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Mommy_MM

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toddler not responding to name and other symptoms
« on: July 20, 2009, 02:07:19 pm »

         Sobrang stress na ko since napansin ko na hindi nag rerespond sa name niya at wala pang any meaningful word ang anak ko after his 1st birthday. Minsan nakakapagsabi sya ng dede pag nakikita niya dede niya, minsan tawag niya sa sippy cup niya "mamam" as in tubig turo ng yaya niya. Lagi ko lang naririnig sa kanya "ba-ba" "da-da" na wala na man ako makitang meaning kung ano ibig sabihin niya. Masayahin naman syang bata, lagi na ka smile, ok naman pakainin, ok naman sa pagtulog, di iyakin, pero i feel something is wrong talaga.
     
          Sa iba pang symptoms, lately, nakikita ko naka tip-toe sya maglakad, then pag nakuha niya yun toy na car or truck, iikutin niya lang yun wheels nun, pag may toys sya or anything na mahawakan niya lagi subo at kakagat-kagatin niya then pag nagsawa na, itatapon niya na sa labas ng crib, tapos sobrang hilig niya sa TV minsan sya pa nagbubukas mag isa, tapos madalas parang bingi sya kahit anung tawag mo hindi ka man lang titingnan, madalang na madalang pa sya nag wawave bye-bye pag aalis na ko.
       
         Nahihirapan na ko mag isip kasi sinosolo ko lang ang worries ko dahil ang mister ko wala naman sinasabi at masaya naman sya sa anak namin kasi di naman sya sanay sa bata, unlike me, marami ako kapatid kaya alam ko kung ano ang development ng bata.
       
          Minsan napansin na rin ng Mother at kapatid ko na baka daw nakukulangan sa attention ang anak ko dahil naging tahimik daw, at kagabi lang yun isang kapatid kong teacher, nagsabi sa akin na delay daw anak ko. Lalo na ko na stress as in di na ko nakatulog. Ngayon umaga, sa office, nag bukas agad ako ng internet para maghanap ng Developmental pedia nag set ako ng appointment para sa ika - 18th month old ng anak ko sa Sep 12. Kailangan ko ng harapin at tanggapin whatever the result then act on it.
     
         Ask ko lang the ff. questions, if ever ma diagnose na ang anak ko kung ASD, PDD, mild or anything:

1. How soon can I start the speech therapy? kasi wala pa sya 2 years old sa  September.
2. mahal ba ang mga ganitong klase ng therapy? Magkano at gaano katagal per session at how many times a week?
3. ano-ano pang therapy ang kailangan?
4. pwede pa bang maging normal or near-normal ang mga batang nadiagnosed na ASD?
5. May diet preference ba na proven to improve their condition?

Please reply naman po sa mga nakakaalam at may same experience, talagang very down and depress na ako. Thanks in advance.
« Last Edit: September 17, 2013, 12:22:44 pm by Mommyjazz »
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Luanne Dulay

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Re: 16 months old toddler not responding to name and other symptoms
« Reply #1 on: July 21, 2009, 07:00:29 am »

1. How soon can I start the speech therapy? kasi wala pa sya 2 years old sa  September.
2. mahal ba ang mga ganitong klase ng therapy? Magkano at gaano katagal per session at how many times a week?
3. ano-ano pang therapy ang kailangan?
4. pwede pa bang maging normal or near-normal ang mga batang nadiagnosed na ASD?
5. May diet preference ba na proven to improve their condition?

Hi Hannah. I know how you feel but don't be depressed. The more we have to be stronger. You have to bring your child to a developmental pedia as soon as possible, also for your peace of mind. I'll try to answer your questions based on my experience and knowledge.

1. It will still be too early for speech therapy. They usually recommend it when your child can already sit for a long time, and his attention and focus are already good. My daughter is 2y and 5 m, but her dev ped said to delay it first since it might be useless din.
2. The cost of the thrapy ranges from 500-600 per hour. The frequency will depend on your child and his evaluation. The evaluation may cost from P1800-2,500.
3. The most effective, based on my experience is ABA. I also have her undergo Occupational therapy. And I enrolled her in a playschool for her interaction. That's all I do for now, together with GFCF diet. And of course, lots of reinforcements at home.So far, so good. Big improvement already.
4. Yes. Yes. Yes. Tutukan mo lang sis. Kaya yan. There are lots of stories of recovery. As in you'll not even notice. When you see my daughter, you won't even know.
5. GFCF Diet proves to be helpful. But you need to be strict about it. We've been on the diet for 7 months now. The child will be less hyperactive, more attentive and will show improvement in almost all areas. Although, it can be effective for some but not to all. For more information about this, visit www.autismpinoy.com.

That's all for now. I hope I helped you in some way. Keep on praying, it helps a lot too.

Luanne
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Mommy_MM

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Re: 16 months old toddler not responding to name and other symptoms
« Reply #2 on: July 21, 2009, 11:15:11 am »

thank you for your very helpful and encouraging response. By the way, since di pa pala pwede speech therapy ang 18 months old, ano pwede ko gawin to help him improve? pwede ko na ba sya bigyan ng GFCF diet? pwede na ba sa kanya yun? please help. thanks again
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Luanne Dulay

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Re: 16 months old toddler not responding to name and other symptoms
« Reply #3 on: July 21, 2009, 12:21:55 pm »

Yes. We did the diet right away. There's nothing to lose anyway. Medyo magastos lang and your child needs to adjust lang. He needs to change his milk kasi. Di pwede cow's milk. The best thing to do is to have your child assessed by the developmental pedia first. For all you know, delayed lang talaga sya. He's still very young pa rin naman. I had my daughter assessed when she was 1y and 9m. Started the diet and OT right away.
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Mommy_MM

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Re: 16 months old toddler not responding to name and other symptoms
« Reply #4 on: July 21, 2009, 01:32:40 pm »

          So the best thing to do is have him assessed first by the Dev ped, may appointment na nga ako kaso gusto ko sana sa 18th months niya kasi nabasa ko na as early as 18 months pwede na, ayoko naman agad ngayon kasi sobrang bata pa. saka i'm still hoping gainst hope to see some improvements, talagang i'm praying hard for it, please Lord, wag naman sana. But of course, im leaving a space in my heart na pwede din na something is wrong and need to address this problem. What keep me stay strong is my faith in God that whatever happen he will not leave us nor forsake us. He will never give a problem if we cannot bear it.

           Anyway, mommy luanne, san ba nakakbili ng GFCF food?  my son is ok naman sa solid, di naman mapili sa food, yun nga lang problem ko. medyo nahilig pa rin sa gatas, di pa kaya mawalay sa dede niya. yun nga alng alam niya word na tama ang kahulugan pag nakita niya ang dede, he will say kahit medyo mahina lang "dede".
   
           hay naku if ever madiagnose ang baby ko, sana magkaroon ng organization ang mga families here in the Philippines with child/ children like this kung saan we will help each other in anything we can. I'll be very happy to join if theres a group like that. at least nagkakaintindihan kayo.
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Luanne Dulay

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Re: 16 months old toddler not responding to name and other symptoms
« Reply #5 on: July 21, 2009, 01:43:54 pm »

Hi! We have organizations like that here. It's very helpful. Anyway, you can buy lots of GFCF food sa Healthy Options. Medyo mahal lang. There are lots of mom selling GFCF. Just check out the website that I gave you. That will give you a lot of information, and also encouragement. That's very good that you're preparing yourself already. It won't be that hard for you na. It will still be difficult but just think of your child. He'll need you more than ever. Ako nga, I resigned 2 days after the assessment by my dev ped. I had no idea pa nun, so it came as a surprise. But I had to move on right away. Early intervention is the best thing that we can do. Just keep on observing. Masyado pa din maaga. Unless you see extreme and odd behaviors na. Like lining up of toys or staring for hours and extreme tantrums. That's our role, especially now. Be observant and get informed. Read and research a lot about it. Don't worry too much. You'll have lots of support. :)
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Fahrenheit

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Re: 16 months old toddler not responding to name and other symptoms
« Reply #6 on: July 22, 2009, 04:53:40 pm »

Dev Ped ang mag aasess ng baby mo, although sa mga nabanggit mo like, no response to name calling and Tip Toe walking, those are considered the red flags of autism, hindi pa naman sigurado but then  mas magandang dalhin mo na sya sa Dev Pedia as soon as possible, kasi sa mga may developmental problems ang sinusunod naming policy is... the earlier..the better. Early Intervention is Important. my son was diagnosed with autism nung 1 and a half year old sya. I have to inform you also na hindi lahat ng mga DEv Ped ay advocates ng Bio Medical Interventions like GF-CF diet etc etc..marami pa rin ang Traditional at hindi naniniwala sa ganitong klase ng treatment, so you have a choice pa rin which doctor you prefer.
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maine12

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Re: 16 months old toddler not responding to name and other symptoms
« Reply #7 on: July 23, 2009, 12:24:52 am »

16 mos din son ko, la pa din siya nasasabi na meaningful word puro babble lang na hindi namin talaga maintindihan pero parang may sinasabi siya, minsan pag nakita niya mom ko sbhin niya *lula tas madalas  *baba or *dada..mga ganun, pero  responsive naman siya minsan pag sinabi ko kiss,clap your hands,bye,hello (gawin niya parang may hawak na phone), bless.. mga ganun depende na lang pag busy manood ng tv di niya ko papansinin..almost same sila ng anak mo, yung pagbukas ng tv, kagat toys,hilig itapon kung ano hawak niya, etc...

i have the same concern as you din nga kasi feeling ko may mali, minsan feeling ko paranoid lang ba ko or ano, lalo na pag yung mga tita ko or relatives ng comment na di pa siya ngsasalita kasi may pinsan ako na 4 mos older lang sa kanya e dami na alam sbhin tas bibo na bata.


@Fahrenheit>  yung anak ko ng tiptoe walking din, pero sabi naman ng mom ko ganun daw talaga pag bata?how true?

am I worrying too much din ba?ano pa ba other signs para masabi na may autism (wag naman sana, haay), as much as possible gusto ko din agad malaman what I need to watch out for...
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Mommy_MM

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Re: 16 months old toddler not responding to name and other symptoms
« Reply #8 on: July 23, 2009, 10:00:39 am »

16 mos din son ko, la pa din siya nasasabi na meaningful word puro babble lang na hindi namin talaga maintindihan pero parang may sinasabi siya, minsan pag nakita niya mom ko sbhin niya *lula tas madalas  *baba or *dada..mga ganun, pero  responsive naman siya minsan pag sinabi ko kiss,clap your hands,bye,hello (gawin niya parang may hawak na phone), bless.. mga ganun depende na lang pag busy manood ng tv di niya ko papansinin..almost same sila ng anak mo, yung pagbukas ng tv, kagat toys,hilig itapon kung ano hawak niya, etc...

i have the same concern as you din nga kasi feeling ko may mali, minsan feeling ko paranoid lang ba ko or ano, lalo na pag yung mga tita ko or relatives ng comment na di pa siya ngsasalita kasi may pinsan ako na 4 mos older lang sa kanya e dami na alam sbhin tas bibo na bata.


@Fahrenheit>  yung anak ko ng tiptoe walking din, pero sabi naman ng mom ko ganun daw talaga pag bata?how true?

am I worrying too much din ba?ano pa ba other signs para masabi na may autism (wag naman sana, haay), as much as possible gusto ko din agad malaman what I need to watch out for...


Napansin ko nag tiptoe ang anak ko siguro over a month ago na, tapos bihirang bihira na sya mag point, using his index finger, if ever parang may tinuturo sya, lahat nag daliri nakabukas tapos tataas lang niya kamay niya. tapos pag pinapagaya ko sya ng words, very seldom na gumaya sya , para talagang di interesado.

Minsan may time naman na parang OK sya like responsive tapos parang nag aatempt mag salita, pag ganun sya iniisip ko "hay salamat at mukhang hindi naman, paranoid lang ako" Pero most of the time talaga may mga kilos sya na associated talaga sa ASD, that makes me so sad and depress at naawa talaga ko sa anak ko.

on positive side, magana naman kumain anak ko, di nga masyadong mapili, kahit sardinas kumakain. tapos, mahilig sya makipag hide and seek kasi nahahanap niya ko pag sinabi ko " nadito na ko or hanapin mo ko" basta tatakbo na sya at tatawa sya pag nakita ko naka tago sa likod na pinto. Masarap din sya matulog, 8 to 9pm sanay na sa sleeping habit, bibgyan ko ng dede at hihiga lang sya sa tabi ko until makatulog na.

Yun nga lang napaka hilig sa TV na anak ko. minsan I was wondering kung may effect yun sa pgiging delay niya, kasi mula yata 7 months na ka expose na sya sa Tv, pano kasi yun yaya niya , mahilig sa TV kaya nahawa na sya. Di ko na maawat, para mapatigil ko sya sa paglikot buksan ko lang ang TV, uupo na yan at manonod na parang malaki na.
« Last Edit: July 23, 2009, 10:10:27 am by hannah_9438 »
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Fahrenheit

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Re: 16 months old toddler not responding to name and other symptoms
« Reply #9 on: July 23, 2009, 12:42:27 pm »

hindi naman ibig sabihin na pag nag ti tip toe eh autistic na.. no.. Tip toeing is one of the signs lang.. it should be accompanied by other signs to be considered autism. ang Dev Ped pa rin ang right person na magsasabi kung autistic nga ang isang bata. although for us, parents, we are given the so called, Red Flags of Autism for us to have a guide kung kelan dapat tayo mag decide na ipa assess sa Dev Ped ang anak natin.

here are the Warning Signs or the so Called Red Flags of Autism:

 No big smiles or other warm, joyful expressions by six months or thereafter
 
* No back-and-forth sharing of sounds, smiles, or other facial expressions by nine months or thereafter
 
* No babbling by 12 months
 
* No back-and-forth gestures, such as pointing, showing, reaching, or waving by 12 months
 
* No words by 16 months
 
* No two-word meaningful phrases (without imitating or repeating) by 24 months
 
* Any loss of speech or babbling or social skills at any age
 
Other possible signs of autism:
 
* not play "pretend" games (pretend to "feed" a doll)
* not point at objects to show interest (point at an airplane flying over)
* not look at objects when another person points at them
* have trouble relating to others or not have an interest in other people at all
* avoid eye contact and want to be alone
* have trouble understanding other people's feelings or talking about their own feelings
* prefer not to be held or cuddled or might cuddle only when they want to
* appear to be unaware when other people talk to them but respond to other sounds
* be very interested in people, but not know how to talk, play, or relate to them
* repeat or echo words or phrases said to them, or repeat words or phrases in place of normal
   language (echolalia)
* have trouble expressing their needs using typical words or motions
* repeat actions over and over again
* have trouble adapting when a routine changes
* have unusual reactions to the way things smell, taste, look, feel, or sound
* lose skills they once had (for instance, stop saying words they were once using)
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Mommy_MM

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Re: 16 months old toddler not responding to name and other symptoms
« Reply #10 on: July 23, 2009, 12:54:19 pm »

Thank you for your info.

Ask ko lang yun bang babbling is considered words? like babba, dada, mama

Or minsan yun biglang may sinabi sya na di ko naman maintindihan, counted ba as words yun?
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maine12

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Re: 16 months old toddler not responding to name and other symptoms
« Reply #11 on: July 23, 2009, 02:18:45 pm »

Fahrenheit, ty for the info...

dapat nga pacheck dev. ped, kasi maski sa signs lito din ako kasi parang yung iba na signs minsan ganun siya tas yung iba naman di niya tlaga gngawa.., ang hirap ipoint out kung ano nga ba...

@hannah, tingin ko babbling din yung parang mga di natin maintindihan na cnsbi niya...

yung sa mga pagturo di ko napapansin kung ano gngmit niya , yung anak ko din exposed sa tv at a young age din, kasi yun din talaga madalas namin gawin,parang pag nanonood siya kala mo naiintindihan niya talagang tutok pag nanonood, maybe may effect nga din yun.magana din naman siya kumain, tas may pagkahyper nga lang din, pero happy baby din mahilig bungisngis tska tumawa din.

sana malaman natin agad kung dapat na nga ba talaga tayo mgworry or paranoid lang tayo
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Fahrenheit

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Re: 16 months old toddler not responding to name and other symptoms
« Reply #12 on: July 23, 2009, 04:20:46 pm »

ok, dun sa mga signs , it doesnt need to have all those listed above para mag worry tayo, pag makakita na tayo ng mahigit sa isa dun ay pwede na nating i refer sa Dev Ped for evaluation.hindi lang naman autism , pDD etc ang natutulungan ng DEv Ped kundi pati na rin yung may mga delays
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Re: 16 months old toddler not responding to name and other symptoms
« Reply #13 on: July 24, 2009, 10:49:31 am »

pag kinakantahan ko si baby tumitingin sya sa kin sa mata hanggang matapos yung kanta ..does it consider eye contact na din ??....or dapat yun pag salita lang ako tapos nakatingin sya yun lang ba ang tinatawag na eye contact?..tenks so much mga sis....
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Mommy_MM

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Re: 16 months old toddler not responding to name and other symptoms
« Reply #14 on: July 29, 2009, 12:14:36 pm »

    Hi! Several questions lang pls, kung sino may past experiences na help naman po.
1. Pag ba pina assess ko yun anak ko sa Dev - Ped at 18months, malalaman ba agad ang diagnosis? or wait pa until proper age?
2. If in case, madiagnose nga na high risk anong pwede namin gawin to help my son improve on his language? Kasi nga at 18 months di pa yata pwede speech & occupational therapy
3. After 18 months ba pwede pa mag worse ang situation ng anak ko?

     help, im really worried, ayoko na kasi mag worse pa ang situation than it already is. Thanks.
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