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Author Topic: Video EEG- anyone experienced it?  (Read 6845 times)

NanaylovesAJ

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Video EEG- anyone experienced it?
« on: July 03, 2012, 01:42:17 pm »

My son has suspicious seizure disorder but already had 2 EEG and both are normal results. Our pedia-neuro advised us to have Video EEG, more effective and efficient but a lot pricey than EEG which costs 12-20 thou... but since the "seizure?" occurs only 2-3 times within 6 months , he said that maybe it is not seizure anyway, and to continue observing for another 6 months..
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momzie

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Re: Video EEG- anyone experienced it?
« Reply #1 on: August 23, 2012, 03:08:51 pm »

hi sis how's your baby na?

nagpa EEG din baby ko kasi nag seizure din sya and the result is normal. never tried yung video EEG. buy the neurologist recommended na pa MRI. dun nakita na meron syang cerebral atrophy. my daughter is only 6 months old now.
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mommyjiing

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Re: Video EEG- anyone experienced it?
« Reply #2 on: August 23, 2012, 03:32:11 pm »

Sis ask ko lang po kung biglaan lang po ba yung pag seizure niya? Not accompanied with fever or whatsoever? Thanks
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NanaylovesAJ

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Re: Video EEG- anyone experienced it?
« Reply #3 on: August 24, 2012, 08:24:43 am »

@momzie - how do you describe your baby pag nagsseizure.. ano nangyayari? dko kc talaga alam kung seizure yun or not or ano b talaga yun..  nag MRI din baby ko .. same din ng sau yung findings.. kaya pinastart na kami ng therapies kc delayed cia.. so para masimulan ng maaga

@mommyjiing -  yes no fever...
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momzie

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Re: Video EEG- anyone experienced it?
« Reply #4 on: August 24, 2012, 10:39:19 am »

mommyjing...biglaan yung first and second seizure ni baby. no fever or whatsoever. yung 3rd seizure niya meron sya pneumonia. sis ask lang meron din ba seizure disorder baby mo? what age na sya ngayon and ano findings/diagnosis?

NanaylovesAJ...sis akala ko lang moro reflex nung una. pero iba pala yun sa jerky movement. parang kino kombulsyon. pero parang iba sya compare sa epilepsy na sobrang shake talaga ng katawan. sya parang sumisinok lang. ang tagal nga kasi almost 30-40 minutes sya nag jerk. tawag dun sabi ng neuro status epileptic. ilang taon na baby mo?

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momzie

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Re: Video EEG- anyone experienced it?
« Reply #5 on: August 24, 2012, 10:43:45 am »

^ 2 years 6 months na pala baby mo sis...nagpa consult na kayo sa developmental pedia at nagpa rehab (OT)? kumusta naman sis development ni baby? nung una ang hirap ma accept. everytime makita ko baby ko napapa iyak ako. pero blessing sa atin ang mga baby natin. iniisip ko na lang na we are blessed na biniyayaan ng ganitong baby kasi may trust si God na aalagaan natin si baby at tayo ang magiging mommy ni baby. syempre 10x ang sakit na mararamdaman natin pag nakikita natin baby natin kasi affected ang future niya.
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NanaylovesAJ

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Re: Video EEG- anyone experienced it?
« Reply #6 on: August 24, 2012, 11:43:52 am »

hi momzie..  yup at 6 months meron na kming Pedia-Neuro and iba pa yung Neurodev namin.. pero sbi ng neuro namin myoclonic jerks lang yung kanya pero mawawala din daw paglaki. since 2 EEG na kami nga na normal results.. . yung seizure(?) kc ng baby ko is mga  30 seconds to 1 min lang.. at start nagsusuka ng milk tapos parang takot na takot.. na umiiyak... tapos hinahawakan yung batok and head niya.. oo naiiyak ako kahit 2x p lang nangyari.. (ako kc kasama nung time na yun) kung meron man iba episodes dko alam kc sister ko ngbabantay sa kanya kc nasa work kami.. based naman sa kanya wala naman daw ganun experience cia or over lang ako magobserve.. kc ciempre mommies.. konti mapansin natin sa babies nagppanic n talaga tayo.. less than 1 year old start na kami ng PT and OT..
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momzie

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Re: Video EEG- anyone experienced it?
« Reply #7 on: August 24, 2012, 01:47:11 pm »

yung kay baby sis hindi alam if intil when yung seizure niya. Saka tagal niya mag jerk both extremities. Di pwede na hayaan lang sa bahay. Pag 2 mins na nag jejerk pa sya kailangan na dalhin namin sya hosp. Sana mawala din paglaki niya. Cerebral atrophy din ba diagnose sa baby mo? Meron nirecommend yung pedia namin na pediatric neurologist para  makapag second opinion kami. Saka miracles do happen. Di natin alam paglaki na pala nila ok na sila. 
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NanaylovesAJ

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Re: Video EEG- anyone experienced it?
« Reply #8 on: August 24, 2012, 02:05:52 pm »

Ang myoclonic jerks is normal lang sa baby yun ang nawawala.. yung seizure is hindi n nawawala.. (as far as I know) pero meron medication n dyan.. Cerebral atrophy din findings sa MRI.. pero diagnosed cia as Cerebral Palsy pag ganun..
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momzie

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Re: Video EEG- anyone experienced it?
« Reply #9 on: August 24, 2012, 02:14:15 pm »

yes sis, phenobarbital yung maintenance ni baby. walang maintenance na binigay sa baby mo? at what age mo sya sis dinala sa developmental pedia/neuro dev?
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NanaylovesAJ

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Re: Video EEG- anyone experienced it?
« Reply #10 on: August 24, 2012, 03:00:53 pm »

Ayaw muna magbigay ng doctor namin ng gamot kc 1-2 years daw yun pag nasimulan.. gusto muna niya observe kung seizure nga talaga.. kc d naman unconcious baby ko pag nangyayari yun.. umiiyak cia.. gising.. kaya lam mo lang na may nararamdaman cia d niya masabi.. dun ako natatakot kc dko alam pano ko cia ppkalmahin..

dko sure kelan ako ngstart sa neuro dev.. bsta  bago cia mag 1 year old.
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momzie

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Re: Video EEG- anyone experienced it?
« Reply #11 on: August 24, 2012, 03:20:43 pm »

thanks for sharing sis. I'm praying and hoping magiging ok mga anak natin. twice pa lang nag jerk anak mo while yung sa akin many times na. and 3x na din na confine sa hospital lately last august 21 lang. God bless!
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NanaylovesAJ

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Re: Video EEG- anyone experienced it?
« Reply #12 on: August 24, 2012, 03:57:28 pm »

Thank God dp kami naconfine.. once lang dahil sa dehydration.. after nun wala na.. GodBless your baby.. pray lang
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momzie

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Re: Video EEG- anyone experienced it?
« Reply #13 on: August 24, 2012, 07:13:20 pm »

yung first confinement namin nung pina eeg si chloe ang lab test. Yung 2nd nagka pneumonia sya. Kasi partner daw pala nung cerebral atrophy yung pneumonia at sked for MRI. Yung 3rd may fever sya and 1 day lang sya naka confine pero laki pa din sis ng bill 10k din.
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