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Author Topic: for moms of premature babies, please share your stories / experiences  (Read 28116 times)

thepreemiedonna

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Basahin sa Smart Parenting:
Bianca Lapus, Nagkaroon Ng Temporary Blindness Noon Dahil Sa Preclampsia
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Hi, as you can tell from my username, I recently gave birth to a premature baby. A lot of times, I feel down and depressed because of all the stress emotionally, psychologically, financially and sometimes even spiritually. But most of the time, I just try to count my blessings and indeed I feel so blessed sometimes knowing what we have (and will still) overcome and hearing / reading stories of others like me. I am very much curious as to the stories and experiences of other mommies of premature babies out there especially those really early ones (32 weeks AOG below) and would really like to be inspired and encouraged. Thanks!

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missheizy

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Re: for moms of PREMATURE babies, please share your stories / experiences
« Reply #1 on: February 21, 2012, 03:18:57 pm »

Hello sis @thepreemiedonna! I feel sad naman upon reading the post, I am on my 30 weeks of having a bay girl and I am having scary thoughts about giving birth early, I am super praying na sana hindi mangyari kay baby, she needs still to be in my tummy para full ang development, super ingat talaga ako and I don't stress myself talga even I am still working, I am teaching actually , so, ang ginagawa ko, I give them activities, naku, having a baby is talagang constant alaga sa self. OMG! Napadami tsika ko, pero sis, siguro nga may message si God and may other plans, may mga kakilala ako na premature babies and still very successful, she graduated c*m laude pa nga eh, may mga babies naman na super healthy paglabas then after how many weeks, nagsuddedn death, hay, we don't know talaga what will happen, si God lang talga nakaka-alam, cheer up sis and smile ka pa rin. I 'll be praying for your baby. GBU
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thepreemiedonna

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Re: for moms of PREMATURE babies, please share your stories / experiences
« Reply #2 on: February 26, 2012, 11:45:20 pm »

Hi missheizy, naku sorry I didnt mean to scare you. But dont worry, Im sure you'll do fine. Basta wag mapakastress at puyat, avoid mga caffeine, second hand smoke, alcohol, and regular prenatal checkups, labs and vitamins.

Actually, I dont need to look further for stories. Kasi I myself, I was also born premature at about 28 weeks and at 1 kg / 2.2 lbs much like my daughter. Although ako, sabi nila I stayed sa hospital around 6 months, tska syempre that time we dont have the same technology and mga research compared before. As far as I know, lumaki naman akong normal, healthy and modesty aside, lumaki naman akong matalino at gifted sa maraming aspects.

I am a doctor by profession, so I know the theoretical aspect of giving birth to a premature baby. But I guess, no amount of knowledge can prepare you for the emotional aspect it entails, lalo na since first time mom ako and I dont have as much support as other moms. Actually, di ko rin alam kung advantage or disadvantage ba yung equipped ako with the medical know how kasi somehow I know what to expect, naiintindihan ko yung mga ginagawa sa anak ko so I dont panic as other moms would have done in my case. Kaya lang, syempre I also know the possibilities so kung minsan my imagination just goes haywire, in the negative direction, so syempre nakakadown din.

I recently also talked to a preemie mommy na naging "classmate' ng anak ko. We were talking of our experiences, how our babies are, how we coped / are coping with the situation and actually naencourage ako talking to her. Sometimes, knowing na di lang ikaw yung nakakaranas ng ganun and especially when you see / hear about people who beat the odds.

I think, it's important din for preemie moms na magkaroon ng parang support group especially those who have gone through or who are going through the same experience. Kasi iba kung nakakarelate yung kausap mo sa nararamdaman o pinagdadaanan mo.

But it's true, it maybe because God has a plan for us. Di naman niya tayo bibigyan ng di natin kayang malampasan.

Yes sis, I would really appreciate it if you could include my baby and I in your prayers. My baby's name is Sophie Isabelle. Thank you
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missheizy

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Re: for moms of PREMATURE babies, please share your stories / experiences
« Reply #3 on: March 06, 2012, 11:24:42 am »

@thepreemiedonna: Hello  ;D

Dami rin naman talagang achievers na prembabies kaya okay lang, yun nga lang, lalo na kapag we are not knowledgeable enough at super panic na, hays,**sigh plus prayers,  good thing nagiging stress buster  na rin sa akin ang forums ng SP kahit baguhan pa lang dito, I really appreciate it. Pregnancy talaga makes women go to different heights of sanity and insanity. lol :)
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Mrs. Anderson

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Re: for moms of PREMATURE babies, please share your stories / experiences
« Reply #4 on: March 18, 2012, 03:06:25 pm »

Study: Momís Voice Boosts Premature Babiesí Health



Itís been scientifically proven that the sound of a motherís heartbeat helps enhance a childís learning development, even as early as in utero (in his motherís womb). In fact, simply talking to your newborn child helps build his language and vocabulary and early stimulation of preemies leads to good performance in different social and learning environments.

Read more at:
http://www.smartparenting.com.ph/kids/baby/study-mom-s-voice-boosts-premature-babies-health
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cyrre

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Re: for moms of PREMATURE babies, please share your stories / experiences
« Reply #5 on: March 18, 2012, 05:16:58 pm »

my fourth baby is a premature....i had difficulties talaga when i get pregnant....kailangan painless ang delivery ko meaning tulog ako pag lumalabas na si baby but all the pain ng labor naranasan ko is just that di lang pwede ako dun sa part na lalabas na dahil baka di ko kakayanin yung pain medyo mahina ang tolerance ko and lagi pa akong nagpa palpitate kaya laging kasama cardiologist ko pag nanganganak ako...so sa 4th baby ko, at 3 months palang sobrang hirap na ako lumakad at sobrang likot niya sa loob ng tummy ko kaya madalas akong magpacheck kasi iba yung nararamdaman ko at nanghihina talaga ako dahil halos 6 months sumusuka talaga ako.....kaya puro prayers talaga ginagawa namin para di lang mawala yung baby dahil sobrang nastress na rin ako sa nangyayari at naiiyak ako baka kasi mawala sya tapos minsan may spotting pa ako...kaya yung kaba laging andun....we were hoping for a baby boy then nung nagpaultrasound na ko confirm na it was a baby boy kaya sobrang tuwa pati yung 3 anak ko....so lalong iningatan ko pero still ginagawa ko pa rin lahat ng dati kong ginagawa un nga lang medyo mabagal na talaga ako kasi everyday di ako nakakahinga ng maayos at palaging masakit tyan ko hanggang dumating na yung time ng check up ko, sa record 6 going on 7 months na ako.... sinabi ng OB ko  na manganganak na ako...naku di pwede sabi ko baka kung ano mangyari...naiiyak na talaga ako nun pero binigay na lahat ng OB ko ang mga details na gagawin just to make sure na safe ang baby.....they need time bago lumabas si baby because they need to give me steroids para daw mag open yung lungs ni baby pag inilabas na sya then nung nasa labor room na ako sobrang tagal nakakangalay lagi lang kaming nakahiga at syempre wala ng food na ibibigay...naubos na lahat ng manganganak dun at lahat ng doctors na nakaduty ay nakita ko na, ako andun pa rin at di parin nanganganak....sobrang hirap na hirap na ako at nanghihina na sabi ko nga pag di ko kinaya sana yung baby mabuhay kahit ako ang di makasurvive pinatawag ko na talaga husband ko that time para makausap at nagpapaalam na talaga ako na wag silang magagalit kay baby....they gave shots para makatulog at di ko maramdaman ang pain pero sandali lang  ako nakakatulog at gising na naman ako...then nagkaproblem pa dahil may parang infection na ako....then sa record suspected sepsis so lalo na akong nagworry kasi naririning ko yung mga doctors at ang dami na nilang nag uusap about my condition almost 2 days ako sa labor room then on the 3rd day need na talaga ilabas kaso wala pa rin pero pinipilit ng OB ko na manganak na ako so may mga ginagawa sila at sobrang sakit pag nag IE sila ....
then at 10 am on the 3rd day dinala na nila ako sa delivery room still waiting for the baby to come out....sabi ko dun sa OB na nakabantay that time sa akin I-CS nyo na ako kasi di ko na kaya at nagconsult naman sya sa OB ko sabi ni OB pag di pa lumabas ng lunch time mag CS na kami kasi gusto niya inormal pa rin.....so habang andun ako dami ko ng naiisip at pati yung date na ilalabas ko sya naiisip ko, kung ano bang swerte na date then may nakita akong date sa ceiling ng delivery room di ko lang matandaan kung ano yung gamit sa un nakita ko yung 17, sabi ko maganda yung date then tinanong ko  yung bantay ko na ob, ask her kung ano na bang date sabi niya july 17...sabi ko dapat manganak na ako......di na pwede bukas.....sabi sakin nung anesthesiologist need na lumabas ni baby kasi ilang araw na daw sya sa hospital di pa sya nakakaalis...eh sya lagi ang partner ng ob ko  kaya kilala ko na rin sya....then after 1 hour sumakit na tyan ko at nag try na yung isang ob na mailabas na ang baby kasi pumutok na panubigan ko at naubos na kaya mahihirapan si baby na makalabas....di ko na alam kung gaano katagal pa ang hinintay ko nung maramdaman ko na manganganak na talaga ako at yung dami nila sa delivery room at nakikita ko lang mga lalaking assistant andun at sila ang nag aasikaso sa akin medyo di pa nga ako comfortable kasi mas sanay ako puro babae lang kaso wala na ko choice  naka open wide na ako at tinatali pa nila yung braso ko aysss sabi ko para na kong kakatayin nito....pina ire lang nila ako at may pampatulog ng binigay sa akin at narinig ko lang ayan malapit na then wala na akong matandaan after that.....

yung baby ko sabi ng pedia intensivist healthy daw at gusto niya talagang mabuhay kaya lumaban din sya....1 day lang sya sa incubator...at nag discuss kami regarding sa age niya kasi sa record 6 going on 7 months pero as they see it at sa development ni baby nasa 8 months sya at mabigay at mahaba sya.....kaya nag recompute sila nilagay sya sa 8 months....after that pain meron pa palang mas painful na darating ...the baby needs to have an antibiotic  for 5 days...3 shots in one day 2 in the morning and 1 in the evening kaya everyday kami nagpapashot sa ER...hays ang liit pa ng mga hita niya at naturukan na ng maraming beses...umiiyak ako everytime they gave him a shot...si hubby na lang ang nakaharap ako lumalayo talaga...then after that may kasunod pa, he needs an opthalmologist kasi may possibility pala na mabulag kapag may binibigay na antibiotics...so pa check kami at need i open ng maige yung eyes niya..4 months ata sya nun....nilagyan ng topical anethesia at may ginamit na tool or aparatus to open the eyes kasi need makita ng doctor kung nadevelop yung eyes niya...luckily, okay naman sya pati hearing okay naman....and the last was yung check up niya uli sa dugo...they need to check kung wala syang infection at pati yung result nung para sa new born babies...buti naman at okay lahat kasi inulit yung sa case ng baby ko....sobrang thankful ako at nalampasan namin lahat....he is now 3 yrs and 8 months old....di pa sya marunong magsalita in full sentence pero kahit papaano marami na syang words na alam....he's now studying at gymboree and this coming school year he will be transferring to a pre school.......:)pasencya na po at napahaba ang kwento....
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roselsmom

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i feel for you, sis thepreemiedonna, my first child was born premature. i was very happy at that time kasi she's so strong that she doesn't need to be incubated.

she's now 7 y/o and living like a normal child. she's sweet and very affectionate. i think what is important how you take good care of her/him. s/he might be normal right now (being born premature), but because of your TLC, s/he will be a good person someday.
« Last Edit: July 06, 2012, 01:05:15 am by Sassy Mom »
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CallcenterMom

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I gave birth to my daughter on my 32nd week.  I know I will undergo CS but never imagine na magiging pre-mature ang baby ko.  Unlike any ordinary mother who gave birth and comes home with the newborn, I was forced to leave my daughter at the hospital for a week due to her color and weight and I think other suspected complications.  It was not easy to leave her.  She was my first and my only daughter.  I want to share with you how she came to this world.

http://intrimididaatribida.blogspot.com/2011/09/god-works-in-mysterious-way.html

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andrealexis

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I gave birth a month before my due date (36weeks). Thank God my baby's strong enough and hindi na need ng incubator. Our doctor said na my baby is on Borderline Preterm daw kaya ayun nakalusot sa incubator. Pero it was stressful rin kase we had to stay in the hospital for more than a week dahil my water bag broke earlier without any contractions. So to avoid complications like sepsis, etc she was put on antibiotic therapy. She also had breastmilk jaundice kase nga her kidneys daw were too immature pa. Me and my husband stayed in the hospital with her the entire time. Here is her pic when she was on photo-therapy. Lage ang iyak ko that time.  Pero this was taken a year ago. She's so healthy now :)


Photo therapy :(


Healthy much  ;)
« Last Edit: July 06, 2012, 04:00:43 pm by andrealexis »
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BuhayMommy Blogger

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I gave birth last April 12, baby Yvan was then 2kg, 34 weeks si bunso and suffered Respiratory Distress Sydrome,Neonatal Pneumonia with Sepsis and now has complication of BronchoPulmonary Dysplasia. Maraming doctor ang nagsabi na 50-50 chances to survice pero hindi ako sumuko and kami ng asawa ko dumating sapoint na hopeless na. I know many of you witnessed how Yvan fights for his life and I am so thankful God never failed to help me and my baby to survive. It hurts to see my child is suffering from this complications. I know God will heal my bunso.

http://www.facebook.com/helpforbabyyvancalimlim
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neth04

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Re: for moms of PREMATURE babies, please share your stories / experiences
« Reply #10 on: November 30, 2012, 01:21:58 pm »

@andrealexis
sis naconfine din ang baby for jaundice...phototherapy din sya for 7days... breast milk jaundice din... i feel the same way.. best actress nga ako noong nilalagyan sya ng swero kakaawa!
« Last Edit: December 01, 2012, 12:41:55 am by toughmom »
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toughmom moderator

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Re: for moms of premature babies, please share your stories / experiences
« Reply #11 on: December 01, 2012, 12:17:27 pm »

UNICEF: Philippines Has One of the Highest Premature Birth Rates in the World

According to a statement from the UN Children's Fund (UNICEF), the Philippines ranks the 8th highest among 184 countries when it comes to the prevalence of premature births.

http://www.smartparenting.com.ph/community/news/unicef-philippines-has-one-of-the-highest-premature-birth-rates-in-the-world
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babymints

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Re: for moms of premature babies, please share your stories / experiences
« Reply #12 on: December 02, 2012, 05:46:04 pm »

hi mommies! i just gave birth too to my preemie baby at (28 weeks 6/7). it was unexpected to deliver early. i had a preterm labor scare at 26 weeks due to shortened cervix. i was hospitalized for almost 2 weeks then was discharged because i agreed to have a pessary inserted for cervix support. but after just 6 days, was having contractions and i was rushed to the hospital. they tried to stop my contractions unfortunately, baby wants to come out na talaga.

good news, he can breathe on his own and is in no need of incubator or ventilator. he just needs extra oxygen for support. although syempre since he was born prematurely, we would not know what would happen next.

im so scared for my baby. im so stressed out physically, emotionally and financially. i know having my baby stay in nicu would cost us.

sa mga momies, how long did ur baby stay in nicu and how much did you guys pay? meron ba payment plan ang mga hospitals? please advise mommies,
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jjrasai

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Re: for moms of premature babies, please share your stories / experiences
« Reply #13 on: March 02, 2013, 12:34:41 pm »

hello mga mommy"s ako din po,, i have my 1st baby premee. 35 weeks lang sya, ang duedate ko sana sept 25 pa pero lumabas na ng aug 25, so kulang ng 1month 8mos lang bali,, den gulat nalang ako bigla pumutok un panubigan,, ko, odi nataranta kame..,, kaka i.e ng mga doc hindi talaga siya puwede iire, kelangan i cs,, ayun.. pagkatapos,, nung nkita ko na si baby iyak ako ng iyak,, sabi ko naman ky lord,, sana mkaya niya kasi delikado ang 8 mos kesa sa 7.. after 3days pa daw mllamn, yung mga puwede lumabas sa kanya,, den kinagabihan,, sabi ng mga nurse at pedia niya nangitim daw ang baby ko,, as in.. kaya dali dali nilagay sa waterbed,,at kung kakayanin,, lalagyan na sya ng tubo,, para sa baga niya,, naku iyak ako ng iyak pati ang mama ko sabi gawin nlang ang lhat wag lang pababayaan si baby.. den pray ako ang tagal ko namin wait si baby after 5years,, tas  bka mawala naman agad,, pag tapos pang 2 dayss have a glory goodnews,, si baby hindi na sya incubator,, kasi kaya naman na daw niya at malakas na sya ilaw lang ang need niya para meju lumaki pa,,, thankss god,, ayun naiwan 4 2weeks si baby after dat nun nakauwe na kami kakatakot hawakan kasi liiet talga.. milk niya similac,, after 6most gain na sya now,,, eto ang taba siksik,, super sa kulit at npakadaldal grabe,, kaya thankfull ako ky lord, at sa bothside kase lovena love nila si baby,,... hehe .. :-* ;D
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annamariemomof3

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Re: for moms of premature babies, please share your stories / experiences
« Reply #14 on: March 02, 2013, 05:33:32 pm »

My first pregnancy I gave birth at 28 weeks unfortunately she only lived for an hour. After 3 months I was pregnant again. Lahat na yata ng pampakapit ininum k but still 32 weeks I gave birth to a 3 lbs 6 oz baby. First three days I could not even see his face kasi may oxygen hood. It was maybe a month before the nurse took pity on me and allowed me t touch my baby. Yun nga Lang di pa puwede buhatin. It was an emotional roller coaster it was like 1 step forward and 2 step back ang development niya. After being fed through a tube for awhile he finally learned to suck but after a few days Nawalan ng gana kasi anemic panu nam ang Hindi eh araw araw kinuhanan ng dugo because tumataas sugar niya so he had to have several blood transfusion. After two months inilabas ko na siya sa ospital AMA inip na kasi ako. That's not the end of it though, he still went to an opthalmologist for 6 months to watch out for retinopathy. I kept wondering if he'll ever lern to walk kasi mag 2 years na siya natuto. I was worried because for to years he wasn't really making any eye contact. But now he's 9 and a constant honor student. That's just the emotional part of it the financial part, it really sunk us it took us about 3 years to recover.

After six years I was ready to try gain. Unfortunately I had early fetal demise. But that did not dampen my spirit. After a year I was pregnant again, with twins. And no it was not really a happy moment, it was petrifying. My parents and in laws got upset probably because they were worried sick. I really felt that I was set up to fail. Every month I would have an ultrasound and I fear that the doctor would tell me the bad news. At that point I was just hoping and praying that I reach the age of viability. I was ready for preemies and so I thought. At  31 weeks I gave birth to my two boys. The xperience was totally different his time. I was awake during cs so I heard them cry and got to hold them right away. Every two hours I wold try to bf them even though they would not latch yet. After 4 days I was discharged and that was the start of the circus. We moved them to PGH coz we could not afford  makati med. to make it safer instead of the NICU we payed for a private room and a semi private room coz of the 1 bed 1 patient policy, but ofcourse we only used 1 room. Our relatives are all in the province so it was just me my husband and my eldest who we eventually had to transfer in the province ( felt so guilty at tht moment). So every two hours I would pump milk then feed it through the tube drop by drop so it may last for about 30 mins to 1 hour. But ofcourse I could not hold the tube on my own so my husband has to do it too, we get about 30 mins rest then we have to do it all over again. In between that my husband takes care of his loans etc, he tried to talk to me about that but I refused to listen, it's just too much. We can't sleep or should I say take naps at the same time because just as we turn our back one of them has an apnea episode. And so the story goes. The doctor actually wants to discharge us already but I said I was just not ready to take care of preemie twins who can't suck and forgets how to breath. After 1 month the doctor finally convinced me to go home probably because they really need the beds. My husband had to go back to work while I moved back in with my parents but no body wanted to touch my twins so I was alone in that. My father would accompany me at night so I could get a few hours of sleep but refuses to feed the babies coz the have to be fed through a dropper sitting down now my twins are almost 3 years old and I think I am ready to do it all over gain. Crazy I think I am.
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