP mismo 600 lang din naman bayad
Title: Re: About G6PD
Post by: honey-ecclaire on August 03, 2010, 08:54:35 pm
ay naku sis 15 months na ang baby ko eh..hehe..I'll just bring this out on my pedia next week...salamat!
Title: Re: About G6PD
Post by: ♥_caramel_♥ on August 03, 2010, 08:58:02 pm
ay naku sis 15 months na ang baby ko eh..hehe..I'll just bring this out on my pedia next week...salamat!


hmm i know kahit matanda na i mean like 3 years onwards pwede pa magpatest sa UP kasi mga nakasabay namen dati mga malalaki na pwede pa eh
Title: Re: About G6PD
Post by: honey-ecclaire on August 03, 2010, 09:13:19 pm
really?wow okay i'll try this sis..
Title: Re: About G6PD
Post by: lady_torque on August 10, 2010, 08:48:15 am
mga momsies, grabe galit ko upon learning from the helpers dito sa bahay na pinainom ng MIL ko ng KAPE ang youngest kong 7month old w/ G6PD!

akala ng ignorante kong MIL, G6PD can be cured though we already explained that it's a lifetime problem w/c has no cure & the only thing to be done is AVOIDANCE to banned food items. di naman simpleng allergy yun di ba na mai immune ang katawan sa mga ini ingest.

di pa alam ng hubby yung nangyari, for sure pag nalaman, RIOT silang mag ina.  moreover, ang MIL ko ang tipong sinisisi lagi ang iba kahit siya mismo ang pinagmulan ng certain sakit ng kids, for example.

di ba anything na galing sa bean sources & by products e bawal sa may G6PD? 

ano ang gagawin nyo sa ganito ka ignorante & ka pasaway na MIL?  sabihin ko kaya sa hubby ko kasi tyak na kami ng yaya ang babalikan dito...
Title: Re: About G6PD
Post by: ♥_caramel_♥ on August 10, 2010, 02:45:08 pm
 sis lady_torque yeah bawal nga mga galing sa beans pero siguro wag mo na lang awayin si MIL hehe baka di niya na talaga matandaan mga bawal ,. pero hmm i think kausapin nyo na lang sya ng hubby nyo ulit at bigyan nyo sya ng mga copy ng mga bawal kay baby ,. or post on your fridge and other sides ng house nyo
Title: Re: About G6PD
Post by: jvfrodriguez on August 12, 2010, 06:29:53 am
sis lady_torque,

7 months pa lang anak mo, pinainom ng kape?  e kahit hindi g6pd anak mo, parang di ko naman maisip bakit bibigyan ng kape ang baby.

Pero no use in getting so mad at your MIL.  Wala ka na din magagawa kasi naibigay niya na (gaano kadami ba napainom sa bata?).  Ilang taon na ba MIL mo baka naman nag uulyanin na e kasama na ganyang behaviour sa mga matatanda na. 

Kung sakali, iwasan nyo na lang na laging sya yung magbantay sa baby.  Or kung may yaya naman pala kayo, make sure mabantayan nyo and ma check anything being given to your child.  You may mention the incident to your hubby pero wag na yung approach na tipong awayin mo nga nanay mo at ganito ginawa sa anak mo.  Patience is a virtue especially sa mga matatanda na.  =)
Title: Re: About G6PD
Post by: tess1026 on August 16, 2010, 12:23:42 pm
hello! just wanna ask kung bawal ba ang cerelac for G6pd babies? meron kasing cerelac na with soya at meron din wala pero nakalagay "may contain traces of soya...".. i've tried feeding my baby with cerelac na mixed fruits with soya at parang ngkarashes sya..may effect ba talaga yun? binigyan ko rin sya ng ibang flavors like wheat/banana/milk at okay naman..
Title: Re: About G6PD
Post by: ♥_caramel_♥ on August 16, 2010, 01:54:08 pm
hello! just wanna ask kung bawal ba ang cerelac for G6pd babies? meron kasing cerelac na with soya at meron din wala pero nakalagay "may contain traces of soya...".. i've tried feeding my baby with cerelac na mixed fruits with soya at parang ngkarashes sya..may effect ba talaga yun? binigyan ko rin sya ng ibang flavors like wheat/banana/milk at okay naman..


ako po never kong pinakaen si bby ng cerelac kasi mainly soya ang ingredients po ,. so i go for fruits na lang at patatas or carrots ,. so i think stop ka na lang din  ng cerelac, para mas safe
Title: Re: About G6PD
Post by: bakedmacarhona on August 19, 2010, 01:13:20 am
Hello, Moms!
I just want to thank you all for sharing your knowledge and insights on G6PD deficiency.  A week ago, when I found out that my 2nd child is positive for G6PDD, I was dumbfounded.  But through the internet, and forums such as this, I was enlightened.  I have already prepared myself for the task at hand, or so I thought. 
Just this morning, I got the results of my son's confirmatory test.  Turns out, he is indeed lacking the G6PD enzyme.  The result was a painful 0.62 when the normal range for newborns should have been 13.22.  My son, by the way, is a month old.  I cried, and cried some more.  I can never be prepared for this, I thought, even after educating myself on the abnormality.  It was a fact that is still difficult for me to accept upto now, especially since the defective gene came from me (I am anemic, and is the carrier of the genetic disabilty). 
But still, thank you all for sharing your experiences.  I draw strength from them.  I am hopeful that I'd be able to raise a G6PD deficient child normally.  I'll be seeing my son's pedia on friday.  Should I learn new things that aren't found here in this forum yet, expect me to post them for everyone's information. 
God bless us and our kids! 
Title: Re: About G6PD
Post by: ♥_caramel_♥ on August 19, 2010, 01:48:20 pm
bakedmacarhona *hug* ,. kaya mo yan sis ,. lahat naman tayo dito umiyak as our initial reaction hay hirap talaga di ba pero kelangan naten lampasan at tama iready mo sarili mo be strong for your baby ^^
Title: Re: About G6PD
Post by: madelene on August 27, 2010, 12:51:59 pm
hi.. new lang po ako dito.. mg4months n po baby q ngaun palang po lumbs yung result ng new born niya na detect n my g6pd po siya.. ano po ba un?? at ano po b yung mga bawal sa kanya?? nkamamatay po un??? pero di pa naman daw po confrm kc papdla pdw po un sa PGH for2nd test i hope negtve.... tnxz po
Title: Re: About G6PD
Post by: ♥_caramel_♥ on August 27, 2010, 01:59:07 pm
hi.. new lang po ako dito.. mg4months n po baby q ngaun palang po lumbs yung result ng new born niya na detect n my g6pd po siya.. ano po ba un?? at ano po b yung mga bawal sa kanya?? nkamamatay po un??? pero di pa naman daw po confrm kc papdla pdw po un sa PGH for2nd test i hope negtve.... tnxz po

sis please try to open this link
http://www.g6pddeficiency.org/index.php
it would somehow answer your questions.
it depends sa result ng pgh yung second test eh it depends sa amount nung g6pd or result niya kung mataas ang rate or mababa di naman nakamamatay pag naiwasan mga bawal na food kay baby ^^
Title: Re: About G6PD
Post by: rayne axelle on September 10, 2010, 12:26:03 am
hi! mga mommys, ask lang po ako adviced kung ano ba mga milk na pwede sa baby na may g6pd, similac po yun una bngay sa kanya nun obgyne ng msis ko, kaso npansin po niya may soy oil na ingridients yun, nhhirapan po sya mghanap ng milk na wala ingridients na soy. suggestion nmnan po, magttwo months na po baby namin this sept. 13.. thank you po and god bless!
Title: Re: About G6PD
Post by: tere_emp on September 10, 2010, 01:15:20 am
hi rayne! my son also has the same condition, g6pd deficiency. during the 1st 6mos, his milk was S26, then we shifted sa promil gold after we checked with the pedia. sabi ng pedia not too worry too much about the soy content ng milk since, as you now know, halos lahat ng milk and food ay may soy. our son is perfectly healthy and is turning 2 yrs. old now at wala naman kami na-encounter na any complication ng condition niya, infact, he eats everything at favorite niya either taho or yogurt for breakfast.... Goodluck and God bless!  :)
Title: Re: About G6PD
Post by: Aragtrz on September 10, 2010, 08:26:51 am
Mommies, please check this link  Safe Formula milk for G6PD (http://www.smartparenting.com.ph/parentchat/index.php?topic=15115.0)
Title: Re: About G6PD
Post by: rayne axelle on September 11, 2010, 03:45:04 am
hi mga mommys, thanks for the help... my wife is just worried on what milk should she buy for our son, because almost all of milk has soybean oil.. atleast now we know that its not that to seriuos when it comes to our babys milk... thank you very much mga mommys.... god bless!
Title: Re: About G6PD
Post by: riddermark on September 13, 2010, 11:32:09 am
hello! just wanna ask kung bawal ba ang cerelac for G6pd babies? meron kasing cerelac na with soya at meron din wala pero nakalagay "may contain traces of soya...".. i've tried feeding my baby with cerelac na mixed fruits with soya at parang ngkarashes sya..may effect ba talaga yun? binigyan ko rin sya ng ibang flavors like wheat/banana/milk at okay naman..

ako naman, with GO signal from his pedia. binigyan namin sya ng cerelac but mainly "brown rice" at selected variants lang. hindi yung milk and soya or of that sort.

totoo cerelac may contain traces of soya pero as per our pedia, soya lecithin is ok. pati nga crackers meron din "may contain traces of soya".  at some point, makakain din sya ng mga babies natin.  so ako careful ako dun sa talgang soya ang main ingredient.

according sa pinsan ko naman na nag me-medicine, sabi daw ng professor nila na doktor, may times na as the kid grow older, the brain detects which enzymes are lacking at chances are mag-instruct ang brain to produce one.  so at least kahit papano me hope pa naman kahit sa ganitong paraan  :)  something to look forward to ba. but of course, ingat ingat pa din  ;)
Title: Re: About G6PD
Post by: asher on September 21, 2010, 04:22:38 pm
hello momies,G6pd positive din po ang baby ko,at premature pa sya nung niluwal ko 3lbs lang sya,awa ng God 7 mos na siya ngayon at napakatakaw lahat na food kinakain niya,sayang nga lang at pili lang yon maibigay ko sa kanya..nung malaman ko na G6pd positive sya iyakan kami mag aswa,kasi nakakaawa naman..but now unti unti na namin natangap na G6pd posite sya..malakas naman sya at ang cute..kaya iniingatan ko nalang lahat na ipapakain sa kanya..in God help malusog naman..God bless to us!!
Title: Re: About G6PD
Post by: momofzeke on September 25, 2010, 08:52:23 am
Hi mommies, my son has G6PD deficiency too, sad to know that there is no cure for the G6PD, iwas lang sa mga bawal na food and meds. Make a list of the "bawal" foods and post it in the visible area of the kitchen para aware lahat sa house especially the nanny sa mga food na ibibigay sa baby. Btw, mommies any suggestion for iron supplement aside from ferlin? My son is anemic kc son and his pedia recommends ferlin as supplement but lately i noticed na nagkaroon ng stain yung teeth niya kahit we made sure to wipe his teeth after taking ferlin....
Title: Re: About G6PD
Post by: yangmei on September 28, 2010, 08:09:10 am
this is my newest reply after kong manganak last Aug. 22.. ni-research ko tong G6PD dito kase nag deficient ang baby ko sa NBS niya. Buti nalang nag pa confirmatory kami sa Our Lady of Lourdes mas malapit at di madaming tao.. accredited na kase din to... dati nga sa NHI lang pwede It cost only P400.00 result after 3days... When I read this thread, bihira ang nag nenegative sa confirmatory ang nagpapatotoo...At mas madami ang hinde nagpapa confirm. Thats why I decided again to post,, to give hope for other moms there..

I thought meron nga talaga baby ko kz  medyo madilaw nga sya at  ginamitan pa sya ng billubin ata yun not sure what is called yung blue na ilaw para mawala paninilaw niya..Pero the result 19.1 so ok ang baby ko hinde sya deficient.. At sabi nung nurse na nakausap ko madami nga daw nag papa confirm and it turned out na ok pla baby nila isa nga dun daw ang baby niya..

Kaya sa mga nag dadalawang isip jan na mag pa confirm..Wag nyong hayaan mag suffer anak nyo tas hinde naman pla sya talagang deficient..

God Bless po sa lahat
Title: Re: About G6PD
Post by: mommy_trish on October 06, 2010, 08:07:04 pm
hello mommies!

my son is also g6pd deficient. 2yrs old na siya ngayon and healthy naman. pinapakain ko siya paminsan minsan ng adobo and peanuts, ok naman. beans lang talaga at taho ang di ko pinapakain sakanya. sabi ng doc niya it cannot be cured pero pwedeng ichallenge.  :)
Title: Re: About G6PD
Post by: ♥_caramel_♥ on October 06, 2010, 08:44:32 pm
hello mommies!

my son is also g6pd deficient. 2yrs old na siya ngayon and healthy naman. pinapakain ko siya paminsan minsan ng adobo and peanuts, ok naman. beans lang talaga at taho ang di ko pinapakain sakanya. sabi ng doc niya it cannot be cured pero pwedeng ichallenge.  :)

i agree sis ,. pero in my case yung mga products lang na may soya content yung pinapakaen ko sa kanya paminsan minsan ,. no no talga kame sa toyo, beans nuts and taho or tokwa,. ayaw ko magrisk at same din ang family ko mabuti na nag-iingat kahit pa mild lang g6pd ni baby
Title: Re: About G6PD
Post by: cowgirl_mommy on November 12, 2010, 03:00:29 pm
we just came from our pedia today for my two daughter's vaccination. my eldest is 1 year 5months and the youngest is two months-old. i just got the newborn screening results for my 2 month old girl. it was indicated that her glucose-6-phosphate-dehydrogenase level is abnormal. the first reaction i had was panic. our pedia said that we have to undergo confirmatory test at NIH. the thing is, we are in masbate and we don't have plans of travelling by this year end. any travels we might have will be next year. is it okay to have the test later.
what worries me too is if my eldest daughter positive for G6PDD too. i had her newborn screened at our provincial hospital but i never got the results. can i still have her tested? baka ipagsabay ko na lang sila ipatest pag pumunta kami ng manila.

i am saddened to know that my baby might be positive for G6PDD, that she will have a different lifestyle and will always be on guard especially in foods and things must be avoided. but i am thankful that there is a page like this where moms and dads of children with G6PDD have a venue to share and discuss the complexities of this condition.

i am entrusting this situation to God and i am comforted that He will not give us somenthing we can't bear.
Title: Re: About G6PD
Post by: ♥_caramel_♥ on November 12, 2010, 03:07:19 pm
 

i am entrusting this situation to God and i am comforted that He will not give us somenthing we can't bear.


yes you  are correct sis ,. when i first learned that my son has g6pd i cried a lot at naaawa ako pag naiisip ko but now that he is 1 na ok na ko at sabe nga ng pedia ko maswerte pa din daw si baby kasi mababa lang daw yung lumabas sa result so normal pa rin ,. just beware of the food na bawal ,.
sa question mo naman po yes pwede naman next year mo na sis iaconfirmatory test mga anak mo hingi ka na lang ng referral from your doctor ,. yung mga nakasabay namen na nagpaconfirmatory test nun sa pgh they came all the way to manila para magpatest ulit at yung iba malalaking bata na i mean 3 years and up na ,. yun iba nga nag-aaral na so i think pwede mo na pagsabayin basta may referral ka para madali ka nila asikasuhin ,. kasi hinahanap nila yun though pwede naman walk in ,. tsaka pag putna ka dun agahan mo sis kasi ang pila ang haba at if i'm not mistaken eh may schedule sya eh ,. pag wed. ata kuhaan ng result ganun i forgot na ,. pero since di mo pa napapaconfirmatory test mga anak mo iwas ka na lang muna sa  mga bawal na food jsut to be sure ,. foods like fava beanns or anyhting an may soya ^^ hope nakatulong ako Godbless
Title: Re: About G6PD
Post by: riddermark on November 12, 2010, 03:38:33 pm
^^ your eldest can still be tested but they suggest to have the reconfirmatory test right away (right after the NB screening results came out).  if i can recall clearly (di ko na kasi mahanap yung docs ko), the sooner/younger the better iba ata ang results pag ilang months or years na.  but they do test nga mga a year old (or more) na.

our pedia was a bit mad nga when the hospital didnt inform us right away na positive for G6PD eldest ko kasi dapat talaga agad agad pumunta kami ng NHI. mga 2mos+ na rin nung napa reconfirmatory ko and the sad part is, nabigyan sya ng kung ano-anong oils (even manzanilla).   :(
Title: Re: About G6PD
Post by: krishna on November 12, 2010, 03:41:11 pm
we just came from our pedia today for my two daughter's vaccination. my eldest is 1 year 5months and the youngest is two months-old. i just got the newborn screening results for my 2 month old girl. it was indicated that her glucose-6-phosphate-dehydrogenase level is abnormal. the first reaction i had was panic. our pedia said that we have to undergo confirmatory test at NIH. the thing is, we are in masbate and we don't have plans of travelling by this year end. any travels we might have will be next year. is it okay to have the test later.
what worries me too is if my eldest daughter positive for G6PDD too. i had her newborn screened at our provincial hospital but i never got the results. can i still have her tested? baka ipagsabay ko na lang sila ipatest pag pumunta kami ng manila.

i am saddened to know that my baby might be positive for G6PDD, that she will have a different lifestyle and will always be on guard especially in foods and things must be avoided. but i am thankful that there is a page like this where moms and dads of children with G6PDD have a venue to share and discuss the complexities of this condition.

i am entrusting this situation to God and i am comforted that He will not give us somenthing we can't bear.
pag late po ang screening na gagawin sa baby mo, magiging invalid na ang result.
Title: Re: About G6PD
Post by: riddermark on November 12, 2010, 03:44:46 pm
^ i feel relieved, may nag second the motion  :D  like i said if i can remember correctly, so tama nga yung naalal ko.
Title: Re: About G6PD
Post by: cowgirl_mommy on November 14, 2010, 01:03:00 am
sis caramel, thank for for the tips. as soon as we get the chance to go to manila by next year we will have the both girls tested. i will be getting referral from our pedia and i will ask some help from my post grad classmates at UP College of Public Heallth if we can get the process hastened.

sis riddermark, nasa province kasi kami and medyo late naman talaga dumadating yung results ng NBS dito sa amin kaya yesterday ko lang nalaman na abnormal yung results ng G6pd ng youngest ko. with my eldest naman, hindi ko na nakuha yung result ng NBS niya sa provincial hospital namin dahil sa dami ng ka-ekekan ng process dun. so i guess. i will just have her tested along with her sister na lang din.

Title: Re: About G6PD
Post by: ♥_caramel_♥ on November 15, 2010, 03:44:42 pm
sis cowgirl_mommy welcome po ^^
Title: Re: About G6PD
Post by: freida on December 14, 2010, 03:23:47 pm
I have a 4 mons. old baby with g6pd enzyme assay. Does anybody who know an infant formula milk for g6pd babies?
Title: Re: About G6PD
Post by: ♥_caramel_♥ on December 14, 2010, 03:27:41 pm
sis try to check out this thread
http://www.smartparenting.com.ph/parentchat/index.php?topic=949.msg257319#msg257319


it's all about g6pd po ,. but with regards to your question, when my baby was 2mos old till 6 months we used similac for him and after that we switched to Frisomel ,. both milk were advise by our pedia ,. now that my son is already 1 yr old we are using Frisogrow 1-3 yrs
Title: Re: About G6PD
Post by: freida on December 14, 2010, 03:32:25 pm
thanks for reply. na try ko na yung similac kaso hindi siya hiyang. kaya naghahanap ako ng pweding ipalit na milk.
Title: Re: About G6PD
Post by: ♥_caramel_♥ on December 14, 2010, 03:47:51 pm
you can consult your pedia about it ,. kasi mas magandang from the expert galing ang info since maselan mga babies naten
Title: Re: About G6PD
Post by: riddermark on December 14, 2010, 05:15:22 pm
yup, depende kung san mahiyang si baby.

sa eldest ko (G6PD rin) he's into NAN-HW eversince. nung 1yo lang kami nag pediasure because he has poor appetite. otherwise, NAN-HW pa rin sya ngayon.
Title: Re: About G6PD
Post by: Jerkmagnet on December 21, 2010, 02:11:55 pm
hi moms and sises

   my sons nb screening tested that he has g6pd the hospital recomend for me to retest for accuracy but that time hinde ko na na pa retest si baby wala pa kasi akong pera that time im a single mom,baby is now 6 mos at pag nagppacheck ako sa pedia niya nakakalimutan ko bangitin.january pa ulit kasi ang check up niya.
 do you have same experience may baby din po ba kayong may g6pd rin?please help me.

thanks godbless us
Title: Re: About G6PD
Post by: Mommy Jazz on December 21, 2010, 02:24:11 pm
Merged all discussions about  G6PD babies about milk suited for G6PD, please refer to this thread:
http://www.smartparenting.com.ph/parentchat/index.php?topic=15115.0
Title: Re: About G6PD
Post by: ♥_caramel_♥ on December 21, 2010, 02:56:39 pm
Jerkmagnet sis you just have to infrom your pedia that your son has g6pd para maiwasan mga gamot na bawal at mga food din
Title: Re: About G6PD
Post by: Jerkmagnet on December 22, 2010, 09:07:17 am
thanks sis caramel sarado na kasi mga clinic ngayon eh kaya january pa resume ng clinic ng pedia ko,guess il just have to pray hard na lang.im also wonderin if i can have him tested again for g6pd even if he is 6 mos na, my mom is saying kaartehan lang daw yan kasi nung mga baby tyo wala naman daw ganyan noon,ginawa lang daw yun pra mpagastos tyo kasi buhay pa naman daw tyo since now,medyo may point din naman sya pero syempre kabado pa din ako. happy christmass everyone
Title: Re: About G6PD
Post by: ♥_caramel_♥ on December 22, 2010, 03:25:55 pm
yes may point si mother mo kaso safety na ni baby usapan eh kahit na alam naten nung panahon naten walang ganyan eh dapat ingat na lang tayo for abby's sake ,. yes pwede mo pa sya ipatest hingi ka lang referral from your pedia ,. kasi nung nagpa-confirmatory test kame nun sa pgh taft eh may mga bata na galing pang probinsya na malalaki na pero pinatest pa din
Title: Re: About G6PD
Post by: riddermark on December 22, 2010, 05:01:34 pm
@mommyjerkmagnet

nung time natin wala pa talagang ganyan kasi di pa naman tayo kasing advance tulad ng panahon ngayon. some illnesses were not known then.  i havent made confirmatory tests on myself (but i do know pwede pa ako magpatest) ... i had the same symptoms as that of G6PD.

here's my story....
when i was 7 months old, my caregiver gave me a bad milk. i had diarrhea and probably dehydrated. i dont know what prompted mom to give me BACTRIM. (check bactrim on the list of medicines not to be given to G6PD patients).  my body reacted. i had severe anemia. doctors in our province didnt know what it was. my RBC are depleting. i was aired to manila. doctors here said mine was a RARE CASE. they dont know what hit me. eventually i underwent blood transfusion.   from then on, mom believes that i am anemic.  i was forced to eat ampalaya (which is now one of those bawal food).   i've been wanting to be tested sana pero di nabibigyan ng time. minsan din kasi iniisip ko pwedeng naka-adapt na yung katawan ko. kasi no reaction naman ako sa food, wag lang siguro sa medicines.

according to my pedia, she strongly disagrees that i'll challenge the case of my son. meaning, i shouldnt experiment on giving him bawal food unlike what others say including me that our body will adapt to it naman.  perhaps NOT UNTIL they are bigger na. kasi what happened to me daw was, my body probably get used to the bawal food that i dont react when i eat the them. people are not alike. pwedeng mag react ang ibang katawan and especially kung babies pa.

so i also disagree to those saying na bakit noon di naman tayo nagkasakit or what.  iba yung panahon noon. malinis pa ang hangin at kinakain. ngayon marami nang mga bagong sakit na lumalabas. di na pwedeng i apply yung mga ginagawa noong panahon sa panahon ngayon.  ;)
Title: Re: About G6PD
Post by: Jerkmagnet on December 23, 2010, 09:30:43 am

   @ridder mark

  actually may signs din ako ng g6pd sabi sa test eh anemic nga ako all tru out my pregnancy i was given double dose of ferous sulfate even trippled nung malapit nako manganak. i thougt i got anemic coz i used to work for a call center graveyard shift for almost 2 years hinde ko alam kung sakin na acquire ni baby or what,pwede pa ba tyo mag patest kahit matanda na??? this january il go to pgh papa retest ko si baby.
  i would have to agree na before eh malinis pa talga saka konti lang a food preservatives nun at ang chemicals,thanks for ur opinions.
Title: Re: About G6PD
Post by: .♥ kyutie ♥. on December 27, 2010, 06:15:48 pm
Mga mommies, yung baby ko rin ay G6PD
napansin ko kasi bawal nga talaga sa kanya ang mga mentol like listerin,
pano yun kung pag laki na niya mag sisilpilyo sya?
Halos lahat kasi ng toothpaste ay mentol ..
Bawal rin ba sa kanya yun?  :o
Title: Re: About G6PD
Post by: ♥_caramel_♥ on December 27, 2010, 07:05:27 pm
yan din ang iniisip ko mommy hehe ,. kasi kung toddler eh pwede pa yung non-menthol na toothpaste ,. eh pag malaki na eh lahat may menthol eh so tatanong ko nga yan sa next balik namen sa pedia niya
Title: Re: About G6PD
Post by: riddermark on December 28, 2010, 02:09:51 pm
di pa rin talaga tayo makaka-iwas totally ???
balitaan mo kami sis!  let's hope by then e wala nang reactions sa baby natin. sana maka-adapt na sila.
Title: Re: About G6PD
Post by: proudmommie on January 04, 2011, 12:17:25 pm
id like to share this one. ive read in one of the website im browsing. this came from

Expert: Dr Kondekar Santosh Venketraman Pediatrician MD from Mumbai India - 5/26/2008

Question

i was informed by my pedia that g6pd patients should avoid menthol products, so i bought a toothpaste for my baby, the problem is iam not sure if these chemicals and ingradients found in this toothpaste are ok for my son w/c has a G6PD deficiency:
sorbitol, glycerin, hydrated silica, sodium carboxymethyl, cellulose benzoate, sodium ascorbyl phosphate, strawberry flavor
my son is 10 mos old and also has skin asthma...
is sorbitol safe for my kid? because there's a great tendency that he may swallow the toothpaste..is it safe please help..
thank you very very much, hope u can help me just like in the beginning when i started browsing this website
thank you so much!

Answer
what they needs is caution in introducing new items like this. initially in small quantity.. wait for a day, if no problem, well can be maintained.

i dont feel any problem with the toothpaste. but start with a smaller dose, supervised. keep toothpaste out of reach. check hemoglobin ande repeat hemoglobin after a month use of toothpaste.

none of my patients with g6pd deficiency reported any problem with toothpastes.

The major problems occur only with some drugs that cause destruction of red blood cells in g6pd deficiency patients.

Title: Re: About G6PD
Post by: ♥_caramel_♥ on January 04, 2011, 03:38:31 pm
wow thank you for the info sis proud mommie ,. actually maski nga daw sa food yung ibang may mga g6pd eh di naman ganun kaselan ,. sabe din ng pedia ko yan , sa milk nga din na iniinom ng mga babies may traces gn soya pero sabe ng doc ko eh isang pinch lang daw yun so not really harmful with baby's health ,.  thanks again for this !
Title: Re: About G6PD
Post by: proudmommie on January 14, 2011, 12:31:16 pm
welcome mommy_caramel, my son is also g6pd. i was so scared before when i found about it but then his pedia explained to me how i should handle my baby. more important is di sila makakain ng foods and yun mga meds na bawal sa kanila. i feel better then when she said that may classmate din sya sa school na g6pd but it didnt hinder his dreams to become a doctor. see, mommies...? so it will make us worry free.  ;)
basta let us parents be vigilant to the foods/drugs na bawal talaga sa kanila. marami naman pong alternatives to those meds na di sa kanila pwede.
Title: Re: About G6PD
Post by: angeldhez on January 17, 2011, 11:03:54 am
I am blessed with boy 3 months.  My doctors told that he had G6 pd decificiency and they just given some medicines list to avoid in future.  Could you just clarify the following queries.

1. Is there any levels in G6 pd deficiency.

2. Could you advise whether Homepathic will be useful in any further treatments (like feaver, cold).

3. What kind of food to avoid in Veg. Non-Veg.

4. Kindly advise in any circumstance how to FIRST-AID

5. Whether G6 pd deficiency can cause CANCER in future.


Title: Re: About G6PD
Post by: proudmommie on January 18, 2011, 12:02:58 pm
mommy angeldhez,
did the doctors advise you to bring your baby to PGH for reconfirmation? and btw, check this site everything you need to know about G6pd is there

www.g6pd.org
Title: Re: About G6PD
Post by: freida on February 04, 2011, 10:43:06 am

hellow po.

ask ko lang po kung yung yeast po sa bread and biscuits ay nakakasama sa  my g6pd baby's.
thanks po!
Title: Re: About G6PD
Post by: mizpah_karylle on February 10, 2011, 10:59:50 am
@ angeldhez

i also have a son with g6pd. we consulted a pedia-hematologist in world citi medical center kc his pedia advised us to do so since, naka-4-6 months na siya nagiron supplement and yet hindi tumataas ang hemoglobin count.

the pedia-hema asked us to bring all documents including the result from confirmatory test in lourdes hospital and the pedia-hema said severe case ng baby ko.
Title: Re: About G6PD
Post by: theirDARLING on February 26, 2011, 12:09:08 am
hi! newbie here. nakuha din nain result ni baby, g6pd deficient din sya. hay..
di ba dapat tatawag ang pedia niya para ipaalam sa amin yun? ang nangyari kasi, nung first check up ni baby after a month i gave birt, dapat lalabaas na rin yung result ng nbs, pero pag punta namin sa hospital, wala pa yung sa kanya. 1 1/2 month daw. so, punta na kami kay pedia (katapat lang ng hosp yung clinic niya) we told her abput that. pinatawagan niya naman yung hosp kay secretary.kaya lang busy daw. so check up na... hanggang mawala sa isip ko about dun sa nbs.days after pabalikbalik si hubby sa hosp to check, wala pa rin.
then 2nd check up ni baby (1 mo and 2 wks.), wala si pedia niya, may binilinan syang ibang pedia to check her patients. ayun, mabait naman si substitute pedia.i told her na wala pa rin ang nbs, so she called the hosp. ayun, na check, G6PD DEFICIENT si baby! :'( di kami nakapagreact masyado.she told us na punta hosp para sa referral sa PGH. kinabukasan, punta kame pgh. NAKAKAINIS kasi na check nila na NBS si baby less than 24 hrs. after nyang lumabas di daw kasi accurate pag ganon, hindi daw sure kung yung first 4 na sakit eh wala talaga kay baby. dapat 48-72 hrs daw ang NBS.need na ulitin ang NBS. so instead na confirmatory lang, pati NBS ginawa. INstead na G6PD lang ang kinakaba ko, pati tuloy result ng NBS. BADTRIP talaga yung hosp pati si pedia!  >:( >:( wait pa ko result.. 2 weeks for NBS/march 2 for G6PD.
sorry long post. :-\
Title: Re: About G6PD
Post by: theirDARLING on March 02, 2011, 08:49:20 pm
help!!! pls pls.. nakuha na result ng confirmatory ni baby. ang normal ay 12.22U/g HB (for his age).
ang result ni baby ay 14.05U/g HB.
ano po ibig sbhin??? waaah! pls answer me! atat na po ako.
Title: Re: About G6PD
Post by: yangmei on March 04, 2011, 08:48:37 pm
help!!! pls pls.. nakuha na result ng confirmatory ni baby. ang normal ay 12.22U/g HB (for his age).
ang result ni baby ay 14.05U/g HB.
ano po ibig sbhin??? waaah! pls answer me! atat na po ako.
result


okay po yang result na yan,, kase ganyan din yung naging result ng baby ko nung nagpa confirmatory kami..  :)
Title: Re: About G6PD
Post by: theirDARLING on March 06, 2011, 04:04:10 pm
okay po yang result na yan,, kase ganyan din yung naging result ng baby ko nung nagpa confirmatory kami..  :)
[/quote]


***talaga po? pinabasa mo sa pedia sis? so normal pala ambebe ko! :) thank you sis sa reply! wala na kong iisiping bawal bawal na food :)
Title: Re: About G6PD
Post by: mommy_trish on March 11, 2011, 03:53:21 pm
my eldest son who is now 2yrs and 6mos old is G6PD deficient. I gave birth last Jan21 to another baby boy, sadly, G6PD deficient din siya.
Title: Re: About G6PD
Post by: miccim on March 17, 2011, 06:15:39 pm
Hi everyone! How about if magkafever si baby? Kasi nakalagay sa list ng bawal yung analgesic...
Title: Re: About G6PD
Post by: riddermark on March 18, 2011, 10:59:05 am
always consult your pedia to know the right dosage for your baby. pwede naman ang mga gamot but on safe dose lang. your pedia will compute according to baby's weight.
Title: Re: About G6PD
Post by: mizpah_karylle on March 26, 2011, 08:59:44 am
for fever, i gave my baby paracetamol. nakalist naman po cia sa 'Drugs safe to take in therapeutic doses' ng g6pd brochure. you may refer to the Newborn Screening Reference Center website for the complete list of references.

like riddermark said, please consult your pedia for the correct dosage. hth.  :D
Title: Re: About G6PD
Post by: Chill em on March 27, 2011, 08:20:09 pm
 :) hi po mga mommy's.. i can relate coz i'm so worried din upon knowing sa nbs result that my baby has a g6pd deficiency. 0-3mos breastmilk then 4-6mos my baby's milk was s26 and eats cerelac without soya 3x a day. infairness, hiyang siya sa milk niya. I never thought na tataba nga baby ko kasi 3.4kls siya ng pinanganak ko then now 10kls @ 6mos. hahaha yes mga mommy's overweight na siya. his doctor, a g6pd specialist is telling me to diet my hehe. malakas nga naman kc dumede ang baby boy. now he is 7mos @ 9.8kls and NAN hw two na milk niya as prescribed by our doctor. will observe him if hiyang sa kanya. then continue parin cerelac niya then minsan2x kain ng lugaw. almost complete na vaccines niya. pra measles, booster, flue vaccine and pneumo vac nalang kulang niya.
FYI: Mga mommy's hindi po lahat ng babies na my g6pd eh same po reactions sa milk, o walang side effects if injest man ng food rich in soya ang baby. All we have to do po is be precautious po para safe lagi mga babies natin. ang g6pd naman po eh hindi super serious na sakit. magiging serious lang po i2 if naka injest many times ang baby that contains fava beans that will cause and leads to anemia, jan na po start ang problem.
Title: Re: About G6PD
Post by: mizpah_karylle on March 28, 2011, 12:50:20 pm
g6pd mom here. my baby's milk is nan 3 hw and so far, hiyang naman siya. okay din kasi na-aaddress na din ang kanyang allergy sa milk since hydrolyzed whey ang nan 3 hw, medyo mahirap lang matunaw sa tubig. need shake well.
Title: Re: About G6PD
Post by: Tatay bjef on March 31, 2011, 07:01:34 am
hello!
We just received the confirmatory result yesterday at UP.
My sons' result is only 1.+ lang.

Way beyond sa normal values.
Haayyy!
Yung daughter ko negative naman.
Title: Re: About G6PD
Post by: mizpah_karylle on April 05, 2011, 12:52:22 pm
hi there tatay bjef. ang son ko, as far as i can remember, less than 1 result ng confirmatory test niya. need lang talaga bantayan food intake at medications. so far naman, 1 1/2 na baby ko, iniintroduce na namin ng food with soy pero limited lang. umattend kc c hubby sa seminar last feb re g6pd and the speaker advises to introduce food muna, dami nga daw talagang tanong and good thing nakapunta si hubby para madagdagan info and developments.

kung infant pa, better observe the list of do's and dont's. isipin na lang natin na, me allergy kids natin to certain food and medications, wag natin isipin na me sakit si baby, kasi controllable condition naman.

just my point of view. :)
Title: Re: About G6PD
Post by: Tatay bjef on April 10, 2011, 08:29:51 pm
hello to all.
have already talked to my friends father
who happens to be a pediatric hematologist.

He said that pwede pang mag negative
ang baby na may g6pd. pagdating ng 6months old.

kasi may mga cases daw na ganun.
jaya pag dating ng 6months, paconfirmatory test
namin ulit.
Title: Re: About G6PD
Post by: Tatay bjef on April 10, 2011, 09:35:45 pm
by the way, kung sino may gusto
nung kopya ng mga bawal para sa g6pd,
meron ako nung malinaw na kopya.

yung binibigay kasi sa UP ang labo.
kaya what i did was to retype them.

pm nyo lang po ako.
Title: Re: About G6PD
Post by: proudmommie on April 13, 2011, 12:16:35 pm

very true mommy karylle,  ;) saka preventable naman talaga din ang g6pd as our pedia advised and dapat talaga lang sa atin mommies na careful sa food and drugs na bawal sa kanya. pano po naka-attend si hubby mo ng seminar?


hi there tatay bjef. ang son ko, as far as i can remember, less than 1 result ng confirmatory test niya. need lang talaga bantayan food intake at medications. so far naman, 1 1/2 na baby ko, iniintroduce na namin ng food with soy pero limited lang. umattend kc c hubby sa seminar last feb re g6pd and the speaker advises to introduce food muna, dami nga daw talagang tanong and good thing nakapunta si hubby para madagdagan info and developments.

kung infant pa, better observe the list of do's and dont's. isipin na lang natin na, me allergy kids natin to certain food and medications, wag natin isipin na me sakit si baby, kasi controllable condition naman.

just my point of view. :)
Title: Re: About G6PD
Post by: Tatay bjef on April 15, 2011, 07:43:20 pm
we will be going tom morning sa pedia para sa vaccine.
inquire ko lang kung ang mmr ba pwede sa may g6pd?
Title: Re: About G6PD
Post by: proudmommie on April 18, 2011, 10:06:44 am
lahat naman po ng vaccines available for the protection of our babies ay pwede sa g6pd babies.
ask ko lang po sino po mommies dito na nag aaral na yun anak nila? i've read in one of the websites na one way to watch our kids when they're already  in school is to wear the medic alert breacelet. i dont know how much is that parang may nabasa din po ako sa article ng smart parenting na meron isang doctor/specialist na gumagawa talaga ng medic alert bracelet but my fault is i wasn't able to save or copy that article di ko na po sya makita ngayon. our kids should wear them when they start schooling. for me na working mom thats my worry talaga because i cannot watch my kid by myself when he's already in school at least pag may nakain sila na bawal sa kanila yun medic alert bracelet po ang mag-warn that its bad for them and so yun classmate din na nagbigay.
Title: Re: About G6PD
Post by: happyfemme on April 25, 2011, 05:45:54 pm
hello, may G6PD din ang son ko.

Actually until now, iniisip namin ni hubby kung saan nakuha ni baby ang deficiency niya. Kasi its my first time to hear such deficiency, pati si hubby hindi rin alam kung ano ang G6PD.

My son also underwent blood test dahil nakitaan ng symptoms after i gave birth, halos one week kami sa hospital dahil nag phototherapy siya.

First thing i did was to research about G6PD, as in mega read ako ng read. Browse sa internet ng mga experiences ng mga mommies na may mga kids with G6PD.

Next step i did was I really have to get a very good yaya para maintindihan niya ang kalagyan ng baby ko dahil maraming bawal sa kanya

Then next was explain to everyone in the house kung ano ang G6PD, yung mga things to avoid at mga food na pwede. Dapat talaga alam ng mga tao sa bahay ang mga bawal at dapat maging aware sila sa condition ng baby ko.

He is 10 months now, and im taking one step at a time to understand his condition. And im so happy when i saw this thread coz may mga support ng mga mommies and I know marami akong matutunan dito sa thread na ito.

I really hope na this thread will stay active.
Title: Re: About G6PD
Post by: ♥_caramel_♥ on April 25, 2011, 07:45:41 pm
share ko lang po experience ko with my son last Feb. ,. my son has ubo at that time then isang madaling araw bigla na lang kameng nagising kasi umubo si baby at aktong parang susuka so bumangon kame ng mom ko and we were shocked to see na after niya sumuka may lumabas sa ilong niya na blood  :'( :'( i was so worried dasal ako ng dasal at natutuliro ako , di ko lubos maisip kung baket nagbleed anak ko ,. ,. that was sunday ng madaling araw,. so monday dinala ng mom ko yung baby ko sa pedia niya (since may work ako) then yun sabe ng pedia napakaen ng bawal si baby , nag-isip kame kung anong bawal yun then naalala namen pinakaen ng pinsan ko yung anak ko ng kanin na may sabaw nun toge na may tokwa,. kaya we learned our lessons na very strict na kame lalo  dahil may nakalusot ngang ganung pangyayare , at nalaman na din namen na ganun pala ang magiging reaction once mapakaen ng bawal ,. so more careful na kame talaga ,.

kayo din mga sis be careful po ^^ learn from my mistakes
Title: Re: About G6PD
Post by: proudmommie on April 26, 2011, 08:05:47 am
Mommy caramel, ive read that its one of the symptoms yun bleeding pag nakakain sila ng bawal sa kanila. one thing i can advise is to please post sa room nyo or sa cabinet and ref ng print outs (make it bigger font) ng mga food and drugs to avoid ni baby ng sa ganon yun nagbabantay or nag-aalaga sa baby nyo ay may reference. ako talaga bawat bili ko ng biscuits or cookies na pwede eat ni baby, i see to it na no traces of soya or nuts.

share ko lang po experience ko with my son last Feb. ,. my son has ubo at that time then isang madaling araw bigla na lang kameng nagising kasi umubo si baby at aktong parang susuka so bumangon kame ng mom ko and we were shocked to see na after niya sumuka may lumabas sa ilong niya na blood  :'( :'( i was so worried dasal ako ng dasal at natutuliro ako , di ko lubos maisip kung baket nagbleed anak ko ,. ,. that was sunday ng madaling araw,. so monday dinala ng mom ko yung baby ko sa pedia niya (since may work ako) then yun sabe ng pedia napakaen ng bawal si baby , nag-isip kame kung anong bawal yun then naalala namen pinakaen ng pinsan ko yung anak ko ng kanin na may sabaw nun toge na may tokwa,. kaya we learned our lessons na very strict na kame lalo  dahil may nakalusot ngang ganung pangyayare , at nalaman na din namen na ganun pala ang magiging reaction once mapakaen ng bawal ,. so more careful na kame talaga ,.

kayo din mga sis be careful po ^^ learn from my mistakes
Title: Re: About G6PD
Post by: ♥_caramel_♥ on April 26, 2011, 02:17:37 pm
thanks mommy! yeah i will po nga po pala mind sharing some bisuits or cookies na binibili mo sa baby mo? kasi sabe ng pedia ni baby ko wag yun may MSG din not just soya or nuts
Title: Re: About G6PD
Post by: happyfemme on April 26, 2011, 02:25:45 pm
Agree ako sa inyo mga sis.

Kaya talagang lahat ng tao dito sa house namin alam ang condition ni baby. Sinasabi ko lahat sa kanila ang bawal. Strict na kung strict pero baby ko na ang nakasalalay dito.

1. I only allow my mom, si yaya at ako ang pwede mag pakain kay baby. (kahit na alam ng mga tao sa house kung anong bawal kay baby)
2. Kung ano lang ang authorized kong pwede ipakain kay baby, yun lang ang pwede nilang ibigay.
3. Explain to everybody ang symptoms kung aatakihin man si baby (hopefully, wag naman sana).
4. Post sa refrigerator ang contact ng pediatrician ni baby.
5. Nilagay ko sa contacts ng cellphone ng mom ko and ni yaya ang number ng mga doctors ni baby.

@sis caramel - sis, habang binabasa ko yung experience mo para akong naiiyak, kasi natatakot akong mangyari din sa baby ko.

Btw, nakahanap na ako ng pediatric hematologist kay baby. I might be going sa clinic niya this friday, promise ko sa inyo whatever it is na sasabihin ng doctor na makakatulong sa ating mga mommies i will post agad dito sa thread.

Im so happy na makita ko itong thread na ito, coz marami akong natututunan.
Title: Re: About G6PD
Post by: ♥_caramel_♥ on April 26, 2011, 02:38:33 pm
isa sa mga nakakawindang moments ko yan sis ,. tama ka dame naten matututunan sa isa't isa dito sige update mo kame about sa pedia hematologist na yan ^^ thanks!
Title: Re: About G6PD
Post by: proudmommie on April 26, 2011, 03:02:57 pm
in my case i have a complete list ng food and drugs to avoid every now and then i see to it that its updated.  (recently i came to know na yun tamarind and singkamas pala bawal din) every information even the symptoms like jaundice, color tea urine were posted sa wall namin para alam ng lola or yaya na nagbabantay whats happening in case di sinasadya na nakakain si baby ng bawal na food sa kanya. of course we dont want that to happen kaya dapat we should be very vigilant at all times.
we all feel the same mommies ;-) im very glad too that i found this thread ang dami dami natin learnings and infos na nagiging aware na tayo.
mommy caramel, yun po ba bleeding ng baby mo one time lang and di nyo po sya dinala sa pedia or ER? i feel for you kase pagdating sa ating mga anak kung pwede lang angkinin na lang natin yun mga nararamdaman nila. about cookies or biscuits, you can opt to buy like barquillos, skyflakes or egg nog baste be sure that you've read the labels.  if meron salt, its ok lahat naman ng crackers and biscuits meron salt.

we'll be waiting for your update mommy happyfemme. why ka pala naghahanap ng pedia hematologist for your baby?
Title: Re: About G6PD
Post by: ♥_caramel_♥ on April 26, 2011, 03:40:13 pm
^ sis dinala po namen sya sa pedia niya and once lang talaga nangyare yun
Title: Re: About G6PD
Post by: happyfemme on April 26, 2011, 03:47:22 pm
@sisproudmommie - actually sis advice sa akin ng pedia ko ng hema since the first check up ni baby  from the time i gave birth pero tinatamad akong maghanap before. Then i realized better follow what my pedia said, baka may matutunan pa ako kung sakaling mag pa check up ako ng baby ko sa ped hema.

Btw, nag back read ako sa mga early posts. Totoo ba na may cases na nag negative ang baby sa G6PD after the age of 6 moths? May nakapag reconfirmatory test na ba sa mga sis natin na nag negative ang result?
Title: Re: About G6PD
Post by: proudmommie on April 26, 2011, 04:02:27 pm
sis happyfemme, yes that's true. dapat dalhin mo na agad baby mo sa NIH sa PGH yun for recormfirmatory test to be sure if he is deficient. you dont even have to wait na mag 6 mos si baby. may nabasa din nga ako na after 2y/o pwede din ulitin yun iba daw nagiging negative.
Title: Re: About G6PD
Post by: happyfemme on April 29, 2011, 05:07:16 pm
Hi mommies! I went to a pedia hematologist at Asian, a couple of questions have been discussed sana maka tulong ako.

1. Saan galing ang G6PD ni baby?
Mostly mommies ang carrier, the dr explained the possibilities of  us having a G6PD child again as well as yung magiging mga anak ng baby ko in the future.

Example 1 : me (carrier) and daddy (normal)
- IF THE BABY IS FEMALE : the baby will not be deficient, but 100% carrier and can be passed to her MALE child in the future.
- IF THE BABY IS MALE : there will be a 50% chance that the baby is deficient and 50% chance that the baby is normal. (unfortunately on my part nakuha agad ni baby ang deficiency)

2. Symptoms:
- Paleness (pamumutla)
- Yellowish on eyes, skin. (paninilaw sa mata at balat)
- Tea like or "coke" colored urine.

3. First thing to do if experiencing such symptoms:
- Conduct a "CBC" (complete blood count) kay baby.
- FULL/ COMPLETE BED REST, it allows the patient to regenerate new cells in his/her body.

4. Other pointers:
- Do not take for granted "infections", because these are "stressers" to the patients body.
- G6PD does NOT lead to any other sickness or disease.

5. Does our baby need a regular check up from pedia hematologist?
- Nope, mas importante na complete ang vaccines ni baby sa pediatrician. Pedia hematologist comes in the picture if the patient is starting to experience symptoms.

P.S.
kaso mga mommies, I asked him about taking a reconfirmatory test again for my baby. Hoping na baka maging negative ang status ng baby ko, kaso he said na I could take such test to monitor lang his result pero the chances of maging negative si baby is slim because its a genetic defect.

But still, parang gusto ko pa rin i-test ulit si baby. Lahat naman tayong mga mommies umaasa ng pwedeng may milagrong mangyari. Dahil when i learned from this thread na pwede mare-confirmatory test ulit si baby eh nabuhayan talaga kami ng loob ni hubby. Kahit paano nagkaroon ng hope.

Hope nakatulong ako mga mommies.
Title: Re: About G6PD
Post by: ♥_caramel_♥ on April 29, 2011, 05:13:51 pm
thank you for the info sis! big help talaga  ,. gusto ko rin ipacheck ulit dugo ni baby baka mawala din umaasa din ako na sana mag-negative
Title: Re: About G6PD
Post by: proudmommie on April 29, 2011, 08:49:55 pm
mommy happyfemme, thanks for sharing. very informative po ito and i think magaling po yun pedia hematologist na napuntahan mo sa asian. walk-ins ka po doon or referral po yun pedia? for item #5, thats very true po kase my son's pedia also highlighted na yun complete vaccinations would make him protected kaya po thats what we did. lahat po ng namention mo sa update mo thats exactly the same advise weve got from our pedia. i intend to print your post mommy for my own reference and for us mommies to be reminded always of what to do. thanks again.
 
Title: Re: About G6PD
Post by: mizpah_karylle on May 05, 2011, 02:38:10 pm
@ proudmommie

just read your post. umattend si hubby sa seminar sa UP-PGH regarding G6pd last feb pa yata. if i remembered right, pinost ko din dito sa SP(not sure if in the same thread) ang info regarding sa seminary. anyways, dami daw talga questions.

regarding vaccinations, it's best nga na ipavaccine sila for additional protection.

am really glad this thread is still active.  ;D
Title: Re: About G6PD
Post by: bebezeth on June 15, 2011, 02:57:49 pm
^ sis kelan sila magkakaroon ng seminar ulit? Thank you.
Title: Re: About G6PD
Post by: bleiq on June 17, 2011, 10:06:25 pm
hello po..may g6pd din ang baby girl ko..1year and 1month na siya..share ko lang s mga nagtatanong ng milk n ok, ang milk niya is DG.. goats milk siya pero very positve ang result sa kanya..12kilos siya ngayon which is sabi ng pedia niya weight daw ng 2 years old yun..ok din s skin nila..wala akong nabasa n soy s milk..
Title: Re: About G6PD
Post by: bleiq on June 17, 2011, 10:17:55 pm
sana may maka discover na ng gamot for g6pd..i know ganon din ang prayers niyo mga mommies.. ;D
Title: Re: About G6PD
Post by: mizpah_karylle on June 18, 2011, 10:55:27 am
in my opinion, i don't consider naman na sakit ang g6pd, it's an irregularity on their chromosomes. i don't know kung ako din meron, pero probably since nagkaroon si baby, mommy kasi ang carrier. we just need to take EXTRA, EXTRA precautions on their medicines, food intake and other things na bawal na bawal.
we parents, need careful monitoring.
just my point of view.  ;)
Title: Re: About G6PD
Post by: bebezeth on June 18, 2011, 11:08:59 am
^ As i know mga sis genetic problem ito...
So walang gamot dun? It means genetic transplant lang
ang puwedeng gawin para gumaling which is wala
pa ganun ata na technology...
Title: Re: About G6PD
Post by: mizpah_karylle on June 18, 2011, 11:15:42 am
The ultimate treatment for G6PD deficiency is gene therapy (replacing a defective gene with a good one),
but this is not yet available at the present time. - per g6pd brochure.
Title: Re: About G6PD
Post by: .♥ kyutie ♥. on June 18, 2011, 09:58:30 pm
Yung baby ko meron din syang G6PD ..
Nung unang malaman ko na may G6PD sya at pinaliwanag ano ang posibleng mangyari sa kanya,
Sobrang nalungkot at umiyak ako ..   :'(
1st baby ko pa naman kasi tapos single mom pa ako ..
Tulad nyo mga mommies, hoping din ako na sana pag nag pa test ulit kami,
Negative na yung maging results,
For me kasi, kung pang habang buhay na talaga sa kanya ang G6PD,
Mukang mahihirapan ako,
Kasi hindi naman habang buhay na palagi lang ako sa tabi niya para bantayan ang mga kakainin niya ..
Pag pumapasok na sya sa skul lalo na kung kinder or elemantary,
Syempre hindi naman pwede pati ako papasok sa school kasama niya,
Nag woworry ako balang araw na baka makakain sya ng pagkaing bawal sa kanya ..
Lalo na kung bata pa sya baka hindi niya pa maintindihan tungkol dun ..
Kahit pancit canton pag kumakain ako hindi ko sya binibigyan
kahit ng hihingi sya sakin pag nakikita nyang kumakain ako
Kasi  Hinahaluan yun ng toyo diba?
Ang daming bawal na pagkain sa may mga G6PD ..
Sana lang balang araw yung may mga G6PD mawala na ..
Sa totoo lang mga mommies,
Hindi ako familiar sa ganun nung unang malaman o marinig ko ang G6PD
So far, wala pa kasi ako nakikilala o nababalitaang tao na may G6PD daw
Bawal daw sa kanya ang toyo, soya, taho or mga bawal na pagkain sa G6PD
So nung ipaliwanag sakin yung about sa G6PD,
Pakiramdam ko, 10% ang may G6PD sa buong mundo,
Yung baby ko pa ang nagkaroon,
at pakiramdam ko abnormal ang anak ko  :'(
Title: Re: About G6PD
Post by: happyfemme on June 22, 2011, 02:56:08 pm
Hello mga sis!


Regarding if may medicine for G6PD patients, wala talaga. Kasi its a GENE DEFECT.

Totoo ang sabi ng isang sis dito about "gene therapy" kaso wala pang technology for that.

Dati nang malaman ko ang condition ng baby ko, halos tinalo ko pa ang isang nursing student sa pag research tungkol sa deficiency ni baby.

Even "cord blood" can't treat our babies deficiency, nag inquire na ako sa CORDLIFE. Unfortunately hindi kasama ang G6PD sa kaya i-treat ng cord blood. Dahil paulit-ulit na sinasabi nila sa akin na isang GENETIC DEFECT nga raw ito.

My last straw is re-confirmatory test, pero ewan ko kung possible nga na pwedeng mawala. I read a blog kung saan isa sa twin niya may G6PD, pina-reconfirmatory test niya ulit and lumabas na clear na si baby niya. But instead of relying sa test dito sa Philippines. Pina test daw niya ulit ang baby niya at dinala ang blood  ng baby niya sa Singapore and lumabas sa result na G6PD talaga ang baby niya.

I would like to know kung saan sa Singapore niya pinadala ang blood ng baby niya, kasi gusto ko doon ko rin ipa-test instead na dito sa Pinas.

About sa sis natin na namromroblema sa pansit, kumakain ng pansit ang baby ko. Kaso yung pansit niya walang toyo, tinatabihan siya ng kusinera namin ng pansit na walang toyo. Tapos pag na bigyan na si baby, tsaka lalagyan na ng cook namin ng toyo yung pansit.

Sis dont worry, walang sakit ang baby natin. Isipin mo nalang may allergy si  baby. He/she will live a very normal life.

If  you want to know something, pasok ka lang dito sa thread. Maraming mommies ang nagtutulungan dito... even daddies! hehe
Title: Re: About G6PD
Post by: marcellovictorfunarance on June 29, 2011, 04:27:58 pm
2 na ang napuntahan ko na pedia, my 1st pedia said nothing about enfalac A+ at Enfalac na not safe sya for babies. my baby who is now 1 month and 2 weeks was diagnosed with G6PD deficiency (2.0). basta avoid lang daw un mga mga nakalista na bawal. eh may soybean oil sa engredients ng enfalac. my other pedia told me bakit daw binigyan ng milk formula na my soya. my prblem now is hirap magsuck ang baby sa nipple ko, panay iyak talaga kase nga since birth sa bottle na sya dumede. hope you could help me what milk formula ang pwede sa kanya.
Title: Re: About G6PD
Post by: bebezeth on June 29, 2011, 04:55:11 pm
^ sis ok naman ang enfalac sa g6pd babies ah?
   My baby is 1yr old, since birth enfa na siya.
   He started from Enfalac A+, EnfaPro A+ and now Enfagrow A+ na siya.
Title: Re: About G6PD
Post by: moonlight mom on June 30, 2011, 01:01:03 pm
Hi mommies! I'm also a mom of a g6pd baby. Ask ko lang, does anybody here tried nonfat yogurt on their kids with g6pd? I read skimmed milk has no traces of soya. Please help!
Title: Re: About G6PD
Post by: ♥_caramel_♥ on June 30, 2011, 02:31:04 pm
hi sis happy femme yan din sana last resort ko yun pa-test ko sya ulit kaso sa sinabe mo napaisip ako kung reliable ba talaga yun dito sa pinas since yun sa story mo nun pinatest dito nag-clear ang result but sa SG eh merun pa din ,. hmmm

sis moonlight mom sis alam ko ang yogurt eh bawal din sa may g6pd , kasama kasi sya sa list ng food na binigay saken ng friend ko na nurse ,. at sabe din ng pedia ni baby
Title: Re: About G6PD
Post by: happyfemme on June 30, 2011, 02:33:26 pm
Hi sis!

How old na baby mo?

Milk kasi ng baby ko si NAN PRO

Nung 0-6 months siya NAN ONE

Nung 7-12 months siya NAN TWO

Nitong 1 year old na siya NAN THREE

Other vitamins niya sis NUTRILIN and PEDZINC. Ok naman si baby. :)

Have anybody here tried SANGOBION sa baby nila? yung pedia ko kasi yung ang bagong nireseta niya sa baby ko for iron daw. Medyo hindi ganoon ka familiar kasi si pedia pag dating sa G6PD na baby, kaya medyo itong for iron daw na medicine medyo in doubt pa ako.
Title: Re: About G6PD
Post by: happyfemme on June 30, 2011, 02:39:42 pm
sis caramel,

Gusto ko pa test si baby sis pero gusto ko malaman kung saan sa Singapore dinala ng mommy sa isang blog yung blood ng baby niya. Nag leave ako ng PM pero she didnt answered.

Haaayysst, gusto ko pa rin pa re-confirm ang baby ko. But ayoko na dito ipa test. Ayoko ng trial and error na test. Kawawa naman si baby kung tusok dito tusok doon.
Title: Re: About G6PD
Post by: ♥_caramel_♥ on June 30, 2011, 02:42:52 pm
 ^ oo nga sis ayaw ko na din ata ipatest dito kaso wala naman ako money to go to SG pa  :'(
Title: Re: About G6PD
Post by: happyfemme on June 30, 2011, 02:55:29 pm
teka nga, hahanapin ko ulit yung blog na yun. Ang pagkakaalam ko yung blood lang ang dinala sa SG.

Nahilo na ata ako :)
Title: Re: About G6PD
Post by: mizpah_karylle on July 01, 2011, 08:50:55 am
sis happyfemme, ang baby ko din has g6pd, pinacheck dati ni pedia ang dugo ni baby and found out mababa ang hemoglobin. pinagferlin cia for 3 months for iron supplement. inextend after 2 months and then hindi pa din nagbabago kaya our pedia referred us to a pedia-oncologist. dinala namin lahat ng records ni baby, luckily we have with us his confirmatory lab results from lourdes hospital, hinanap kasi ng pedia. she evaluated the severity of g6pd of our baby. pinagferlin na din niya si baby and maintenance na daw since anemic.

hope this helps!

additional:

eto yata yung site sis: 'http://arlene-stylishbaby.blogspot.com/2011/02/g6pd.html'
Title: Re: About G6PD
Post by: moonlight mom on July 01, 2011, 11:24:55 am
hi mommy bleiq! san ka po nakakabili ng goat's milk? and is it ok to mix it with formula? (i.e., 4 bottles formula, 4 bottles goat's milk?) Thanks! ang dami ko natutunan dito sa forum! =)
Title: Re: About G6PD
Post by: happyfemme on July 01, 2011, 11:30:43 am
Oo sis! yan nga ang site!

Sis caramel yung site link nasa post ni sis mizpah_karylle

Curious lang ako if yung mommy mismo ang nagdala ng blood ng anak niya sa SG or pinadala lang from here sa Pinas to SG? Parang hospital to hospital kung baga.

Sana may hospital dito na pwede makapag coordinate ng hospital sa SG ng testing.

So iron suplement pwede pala. Sige try ko na sangobion si baby. Yun kasi riseta ng Pedia.

Title: Re: About G6PD
Post by: polsky on July 05, 2011, 07:19:04 am
At first, yung sa panganay ko positive daw siya for G6PD, nanginig ako akala kung ano na un.Di rin ako sure a layman's term pero ang pagkakaintindi ko din ay enyzme un s akatawan natin that protects our RBC since nagkukulang siya tapos exposed siya sa mga bawal na gamot at foods nanghihina at mamamatay ang RBC kaya minsan worst cases nagkaka hemolytic anemia pa bina-blood transfusion.So super ingat ako sa 1st son ko so far di nakaapekto ang pagiging G6PD niya while he is growing, naging asthmatic lang siya dahil nagka aallergy siya sa cow's milk noong baby,nag cough and colds siya tapos mas natrigger noong ngpunta na kami sa middle east pag sandstorm naku ubo agad siya :(( Basta avoid lang ang meds at foods na bawal ok na yan.Minsan sa mga moms na nakakachikahan ko minsan iniisip nilang OA na kasi super strict ako sa food at consult ko ang doctor lagi about sa medicines niya, pero i understand naman kasi wala silang anak na G6PD.Now turning 5 na siya bihira na ring na asthma at iwas sandstorm kasi dito na kami sa pinas at nag-aaral na din siya dito.Tapos yung bunso ko turning 3 mos na siya may G6PD din.hayy..at least noong nalaman ko relax na ako, di tulad noong dati halos mahimatay ako at di makalakad noong sinabi positive at need for confirmation test sa PGH. hehe.
Title: Re: About G6PD
Post by: PeggyJen on July 06, 2011, 07:39:08 am
mommies, di ko pa napapaconfirmatory test yun baby ko pero lumabas yun sa newborn screening niya. until what old ba yung baby na pwede ipa test? thanks :)
Title: Re: About G6PD
Post by: happyfemme on July 06, 2011, 02:31:43 pm
Sis, nung lumabas yung result ng newborn screening test ng baby ko na positive siya sa G6PD in-advice ako agad ni pedia to take a confirmatory test. A month old palang si baby nun.
Title: Re: About G6PD
Post by: Gboy on July 16, 2011, 12:02:09 am
Hello sa mga Mommies dyan.....anyway i'm Gboy, nagba2sa ako ng mga blog & comments about sa G6PD  & isa din ako sa mga magulang na nag aala2. pero i give some advice n sana mkatulong kahit pa2no sa naging experience ko sa aking anak na may G6PD din. My little Boy Name Enzo is now 1yr. & 1month old na ngyn at tulad nyo sobrang problemado ako sa gatas...nung infant pa sya Enfalac yung Milk niya pero nagkaroon sya ng rashes sa mukha kaya advice ng pedia ko sa Makati Med ay NAN 1 HW. at wala aakong naging problema bukod sa budget na napakamahal ng gatas n hehe! then after nun NAN 2 HW & now NAN 3 HW parin kasi nga yun lang ata yung wlang content ng SOYA LECITINE na syang bawal sa baby ntin. at totoo yung naba2sa ko na naeexperience ng ibang mommy na aang batang may G6PD ay medyo mahina ang immune system nila at madali silang maapektuhan ng viral infection kaya dapat todo ingat tyo. sya ng pla ang nakita ko naman sa baby ko sa iniinom nyang NAN HW ay mas lumalakas at tumitibay yung buto nila at pansin ko din na di sila tabain na bata kaya wag kyo msayadong magwo-worry kung sa tinggin nyo payat ng anak nyo. my baby is now 11kg. if i'm not mistaken at di man sya ganun kataba pero pag kinarga mo maki2ta mo na siksik yung bigat niya at hindi tabang ampaw lang.....hanggang dito nalang muna siguro & sana kip on posting pra mkapag share tyo at pwedeng mkatulong satin..Thank u & GODBLESS.
Title: Re: About G6PD
Post by: ♫☼Tine-Tine☼♫ on July 29, 2011, 04:53:28 am
hello mga sis!

tanong ko lang po ang gamit nyong milk kay baby, kasi dito sa cavite, hirap magkahanap ng DG so i switched to Gain, though it was recommended by my pedia. However, Gain has traces of Soya, kaya tanong ko lang kung meron kayong ibang suggestions?

thanks
Title: Re: About G6PD
Post by: proudmommie on July 29, 2011, 09:05:04 am
hi there tatay bjef. ang son ko, as far as i can remember, less than 1 result ng confirmatory test niya. need lang talaga bantayan food intake at medications. so far naman, 1 1/2 na baby ko, iniintroduce na namin ng food with soy pero limited lang. umattend kc c hubby sa seminar last feb re g6pd and the speaker advises to introduce food muna, dami nga daw talagang tanong and good thing nakapunta si hubby para madagdagan info and developments.

kung infant pa, better observe the list of do's and dont's. isipin na lang natin na, me allergy kids natin to certain food and medications, wag natin isipin na me sakit si baby, kasi controllable condition naman.

just my point of view. :)


hi sis, ilan po result ni baby mo?parang same po kase tayo. pero we never tried na pakainin talaga sya anything na with traces of soy sauce. how was your experience po when you tried even small amount ng food with soy sauce  sa baby mo?saka sis  have you thought na magpatest din for g6pd deficiency?sabi kase nila sa mommy nakuha pag baby boy ang meron. thanks sis!
Title: Re: About G6PD
Post by: proudmommie on July 29, 2011, 09:34:28 am
share ko lang po mommies.this is a very informative material for g6pd. you might as well print this to serve as our quick reference.thanks

http://www.aafp.org/afp/2005/1001/p1277.html
Title: Re: About G6PD
Post by: mizpah_karylle on August 01, 2011, 08:22:56 am
@ sis proudmommie

less than 1 ang result kaya nang nagpacheckup kami sa pedia-oncologist, buti dala namin confirmatory test (kasi ito unang hinanap), severe daw case ni baby.

nang medyo malaki na ang anak ko, saka namin inintroduce some foods with soy, pero minimal amount lang. so far, wala naman negative reactions ang anak ko.

hindi na ako nagpatest sis, per research, nanay ang carrier ng G6pd.
Title: Re: About G6PD
Post by: proudmommie on August 01, 2011, 06:42:20 pm
hi mommy karylle, thanks po sa reply. nakakarelate po ako sa yo kase ganyan din po yun result ng baby ko. how old is your baby na po?nadiscuss din po ba yan sa seminar na ok na introduce yun food with toyo kahit severe case si baby? me sis i plan na magpatest din po for g6pd since sabi nga po na mother din daw ay deficient. i want to find out din po yun result if ever na g6pd deficient din ako kase po i ate anything with soy sauce naman. will update you sis. thanks! :)
Title: Re: About G6PD
Post by: happyfemme on August 01, 2011, 07:33:51 pm
sis, mommies with G6PD kids are not deficient... we are carriers.

Madalas sis ang mga boys or baby boys ang deficient.

Ang son ko ang formula niya is nan three which may soy lecithin... pero ok naman siya... i dont want to challenge my son in terms of food. Natatakot din ako.

Kumakain din siya lately ng mga cookies na may soy lecithin, so far ok naman (fingers-crossed).
Title: Re: About G6PD
Post by: ilovebabyiorek on August 02, 2011, 12:37:44 am
hi mommies g6pd positive din yung son ko 3 mos palang sya now,sabi naman ng pedia namin don't worry too much kung g6pd ang anak mo basta iwasan lang yung mga bawal na food and medicines and they would be definitely fine,and one more thing halos lahat ng milk ay may soy content i asked pedia about it sabi niya ok lang daw kasi small amount lang naman daw yun di naman makakaaffect so there's nothing to worry.
Title: Re: About G6PD
Post by: mizpah_karylle on August 03, 2011, 08:57:30 am
hi mommy karylle, thanks po sa reply. nakakarelate po ako sa yo kase ganyan din po yun result ng baby ko. how old is your baby na po?nadiscuss din po ba yan sa seminar na ok na introduce yun food with toyo kahit severe case si baby? me sis i plan na magpatest din po for g6pd since sabi nga po na mother din daw ay deficient. i want to find out din po yun result if ever na g6pd deficient din ako kase po i ate anything with soy sauce naman. will update you sis. thanks! :)

mag-two years old na ang baby ko. before nan 3 hw ang milk niya. now we are introducing him nan pro. so far, okay naman, malakas pa din dumede. after magseminar ang hubby ko, we started introducing foods with soy pero limited amount talaga kasi kahit gatas, meron ding traces ng soy. pero sa medications, no, no talaga mga bawal. we have his list stapled in his baby book kaya everytime magprescribe ang pedia, it's always ready.
Title: Re: About G6PD
Post by: bhea-bhea on August 03, 2011, 10:51:41 am
Hi mga mommies....

same as lahat ng mga mommies dito may g6pd din ang baby ko nadetect lang yesterday... my problem is she is only 3 weeks and 2 days old.. meron na siya agad sipon and cough.. Is it reallyy bad? Sanay kasi siya na mula sa hospital nakatutok na ang fan sa kanya hanggang house. Ayaw niya ng naiinitan. napakahina nga ng immune system niya...  We are planning to go to PGH sana kasu ang lakas ng ulan today..So we will moved it tomorrow.. Sana ok lang ang baby ko..  sobrang dami ng rashes niya sa face niya pero nagastart yun sa neck niya when she was only 1 week old.. Yesterday ko pa lang nalaman.. I was really scared for the safety of my baby. Please help me naman to know more about g6pd. Hindi pa naman confirmed na meron talga siya nun kaya magdouble check kami sa pgh.. Pero lahat ng symptoms meron siya.. Her milk is Enfalac.. Hindi rin kasi ako nagpabreastfeed sa kanya.. Is Enfalac good or not?? I just wanna make sure.. Bumili pa naman ang daddy niya ng maraming milk para my stock kami... Yun pala iba pala dapat ang gatas niya.. Sayang naman kasi kung hindi ko ipapaubos... And iyakin din ang baby ko.. dahil kaya yun sa g6pd or not?


Sana mga mommies matulungan niyo ako kasi I am really paranoid na sa sakit ng baby ko.
Title: Re: About G6PD
Post by: bhea-bhea on August 03, 2011, 11:01:07 am
Hi mga mommies....

same as lahat ng mga mommies dito may g6pd din ang baby ko nadetect lang yesterday... my problem is she is only 3 weeks and 2 days old.. meron na siya agad sipon and cough.. Is it reallyy bad? Sanay kasi siya na mula sa hospital nakatutok na ang fan sa kanya hanggang house. Ayaw niya ng naiinitan. napakahina nga ng immune system niya...  We are planning to go to PGH sana kasu ang lakas ng ulan today..So we will moved it tomorrow.. Sana ok lang ang baby ko..  sobrang dami ng rashes niya sa face niya pero nagastart yun sa neck niya when she was only 1 week old.. Yesterday ko pa lang nalaman.. I was really scared for the safety of my baby. Please help me naman to know more about g6pd. Hindi pa naman confirmed na meron talga siya nun kaya magdouble check kami sa pgh.. Pero lahat ng symptoms meron siya.. Her milk is Enfalac.. Hindi rin kasi ako nagpabreastfeed sa kanya.. Is Enfalac good or not?? I just wanna make sure.. Bumili pa naman ang daddy niya ng maraming milk para my stock kami... Yun pala iba pala dapat ang gatas niya.. Sayang naman kasi kung hindi ko ipapaubos... And iyakin din ang baby ko.. dahil kaya yun sa g6pd or not?


Sana mga mommies matulungan niyo ako kasi I am really paranoid na sa sakit ng baby ko.
Title: Re: About G6PD
Post by: unknown on August 03, 2011, 04:42:56 pm
enfalac is ok sis or  the enfa series.  Kung magpapa-confirmatory test kayo at nalalayuan kayo sa pgh meron din sa lourdes hospital if malapit din kayo dun.
Title: Re: About G6PD
Post by: riddermark on August 03, 2011, 05:12:53 pm
NAN HW din yung milk ng eldest ko (as advised by his pedia). eldest ko lang ang G6PD. yung bunso hindi pero since meron allergic rhinitis ang daddy so pati su bunso NAN HW na rin.

last week (more than a week) nag fever si kuya. on off and mostly nearing night time and at night. can't get his temp dahil nagwawala kapag me dumampi sa kanya. wala namang muscle pain. may day rin na walang fever.

last saturday nagpa CBC with platelet count kami.  mababa lang konti yung RBC (below normal). I asked his pedia through text if it is because of G6PD yung pag fever niya? ang sagot ... PROBABLY.

so mga mommies, watch out kahit fever. hindi naman tea-colored yung urine or maybe because we cant tell dahil nagmemedicate sya for primary complex. hindi naman fatigue looking minsan active naman.  mainitin lang ulo.

pero doctor said IF fever doesnt recur, no need to treat. so far, ok naman na kuya ko. hindi na nagkafever.

sa tingin ko naman matagal nang nakaka intake ng soya anak ko hindi maiwasan sa pagkain lalo na sa labas ng bahay. meron din dyan na me halong beans ang sabaw syempre naiinom din niya yon. very hard to implement ZERO avoidable foods.

sabi ni doctor, ang pinoy babies naman daw di naman katulad ng ibang lahi na SOBRA ang reaction sa mga bawal. ang talagang iwasan at NO NO is yung fava beans.  yun nga, matagal tagal na rin nakakatake ng me soya ang anak ko siguro pero hindi naman nagkaron ng adverse reaction.

yung fever lately, i dont know what's really the cause.
Title: Re: About G6PD
Post by: happyfemme on August 04, 2011, 01:07:53 pm
hi mga mommies! welcome sa thread.

@sis faye19uy - dont worry sis, lahat kami dito nakaranas ng nararamdaman mo when we found out that our babies ay deficient.

- about sa sipon and ubo ni baby, maybe (maybe lang ha) siguro nakatutok ang fan sa kanya. Kasi bawal talaga sa baby ang nakatutok ang electric fan talaga.

- about sa rashes, check mo sis kung bakit nagka rashes si baby. Yung baby ko kasi nagkarashes din sa face, ang sabi ni pedia, normal daw sa newborn kasi first time na expose ang skin sa outside world. Pero mas mabuti sis kung pacheck mo nalang din.

@riddermark - baka sis nagkafever si baby dahil lang sa "masamang panahon", ako rin sis nagka lagnat si baby pero hindi naman dahil sa G6PD niya.  Grabe naman kasi ang panahon, nakakainis. Sana sis ok na si kuya, at hindi na bumalik fever niya.
Title: Re: About G6PD
Post by: riddermark on August 04, 2011, 01:20:10 pm
^ thank you sis. And thank God hindi na nga nagka fever si kuya. medyo nabahala lang ako dun sa sagot ni pedia na since below normal RBC niya, it was probably because of G6PD pero hindi naman confirmed. for further testing pa dapat but since di na naulit fever, dropped the issue na.

sana nga dahil lang sa masamang panahon. and id like to think it that way.  :)

sana OK lahat mga babies natin!!!
Title: Re: About G6PD
Post by: mizpah_karylle on August 05, 2011, 09:07:53 am

sa tingin ko naman matagal nang nakaka intake ng soya anak ko hindi maiwasan sa pagkain lalo na sa labas ng bahay. meron din dyan na me halong beans ang sabaw syempre naiinom din niya yon. very hard to implement ZERO avoidable foods.

sabi ni doctor, ang pinoy babies naman daw di naman katulad ng ibang lahi na SOBRA ang reaction sa mga bawal. ang talagang iwasan at NO NO is yung fava beans.  yun nga, matagal tagal na rin nakakatake ng me soya ang anak ko siguro pero hindi naman nagkaron ng adverse reaction.


mommy riddermark, yan din ang sabi ng speaker sa seminar na in-attend-an ni hubby. big no no talaga sa fava beans and sa medications talaga, yngat yngat.
Title: Re: About G6PD
Post by: doc ina on August 09, 2011, 02:38:03 pm
good day moms and dads!
here is a good website to inform yourselves regarding G6PD deficiency:
http://g6pddeficiency.org/index.php

and here is a list of foods that are not allowed for a person with G6PD deficiancy:
http://g6pddeficiency.org/index.php?cmd=contrafood

basically, G6PD deficiency is an inherited disease that lacks the enzyme called Glucose-6-Phosphate-Dehydrogenase (G6PD).  Deficiency of this enzyme PLUS contact with a food or drug (digested then absorbed into the blood) will make the red blood cells (RBC) burst open and die.  this is called hemolysis.  Even if the enzyme is missing, you can still avoid this fatal reaction by avoiding the foods and drugs that have been found to cause hemolysis with G6PD.

G6PD is inherited, meaning there is no cure.  However, the adverse reactions CAN BE AVOIDED.  your job as parents is to inform yourself very well, avoid the food and drugs listed above, and teach your child the importance of following strictly these rules. 

Good luck moms and dads!

i will be happy to answer more questions through pm.

God Bless!

Doc Ina
Title: Re: About G6PD
Post by: fairell on August 19, 2011, 01:58:16 pm
hello po to all... im a newbie here.. and my baby is 1 month pa lang.. ask ko lang kung ok lang pong milk ang nestogen un kc ang alternate na milk ng baby ko kpag hindi ako makapagbreastfed... thanks
Title: Re: About G6PD
Post by: mirasol on August 20, 2011, 10:09:51 pm
Hi mga mommies....

same as lahat ng mga mommies dito may g6pd din ang baby ko nadetect lang yesterday... my problem is she is only 3 weeks and 2 days old.. meron na siya agad sipon and cough.. Is it reallyy bad? Sanay kasi siya na mula sa hospital nakatutok na ang fan sa kanya hanggang house. Ayaw niya ng naiinitan. napakahina nga ng immune system niya...  We are planning to go to PGH sana kasu ang lakas ng ulan today..So we will moved it tomorrow.. Sana ok lang ang baby ko..  sobrang dami ng rashes niya sa face niya pero nagastart yun sa neck niya when she was only 1 week old.. Yesterday ko pa lang nalaman.. I was really scared for the safety of my baby. Please help me naman to know more about g6pd. Hindi pa naman confirmed na meron talga siya nun kaya magdouble check kami sa pgh.. Pero lahat ng symptoms meron siya.. Her milk is Enfalac.. Hindi rin kasi ako nagpabreastfeed sa kanya.. Is Enfalac good or not?? I just wanna make sure.. Bumili pa naman ang daddy niya ng maraming milk para my stock kami... Yun pala iba pala dapat ang gatas niya.. Sayang naman kasi kung hindi ko ipapaubos... And iyakin din ang baby ko.. dahil kaya yun sa g6pd or not?


Sana mga mommies matulungan niyo ako kasi I am really paranoid na sa sakit ng baby ko.


hello po...g6pd din ang baby ko..awa ng Dios healthy naman po siya..yung mga rashes normal lang po un s mga baby kasi hndi p sila mxadong nka adopt s pligid nila..s mga hangin at iba p..nghahanap din po ako ng mganda milk n pwede s kanya..sbi po ng doc boy po ang mdlas my g6pd kc po s boy xy ang chromosome niya..pgka girl po xx ang chromosome niya..ang i\affected po kc ng g6pd is yung x chromosome..p xplain po kayo s pedia nyu..pro s naunawaan ko kc boy lang daw ang pwede mg g6pd..ewan ko kng mali ako..pki correct if mali..thnx
Title: Re: About G6PD
Post by: mommyonsale on August 22, 2011, 05:35:45 pm
Hi mga mommies... I have a son also n may g6pd... He's three years old now... Di naman na ako nagwoworry as long as n he knew already what is bawal for him to eat... Di naman namin siya pinagbabawalan kumain like taho he can it pero sago lang at yung tamis kc bata yan e di mo maiiwasan na mainggit sa bata na bumibili at nakakain ng taho so think solution na lang para mapaintindi sa bata na bawal.. I train him habang lumalaki siya xempre dapat pati mga kasama mo sa bahay alam nila para matulungan ka nila na maturuan yung anak mo... Like toyo naman hinding hindi nag aatempt ang anak ko na sumawsaw or anything un lang basta itim na sabaw sauce or food ayaw na niya dahil toyo or may toyo daw un... Sa gatas naman breastfed ako ng 1year and six months kaya medyo mlki n siya ng iformula ko... Ako lang ang nagprescribe ng milk niya para akong baliw sa mall na naghhnap ng milk n wala akong mababasa na soy lecithin pero hirap maghanap e hlos lahat meron kahit mahal n gatas so i end up pediasure chocolate dahil un din ang nagustuhan ng anak ko and until now un p din ang milk niya... Also sometimes pinipilit kong kumain c kuya ng adobo pero yung chicken lang hindi ko cnasamahan ng sauce... Ok naman di naman nagrereact... Kumakain din siya ng dingdong pero binibigay niya sa akin yung greenpeas... Ang mhlg talaga is maturuan ang bata habang lumalaki kc may times talaga n di ntin sila lagi kasama kaya sila mismo ang dapat na may control sa food nila... Su
Title: Re: About G6PD
Post by: doc ina on August 24, 2011, 03:32:15 pm
dear moms,

for mommy faye19ur: please read my post on page 2. i have also included 2 links there for further reading on G6PD.

it is important NOT TO PANIC.  informing yourself is the best way to handle the situation.  know what to do first then ask questions.

so, first, please have a confirmatory test done.  this is at PGH NIH. they only have a schedule for confirmation tests. tuesday and thursday.  call them up at tel 5218450.  this is at taft avenue, manila.

next.  upon confirmation, have the pediatrician explain to you what exactly \g6PD is and how it can affect your baby.  if the doctor is busy or will not explain it to you, look for reading material around the clinic, or in the internet.  there are a lot of websites that are very helpful.  i have attached 2 links in my previous post.

last.  G6PD is a hereditary disease.  meaning it is in the genes and that there is no cure.  however, it CAN BE CONTROLLED by avoiding the food and drugs that are not allowed.  kids with G6PD can have a perfectly NORMAL life if they avoid the food and drugs in the list that are not allowed.   

lastly, milk is allowed for G6PD babies.  especially BREASTMILK.  please try to breastfeed first.  this is the safest and most complete form of nutrition for your newborn baby.

if you have any more questions, please fe3el free to PM me.
thanks!

God bless!
Doc Ina
Title: Re: About G6PD
Post by: doc ina on August 24, 2011, 03:47:21 pm
for mommy mirasol:

yes you are correct that G6PD is X-linked.  however, G6PD can still happen among females.

G6PD is x-linked recessive. the G6PD gene is located on the x chromosome.  there are many possible combinations that can predict whether the son or daughter can have G6PD based on whether the mom or the dad or both are G6PD deficient. here is a link that may help you: http://www.g6pd.org/favism/english/images/genealogy2.gif

i hope i answered your question..

pm me if you have more questions. :)

God bless!
Doc Ina

Title: Re: About G6PD
Post by: Rbhee on August 27, 2011, 11:00:09 pm
Hi mommies, my baby is two months old with G6PD....ok lang ba na ang vitamins niya is ascorbic acid? yan ang binigay ng pedia niya and so far OK naman sya. if not ascorbic acid anong magandang vitamins sa kanya? anong magandang gamot sa ubo at lagnat sa kanya at this age? meron din ba kayong kilalang pedia who is a G6PD specialist?
Title: Re: About G6PD
Post by: Princess Dizon on September 05, 2011, 12:42:23 pm
hi mommy's

 ask ko lang sana kung pano nyo nalalaman kung my G6PD ang baby ?

 thanks
Title: Re: About G6PD
Post by: happyfemme on September 05, 2011, 02:35:48 pm
hi sis! yung supplements ng baby ko nung months old palang siya is pedzinc tsaka nutrilin. Medicine niya for cough and cold is disudrin and alnix. For lagnat is tempra. Saan ba ikaw located sis para ma refer kita. Dito kami sa south
Title: Re: About G6PD
Post by: doc ina on September 05, 2011, 08:56:42 pm
hi mommy's

 ask ko lang sana kung pano nyo nalalaman kung my G6PD ang baby ?

 thanks

@mommy princess:

a screening is done at birth, this is part of the newborn screening.  it is a law now in the philippines to have all babies screened for the 5 diseases included in the newborn screening program (NBS).  http://www.doh.gov.ph/faq/show/457.html

Hope this helps!

God bless!

Doc Ina
Title: Re: About G6PD
Post by: Princess Dizon on September 06, 2011, 11:28:08 am
@doc ina

 thanks sa info doc. buti nalang c baby normal lang ang result :))
Title: Re: About G6PD
Post by: bhea-bhea on September 07, 2011, 06:45:48 pm
Thanks Doc Ina...


Title: Re: About G6PD
Post by: malyn07 on September 09, 2011, 01:42:12 pm
Quote

G6pd is a least sakit sa new born screening bwal ang mga kiddos na nadetect ng may G6PD sa soya products walang gamot dun ang gamot lang is to avoid food/products na may soya content ;)

here's the link may thread din bout g6pd dito sa SP mas madaming info bout it :D

http://www.smartparenting.com.ph/parentchat/index.php?topic=2520.0 (http://www.smartparenting.com.ph/parentchat/index.php?topic=2520.0)

and more of g6dp here : http://www.g6pd.org/favism/english/index.mv (http://www.g6pd.org/favism/english/index.mv)

Godabless!0=)

ibig po bang sabihin, pag ngkaroon n ng trace sa NBS ng G6PD, malaki ang posibility na positive na po talaga? kasi po khapon tinwagan po kami ng ospital kung san kami ngpa-NBS na ipapaconfirm daw yung G6PD ni baby..huhu, hoping po ako na sana negative..sana po may mgreply..thanks po!
Title: Re: About G6PD
Post by: proudmommie on September 11, 2011, 05:22:10 pm
HI Mommies, ano po yun vitamins ng babies nyo para tumaba or ganahan kumain? is appetens good and safe for g6pd? any feedback? thanks po!  :)
Title: Re: About G6PD
Post by: PeggyJen on September 30, 2011, 10:42:35 am
saan kayo nagpa confirmatory test? my son kasi is 2 years old na di pa nacoconfirmatory, pwede pa kaya? :(
Title: Re: About G6PD
Post by: bhea-bhea on October 03, 2011, 09:34:07 pm
yes sis.. sa PGH.. meron nun.... NHD Buiding alam ko... pwede pa naman magpaconfirmatory test...


mga mommies... ask lang po.. pag turn ni baby ng 6 mos. ano ba ang pwede lang ipakain kay baby kung hindi naman pwede ang cerelac?? my baby turns 3 mos. this month and gusto ko pagdating niya ng 5 mos. ehhh mapakain ko na rin siya... kasu ang daming bawal ehh.. ano kaya ang pwede?
Title: Re: About G6PD
Post by: RoGue on October 04, 2011, 02:14:11 pm
yes sis.. sa PGH.. meron nun.... NHD Buiding alam ko... pwede pa naman magpaconfirmatory test...


mga mommies... ask lang po.. pag turn ni baby ng 6 mos. ano ba ang pwede lang ipakain kay baby kung hindi naman pwede ang cerelac?? my baby turns 3 mos. this month and gusto ko pagdating niya ng 5 mos. ehhh mapakain ko na rin siya... kasu ang daming bawal ehh.. ano kaya ang pwede?


hi mommy faye19ur, as for my daughter who's also positive in G6PD, around 5 mos, pinapakain na namin sya ng cerelac, pero yung walang soya - ex. brown rice ata yun.. sarap na sarap sya.. :D and you can also give her nilagang gulay, like potatoes, carrots, ganun yung ginawa namin sa baby ko.. in fairness, 1 year old na sya, healthy pa rin sya.. nag ra-rice na sya ngayon, at kung ano-ano naman ang kinakain niya, maliban nga lang dun sa mga bawal.. 
Title: Re: About G6PD
Post by: bhea-bhea on October 04, 2011, 05:23:48 pm
@ mommy rogue.... thanks for the info sis... atleast pwede rin pala siya ng cerelac... Im a little bit worried lang kasi sa ipapakain sa baby ko... mhirap na kasi magbigay basta... how about gerber?? is it ok na ibigay ko din siya kay baby? thanks in advance sis...
Title: Re: About G6PD
Post by: mhinpavico on October 15, 2011, 03:16:35 am
my baby is 4 months old now. he has g6pd and his milk is NAN 1 HW. Mahina sya kasi dumede. im planning to switch him to other milk. ask ko lang kung anung proper way of switching milk? kung pwedeng biglaan o example 3 scoops of NAN 1 HW plus 1 scoop of his new milk? hope you can help me mommies.. thanks so much!
Title: Re: About G6PD
Post by: joey_keith_0406 on October 29, 2011, 03:36:48 pm
hi gurl ask ko lang my baby has a G6PD din, his 2yrs.old na...before ang milk is Enfalac (lactose free) nung 2yrs.old na sya nagchange ako ng NIDO Jr. and Lactum 1-3...I don't know kung puwede un kz halos lahat ng milk eh may content ng soya...I'm so confuse kung anong milk ang ipa2take ko sa kanya...sa food naman kz madali ko mapagbawal ang problema ko is sa milk niya hndi ko alam kung ok lang ba sa kanya un..tas ang vitamins na prescribed sa kanya ng pedia niya is PROPAn w/ IRON w/c is ok lang naman sa kanya wala nmang bad effects sa kanya...haist I need some advise...
Title: Re: About G6PD
Post by: bhea-bhea on October 30, 2011, 12:40:58 pm
hi gurl ask ko lang my baby has a G6PD din, his 2yrs.old na...before ang milk is Enfalac (lactose free) nung 2yrs.old na sya nagchange ako ng NIDO Jr. and Lactum 1-3...I don't know kung puwede un kz halos lahat ng milk eh may content ng soya...I'm so confuse kung anong milk ang ipa2take ko sa kanya...sa food naman kz madali ko mapagbawal ang problema ko is sa milk niya hndi ko alam kung ok lang ba sa kanya un..tas ang vitamins na prescribed sa kanya ng pedia niya is PROPAn w/ IRON w/c is ok lang naman sa kanya wala nmang bad effects sa kanya...haist I need some advise...


sis, I don't know, pero alam ko it's ok. alam ko halos lahat naman ng milk may soya as you said.. pero safe naman ata yan sa mga baies. Im not sure din pero mas maganda seek ka ng advice sa doctor if is it ok na magchange siya ng milk. sa akin kasi yung pedia ni baby ko ay tita ko rin kaya she is requiring talaga sa akin na enfalac, kahit nakakapulubi talaga. pero ngaun she's out of the country kaya wala me pedia.hindi ko maitanong problem mo. Hindi rin kasi ako nagpapaBF kaya, yun na lang ang binigay na milk. in the vitamins naman ok lang and halos lahat ng vitamins ay safe sa mga babies natin..


mga mommies.. ask ko na lang din po, nung nakaraan kasi nagpa-vaccine me kay baby, sabi ng doctor lalagnatin siya, ayun nilaganat nga. Tempra ang binigay kay baby kasu ayaw iintake ng body niya.. nagsusuka and niluluwa lang lahat, nung huli ko nga pinainum halos namula na siya and hindi na makahinga. hininto ko ito hanggang sa nawala na lang ang fever niya, mga sis safe ba talaga ang babies na may G6PD sa tempra. ask ko lang kasi hindi talaga maganda ang result kay baby.. tyaka ano ba pinapainum niyo kay baby pag may lagnat siya. TIA
Title: Re: About G6PD
Post by: roughlady on October 31, 2011, 01:52:22 pm
Hi mommies, ask ko lang po. Ok lang ba na mgpaconfirmatory pa yung baby ko she's 1 yr old & 3 months na. Bale, me G6PD sya nung NBS sya, pedia told us na mgpaconfirmatory test sa lourdes hospital sa mandaluyong kaso nawala yung referral slip na binigay niya sa amin. So mommies, ok lang ba na magpaconfirmatory pa rin si baby ko kahit wala ng referral slip? Positive po kasi yung result dun sa NBS niya and now, I want to know kung totoong positive talaga sya sa.. And mommy, want to know magkano po aabutin ng confirmatory test?
Title: Re: About G6PD
Post by: lynann on November 10, 2011, 04:26:56 pm
ask ko lang po sana kung ano pwedeng gatas sa may g6pd. na try ko na ang nan hw at similic hw. lusaw naman ang pupu ng anak ko! nagtransfer na din ako sa enfalac lactose free pero masyado naman umigas yung pupu niya. ano pa pwdeng gatas sa may g6pd?
Title: Re: About G6PD
Post by: wenshie on November 11, 2011, 08:16:08 pm
my baby is 4 months old now. he has g6pd and his milk is NAN 1 HW. Mahina sya kasi dumede. im planning to switch him to other milk. ask ko lang kung anung proper way of switching milk? kung pwedeng biglaan o example 3 scoops of NAN 1 HW plus 1 scoop of his new milk? hope you can help me mommies.. thanks so much!


hi..better as your pdeia na lang for safety....ako talagang dependable ako sa doctor.
Title: Re: About G6PD
Post by: Tatay bjef on November 29, 2011, 12:36:58 am
mga mommies,

update lang po regarding sa gustong makakuha ng nakatype na list of g6pd na bawal.
just PM me po or you can email me and ask for a copy of g6pd. email me bjef@sbsn.edu.ph.

update lang regarding my son, we tried giving him cerelac as per advised by the pedia. apparently,
nagkaroon sya ng mga rashes the next day. plain cerelac lang binigay namin.

also pansin namin na meron din sya allergy with banana. nagkakarashes sya. although
gustong gusto niya. hindi na namin inulit. the next day kasi after namin pakainin ng banana
nagkarashes sya.

his milk is NAN 2 na. very active. as of the moment, hindi pa kami ulit nagpa confirmatory test ulit kung
magnegative na sya.
Title: Re: About G6PD
Post by: mommy phine on December 05, 2011, 12:21:51 pm
My baby have g6pd to..now he is 2 months na , kaka kuha ko lang confirmatory test niya nung november 23, 2011 and the result was 1.94 U/gHb..alala ako msyado mababa sa normal reference range.. kayo mommy ano mga result ng baby nyo? worried ako sa result  :(
Title: Re: About G6PD
Post by: maren on January 07, 2012, 09:37:29 pm
my 2 y.o. son is also g6pd deficient. . ganun din 1 plus lang ang result niya. he's healthy naman pero twice na sya nahospitalized. first uti. last december, gastroenteritis..i would like to believe na dhil lang sa nainom niya o nakain kaya nagastro sya o di nalinis ng maayos c bby kaya nauti. sana hindi dahil sa g6pd deficient siya.. nung nahospitalized sya last dec, nagkamali ang pedia niya,naresetahan ng bawal na gamot.cotrim..ngreact s baby namula. dun ko lang naisp na baka nagkamali ang pedia.lesson for me: tingnan sa list ng bawal na meds ang bawat reseta ni doc.
Title: Re: About G6PD
Post by: maren on January 07, 2012, 09:45:05 pm
my 2 y.o. son is also g6pd deficient. . ganun din 1 plus lang ang result niya. he's healthy naman pero twice na sya nahospitalized. first uti. last december, gastroenteritis..i would like to believe na dhil lang sa nainom niya o nakain kaya nagastro sya o di nalinis ng maayos c bby kaya nauti. sana hindi dahil sa g6pd deficient siya.. nung nahospitalized sya last dec, nagkamali ang pedia niya,naresetahan ng bawal na gamot.cotrim..ngreact s baby namula. dun ko lang naisp na baka nagkamali ang pedia.lesson for me: tingnan sa list ng bawal na meds ang bawat reseta ni doc.

nagsisi ako bakit di ko tiningnan sa list ng bawal ang reseta . akalain ko bang ganun mangyari,since 1 month c baby sya na pedia . i asked him parang wala lang sa kanya. magshift na lang kayo ako ng pedia.
Title: Re: About G6PD
Post by: proudmommie on January 08, 2012, 06:08:03 pm
advice ko lang mga mommies pls always keep a list of the food and meds to avoid. ako i see to it na its updated and posted in our wall.
Title: Re: About G6PD
Post by: Tatay bjef on January 10, 2012, 11:34:06 am
mga mommies, my son also has g6pd. he is now 10 months old.
ang result niya dati less than 1.0 pa nga e.

as of now, he is ok naman.

i have a copy of the computerized (CLEARER) version
of the list of foods/medicines/others na bawal.

i have also compiled it to another file
in chronological order para mas madaling tingnan
mga bawal.

you can e-mail me na lang bjef@sbsn.edu.ph
and i will email you the copy.

also i have done some research,
i think there is a cure for G6PD!!!

i'm not sure kung eto nga yun.
here is the link:
http://jn.nutrition.org/content/129/1/105.full

read nyo na lang po.
Title: Re: About G6PD
Post by: cea on January 10, 2012, 05:52:49 pm

medyo mahirap maintindihan yung pinabasa mo hehe..wala bang simple explanations lang about G6PD..? hehe..thanks
Title: Re: About G6PD
Post by: Tatay bjef on January 10, 2012, 08:38:33 pm
hehe. ala ako mahanap e.
pati ako naguguluhan. sensya na pero maghanap pa ako ng iba.
Title: Re: About G6PD
Post by: happyfemme on February 01, 2012, 04:58:25 pm
Mostly talaga is legumes ang bawal sa mga G6PD babies.

Lahat sinali ko na from beans, monggo, nuts, seeds and anything na galing sa family na mga binanggit ko.

When it comes to soy sauce, medyo pinapatikim tikim ni hubby si baby ng food na may soy sauce (my baby is already 1 year and 7 months old). He eats adobo pero i dont let him eat the chicken skin, meat lang. He also eats pansit.

Very important to tell all the members of the family, including the yaya and the help about the condition of our baby, para maiwasan yung mga "accidental" subo dito and subo doon.

Make a list of the bawal and place it sa door ng refrigerator.

Kapag kakain sa labas, i always bring biscuits, fruit, orfood na gusto ni baby like banana or cheese (just incase indoubt ako sa ingredients na hinalo sa food at least may food pa rin na kinakain si baby).

It is also important na kapag kakain sa labas, taste the food first bago isubo kay baby kasi baka my halong nuts especially sa mga desserts. (i always do that)

If working mom ka, always prepare muna a food para kay baby (breakfast, lunch and dinner). If indoubt sa capabilitiy ni yaya.

If housewife ka, tell yaya to make paalam muna what food ang ibibigay kay baby. Hindi pwedeng pangunahan niya ang ibibigay na food kay baby.

Call agad your pedia if the following signs are present:
1. pamumutla
2. tea colored urine
3. blood visible in urine or poo-poo.

I will post my list of "bawals" soon, kinukulit na ako ng chikiting ko. hehe


Title: Re: About G6PD
Post by: Samboy8111 on February 12, 2012, 09:32:10 pm
Hi, my son also has g6pd deficiency. He's now 6mos old pero hindi pa namin iniiba yung milk niya. Ang milk niya 0-6mos is nan hw 1 pero since 6mos old n siya dapat nan hw 2 n. Pero yung nan hw 2 contains soya lecithin. Ok lbg ba yun? Natatakot kasi ko painumin siya non kasi my soya lecithin. Pls help and reply. Thank you and God bless us all.
Title: Re: About G6PD
Post by: aifel719 on February 29, 2012, 02:27:30 pm
hello po to all mommies.....bago lang po ako member ng smart parenting...through searching about g6pd i found out n my mga mommies din pla n gaya ko n sobrang nahihirapan about the g6pd...and now i mdyo makakahinga n po ako kasi my mga mgpatatanungan na po ako n mga mommies lyk me
My 3months baby boy has g6pd po....1st baby ko po....ang dami dami ko po gusto i ask about g6pd?and some of my questions nasagot n po through sa pgbabasa ng mga post nio mga mommies...
to all mommies concern pls.help me po or guide me po.
nan pro one po ang milk ng baby ko n bngay ng pedia niya safe po b un?at the same time ng breastfeed po ako.....
bawal din po b sa akin yung mga bawal kay baby habang ako po ay ngbreabreastfeed?
and what are the vitamins po n puwede para sa baby ko po...
soy lecithin is bawal din po b?kc almost n pagkain is my soy lecithin po.
bigyan naman po nio ako ng list ng foods and drugs n pwd po itake ng baby ko?
Title: Re: About G6PD
Post by: aifel719 on February 29, 2012, 03:58:57 pm
My baby have g6pd to..now he is 2 months na , kaka kuha ko lang confirmatory test niya nung november 23, 2011 and the result was 1.94 U/gHb..alala ako msyado mababa sa normal reference range.. kayo mommy ano mga result ng baby nyo? worried ako sa result  :(
pinaconfirm ko po sa AUFMC sa angeles Pampanga ang abbay ko last february 15.
ang normal range din po is like s baby din po nio .and the result was 0.79 U/g HB mas mababa po sa baby nio...ano po sabi sa nio?mild lang po ba?kc mas mas mababa po yung result ng baby ko...
Title: Re: About G6PD
Post by: RoGue on March 13, 2012, 04:42:32 pm
even though i don't have a printed copy of the list na bawal kainin.. i have read it.. but i would really like to have one printed.. rule #1 ko everytime na nagkakasaket yung 1.6 y/o daughter ko with G6PD, that before the doctore give any medicines, i always tell her that she has G6PD.. in that way, she is always informed of the medicines that are NOT to be given/prescribed.

Tatay bjef - penge naman nung list mu :)
Title: Re: About G6PD
Post by: jeny_myke on March 14, 2012, 11:47:49 am
hello po sa mga mommies.. bago lang po ako sa smart parenting. 3 monts old na yung baby ko at may g6pd din sya. sana po bigyan nyo ko ng mga list ng mga bawal sa baby ko.. at sana advice nyo rin po ako kung ano mga dapat gawin.. thanks po..
Title: Re: About G6PD
Post by: mizpah_karylle on March 14, 2012, 04:42:29 pm
i also have a son with g6pd. 2.5 years old, nan hw 1-3 gatas niya until 2 years old, saka namin pinalitan ng nan 3 pro. meron din siya ferlin for iron deficiency. he had been taking it for a really long time. pinacheck-up namin siya dati sa pedia-oncologist and advised to give him ferlin since then.

para handy ang drugs that can be given to g6pd patients, i had our list on my baby's baby book. hindi kasi kabisado ng mga doctors ang list or minsan hindi updated. sometimes, doctors would even thank us for having the list accessible.

here is the link where you can download the list. i am not sure kung bawal to post this link, if ever, kindly do so mga mods. thanks.

http://www.newbornscreening.ph/index.php?option=com_content&view=article&id=87:brochures&catid=39:other-resources&Itemi

select G6PD Def Brochure (PDF) Updated Dec 2012

Kung may problem with the link, you may pm me and i can send you through email.

Just want to help. Good day everyone!
Title: Re: About G6PD
Post by: RoGue on March 14, 2012, 06:02:08 pm
thank you mommy mizpah_karylle for the list =) may mapprint na rin ako.. :)
Title: Re: About G6PD
Post by: mizpah_karylle on March 14, 2012, 07:33:41 pm
thank you mommy mizpah_karylle for the list =) may mapprint na rin ako.. :)

am sure glad to help.  ;)
Title: Re: About G6PD
Post by: jeny_myke on March 15, 2012, 03:19:07 pm
hello mga mommies.. guzto ko lang po malaman kung anong milk ang pinakasafe sa baby na may g6pd?.. yung baby ko kc 3 weeks pa lang sya nalaman ko na my g6pd sya, pinaconfirmatory test ko ulit pero positive pa rin, S26 Gold po ang pinapagamit kong milk ngaun.. safe po ba un sa baby ko na may g6pd??..
Title: Re: About G6PD
Post by: prettymimi on March 18, 2012, 11:58:21 am
Code: [Select]
[font=comic sans ms][move][move]hi ask ko lang pag anemic na ang bata mg g6pd n kc sa newborn screening niya normal naman yung g6pd niya pro nung naadmit siya 1month old anemic siya pinatest ko n nga blood niya yung cbc d ko lang napabasa kc d ko maabutn ang hematolgy ngsabay n buntis p ako meon b kaing alsm n online asking sa pediatrician hematology pr mlmn ko lang yung ibig sbhin ng result ng baby ko pls email nyo ako xandepogi@ymail.com kaya pg pagod n siya kalalaro sobrng pula siya..tpos medyo ngworry ako dhil mrong word n thalessemia bsta nid ko ngbabsa ngdugo help me :-[[/move][/move][/font][/color]
Title: Re: About G6PD
Post by: prettymimi on March 18, 2012, 12:06:17 pm
hi ask ko lang pag anemic na ang bata mg g6pd n kc sa newborn screening niya normal naman yung g6pd niya pro nung naadmit siya 1month old anemic siya pinatest ko n nga blood niya yung cbc d ko lang napabasa kc d ko maabutn ang hematolgy ngsabay n buntis p ako meon b kaing alsm n online asking sa pediatrician hematology pr mlmn ko lang yung ibig sbhin ng result ng baby ko pls email nyo ako xandepogi@ymail.com kaya pg pagod n siya kalalaro sobrng pula siya..tpos medyo ngworry ako dhil mrong word n thalessemia bsta nid ko ngbabsa ngdugo pls help me :-(
Title: Re: About G6PD
Post by: Tatay bjef on March 26, 2012, 03:44:02 pm
just an update to everyone,
kung need nyo lang ng malinaw na copy
nung mga foods and medicines na
bawal sa mga anak nating may g6pd
para pwedeng ilagay sa cellphone,

just email me bjef@sbsn.edu.ph
and i'll send you the copy.
malabo kasi yung binibigay sa mga
confirmatory tests.

Aside from dun sa binibigay, meron
pa akong isang list na mga bawal din
na medicines.
Title: Re: About G6PD
Post by: mommyloveiyah on April 04, 2012, 10:35:38 am
hi mga mommies,

When I first heard na may g6pd din baby ko, super iyak din ako at panic kc nun ko lang un narinig. akala ko super serious. then nalaman ko, yung apo pala ng OBGYNE ko ganon din yung case. advise niya lang ako na iiwas yung baby ko sa mga bawal at pag lumalaki na sya, ipaalam ko sa kanya yung situation niya at malaman niya kung ano at bakit bawal sa kanya ang mga bagay bagay. Then yung pedia niya inexplain din samin kung ano un at kung paano maaalagaan. dapat daw yung copy na binigay sa hospital n may nakalagay ng mga bawal at pwede sa kanya ay ipa xerox ng madami. maglagay daw sa mga places na lagi natin nakikita like ref, cabinets, etc. dapat daw nasa baby book din un para ref. ng doctor niya in case need niya ng medication. then if schooling na, mag lagay din daw ng copy sa bag niya and inform the teacher about yur child's case.

By the way, my daughter is now 5 months old and very active. kaya lang totoong malapit sila sa mga allergies kc lagi din sinisipon anak ko. :-\
Title: Re: About G6PD
Post by: Daddy Chris on April 07, 2012, 08:57:15 pm
hi, question lang mga mom and daw. Pag may G6PD ba ang baby anemic na sya or magiging anemic lang sya pag hindi mo naiwasan yung mga food and medicines na bawal sakanila? My baby is 1 month old. G6PD baby sya. Thanks!
Title: Re: About G6PD
Post by: mommy_trish on April 11, 2012, 07:50:55 am
Question din, kapag ba nakakain ng bawal ang may g6pd makikita agad ang effect or hindi tapos pwede lang magprogress? Thanks.
Title: Re: About G6PD
Post by: LLLA on April 18, 2012, 04:56:11 pm
I just got a text message from the hospital and sabi may Positive result daw ang baby ko sa NBS.
Sobrang nataranta ako, I called them and they said G6PD daw.
Ipapaulit namen yung test tomorrow.
Meron na pala sa Perps Las Pinas. Hay sana mag-NEGATIVE siya...

For more info about G6PD..click below.

http://www.g6pd.org/en/Home.aspx
Title: Re: About G6PD
Post by: LLLA on April 24, 2012, 02:04:31 am
Hi po!
Sa mga moms na may G6PD + babies..ano pong Milk Formula nila?
Title: Re: About G6PD
Post by: Normie on May 14, 2012, 04:16:57 pm
hi:)
yung baby ko is 6 mos. una NAN H.A. ONE yung gatas niya, sabi ng pedia walang Soya...kaya lang ngayun na 6 mos. n sya yung Nan h.a. two nung chineck ko yung ing. may soya na sya..ok lang kaya yun?
Title: Re: About G6PD
Post by: Normie on May 14, 2012, 04:45:02 pm
Mmy myra di ba bawal din yung naphtalene o yung moth balls kahit madikit lang sa skin nla bawal po yun.safe po ba ang vicks sa g6pd positive babies/

Mommy bawal po vicks kasi may menthol po:(
Title: Re: About G6PD
Post by: Normie on May 14, 2012, 04:52:02 pm
hi, question lang mga mom and daw. Pag may G6PD ba ang baby anemic na sya or magiging anemic lang sya pag hindi mo naiwasan yung mga food and medicines na bawal sakanila? My baby is 1 month old. G6PD baby sya. Thanks!

Healthy baby po sya basta makaiwas sa mga bawal...:) yung pedia ng baby ko meron binigay na vit. folic acid..lifetime na daw siya magtake nun.hayy,...still lucky pa rin tayo kasi ganun lang ang meron sa baby natin.... 1 out of 50 babies my g6pd..nakakalungkot na isa pa ang baby natin dun. pero pasalamat na rin at ganun lang db....normal sila basta makaiwas sa mga bawal:)
Title: Re: About G6PD
Post by: LLLA on May 22, 2012, 05:10:25 am
oo nga basta iwasan ang mga triggers..
sa milk naman.. basta di SOYBASED like SIMILAC.
My son is taking NAN-HA. Dati S26-GOLD.
Title: Re: About G6PD
Post by: wenshie on June 26, 2012, 10:17:17 am
hi to all moms and dads. I know at I can feel all your worries. my 11 months old son is G6Pd and take note kulang pa siya sa buwan when I ghave birth. Laht ng worries naramdaman ko na, madami na siya pinag daanan , nagkahernia pa siya during his 8 months kaya nagkaminor surgery siya that time. mommies and daddies don't worry that much, basta always monitor lang si baby. similac hw milk niya ngayon and im planning to shift his milk kng ano advice ni pedia. When it comes to food lahat natural, pinagluluto ko lang siya ng rice na may kasamang vegetable like squash, carrots, potato and sometime  soup ng nilaga at super matakaw siya kahit maliit cyang bata. pero I notice na siksik ang laman niya , very active, and at very young age he knows how to appreciate things, like for exmaple may dala akong diaper, water and milk. He knows kung saan makikita ang lizard.. ehheehe.. You know k=hindi nasusukat sa taba ang bata, basta normal ang kilos, kain,ok na ok....
Title: Re: About G6PD
Post by: ♥_caramel_♥ on June 26, 2012, 07:21:17 pm
hi everyone ang tagal ko na di nakabisita sa thread na toh anyway po share ko lang ,. before takot ako na pag walang reseta ng pedia ayaw kong palitan milk ni baby pero now my son is 3 years old nahiyang naman sya sa nestogen 2 (before) at now nestogen 3 na ,. nag gain din sya weight ., so far eto na mga na try namen nan HW, nan Al110, similac, frisogrow (kaso wala na sya sa market), i forgot the other one hehe pero yun nga tinry ko lang na nestogen since yun din kay bunso and it works wala naman allergies or any bad reaction si kuya aidan ko ^^
Title: Re: About G6PD
Post by: HoTtMomi on June 26, 2012, 11:00:35 pm
Hello moms! :)
   
   Ako naman ,I already have two kids..the eldest is 3 yrs.old and my youngest is almost 4 weeks na..I've been using Nan HW sa eldest ko since my husband's family has an Allergic history..Now,on my second chlld,we are using Nan HW too but just last night,we sitched to Nan PRO..I'm still observing kung hiyang ba siya sa milk..My problem rightnow is it seems na palagi siyang may kabag..Do you have any ideas on how to get rid of gas pains? nilalagyan ko si baby ng manzanilla but para yatang hindi ganun ka effective..Hope you could share some of your  ideas..Godbless! :))
Title: Re: About G6PD
Post by: proudmommie on July 03, 2012, 06:44:23 pm
for those who are interested. there will be a seminar for parents on g6pd deficiency to discuss genetic and clinical aspect of g6pd. it will be at UP manila college of pharmacy auditorium on july 27, 2012 1-4pm. limited seats only! if interested you may call 376-0962 and 376-0964. for parents who intend to come please pareserve na po kayo ng seats. this will be a good experience for us mommies & daddies.
Title: Re: About G6PD
Post by: andrej on July 13, 2012, 05:51:08 am
hi  mommies! i have a 7 mos old son who also has g6pd...s26 gold binigay na milk sa hospital so tinuloy ko ito til he was 6mos. When i asked his pedia what milk bibigay sa kanya since til 6mos lang s26.. sb ng doc niya ok lang to give him any milk kc daw it is not the problem...help mga mommies! what formula can i give my son?
Title: Re: About G6PD
Post by: bhea-bhea on July 18, 2012, 07:17:35 pm
hi mga sis... is it ok kung alactagrow ang ibigay ko ng milk kay baby?? safe naman ba... 1 yr old na siya kasi...and she has g6pd.... meron ba sa inyo nagpainom ng alcta kay baby?TIA
Title: Re: About G6PD
Post by: proudmommie on July 26, 2012, 08:30:32 am
im attending the seminar tom and will just post and share anything that will be discuss tom. If only i got a recorder baka magdala ako hehe.anyway for those who will attend like me pls bring notes and prepare your questions. Thanks. :-)
Title: Re: About G6PD
Post by: trishevil on July 26, 2012, 09:07:09 am
^mga sis anong brand ng toothpaste ang ginagamit niyo sa G6PD baby niyo? I bought Pigeon Baby Toothpaste yesterday kasi..Dati Earth's Best ang ginagamit namin kaso, can't afford na ngayon kasi nasunugan kami. Pigeon is cheaper kaya yun binili ko..wala naman menthol yun..meron sorbitol, glycerin, etc..can't remember the exact ingredients..meron din na something na may sulfate dun.
Title: Re: About G6PD
Post by: proudmommie on July 29, 2012, 04:22:14 pm
sis, natanong po yan sa seminar whats the safest toothpaste we can give to our child? and accdg to the medical experts hindi naman po bawal ang toothpaste kase we only use pea sized of it.so wag po tayo mag-worry.  ;)
Title: Re: About G6PD
Post by: Goodiesmom on July 29, 2012, 09:02:26 pm
sis ask ko lang po? yung mga food na may magic sarap pwede po ba si baby?  my son is G6PD at 6 months na sya gusto ko sana patikim sa kanya yung sabaw like tinola but tuwing nagluluto ang father in law ko laging may magic sarap.. ok lang po ba yun? may problem din kase si baby sa pag swallow kaya naka NGT din sya.. nagsaswallow lang sya kapag malasa ang pinapakain sa kanya.. pwede nyo po ba ako bigyan ng mga food na malalasa na pwede ipakain sa G6PD?  :'(
Title: Re: About G6PD
Post by: proudmommie on July 30, 2012, 08:49:55 am
hi sis Goodiesmom, magic sarap po is a food enhancer and usually mataas po ang content ng sodium nun.and kung maaari po maiwasan natin yun since 6mos pa lang baby mo much better.  i suggest before po nyo lagyan nun yun food na lulutuin nyo ng magic sarap eh separate nyo na yun para kay baby. anyway, pepper and salt naman po would make our dishes to enhance the taste  so kung pwede natin iwasan yun mga ganyan mas ok. why dont you make mashed banana, or peaches or any kind of fruits or porridge. based na din sa seminar na napuntahan ko wala po bawal na filipino fruits sa g6pd.  ;)
Title: Re: About G6PD
Post by: happyfemme on July 31, 2012, 09:47:43 pm
sis if 6 months palang si baby start with mashed fruits and vegetables. Huwag na muna sa "table foods" or mga ulam na. Kasi sis iba ang panalasa ng mga babies compared sa mga adults, matapang pa sa panlasa ng mga babies ang table foods.

True ang sabi ni proudmommie, magic sarap is a food enhancer. Iwas muna si baby sa mga ganyan. Go for fruits and vegetables muna, you can mix it with her milk formula or milk na iniinom niya. My son eats lugaw (just plain lugaw no salt or msg etc.) when he was just 6 months old. He is 2 years old now.

As for toothbrush, i dont put anything pa sa brush ni baby. Madalas water and toothbrush lang, he doesnt spit pa kasi and tends to swallow pa.

My son's milk is NAN three na. :)
Title: Re: About G6PD
Post by: bhea-bhea on August 03, 2012, 02:16:23 am
pwede po ba magpa confirmatory test ng g6pd kahit walang referral? and saan po pwede ng walang referral?Gusto ko sana ipacheck ulit si baby 1 yr old na kasi siya ehh.. last year nung 1 month old si baby sa PGH kami nagpa-confirm.. kinuha na nila yung referral namin ehh..TIA
Title: Re: About G6PD
Post by: jncldttaguilar on August 07, 2012, 11:50:50 pm
@proudmommie : sis, may nirecommend bang milk para sa mga g6pd babies?.. im using enfalac kasi, 4 mos na si baby and we're planning to switch to promil gold when she reaches 6 months.. and may next schedule ba sila for seminar? thanks so much!
Title: Re: About G6PD
Post by: proudmommie on August 10, 2012, 05:20:14 pm
@sisjncldttaguilar, as per seminar, wala pong bawal na milk and we shouldnt worry actually as per the experts themselves lahat po ng formula milk has soya lecithin ingredients and dont worry hindi naman po kase yun main ingredient sa milk formulas so napakaliit or minimal lang po ng soya content nun. and so far wala din po sila narereceive na reports na may bad effect yun mga yun sa g6pd  babies like baka magmanifest yun symptoms or something hindi po wala po yun. kase ako din po may son is drinking gain since he turn 6mos worry ko din yun dati and so far ok naman po and wala po bad effect yun with their health. wala pa po next sched dont worry i will post again here in this thread if i receive an info for another schedule of the g6pd seminar.sayang you miss the chance. andami dami ko po natutunan and now i felt relieved. ;-)
Title: Re: About G6PD
Post by: ♥_caramel_♥ on August 10, 2012, 08:36:46 pm
^sis pa PM naman po ako pag may seminar ulit ^ thank you po matagal ko ng gusto toh kaso the last e\tiem eh weekday nila na-held so i wasn't able to attend,  :'(
Title: Re: About G6PD
Post by: jncldttaguilar on August 13, 2012, 08:11:28 pm
@proudmommie: sayang nga eh.. i recently joined the forum kasi so ngayon ko lang nlaman,, thanks for the info sis ah, this helps us so much!..:)
Title: Re: About G6PD
Post by: proudmommie on August 17, 2012, 11:46:57 pm
@caramel, sure  po i will definitely post here if ever magkaron po ulit ng g6pd seminar for parents. eto pong recent seminar weekday din nakaschedule and i just took an off from work because i do really want to learn from this seminar. sobra po akong na-educate and i must say worth it po yun pag-leave ko from work.
@jncldttaguilar, no problem ;)
Title: Re: About G6PD
Post by: katerodulfa on August 19, 2012, 10:54:44 pm
hi am new here. my baby is 1 month and 12 days and he was diagnosed with G6PD the result was 0.58.. and milk niya is s26 and breastfeeding sya.is it ok n s26 for him?specially lapit n matapos ang maternity q and i will going back to work na.can u gve me the sites or the unsafe foods for him.so i can post it here in our house.thanks
Title: Re: About G6PD
Post by: haze123 on August 28, 2012, 06:13:06 am
hi. baby ko meron den g6pd. similac advance yung gamit ko ok naman daw sabe ng pedia kahit my soy oil. medyo mahal nga lang pero maganda sya..
Title: Re: About G6PD
Post by: haze123 on August 28, 2012, 06:17:05 am
hi ulit.. 3 mos n baby k. ok daw any milk basta walang soya. lahat naman sila my soy oil. s kabag virgin coconut oil instead og manzanilla.
Title: Re: About G6PD
Post by: haze123 on August 28, 2012, 06:22:24 am
hi. my baby is 3 mos old. may g6pd defficiency din. gamit ko similac advance. ok n ok sya mahal nga lang. but my pedia said ok din daw ang enfalac a+, medyo mura.
Title: Re: About G6PD
Post by: Paw on September 05, 2012, 04:17:50 pm
Hi guys...newbie here...our two-year old daughter also has G6PD deficiency...so far, she's one healthy and active baby despite her condition.

I hope we can get more insights about her condition in this forum. I'm willing to share our experiences as well in dealing with our daughter's G6PD deficiency. Thanks.
Title: Re: About G6PD
Post by: nolecrab on September 07, 2012, 10:23:10 pm
sis if 6 months palang si baby start with mashed fruits and vegetables. Huwag na muna sa "table foods" or mga ulam na. Kasi sis iba ang panalasa ng mga babies compared sa mga adults, matapang pa sa panlasa ng mga babies ang table foods.

True ang sabi ni proudmommie, magic sarap is a food enhancer. Iwas muna si baby sa mga ganyan. Go for fruits and vegetables muna, you can mix it with her milk formula or milk na iniinom niya. My son eats lugaw (just plain lugaw no salt or msg etc.) when he was just 6 months old. He is 2 years old now.

As for toothbrush, i dont put anything pa sa brush ni baby. Madalas water and toothbrush lang, he doesnt spit pa kasi and tends to swallow pa.

My son's milk is NAN three na. :)




Hi happyfemme, my baby is now 6 mos old and we are planning to change her milk from Nan HA1 to NAN HA 2..medyo napa atras lang ako nung napansin ko nga na may soya lecithin na cia..ok lang ba si NAN HA 2 for G6pd babies? Napansin ko din na pag dating ng NAN HA 3 wala na ulit ang soya lecithin sa ingrediets.. Ginamit mo ba si NAN HA 2 before ka mag 3? thanks!
Title: Re: About G6PD
Post by: eljee_26 on September 23, 2012, 03:11:18 pm
hi mommies... my baby is 5 months and me g6pd din sya.. hindi ko alam kung ano mga ipapakain k s knyamag 6 months na kc sya..i wanna know kung kelan yong nababasa ko na seminar sa me UP? thank u..
Title: Re: About G6PD
Post by: eljee_26 on September 23, 2012, 03:25:34 pm
and ang meron bang g6pd prone b sya sa allergies..? me sipon ang baby ko ngaun bale 2nd time n sya nagkasipon. a month ago lang yung una. thanks mga sis..
Title: Re: About G6PD
Post by: eljee_26 on September 23, 2012, 03:32:20 pm
another question po..ang cerelac or gerber products pwede po b s me g6pd..? pls help naman po mga sis what food ang ipapakain ko sa baby ko... though me list kaso parang ang hirap pano lutuin or what..sana me mga recipes exclusively for g6pd babies....
Title: Re: About G6PD
Post by: eljee_26 on September 26, 2012, 01:24:11 pm
hi mommies...have you heard or have seen the new book for g6pd babies? Book title is " Staying healthy for g6pd deficiency by dale baker..  it's all about the food recipes for deficient babies.... i was trying to look for that book in bookstores but unfortunately wala ako nakita.. you can order online though..

Title: Re: About G6PD
Post by: ♥_caramel_♥ on September 26, 2012, 01:51:57 pm
^sis thanks for the info magkano kaya online? anyway samga tanong mo i posted answers last sun. bunt inde ata na post anyway ayun po accdg to my pedia prone sa sipon or viral infections mga batang may g6pd since mahina immune system nila for cerelac ang gerber pwede naman but still check the ingredients ,. pero for me po i didn't let my son eat those kasi mas ok na fruits or yun veggies na pwede sa kanya,. wag din pala carrots i forgot the explanation made by the pedia but anyway yun di na namen sya pinakakaen nun
Title: Re: About G6PD
Post by: QueenBee on September 26, 2012, 01:59:38 pm
^sis ♥_caramel_♥ bakit daw hindi pwede ang carrots? ako pinapakain ko naman baby ko ng carrots and it seems na ok naman po sya. I let him eat cerelac, gerber and promina pero hindi yong soya flavored ha.
Title: Re: About G6PD
Post by: ♥_caramel_♥ on September 26, 2012, 02:14:15 pm
^sis me too we used to feed my panganay with carrots and no allergies naman or anything but then we were advised to stop it , i can't remember talaga yun explanation pero yun nga nun sinabihan kame stop na lang kesa irisk ,. may saket akong limot pasensya  :'(
Title: Re: About G6PD
Post by: eljee_26 on September 26, 2012, 03:03:41 pm
hello mommy caramel... sa online mag 1,800 pesos lahat cgro.. try k sana pakita pix dito nong book kaso ayaw naman ata s attachment.. hanapin ko yung link nong book n un..try ko n kasi pabili sa ibang bansa hehe.. pag meron ka kasi non parang madali n lang magluto or gumawa ng food pra sa baby mo..thanks nga pla sa infor ha.. god bless... kaya pla lagi sipon baby ko :(
Title: Re: About G6PD
Post by: eljee_26 on September 26, 2012, 03:09:07 pm
 try this link mommies.....  http://www.homemade-baby-food-recipes.com/foods-for-a-baby-with-G6PD-deficiency.html
Title: Re: About G6PD
Post by: eljee_26 on September 26, 2012, 03:19:26 pm
mommy caramel eto try m link para don sa pag order s book.. http://www.amazon.com/Staying-Healthy-G6PD-Deficiency-reference/dp/145635860X   :)
Title: Re: About G6PD
Post by: ♥_caramel_♥ on September 26, 2012, 03:31:07 pm
^thanks din sis pahanap din ako at magtanong tanong neto ^^
Title: Re: About G6PD
Post by: QueenBee on September 26, 2012, 04:02:51 pm
^sis caramel I found this article below:

In order to help body to conserve G6PD, you need to take antioxidants, suitable fats and eating fewer refined carbohydrates:-
Good Antioxidants,  Strawberry/Black Current, Walnuts, Sunflower seeds, Pomegranate, Ginger
Fruits : Pomegranate, Grapes, Orange, Pineapple, Lemon, Kiwi, Grape Fruit, Lemon
Nuts/Seeds/Dried Fruit :Walnuts, Sunflower seeds, Apricot
Vegetable: Chilly pepper, Red cabbage, Pepper, Parsley, Spinach, Cereals, Broccoli, Tomatoes, Carrots, Barley, Oats, Corn
Roots : Ginger, Red beet, Garlic

Reference: http://arlene-stylishbaby.blogspot.com/2011/02/g6pd.html
Title: Re: About G6PD
Post by: ♥_caramel_♥ on September 26, 2012, 04:06:19 pm
^yes sis at sa list din walang nakalagay na bawal yun carrots pero yun nga siguro it depends din sa level ng deficiency ng bata ,. but still para safe hehe i don't let him eat carrots na lang ,. for walnuts yeah it is a good source of antioxidants pero all kinds of nuts pinagbabawal ko kay baby , martial law? hehe ,. maski yun mga chocolates na may nuts or even chocnuts no no
Title: Re: About G6PD
Post by: QueenBee on September 26, 2012, 04:39:35 pm
^as much as possible I want sana freedom for my baby pag laki niya. kaloka noh dame restrictions. dapat as early as 1 or pag nakakaintindi na sila naoorient na sila what's good and what's bad for their condition. I'm going to use the word "not healthy" for him para hindi niya maramdaman na kakaiba sya. hehe.
Title: Re: About G6PD
Post by: ♥_caramel_♥ on September 26, 2012, 04:47:24 pm
^korek tsaka naaaawa ako pag kakaen kame tas may inde sya pwee kainin pero good thing my baby knows din naman kung ano bawal sa kanya and he would even ask 'mama bawal po ba toh?' mga ganyan kaya alam niya din. sa bahay as much as possible we cook yung food na pwede sa kanya and people in the house are informed as well para alam nila yun pwede at di pwede pakaen sa bata. tas yun adobo namen ngayon wala ng toyo para makakaen si baby hehe  ;D
pag may inde sya pwede kainin di na pinapakita sa kanya, I want to him to be free what to eat but sadly hindi talaga, pero mas ok na yun alam niya yun bawal kesa i-risk naten diba .,
Title: Re: About G6PD
Post by: QueenBee on September 26, 2012, 05:02:50 pm
^Super agree ako sayo sis. nacurious lang ako how do you make your adobo na walang toyo? sounds interesting baka I can do it din. hehe
Title: Re: About G6PD
Post by: ♥_caramel_♥ on September 26, 2012, 05:14:32 pm
^actually i don't cook hahah nakakahiya mang aminin but my mom, MIL and hubby do ., pinakukuluan lang sa vinegar tas madameng garlic then ayun pag cook na instead na toyo of course eh parang mantika lang yun merun. I will ask my husband how to cook one para ma-share ko din dito.  ;D
Title: Re: About G6PD
Post by: QueenBee on September 26, 2012, 05:25:11 pm
me too sis date i dont cook talaga ayon im trying na ayun nasasarapan din naman si hubby hanggang nagustuhan ko na magluto. please do share how to do your adobo. thanks
Title: Re: About G6PD
Post by: ♥_caramel_♥ on September 26, 2012, 06:02:39 pm
^buti ka pa sis ako desserts and prito lang talaga sama mo na spag and pancit haha  ;D will PM you later tonight  ;D
Title: Re: About G6PD
Post by: bhea-bhea on September 27, 2012, 10:28:13 am
hi po mga sis....

sis eljee_26.... nakabuy ka na po ba ng book? feedback naman po.. thanks...
Title: Re: About G6PD
Post by: eljee_26 on September 28, 2012, 10:01:04 am
hello sis bhea bhea...oo nagpabili ako sa uncle ko sa ibang bansa pero wala pa sa akin..nov  pa siguro darating.. :) if you want pwede ka buy online.. mga Php 1,800 kasma na shipment..kasi yung book is $24-25. then ang shipment $16.00... check mo na lang..yan ang alam ko :))))
Title: Re: About G6PD
Post by: eljee_26 on September 28, 2012, 01:34:23 pm
helo sis caramel..yung result ng g6pd ng baby m is nsa 2.01 ba? mild lang daw yung sa baby mo? pano ba ang pag-class nyan? yung baby ko kc is 0.6 lang.ang baba masyado.pero hindi ko natanong sqa pedia niya severe or mild lang sya..
Title: Re: About G6PD
Post by: ♥_caramel_♥ on September 29, 2012, 04:00:45 am
^sis queenbee tama pala mga pinagsasasabe ko about sa adobo na walang toyo, hehe pinabasa ko sa mister ko tip niya lang eh dapat yun baboy eh may taba wag puro laman para daw magmantika. tas madameng bawang mas masarap kapag medyo nasunog mo yun bawang hihi ;)

sis eljee sabe ng pedia ni baby before pag mas mababa daw yun result mas malaki daw yun deficiency, kala ko kasi dati pag mababa yun nasa result eh mas mababa din deficiency
Title: Re: About G6PD
Post by: QueenBee on October 02, 2012, 10:14:57 am
^thank you sis  :)

sis san dun yung result na tinutukoy mo kase di ba may U/ghb tas may number under result L?
Title: Re: About G6PD
Post by: eljee_26 on October 02, 2012, 04:23:20 pm
hello sis caramel.. oo ang pagkakaalam ko din the more na mababa the more na mas severe.. :(( baby ko is 0.06 lang... 
Title: Re: About G6PD
Post by: eljee_26 on October 02, 2012, 04:26:58 pm
hello  mommies and sissy's  me alam ba kayo kung saan me mabibiling brand na earth's best..? baby products/foods to...ang kagandahan kasi nito organic sya so safe s mga babies nten na me g6pd... hayst ang hirap maghanap ng store...  :(( kasi sa US din products na to..  thanks....
Title: Re: About G6PD
Post by: QueenBee on October 02, 2012, 04:57:38 pm
^baby ko 0.31 U/gHb
Title: Re: About G6PD
Post by: ♥_caramel_♥ on October 02, 2012, 05:43:02 pm
sis queenbee yun nga ata di ko na matandaan kasi i don't wanna look at the result it only reminds the hurt and all

sis eljee yun din paliwanag saken ng pedia ni baby macheck nga ulit yun samen
Title: Re: About G6PD
Post by: proudmommie on October 11, 2012, 06:57:37 pm
mommies hindi po ibig sabihin na mababa result ni baby mataas yun level of deficiency niya. dito po sa pinas wala po way to detect yun severity ng g6pd deficiency this is according to the consultants mismo ng human genetics dito sa atin.im sharing this because im one of those who attended the g6pd seminar for parents last july of this year. yun result din po kase ng son ko is super mababa nun nagpareconfirmatory test kami at that time para akong binagsakan ng langit at lupa hindi po sa OA pero eto yun feeling namin mag-asawa nun nalaman namin result niya. super worry ako kase andaming bawal na food sa kanya kaya i make sure na talagang lahat ng kakainin niya walang traces ng soya. but then na-enlighten ako ng magattend ako ng seminar because dito po pala sa pinas moderate lang ang cases ng g6pd.
Title: Re: About G6PD
Post by: eljee_26 on October 12, 2012, 02:44:22 pm
hello proudmommie san po kayo nag seminar? meron pa kaya sa sunod? gusto ko rin kc umattend :) thank you...
Title: Re: About G6PD
Post by: proudmommie on October 13, 2012, 03:48:55 pm
sa UP manila po. i dont know lang po when ulit magkakaron kase tapos na po this year. it was my son's pedia lang po kase ang nagsend ng info sa akin. maybe you can call NIH po if when ulit magkakaron kase sa kanila po nagpapareserve ng seats.
Title: Re: About G6PD
Post by: eljee_26 on October 14, 2012, 11:03:56 am
ah ok..thanks proudmommie...  :)  meron na ba kayo nong book na staying healthy..?
Title: Re: About G6PD
Post by: proudmommie on October 14, 2012, 05:31:54 pm
sis yan po ba yun book na nasa website ng g6pd.org? kase po i just compiled everything na andun pati healthy recipes and bookbind it medyo madami kase helpful info dun about g6pd so di na po ako bumil ng book.
Title: Re: About G6PD
Post by: eljee_26 on October 16, 2012, 09:13:40 am
proudmommie...oo un nga sis..by dale baker pero kung mrami k n nga info and recipes no need to buy that book.. :) ... san mo nakita yung mga recipes sis..? kc nghahanap ako wala naman... sbgay meron naman din bnbgay yung pedia ng baby ko kung ano dapat kainin..pero me nabili ng book for my son..kaya check ko rin bka mganda rin don hehe... thanks sis...god bless...
Title: Re: About G6PD
Post by: Storge19 on October 29, 2012, 10:57:13 pm
hi po mga mommies bago lang po ako dito sa smartparenting.... ask ko lang po kung ano yung range nomal level ng g6pd... nagpositive po kasi yung 2nd baby ko nung NBS niya  tapos nag confirmatory test kami.... yung result ng test is 9.28 U/g Hb... yung reference sa result is 13.22 U/gHb.... sabi ng pedia ng baby ko positive daw sya sa g6pd... pero sa mga site na nakita ko ang normal is 4.5 - 13.5 U/gHb.... confused ako kung sino paniniwalaan ko.... pahelp naman please worried dad po ako
Title: Re: About G6PD
Post by: bhea-bhea on October 30, 2012, 08:24:00 pm
hi daddy... isa rin po ako sa may mga g6pd baby gaya ng mga ibang moms dito.. alam ko worried ka kay baby.. pero kasi ako nagbasa rin ako sa mga sites.. and ang pagkakaintindi ko rin ay negative si baby pero nung pinabasa ko sa tita ko aay positive pala.. I dont know how they read it basta i know true pag sinabi nila na positive.. I know nung nalaman natin ito mabigat.. ako slowly natanggap ko rin.. now ang baby ko 1 year and 3 mos na so far she's ok! basta iwas lang sa bawal pero i know minsan pag kumakain sa labas hindi naiiwasan pero as much as possible iniiwasan ko.. better talk to your pedia about your concerns ako kasi sobrang kulit magtanung sa pedia ko,, until now hindi ko pa rin magets.. maraming questions.. maraming doubts at kinakatakutan.. it will be ok.. ang mahalaga maipaintindi natin sa mga baby natin paglaki kung ano ang defiencency nila... smile na daddy  ;D
Title: Re: About G6PD
Post by: Storge19 on October 30, 2012, 11:55:17 pm
salamat po mommy bhea..... as of now naman po medyo ok na po kami ng wife ko... kasi 1month pa lang naman po yung baby namin. may 5 months pa po kami para pagaralan yung deficiency niya.... good thing na nakita ko yung thread na to.. medyo nakakahinga narin kami ng maluwag. super helpful... breastfeed naman si baby so menthol and moth ball pa lang yung kalaban namin... nagfofomula milk sya minsan, S26 Gold yung gamit niya pero sabi naman ng pedia niya ok lang naman daw yon kasi maliit lang yung soya content nung milk.... siguro pag naubos nlang niya yung gatas niya ska nlang kami magpapalit ng formula milk.....

ask ko lang po kung ano yung result ng baby nyo?
salamat po ulit
Title: Re: About G6PD
Post by: bhea-bhea on October 31, 2012, 08:06:14 am
your welcome po  :D...

super baba naman po.. i think 11.50 lang ata result ni baby pero syempre positive pa rin yun.. mas malapit kasi mas mababa yun ang alam ko... pero ok naman si baby minsan nakakain siya ng bawal.. wala namang reaksyon kay baby pero sabi nga nila... wala sa labas yan nasa loob ng baby natin.. kaya we need to be extra careful sa pag-aalaga lalo na sa mga naaamoy na bawal.. madami kasi masyado.. aya maganda ipost mo sa reft niyo o kaya ilagay din sa room para makita din ng ibang tao sa house niyo kung anong bawal. same tayo daddy nalaman din namin pag ka 1 month old ni baby...
Title: Re: About G6PD
Post by: Storge19 on October 31, 2012, 11:55:58 am
mommy bhea kelan po ba kayo nagpatest ng g6pd deficiency niya.... kasi po eto yung mga normal level ng g6pd na nakalagay sa result ng baby ko

newborn >13.22 U/g Hb
1-6 months >12.22 U/g Hb
Above 6 months old >10.0 1U/g Hb

so kung 11.5 U/g Hb yung baby nyo and 1y3m na say pasible po na negative sya
kung U/g Hb yung unit na ginamit..... dito sa thread na to sa pagkakaalala ko, ang pinaklamababa kong nakitang is 0.03 U/g Hb.... check nyo po ulit mom baka negative anak nyo di nyo na kailangang magworry...
Title: Re: About G6PD
Post by: Paw on October 31, 2012, 05:11:20 pm
Hi Moms and Dads,

Meron po ba tayong updated list ng mga substances and food na bawal sa mga babies natin? Would like to get an updated list sana. Thanks!!!
Title: Re: About G6PD
Post by: Storge19 on November 01, 2012, 12:07:53 am
Hi mommy Paw

Sana makatulong tong link
http://g6pdph.multiply.com/journal/item/1?&show_interstitial=1&u=%2Fjournal%2Fitem
Title: Re: About G6PD
Post by: mommyonsale on November 10, 2012, 08:32:24 pm
Good pm.. I'm a mom of a 4 year old boy na may G6PD.. Wag p kay matakot kasi once nasunod nyo naman po na wag pakainin ng bawal ang bata walang problema.. Kapag nasobrahan talaga ayun maninilaw ng lil ang palm.. yung anak ko sa kuko nadadali.. nagkacrack sya at natatanggal yung nails. pero no worries kasi nga napapakain lang kasi ng bawal. iwasan p talaga ang bawal para wala sakit ng ulo. yung range po kasi iba iba po yan by age nung bata kaya wag icompare sa ibang newborn/kid na meron better consult your pedia talaga...
Title: Re: About G6PD
Post by: proudmommie on November 11, 2012, 08:05:58 am
tama si mommyonsale. iba iba po ang clinical manifestations but if only exposed sa mga bawal kaya nasisira ang RBC. pag nasira po ang rbc's pwedeng mamutla,manilaw. as per g6pd seminar, ang parating check yun puti ng mata, balat, ilalim ng dila to assess jaundice and kapag lumalaki daw po yun spleen. ang sabi din po ng mga doctor's na nagconduct ng seminar, dalhin agad sa hospital pag nakaexperience ng ganitong cases, kase kelangan po ng blood transfusion . 48-72hrs ok na ulit po rbc nila.
Title: Re: About G6PD
Post by: mich10 on November 13, 2012, 02:39:04 pm
hi poh..my anak po ako baby girl her name is jin michaila and my g6pd po sya.na babahala lang talaga ako sa mga pinapakain ko sa kanya.ng search naman ako ng mga hindi dapat at mga pwede naman sa kanya.sa kabila ng pag kakaruon niya ng g6pd.ok naman sya napaka masayahin.magana naman sya kumain.maliksi.salamat naman kay lord hindi naman sya katulad ng mga nakikita ko sa internet na mas worst.ngayun ng se search ako ng food na pwede sa kanya at nakakabuti. :)nestogen2 ang milk ni baby yun kasi neresita ng pedia niya.ok naman hiyang naman sa kanya.
Title: Re: About G6PD
Post by: eloytski on November 13, 2012, 04:26:01 pm
Hi sis mich10! My officemate's daughter was also born with the G6PD. Colic pa sya kaya medyo nahirapan  silang mag-asawa noon . Pero basta inalagaan lang nila ng medications at binantayan mabuti ang pagkain ni baby, pati pagkain ng nanay (exclusively breastfed ang baby, kaya wala naman sila naging problema sa milk source) kaya bawal din sa kanya ang mga soya-based at nuts-based food and food products (toyo, taho, chocolates, etc.).

Lumaki din naman na healthy yung baby nila (girl din, mag-3 YO na this March). Don't worry too much, I'm sure your own baby girl will grow up just as fine.  :)
Title: Re: About G6PD
Post by: Errych on November 13, 2012, 04:35:04 pm
Merged with existing topic. Please utilize Search function first before starting new thread.
Title: Re: About G6PD
Post by: Storge19 on November 15, 2012, 01:29:29 am
sa tingin ko lang... based sa mga post dito sa thread... kung baby girl yung deficient automatic na dificient yung daddy dahil isa lang yung x-chromosome ng male and 2 x-chromosome naman sa mga babae kaya yung mommy posibleng carrier lang.... si daddy kaya kumakain ng toyo, taho, mani, ampalaya? ano kaya reaction kay daddy ng mga bawal? may mga sintomas ba nakikita? ... may mommy naman dito na nakaexperience ng blood transfusion nung 8th months old palang sya. back then wala pang newborn screenning so hindi pa niya alam na g6pd deficient sya..... hindi kaya yung g6pdd sa mga kids lang nagmamanifest?..... pwede kayang totoo yung sinabi sa isang post dito sa thread na pag nagkulang yung enzyme ng isang tao nagproproduce yung brain ng certain enzyme?....
9.28 U/gHb yung result ng test sa baby ko... 13.22 U/gHb yung normal sa newborn..... 10.01 U/gHb sa 6months above.... pag 6months na yung baby ko 0.73 U/gHb nlang yung difference niya sa normal level.... may posibilidad kayang madagdagan yung g6pd enzyme niya?...sana nga [palakas loob] =)



NOTE: mga mommies at daddies... opinion at mga tanong ko lang po ang mga sinulat ko dito sa post ko.... hindi ko po kayo hinihimok na suwayin ang mga bawal.... pasensya na po kung sa tingin nyo na hindi nakakatulong tong post ko.... masmainam po kung iiwas tau sa mga bawal lalo na yung mga medicines dahil un yung concentrated compare to foods..... happy parenting =)
Title: Re: About G6PD
Post by: rheinne on December 01, 2012, 11:17:53 pm
hello po....i'm new here,i just wanna ask if what's the best milk for my 9 month old baby with g6pd...her doctor recommends us enfapro....thank you po...
Title: Re: About G6PD
Post by: elizclaire on December 09, 2012, 12:36:39 am
kakalungkot talga kasi isa rin ako sa mommies dito na positive sa g6pd ang baby   :(
di ko mapigilang umiyak pag naiisip ko kung ano puwede mangyari sa baby ko...,  parang lutang pa ko at iniisip ko parin kung pano ko ihahandle si baby para maging safe siya from anything na bawal sa kanya... haayy..  :'(
Title: Re: About G6PD
Post by: edenilumin on December 14, 2012, 12:07:12 pm
Hi! I just got the result of my baby's confirmatory test, the result was 0.47 U/g Hb. How about you mommies outhere?  I'm too worried because it's too low compared to the normal range. He is 1 month old now. I'm planning to give him formula milk since i'll be working this coming January. Please help!
Title: Re: About G6PD
Post by: ogureisuo on January 10, 2013, 01:01:40 pm
hi all mommies and daddies.. got the new born screening of my baby yesterday and ngpositive siya sa G6PD.. :(
grabe iyak ko khpon and di ko matanggap.. naawa ako sa baby ko kasi may mga bagay siyang indi maeenjoi..
mgppaconfirmatory test n lang ako para mcheck.. baka sakaling negative c baby.. when i gave birth to her naman kasi ok n ok siya.. never siyang nanilaw or sumthing..  :(

Question po, i saw this range:

newborn >13.22 U/g Hb
1-6 months >12.22 U/g Hb
Above 6 months old >10.0 1U/g Hb


1 month palang c baby so dapat ang makuha niya is higher than 12.22 U/g Hb? para masabi n negative siya?
Tama po ba un?
Title: Re: About G6PD
Post by: QueenBee on January 11, 2013, 12:38:40 pm
^yes mommy ogureisuo tama po yon.

I have a question to mommies and daddies with G6PD deficient babies. We went to my son's pediatrician last week and the doctor mentioned na pwede ipascreening ule si baby pag nag 1 year old and 2 year old para makita kung may changes daw.

I mentioned to the Pedia kase na minsan pinapakain ko yong 11 month baby ko ng sinigang na may sitaw, chocolate na may peanuts. Tapos I use vicks tas hinahalikan ko baby ko. Di ba bawal sa mga may G6PD yon. Tas sabe ng Pedia careful pa rin daw ako or better yet ipascreen ko daw ule si baby baka daw bumaba na deficiency niya. Sa PGH lang daw yon ginagawa. I'm planning na pascreen ule sya pag 1 yr old na. anyone of you here tried it?

Please advise. TIA
Title: Re: About G6PD
Post by: bhea-bhea on January 14, 2013, 01:08:27 pm
Hi mommy QueenBee.. yun nga rin sana ask ko ehhh.. kung may nagtry na ba ulit magpaulit ng screening.. kasi diba may referral yun.. gusto ko rin sana pascreen na ulit si baby.. 1 year and 6 mos. na si baby ko.. Thanks po...

 tyaka po bawal ba kila baby yung red wine..? kasi nung last jan 3.. bday ng tito ko.. nakalimutan ko na may red wine na nilagay dun sa spaghetti.. hindi naman sa kanya nag-react.. alam ko kasi kasama sa bawal yun.. pero ok lang naman siya.. wala ask lang po kasi sabi sa akin ng pedia namin maaaring ok nga daw si baby sa labas pero hindi daw natin alam yung sa loob.. kaya better to prevent as much as possible.. may pedia naman na nagsabi sa akin na mas maganda si baby i-expose sa bawal para malaman kung mag-rereact.. di ko naman alam ang tamang gawin.. ehh minsan kahit anung prevent di maiwasan diba...

need your help po  :),.. Thanks..
Title: Re: About G6PD
Post by: QueenBee on January 16, 2013, 12:58:40 pm
^ oo need nga ng referral from your Pedia. bale hingi ka lang siguro sa kanya. ang alam ko sa PGH lang yong may confirmatory lab.

ako nga sis i gave my baby small amount lang ng mga things na bawal hindi naman nagrereact yong katawan niya eh. Feeling ko naman pag minimal amt lang ibigay mo hindi naman siguro makakasama. If something happened inside dapat magmamanifest yon sa baby mo physically, right? so pag wala ok lang siguro si baby.

kaya need talaga natin magpaconfirmatory ule to check if yong deficiency ng mga babies natin eh bumaba na.
Title: Re: About G6PD
Post by: kitikitel on January 21, 2013, 11:44:52 pm
my son is turning 3 months this month. he was diagnosed of G6PD deficiency. he has a severe case 0.1 ang result ng lab test niya. since he has a severe case,super monitor kami sa baby especially with infections.he's so prone to cough and colds.last december he got sick and kkagaling lang din niya sa sakit this month.i'm a registered nurse,so pag feeling ko may something wrong punta agad sa pedia. :( he's mixed fed, breastfeeding and formula feeding. ang formula niya is Enfalac A+. but he's so colicky,so his pedia suggested to change the formula milk we're using. i'm considering NAN 1PRO. is it okay? and since acete de manzanilla is not allowed, he is given a medication RELESTAL if super sakit n raw. do you guys have any other suggestions what to use for my colicky baby? he gets really crancky if he has colic and ayaw talaga niya palapag pag natutulog or worse hnd niya kami pnpatulog sa kakaiyak.   
Title: Re: About G6PD
Post by: bhea-bhea on January 22, 2013, 10:52:43 am
ahh ganun ba Mommy QueenBee.. sige hingi na lang ako sa pedia ko.. so far ok naman si baby ehh.. need to confirm para masure ko na ok na lang din si baby... ako naman sis.. super takot talaga.. kaya kahit pumunta kami sa kamag-anak namin no-no ang vicks and they understand naman.. takot ako na ma-expose siya. sis may alam ka ba na specialist sa ganitong case para ma-enlighten naman ako.. para alam ko kung paano ko siya dapat iexpose at tumigil na.. thanks po..

hi sis kitikitel.. si baby ko rin medyo colicky.. ang sabi ni pedia..better baby oil na lang ang ilagay sa tummy kasi bawal ang manzanilla.. before paligo after paligo, before sleep din.. effective naman sa akin siya sis.. pag super hirap tiis lang.pinapadapa ko rin siya sa lap ko nung ganyang age pa siya pag matigas ang tummy..  pag lumaki siya hindi na siya gaanong ganyan..
Title: Re: About G6PD
Post by: mommyonsale on January 22, 2013, 12:54:56 pm
Hi I have a 4 years old son na G6PD... Wala ako natatandaan na bawal halikan si baby? Bawal na po ba ngayon sa mga basang may g6pd?
Title: Re: About G6PD
Post by: cyrisse07 on January 22, 2013, 02:20:51 pm
hello po mga mommies ask ko lang if ano mas better na formula milk kay baby s26 gol or regula lang? saka ano din po ba mas mura simila, s26, or enfalac.
thanks po hope to read your reply soon
GOD BLESS  :)
Title: Re: About G6PD
Post by: QueenBee on January 25, 2013, 02:49:54 pm
sis bhea-bhea when I asked my Pedia last Wednesday much better to do the test pag mga 3 years old na lang daw not unless gusto ko daw ule ipatusok baby ko which is ayoko muna kase this time enzymes na kukunin. I don't know what that means. My pedia advised me na ok naman daw mga monggo or soy sauce basta in a very minimal amount. Anything in excess yon na yong super nakakasama. Ang no-no is the adobo kase diba soy sauce talaga yon main na pampalasa nun pero kung halimbawa chopsuey na unte lang naman yong toyo ok lang naman daw. I keep on reiterating if pwede yong monggo pwede naman daw. Maybe that explains why kung bakit ok naman baby ko everytime na pinapakain ko sya ng may peanut, soy sauce at nakakaamoy sya ng menthol. Basta the key factor is dapat minimal amount lang sa mga foods na bawal sa kanya.
Title: Re: About G6PD
Post by: bhea-bhea on January 25, 2013, 03:08:27 pm
Thanks sis QueenBee na-enlighten talaga ako sa reply mo.. Nakahinga ako, dahil minsan nakakaamoy siya ng vicks ehh. Pero ok lang naman ang reaction sa baby ko as in never pa ako nakitaan siya na masama ang effect sa kanya ang bawal. Very scary naman yung sinabi mo sis, wag na nga muna talaga ipa-confirm ulit si baby same mo hindi ko din talaga kaya kasi nung newborn si baby daddy niya ang kasama sa loob nagtago ako sa cr sa tabi nun sa PGH. Imagine sis huh, narinig ko pa rin ang iyak ni baby nung kinuhanan ng dugo at naiyak talaga ako kasi that time awang-awa ako sa baby ko, kaya wag muna pag 3 na at kaya ko na.. hehe.. as long as ok naman si baby hindi na ako dapat pa mag-worry iwasan na lang ang bawal.. Itatry ko na rin si baby pakainin ng bawal kahit small amount lang.

 thanks talaga sis.. aalisin ko muna yan sa utak ko.. Thanks God bless
Title: Re: About G6PD
Post by: QueenBee on January 25, 2013, 05:11:33 pm
^usually naman first na pakakakitaan mo na nagrereact na ng masama yong katawan niya is nagiging tea colored yong urine niya. That's the time na ipacheck up mo na. Everytime kase na I ask my son's Pedia about it lage lang sinasabe na there's nothing major to worry about. Dapat yong bata maenjoy niya pagiging bata niya and let's not show na there is something abnormal about them kase in reality majority of Asian has G6PD prior pa na nagkaroon ng newborn screening. They are not just diagnosed pero they have G6PD but they managed to live normally and eat whatever they want. Minsan nga naisip ko baka I myself has a G6PD din kase pag nasosobrahan ko ng kain ng peanuts and soya nagrereact katawan ko. Though wala pa newborn screening nung pinanganak ako. hehe ;D ;) Feeling ko lang yon kase possible na sa akin nakuha ng baby ko yong G6PD deficiency niya.
Title: Re: About G6PD
Post by: bhea-bhea on January 25, 2013, 06:43:10 pm
sis, curious lang, paano nagreact sa katawan mo? like what happen? may food na ba na nagreact kay baby mo? as of now I will try exposing her na rin.. thanks sis.. ;) ;D masaya ako na may natatanungan ako same ng situation ni baby ko. We treat our baby as normal naman kasu pag may nakita akong bawal ayan na ako si praning. I easily get mad kapag alam ng mga kasama ko na bawal yun kay baby but they keep on doing it kasi nga nakasanayan na.. Hirap pero tiis..
Title: Re: About G6PD
Post by: Japoy on March 19, 2013, 03:58:26 pm
my son ha g6pdd and his milk is S26 ok naman sa kanya
Title: Re: About G6PD
Post by: sab_23 on March 19, 2013, 05:28:02 pm
My baby has g6pd also, her result is 5, NAN HA 1 milk niya ngaun walang soya content, nung una s26 gatas niya pero ngkarashes siya kaya pinalitan namin. She is now 2 months old so far hiyang naman siya sa gatas niya. Sabi ng pedia niya ok naman daw kahit may kaunting content ng soya kc hindi naman ganun kababa yung result ng test niya.
Title: Re: About G6PD
Post by: darlynvegino on March 30, 2013, 08:44:40 am
hi po mga sis.. ako ko lang po kung panu po malalaman kung anung level ng deficiency meron po si baby? kasi po my son is also a G6PD deficient and nung pina confirm ko po yung baby ko, ang value po nung result niya is 0.23... panu po malalaman kung severe po o mild lang? thanks po
Title: Re: About G6PD
Post by: sab_23 on March 30, 2013, 02:21:02 pm
Hello po!

My baby is g6pd deficient also, her result was 5.0 sbi ng Pedia niya pwede naman daw mamuhay ng normal si baby as long as iiwasan ang mga bagay and pagkain na bawal sa kanya, sis darlynvegino below 1 po result ng sa baby mu ano po sbi ng pedia niya?kc ang alam ko din dapat higer kc ang normal is 13. something eh...
Title: Re: About G6PD
Post by: ♥_caramel_♥ on April 02, 2013, 03:59:12 pm
^hi mga sis makikisali lang tagal ko na di nakakadaan sa thread na toh. My baby is already 3 yrs na pero yun careful pa din kame sa kanya, tama siguro na kapag minimal lang exposure sa mga bawal hindi masyado nagrereact yun katawan ng mga bata. yun baby ko mahilig sya sa chocolates minsan may nuts pero buti na lang na alam niya na bawal sa kanya yun so niluluwa niya yun nuts sa chocolates. nakakaamoy din sya ng vicks or katinko, siguro OC lang ako pero mas ok na din na nababantayan at OA ako magreact para maprotektahan din baby ko. ayako na maranasan ulit na nagbleed ang baby ko kasi napakaen ng pinsan ko ng rice na may sabaw ng toge. kaya careful pa din sabe nga ng pedia niya before dapat careful kasi porke walang physical reaction inde ibig sabihin safe kasi nga sa dugo yun magiging problema pag ganun.
Title: Re: About G6PD
Post by: Andreas on April 02, 2013, 04:32:34 pm
 

hi mga sis my son also have G6PD nung 6 months cia pinakain nila ng mentos after nun ngkaroon ciya ng rashes sa buong katawan niya natakot kami kaya nung sinabi ng pedia iwasan daw yung mga mentol
Title: Re: About G6PD
Post by: darlynvegino on April 03, 2013, 02:48:34 pm
sis darlynvegino below 1 po result ng sa baby mu ano po sbi ng pedia niya?kc ang alam ko din dapat higer kc ang normal is 13. something eh...

hello po mom sab_23

uu nga po sobrang baba ng value ng result nung sa baby ko, to think na 6months na po sya nung pina-confirm namin sa perp-dalta... sabi lang po ng pedia niya iwas po sa lahat ng bawal, tsaka try daw po namin na mag-adjust din sa lifestyle at eating habits namin ng hubby ko habang baby pa sya para pag malaki na daw sya hindi daw kami mahirapan... i think sakin niya nakuha yun, kasi everytime na mag-sa-shampoo ako ng menthol (head and shoulders) lagi po ako inaalergy, nangangapal po balat ko lalo na upper and lower lips ko... tapos nung baby daw ako i had jaundice din daw, mga 2 months ako nung totally daw nawala paninilaw ko...
Title: Re: About G6PD
Post by: darlynvegino on April 04, 2013, 04:00:15 pm
@Andreas

sis ano po binigay na gamot ng pedia ni baby mu po nung nagka rashes sya? kasi my baby also has rashes ngaun, hindi ko po alam kung bungang araw lang o rashes na like sa baby mu po.. sis help naman po, thanks...
Title: Re: About G6PD
Post by: Andreas on April 04, 2013, 04:43:09 pm

Sis darlynvegino walang binigay si pedia wala naman kasing gamot sa case ng mga anak natin basta daw iwasan ang mga bawal. ano ba napakain mu?
Title: Re: About G6PD
Post by: darlynvegino on April 06, 2013, 09:35:28 am
@andreas

sis, wala naman kasi hndi namin matukoy kung bungang araw lang sya, nilalagyan kasi naman yung powder na johnson's prickly heat powder.. eh di namin nabasa may menthyl lactate, pero mga 1 week na wala naman kami nkikita reaction, un lang medyo my rashes padin sya...
Title: Re: About G6PD
Post by: bhea-bhea on April 23, 2013, 09:59:08 pm

nilalagyan kasi naman yung powder na johnson's prickly heat powder.. eh di namin nabasa may menthyl lactate, pero mga 1 week na wala naman kami nkikita reaction, un lang medyo my rashes padin sya...

hi sis  darlynvegino

ang baby ko rin may g6pd 1 yr and 9 months na si baby almost a year ko na ginagamit ang prickly heat powder kay baby ko and hindi ko rin nabasa na bawal pala yun sa baby ko.. nashock ako nung nabasa ko post mo.. actually wala namang reaction kay baby dahil matagal ko na ginagamit sa kanya..anyway thanks kasi alam ko na bawal din pala yan kay baby..ang bawal ay bawal... sayang ang ganda pa kasi naman nakakawala talaga sa rashes ni baby.. sad na ako.. hahanap na naman ako ng powder.. haaay.. thanks sis..
Title: Re: About G6PD
Post by: darlynvegino on April 27, 2013, 05:50:44 pm
@mommy bhea-bhea...

mommy, okay na po rashes ni baby, kinonsult po namin yung pedia niya about dun sa menthyl lactate un daw yung nilalagy sa mga toothpaste... pero hindi naman niya binawal, pinatigil lang niya pag gamit kasi di na effective sa rashes ni baby.. ang ginawa ni doc, niresetahan niya si baby ng lotion PHYSIOGEL Ai CREAM, tapos pina palitan niya yung sabon ni baby, CETHAPHIL na po siya...

tapos my ointment din po siya binigay for insect bites and puwede din daw yun sa rashes yung calmoseptine, pero my menthol xang ingredient kea nag dalawang isip ako, ask ko ulit si doc about dun..
Title: Re: About G6PD
Post by: bhea-bhea on April 28, 2013, 12:34:25 am
^hehe nu ba yan ako din nireseta sa akin yung calmoseptine pero ok naman kay baby mula noon hanggang ngayon.. siguro ok lang yun.. binigay din sa akin yan ehh.. so far ok naman kay baby yung prickly heat hindi ko muna tinanggal...
Title: Re: About G6PD
Post by: darlynvegino on April 28, 2013, 04:01:19 pm
@mommy bhea-bhea..

sis, tumawag kanina pedia ni baby, sabi niya okay lang naman daw yung mga products na may mga menthol na ingredient, wag lang daw po yung as in main ingredient ng prod yung gagamitin.. like yung vicks, menthol po talaga siya, and lahat daw po ng naka lista dun sa mga bawal kina baby.. nakaka frustrate pero go with the flow lang...  :D
Title: Re: About G6PD
Post by: SheIsErika on July 23, 2013, 01:48:18 pm
Hi mommies..

Im new here, pls help me.

My son has g6pd and bawal siya ng may soya.
as we all know toyo is made of soya.

sabi ng sis ko may lutong adodo daw na walang toyo.
anyone know's this?
pls help.

thanks mommies..  :)
Title: Re: About G6PD
Post by: Stebelle on July 23, 2013, 03:08:42 pm
Hi, im a newbie here.. As i read your post, i want to share my recipe of adobong puti ( yun ang tawag namin sa bahay  :D) just like any other adobo minus the toyo.. I prefer to put salt, yung iba kase naglalagay sila ng fish sauce.. Here's the procedure: in a pan, lagay mo yung meat, garlic ( for me, mas masarap kung madami kang ilalagay but depends sa panlasa ng baby mo) vinegar, whole peppercorns, a bit of white sugar and laurel leaf ( optional).. Cook, at first medium fire, let it boil, wag mo muna takpan yung pan para maluto yung vinegar, let it boil for 10 to 15 mins.. Put the lid on and lower the fire.. Let it cook, mas masarap kung parang tuyo na sya tapos nagmamantika na..  ;DI hope i would be able to help you in my own little way.. :D
Title: Re: About G6PD
Post by: SheIsErika on July 23, 2013, 04:40:50 pm
thanks for the response. it will help a lot.  :)
bawal kasi ng may toyo little boy ko since
it is made of soya.
Title: Re: About G6PD
Post by: mamacyd on July 23, 2013, 08:14:46 pm
my mom also cooks adobo without toyo. she puts kamatis na ginisa kasama ng bawang and sibuyas. :)
Title: Re: About G6PD
Post by: julia_18 on July 24, 2013, 11:38:59 am
use patis
Title: Re: About G6PD
Post by: SheIsErika on July 24, 2013, 01:35:01 pm
thanks mommies for the response
Title: Re: About G6PD
Post by: mommy0321 on September 10, 2013, 09:58:28 am
Mommies.. My son is also positive in G6pd based on new born screening. He's one month old tom. Upon receiving the result of NBS yesterday, we immediately went to Perpetual help hospital for confirmatory test. Pls help pray that the result will be negative.. I'm so depressed and scared for my son.  :'( :'( :'(
Title: Re: About G6PD
Post by: anamary_021985 on October 29, 2013, 09:12:35 pm
my baby is 3 months old and his milk is bonna..his pedia didn't advice me to change milk and ask me about his milk>safe ba ang bonna?
i'm ana of pampanga
Title: Re: About G6PD
Post by: Andreas on November 05, 2013, 03:00:45 pm
sabi ni pedia lahat ng milk safe kasi yung soya contain is hndi mataas
Title: Re: About G6PD
Post by: ajcoking on November 08, 2013, 03:44:34 pm
hi co parents. :) my child is now 6months old ,and he also have a g6pd. please help me to find a pedia w/c is good and good for the budget. hehe.. as of now kc were depending on the suggestions of other moms na my g6pd din ang anak nila. pero mauch better db to have a pedia for him. I hope you can help me. Thak you!
Title: Re: About G6PD
Post by: jhingisola on November 09, 2013, 07:53:29 pm
meron din po sa MCU dun kami magpapa confirm next week , my baby franz was also diagnosed to be a g6pd deficient , my problem now is kung ok po ba sakanya yung NAN AL110 , ilang beses na po kami nag palit ng gatas niya hes 7 weeks old palang po nagyon hirap  maghanap ng walang soy content sana po masagot nyo now yung question ko .. thanks
Title: Re: About G6PD
Post by: mybabykaitlin on November 09, 2013, 09:46:38 pm
hello mga mommy! share ko lang din, anak ko po sa ngayon is 20 months old and from the start NAN PRO ang gamit niya - so far okay naman sa kanya, healthy and bibo siya and plan ko na palitan ng Nido ngayong December-para makatipid :), may G6pd def din siya. Sana lang mahiyang din siya sa Nido.
Title: Re: About G6PD
Post by: Eamz on January 29, 2014, 05:45:40 pm
Hello everyone  :) I'm also a mom who worries if the milk that my baby is drinking is the right one for him.I was  breastfeeding until 3 months and then i used s26 when he turned 4 months until on his 6th month, fortunately there's no rashes or allergies at all.. I asked his pedia regarding about the milk that should be given to him, because as i read each of the milks ingredients or contents, it really has soy or soy lecithin or soy oil so i really need to clarify those things on her. after s26 gold,promil gold then now that he's already 1 year and 3 months he's drinking progress gold, those milk contains soy lecithin and thank God he has no allergies or whatsoever..  my pedia told us not to worry over milk with soy/soy lecithin.. so i hope that would cover some of your queries..  as of foods that should be taken, i usually avoid food with soy sauce though sometimes i let him take a bite on adobo :) he loves it so i let him indulge once in a while.. with child like ours (g6pd) i think we just should keep on avoiding or sometimes we really cant avoid it,it just have to be in moderation... just observe your childrens reaction on the foods or the milk that he/she has eaten..  my baby's range is 0.1, i consider him healthy because he rarely get sick and he's super active.. the vitamins that he's been taken is ceelin with zinc..
Title: Re: About G6PD
Post by: mybabykaitlin on January 31, 2014, 12:49:50 pm
tama ka jan Mommy Eamz . :)
share ko din ulit kasi dati hindi siya nagkakasakit pero ngayon parang humina resistensya niya kaya 2 ang vitamins niya ngayon yung ceelin with zinc din at sangobion, milk niya since dec is nido na...
Title: Re: About G6PD
Post by: iloveeuri on March 15, 2014, 10:24:20 am
Hi mommies! just wanna ask kung may alam ba kaung store kung san may available na PROMINA.. cavite area.. un kc nirecommend ng pedia.. my baby is G6PD deficient kc.. pls help  :-[
Title: Re: About G6PD
Post by: love-aivy-love on March 26, 2014, 09:00:31 pm
hi momies. just want to ask nung nconfirm nyo po n g6pd deficient mga babies nyo. do you consider n mgpascreen din if sino snyo ni hubby  ang deficient din or do you have the idea kng sino.. hope open pang thread.. thnks
Title: Re: About G6PD
Post by: Evalour on April 28, 2014, 02:09:37 pm
Agree ako sayo mommy Eamz. My son is already 3yrs. old now. His first milk was nan1 until he turns 1, we changed his milk to a chipper one which is nido 1-3 with the advice of his pedia. Then right now his milk is bearbrand. It was too late when I noticed that nido & bearbrand has soya licithin, and I was really worried. But his pedia said those milks are okay because it has a very little amount of soya! And yes just observe your childrens reaction on the foods or milk that he/she has eaten. :)
Title: Re: About G6PD
Post by: jericess21 on May 22, 2014, 12:22:22 am
for me hipp organic.its all natural
Title: Re: About G6PD
Post by: jennyjoy on September 07, 2014, 09:53:20 pm
hi momies, my baby have a g6pd and now he have a cold and cough, is it okey if ill take her a disodrin drops? my pedia refer me to used a cefalin drops, solmux drops for cough and salinase for cold. now he has 6 month old and pabalik balik ang lagnat niya....pls help me mom....
Title: Re: About G6PD
Post by: julietgeslani on October 28, 2014, 01:12:35 am
Hello mga mommies,

I am from Mabalacat,Pampanga and I am looking for a pediatrician na G6PD specialist for my 2 months old baby.

Thank you.
Title: Re: About G6PD
Post by: tzikenn on October 29, 2014, 12:34:26 pm
Hi sis same problem tau. i think there is no G6pd specialist na pedia ayan din ang hanap ko from other forum pero wala. ang mahirap pa nga yung ibang pedia eh hindi aware sa g6pd. yung doctor namin paiba iba ng instruction about dos and dont ky baby sa mga food and milk. anyway 2yrs old na baby ko ok naman sya even if he has g6pd. read more nalang about g6pd. Godbless!
Title: Re: About G6PD
Post by: ♥_caramel_♥ on November 05, 2014, 04:32:25 pm
hi mga sis .. I agree na there isn't any pedia specializing in G6PD but good thing yun mga pedia ng anak ko eh they are updated naman about G6PD. ang advice lang ng mga pedia eh kapag pupunta ka sa kanila lage mo sasabihin na g6pd patient ang baby ko. though my record pra din to serve as a reminder esp. when they give you instructions and medication. ako to ensure na updated yun mga pedia na pinupuntahan ko about g6pd eh i check their plaques/certificates of attendance to seminars. btw, mga sis may g6pd awareness seminar sa pgh on Dec. 12 you might want to join because i did  .. just call Newborn Screening Center - NIH at 3760962 /64/65/67
though malayo sa inyo this is just once a year event so might as well attend it. hope this post helps  ;)
Title: Re: About G6PD
Post by: siykarl on December 18, 2014, 09:53:41 pm
Any formula will do except soy based formulas such as isomil, s26 ha, s26 gold , s26 pink and nan are ok
Title: Re: About G6PD
Post by: mich88 on May 11, 2015, 11:37:57 am
Hi po! I have a 13 months old daughter..recently lang po namin nalaman na she has G6PD deficiency kayat halos lahat ng bawal lalo n ang beans at taho ay napakain n po namin s kanya. Gusto ko po sana malaman if Nestogen 3 is okay with her po.
Title: Re: About G6PD
Post by: clouds on August 11, 2015, 06:09:48 pm
hi ask ko lang  may alam kaung milk for infant na mura lang?kc ang mamahal ng mga gatas
Title: Re: About G6PD
Post by: syeng26 on February 10, 2016, 10:37:33 pm
Hi mommies my son is 2years and 2months. His milk is nan hw gold 3 but its too much expensive. Im planning to shift it to other milk. His pedia told me that bonakid is the most coefficient milk for g6pd def. But when i tried it nagtatae na sya. Pls help me. And his confirmatory result is 0.06 can someone explain it to me the result??
Title: Re: About G6PD
Post by: Joanne Garingan on March 15, 2016, 03:42:48 pm
hi mommies. Ask ko naman kung may maerecommend kayong pediatrician who can explain mo about g6pd. Rizal area po.

thanks in advance 😊
Title: Re: About G6PD
Post by: Melisa Madamba on March 17, 2016, 01:45:45 am
Hi Mommy Joanne, ako din naghahanap ng pedia na familiar sa g6pd. Yung pedia kasi g baby ko ngaun hindi masyadong familiar sa g6pd.
Title: Re: About G6PD
Post by: Angel Cortez on July 07, 2016, 02:09:50 am
Hello to other parents i'm new in this site and i want to ask some questions kasi naguguluhan pa po ako. My 2nd baby is g6pd positive and i don't know the meaning of the confirmatory result. Sinabi kasi nung pedia that time na pinagtanungan ko ok lang daw yung result hnd daw delikado. Here's the test result:

Result: 15.37 U/ghb (ni baby)
Reference:
Newborn: 13.22 U/ghb
1-6 months: 12.22 U/ghb
Above 6months: 10.01 U/ghb

What does the result mean po? May dapat ba akong gawin for extra care? As of now 1yr & 1month na po si baby and wala naman akong nakitang off sa kanya. Please i want to be enlightened. Thank you in advance fellow parents ☺.
Title: Re: About G6PD
Post by: Cindy Reyes on September 11, 2016, 09:22:53 pm
Hi my baby girl is 1 1/2 mos. With g6pd case...ask.ko lang kung pwede b s26 s kanya?thank u
Title: Re: About G6PD
Post by: lovelyn lee on November 10, 2016, 09:52:24 pm
I have a 4mos. old baby girl. G6pd positive siya, it was confirmed. So ngayon , worried talaga ako, and im thinking about her formula milk, i do breastfeeding also. nitong huli bonna yung milk na binili ko thinking that it is better than nestogen, but she got sick for 2 weeks (cough,cold,fever) we consulted it to pediatrician. now she is fine but im worried of her because of her poops i dont know if it is because of formula milk or because of foods that i have eaten. can anyone suggest what is best formula milk for g6pd babies?
Title: Re: About G6PD
Post by: Mommy Jazz on November 11, 2016, 09:16:04 am
Same topic merged.
Title: Re: About G6PD
Post by: Jenery Rose Rodanilla on January 26, 2017, 10:23:30 pm
Hello mga mommies!!bago lang po ako and gusto ko po magtanung kung ano puwede kong ioffer na milk sa baby ko 9mos.na sya pro 6.5 lang po ang timbang niya sobra po akong nag woworried kasi hndi sya tumataba mlakas naman sya kumain at breastfeed din po ako..sbi skin ng pedia ko itry ko daw po sya ng neosure kaya lang wala po ako mahanapan dto sa lugar namin.please advice po kung ano po dapat kong gwin..thankyou Godbless
Title: Re: About G6PD
Post by: mjhay hizon on April 09, 2017, 08:14:24 am
Yung 2nd baby ko G6pd positive 2weeks palang siya hindi pa kami nakakapaconfirmatory test . Pero yung panganay ko naman walang G6pd .Tanong lang sa pagsasalin ba ng dugo sa nanay nakukuha ang G6pd ?
Title: Re: About G6PD
Post by: frea mei tunac on July 11, 2017, 04:19:09 am
hello po g6pd dn anak ko 2yrs. old n xia nkakaranas ng pagsusugat ng ulo at katawan ng baby ko.. may nkaranas n b s inyo mga mommies n nagkaganon baby nio..kc wala ako s pinas ngaun asawa ko lang nagbabantay s ank namin...
Title: Re: About G6PD
Post by: Almira Bayan on July 16, 2017, 12:57:44 am
Hi po. My son is 2 weeks old po & he has g6pd knina lang po namin nkuha result ng confirmation. From the day in advise kami ng hospital n positive po sya sa g6pd & need I confirmatory. I'ved been reading yung mga post dto & it helps a lot po sa mga kgaya ko n ntataranta & naiistress because walang alm regarding g6pd. Ask ko po if ngbebreastfeed c baby sa akin bawal n dn po ba sa akin dn yung mga food n bawal sa kanya? yung alcohol po & wipes bawal po ba dn ky baby? Pahelp po pls. Thank you
Title: Re: About G6PD
Post by: Alyssa Mae Bragat on August 24, 2017, 09:34:47 pm
Hi mommie's. Ano po bang milk na mura prq sa g6pd na babies?
Title: Re: About G6PD
Post by: Amor Legaspi on November 01, 2018, 06:10:35 am
My g6pd dn po yung son ko sbi skin ng pedia ko hnd naman daw nakakaapekto yung kinakain mo kay baby
Title: Re: About G6PD
Post by: EDSEL SUMEG-ANG on January 12, 2019, 01:58:19 pm
Hello po mamshies,

Ask ko lang if pediafortan vitamins at ceelin w/ zinc pwede ba sa may 6gpd?

thanks
Title: Re: About G6PD
Post by: Juditha Tupas on February 03, 2019, 12:25:09 am
Please to all mamyes advise me my son 2moths old have G6PD ..ask ko lg if safe siya sa oregano leaves. Thanks Po
Title: Re: About G6PD
Post by: Charlene Trenchera on February 06, 2019, 12:21:55 am
Please to all mamyes advise me my son 2moths old have G6PD ..ask ko lg if safe siya sa oregano leaves. Thanks Po

-Hello, Maam! I have a friend who has a daughter with G6PD. I wanna advice to let him/her get check by a Doctor. G6PD is a serious case and would need some extra measures. So please, i-pacheck-up niyo as soom as possible.
Title: Re: About G6PD
Post by: Zayn Gervacio on July 06, 2019, 07:58:55 pm


Yes hindi po dapat nagbibigay ng hindi nireseta ng doctor para safe
Title: Re: About G6PD
Post by: Carol Garay on October 11, 2019, 06:36:20 am
Hello new member po ako😊
Sana may nakapansin sa post ko.
Ang anak ko po kasi may g6pd 1 year old and 4 months na po sya.
Itatanong ko lang po sana kong safe po bang gumamit ng air humidifier sa room ng baby ko.
Salamat po
Title: Re: About G6PD
Post by: Keisha Erica Castro on February 11, 2020, 05:59:48 pm
Hello po , ask ko lang po yung baby ko may G6pd and mag 1 month old na po siya.. breastfeed ko po siya however after 2 months mag formula na po siya kasi babalik ako sa work ko abroad, ano pong formula ang pwede saknya kasi i check in internet all milk has soya lecithin . Pa help naman po . Salamat.