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Author Topic: All About New Born Screening  (Read 78694 times)

momynako

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Re: All About New Born Screening
« Reply #15 on: May 13, 2008, 06:03:53 am »

ah within 48hrs pla i thought within 24 hrs lang kasi yung ke baby within 24hrs tska kinunan.
kasi sa akin hindi ko na kinuha sa pedia ko, wala naman sya sinabi, naiwan pa nga yung baby ko ng 1 week sa hospital kasi ang jaundice... tpos 1 month after ko manganak bumalik kami for my baby's check up, after that hindi na kami bumalik sa kanya.

ayun nga i agree with you na dapat within a week may result na para makita kung may abnormalities at mabigyan ng pedia ng necessary treatment.
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mitch

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Re: All About New Born Screening
« Reply #16 on: May 13, 2008, 02:45:19 pm »

ako naman natatan daan ko after 72 hours mula nung sinilang si baby tsaka lang sya newbornsreening tapos we got the result after a week  ;D

kizzia

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Re: All About New Born Screening
« Reply #17 on: May 13, 2008, 04:12:46 pm »

           My son also had his newborn screening but only after a month since he got a blood transfusion but during that time he got a false positive result in G6PD because of the said blood transfusion so it has to be repeated again and so we have to count a month since his last blood transfusion lucky me i had a copy of his medical history in la salle since we transfered to another hospital so we had the exact days needed in order for the transfuse blood not to react on the said test.

             It is really important to have your child have this test because undetected disease can result in irreversible damage. Early detection due to newborn screening can save our child's health.

Pahabol lang po:
            If your pediatrician informed you that you need to repeat a certain test in newborn screening then the hospital requires you to pay again better call the NIH that's what i did way back then I got the chance to talk to their department head which happens to be a nurse as well. I told her why do I have to pay again for the new born screening (the hospital requires me to pay again) since its only for a repeat test,  during my time nurses are the one who does the newborn screening right now most hospitals let their laboratories do the job. Then she told me that I don't have to pay again since it was already payed before and they will just give another newborn screen card to the hospital where we had our test before and just tell the staff in the laboratory that I already had a talk with her so when the staff told me to pay I told him that according to NIH i don't have to pay a certain amount. Since i refuse to pay he reported it to the Laboratory department head. ;D then we had a little chat and told me that i should pay for the test, so i told her as I was told by the NIH i don't have to pay the amount they will just replace the newborn screening card for me, but when she still insist I told her "nag usap na po kami ni Ma'am Daisy if you still refuse the test you could call her" hehe wala lang tipid tips lang po hehe you should also know your right's as a patient.
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pinkyn

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Re: All About New Born Screening
« Reply #18 on: May 13, 2008, 04:57:07 pm »

FYI din po. I've read in the PhilHealth website (www.phic.gov.ph) that if you're covered by PhilHealth and you gave birth thru normal delivery (NSD) starting 2006, the newborn screening test is free as part of the Newborn Care Benefit Package. By the way, sinasagot lang pala ng PhilHealth is up to third NSD (pano kung CS delivery, walang newborn care package? :(). So, don't forget to get a PhilHealth card and remember that you should have paid premium contribution of at least nine (9) months within the twelve month period immediately prior to the month of delivery. If your husband, however, already has PhilHealth coverage then just make sure that you and your other kids, if applicable, have been declared by him as dependents (fill-out PhilHealth M2 form and attach your marriage certificate & kid/s birth certificate/s) and that he regularly pays contributions. There's no need to secure your own card. One PhilHealth member per family is enough. The Member Data Record (MDR) issued by PhilHealth after filing M2 is the primary document for proof of dependency for legal dependents.
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yetsky

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Re: All About New Born Screening
« Reply #19 on: May 14, 2008, 11:30:22 am »

im due to give birth anytime now....will i remind the pedia for the newborn screening test para kay baby ko or ginagawa talaga ito sa lahat ng newborn babies (required kumbaga)?


hi mommy cel, actually no need to remind the pedia, usually sila nag ask ng consent sa mommies nun, and most of the hospital automatic yun na kukunan ng nbs si baby, but if you really want to advise your pedia regarding baby nbs, you can do so... ingat & congratulations in advance..
« Last Edit: May 14, 2008, 10:59:16 pm by yetsky »
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youngmom

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Re: All About New Born Screening
« Reply #20 on: May 14, 2008, 03:46:04 pm »

Read the current issue (SP May),it's all about NBS.for those babies with G6PD deficiency, may tips about dun on nutrition chapter.

better update the hospital,although SOP na nila yon,i-confirm niyo padin na yung baby niyo dapat mag undergo ng NBS para sure, thanks mommy kizzia sa tips,o ayan ha,pag pinaulit kayo ng NBS walang bayad kung nakapag bayad na ulit kayo,do what mommy kizzia did,and for NSD,just like what mommy pinkyn said kung may philhealth kayo,free na yon.ang daya pano naman tayong mga CS? :P
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jonsly26

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Re: All About New Born Screening
« Reply #21 on: May 15, 2008, 09:34:34 pm »

hi momsies.. i'm worried- my daughter got G6PD deficiency in her NBS result & we'll be going to manila for a confirmatory test. i feel this is something to be worried about. what do i do? My 1st baby died of PDA (heart ailment) when she was barely 3 mos old. I feel traumatized.
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Fahrenheit

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Re: All About New Born Screening
« Reply #22 on: May 16, 2008, 11:25:53 am »

Yes , my son had a Newborn Screening

Although hindi pa sya standard procedure sa hospital dito..we just initiated and asked our pedia to make the referral. honestly ang iniisip ko lang nung magpa newborn screening sya eh yung masiguro ko na hindi sya candidate sa mental retardation cause by  thyroid disorder
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momi rmi

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Re: All About New Born Screening
« Reply #23 on: May 16, 2008, 12:22:44 pm »

momi jonsly26, sori to hear about ur first baby...

as for ur 2nd baby your have to bring her/him to pedia for proper administration of G6PD deficiency, i suggest you should bring her/him to pedia-hematologist since G6PD is on blood deficiency... good luck and keep praying... :)
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pinkyn

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Re: All About New Born Screening
« Reply #24 on: May 16, 2008, 05:51:23 pm »

Yes , my son had a Newborn Screening

Although hindi pa sya standard procedure sa hospital dito..we just initiated and asked our pedia to make the referral. honestly ang iniisip ko lang nung magpa newborn screening sya eh yung masiguro ko na hindi sya candidate sa mental retardation cause by  thyroid disorder

Doctors and medical facilities are legally obliged under R.A. 9288, also known as the "Newborn Screening Act of 2004", to inform parent/s prior to delivery regarding NBS.
Source: http://famli.blogspot.com/2006/09/primer-on-newborn-screening-act-of.html
What are the obligations of health practitioners under RA 9288?

Any health practitioner who delivers, or assists in the delivery, of a newborn in the Philippines shall, prior to delivery, inform the parents or legal guardian of the newborn of the availability, nature and benefits of newborn screening. Appropriate notification and education regarding this obligation shall be the responsibility of the Department of Health (DOH).

How is newborn screening performed?

Newborn screening shall be performed after twenty-four (24) hours of life but not later than three (3) days from complete delivery of the newborn. A newborn that must be placed in intensive care in order to ensure survival may be exempted from the 3-day requirement but must be tested by seven (7) days of age.

It shall be the joint responsibility of the parent(s) and the practitioner or other person delivering the newborn to ensure that newborn screening is performed. An appropriate informational brochure for parents to assist in fulfilling this responsibility shall be made available by the Department of Health and shall be distributed to all health institutions and made available to any health practitioner requesting it for appropriate distribution.

Can parents refuse to have their babies tested?

A parent or legal guardian may refuse testing on the grounds of religious beliefs, but shall acknowledge in writing their understanding that refusal for testing places their newborn at risk for undiagnosed heritable conditions. A copy of this refusal documentation shall be made part of the newborn’s medical record and refusal shall be indicated in the national newborn screening database.

What are the requirements of RA 9288 for health institutions?

The DOH and the Philippine Health Insurance Corporation (PHIC) shall require health institutions to provide newborn screening services as a condition for licensure or accreditation.

Who will shoulder the newborn screening fees?

The PHIC shall include cost of newborn screening in its benefits package. The newborn screening fee shall be applied to, among others, testing costs, education, sample transport, follow-up and reasonable overhead expenses.

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youngmom

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Re: All About New Born Screening
« Reply #25 on: May 16, 2008, 05:54:12 pm »

hi momsies.. i'm worried- my daughter got G6PD deficiency in her NBS result & we'll be going to manila for a confirmatory test. i feel this is something to be worried about. what do i do? My 1st baby died of PDA (heart ailment) when she was barely 3 mos old. I feel traumatized.

sis dont be scared.pwede naman macontrol yan e,may mga certain foods and drugs ka lang ipagbabawal sa baby mo.i suggest u buy a copy of SP May issue kc na discuss don yung G6PD deficiency. ang alam k din may mom dito na may baby may G6pd deficiency din so alam na niya mga bawal at pwede sa baby niya,nagpost siya dito ng certain drugs and foods na bawal sa baby niya,forgot ko lang saang thread niya pinonst yun,nabasa ko lang kc.
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pinkyn

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Re: All About New Born Screening
« Reply #26 on: May 16, 2008, 05:59:37 pm »

hi momsies.. i'm worried- my daughter got G6PD deficiency in her NBS result & we'll be going to manila for a confirmatory test. i feel this is something to be worried about. what do i do? My 1st baby died of PDA (heart ailment) when she was barely 3 mos old. I feel traumatized.

It's sad to hear about babies dying so young. My baby girl died a few minutes after birth. Anyway, here's something about G6PD:
Source: http://www.savebabies.org/diseasedescriptions/g6pd.php

Glucose-6-Phosphate Dehydrogenase Deficiency (G6PD) is the most common genetic enzyme deficiency, occurring most often in tropical and subtropical Asia, tropical Africa, areas of the Mediterranean, the Middle East, and New Guinea. It can cause premature destruction of red blood cells (hemolytic anemia) when an affected individual is exposed to certain medications, chemicals, foods, or pollen. Severity of the condition is extremely variable.

Long Term Effects
With early diagnosis and avoidance of pathogens, individuals lead normal, healthy lives.

Treatment
Treatment involves restricting exposure to pathogens that cause a reaction.
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jonsly26

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Re: All About New Born Screening
« Reply #27 on: May 16, 2008, 06:05:28 pm »

sana nga magnegative confrimatory test niya..sabi kc ng pedia, may mga instances na positive ngayon pero ngnnegative sa confirmatory. sad lang ako kc if ever (we're praying hard na wag naman) dami bawal na foods. forever na sya d puwede eat ng taho & ampalaya among others. sa meds din super ingat. ngayon nga, may rashes sya sa neck. naaalarm talaga ako at natatakot. ayoko na maulit yung nagyari sa first baby ko  :'(
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cpasfri

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Re: All About New Born Screening
« Reply #28 on: June 07, 2008, 01:42:33 pm »

share ko lang din, bothered din ako after kong malaman yesterday ko lang nakuha yung result ng nbs ng baby ko he was born april 12 sa makati med, he got tested for nbs april 18 dahil na nicu siya pagkapanganak ko sa kanya..yung result ng nbs after a month pa makukuha, postive siya for g6pd and need to go for confirmatory test..ask ko lang sana how many days before makuha yung result ng confirmatory test? may magiging problem ba regarding vaccination pag may g6pd ang baby?worried ako, dahil vacciantion niya ng 5 in 1 on friday..please help.. ;o(
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tineped

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Re: All About New Born Screening
« Reply #29 on: January 20, 2009, 04:09:11 pm »

Mga mommies November 3 pa ko nanganak hanggang ngayon wala pa result ng NBS ng baby ko. Pwede kaya dumerecho na sa National Institue of Health sa may Ermita? Di ba dun naman dinadala lahat ng NBS test? Or pwede ba tawagan kaya? Sino na sa inyo nakapagtry na dumerecho dun? Thanks!
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