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Author Topic: Moebius Syndrome Philippines  (Read 31122 times)

kawaiimaridel

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Re: Moebius Syndrome Philippines
« Reply #15 on: April 28, 2015, 12:36:26 am »

Im very happy that my thread is still here...im very thankful sa smart parenting dahil madami akong nakilala na mga new members  na may koebius syndrome.thank you for not deleting this thread,marAmi ang naabot nito lalo na ang mga magulang ng mayroong moebius syndrome...
Kudos to admins!
Thank you so much
As of now we are 50 members na,lumalaki na ang moebius syndrome family...
Please dont be afraid to ask me about this rare disease,im very willing to answer you...
Please help me to spread awareness about moebius syndrome!
Thank you so much admins and smart parenting

Maridel carapatan
09225328191

Please visit our website for more information
http://moebiussyndromephils.weebly.com/about-us.html

And Philippine Society For Orphan Disorder
To know more aboit Rare Diseases here in the Philippines
www.psod.org.ph
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iloveyou my princess paula..eventhough you cant smile...but you are the only one who makes me feel special mom and be contented in my life...iloveyou too daddy joel..

kawaiimaridel

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Re: Moebius Syndrome Philippines
« Reply #16 on: August 11, 2015, 01:26:13 pm »

Hello everyone!,
As of now moebius syndrome philippines have 50 members already..
If may kakilala pa kayo na mayroong Moebius Syndrome.please dont hesitate to PM me here.
Thank you smart parenting.
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iloveyou my princess paula..eventhough you cant smile...but you are the only one who makes me feel special mom and be contented in my life...iloveyou too daddy joel..

pamela paulite

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Re: Moebius Syndrome Philippines
« Reply #17 on: December 20, 2016, 07:59:07 am »

Active p poh b yng page or group n toh?? Ask q lang poh, my baby kz ako 1month old ag naiiyak ako kz hnd q siya mkktng ngumiti..my treatment n b nito dito s pilipinas o s ibng lugar? Reply poh😭😢😭 slmt..
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Mommy Jazz

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Re: Moebius Syndrome Philippines
« Reply #18 on: December 20, 2016, 06:13:21 pm »

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kawaiimaridel

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Re: Moebius Syndrome Philippines
« Reply #19 on: January 26, 2017, 11:55:50 pm »

Thank you smart parenting because of this thread ay nakikilala namin ang ibang mayroong Moebius syndrome.kasi ito yung unang lumalabas kapag sinesearch nila in google ang Moebius Syndrome Philippines.Maraming salamat sa hindi po ninyo pagreremove ng topic na ito.
I am Maridel Carapatan I have daughter who have Moebius Syndrome you can reach me sa facebook/messenger ko and to this contact # 09177751235
Thank you
Maridel
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iloveyou my princess paula..eventhough you cant smile...but you are the only one who makes me feel special mom and be contented in my life...iloveyou too daddy joel..

MANILYN MARAMBA

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Re: Moebius Syndrome Philippines
« Reply #20 on: June 07, 2017, 12:48:41 pm »

Hi! May niece po akong turning 4 years old by next month na may moebius syndrome. Never pa po namin siya napacheck up sa pedia-neurologist due to lack of time and financial constraints. Gusto ko po tulungan ang kapatid ko na mapagamot ang anak niya so nagregister ako dito to find out more details on the syndrome and how to deal with it para naman makapamuhay ng normal ang pamangkin ko. Salamat!

Eto po number ko: 0917 321 8137
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Helen Bagnol

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Re: Moebius Syndrome Philippines
« Reply #21 on: March 02, 2021, 06:46:04 pm »

Good day po may anak po ako na since birth ay  hirap SIYA ngumiti at Hindi napikit ang kanan mata .. ang Alam ko lang may 7th nerve falsy inborn SIYA Kasi po napatingnan ko SIYA sa PGH bago mag 1 yr old mula noon hindi na kami nagpacheck up Kasi LAHAT ng laboratory test ok..until nitong dec. 2020 ay diagnosed with type 1 Diabetic medyo lumabo Mata Niya refer kami to optha and sinabe ko na may nerves falsy inborn SIYA refer uli kami sa rehab doctor and advise to undergo therapy and then refer to nuerologist yesterday doon Lang NAMIN nalaman na moebius syndrome diagnosed siya ..at rare case po ito habang lumalaki Kasi anak ko lalong ngumingiwi ang right side face Niya at nuerologist request to do MRI PERO HINDI NAMIN ALAM KUNG PAANO AT SAAN KUKUNIN ang  financial sa MRI Kasi hirap po kami sa BUHAY at wala po along trabaho 13 yr old daughter ko po ang may moebius syndrome..Helen bagnol 09293444576
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Parentchat Admin

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Re: Moebius Syndrome Philippines
« Reply #22 on: March 05, 2021, 11:46:11 am »

Hello Helen. Basahin niyo po yung 1st post galing kay mommy Maridel. Meron siyang group para sa mga magulang na katulad niyo.
https://www.smartparenting.com.ph/parentchat/index.php?topic=31615.msg387665#msg387665

Ang huling email address niya na naka post dito ay kawaii_maridel@yahoo.com
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