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Topics - kawaiimaridel

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Kids With Special Needs / Moebius Syndrome Philippines
« on: July 16, 2011, 10:25:03 pm »
hello po sa lahat, may anak po akong may moebius syndrome,a rare disease hindi po sila nakakasmile,frown or kahit anong facial expression...4 years old..girl..gusto ko lang po ishare na hindi po mabubuhay ng normal ang anak ko kung wala pong tulong ng mga professionals (like doctors,therapists,teachers...)
if may nakita or kakilala kayong tao na may moebius syndrome...ipagbigay alam po ninyo sa akin..we have an organization po..dito po kc sa philippines 20 pa lang po ang known case..and 2000 in whole world..thank you..

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