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Author Topic: About G6PD  (Read 515357 times)

rubyrandkervierwin

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Re: About G6PD
« Reply #30 on: October 21, 2008, 11:29:18 am »

ah ganun b momi myra..
kala ko kasi occur siya first n second
yr of age..xempre medyo kinabahan ako nun..
eniwey coordination din sa baby ang
kelangan tingin mo c baby lam
n niya bawal..matalinong bata..hehhe

god bless SP moms
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casgalanido

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Re: About G6PD
« Reply #31 on: October 22, 2008, 03:34:40 pm »

G6PD or Glucose-6-phosphate dehydrogenase deficiency, is the most common "inborn metabolic disorder". Meaning, from the time a baby is born, there is already something wrong with how the baby's body makes and breaks important substances.

Babies with G6PD deficiency have very little or no enzyme called Glucose-6-Phosphate Dehydrogenase (G6PD). An enzyme is a kind of protein that speeds up chemical reactions in the body. The enzyme G6PD is especially important to red blood cells. If this enzyme is lacking or missing, red blood cells are easily destroyed.

FOOD AND DRINKS THAT MUST BE AVOIDED
Fava Beans - Dingdong nuts, Mr. Bean
Redwine
Legumes - Habitswelas, Garbanzos, Kadyos or Black Beans, Monggo
Blueberry
Soya Food - Taho, Tofu or Tokwa, Soy Sauce
Tonic Water
Bitter Melon or Ampalaya

Common signs and symptoms of hemolytic anemia: paleness, diziness, headache, difficulty in breathing, rapid and strong heartbeats, tea-colored urine, and abdominal or back pain. Bring your child to his pediatrician as soon as these signs and symptoms appear.

Hope this helps.
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myralmedo

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Re: About G6PD
« Reply #32 on: October 25, 2008, 08:27:57 am »

halu again mommies! :-*

halu mmy casgalanido, thanks for the infos..yes noted lahat yan my son my son doesnt eat nga ng mga peanuts din ssbhin niya bwal tetet/kurt-kurt hehe.. pati mongo nga susme kawawa naman junakis namin hehe... WAIT! pati amplaya? minsan lang naman cia naeat kasi pait daw...kasi pala un? naku kaylngan mainform ang mga tao sa house :D.. ako lhat ng beans to be safe pati nga baguio beans kasi under din ng legumes... haaay! super thanks for sharing! ;) dr po ba kayo? hehe  ;D ano po ba ang mga pdeng iexamine papa CBC? ok po ba un? pra mamonitor yung red blood cells niya haay motherness hehe

Godabless!0=)
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Laugh as much as you breathe and love as long as you live. ♥♥♥

anne_011

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Re: About G6PD
« Reply #33 on: November 05, 2008, 12:49:20 pm »


Hi Mommy!

My son is also positive for G6PD, we've made the confirmation @ UP-manila when hes 5mos i think. Try to check the website or call contact info below for re confirmation.

Good thing you have avoided food/drugs for g6pd.

Hope info below will help you though late na reply ko. bago lang kasi ako dito.

thanks

E-mail address: info@nsrc-nih.org.ph
Website: www.nsrc-nih.org.ph
Phone number: (632) 522- 4396
Cell number: (0920) 9142687
Our office is located at:

NEWBORN SCREENING REFERENCE CENTER
National Institutes of Health,
University of the Philippines Manila
Pedro Gil, Ermita, Manila.
Office Hr: 8:00am - 5:00pm M-F

FOR G6PD Confirmatory at NIH
Schedule: 8:30 - 11:00am Tue - Thu
First Come First Serve
Fee: Php 750.00
Tel. No 525-5171
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mhara

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Re: About G6PD
« Reply #34 on: December 03, 2008, 03:40:57 pm »

 my baby was diagnose with g6pd syndrome and was confirmed nung ngpatest kami sa NHI.any idea of what is it or can you share some important things or reminders about it.
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❤ ♏o♏y_η_Rαηe ❤

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Re: About G6PD
« Reply #35 on: December 03, 2008, 03:47:06 pm »

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-LabU-

mhara

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Re: About G6PD
« Reply #36 on: December 03, 2008, 04:09:45 pm »

 be specific ano ano nga po ba yung mga bawal na foods sa g6pd positive na baby?
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myralmedo

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Re: About G6PD
« Reply #37 on: December 03, 2008, 04:57:53 pm »

halu mommy mhara!

my son my son is a g6pd deficiency... is it sa newborn screening ba? alam ko yung hospital will give u do's dont's re g6pd. don't worry mmy bsta follow lang na wag silang pakainin ng mga soya products anything na may soya and legumes. dun po sa link ni bingay ni mmy bautiir masaming insights from mommies na may ganun ang anakis. read nalang po ;)

Godabless!0=)
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Laugh as much as you breathe and love as long as you live. ♥♥♥

mhara

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Re: About G6PD
« Reply #38 on: December 03, 2008, 06:19:35 pm »

 Mmy myra di ba bawal din yung naphtalene o yung moth balls kahit madikit lang sa skin nla bawal po yun.safe po ba ang vicks sa g6pd positive babies/
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myralmedo

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Re: About G6PD
« Reply #39 on: December 03, 2008, 06:23:17 pm »

Quote
Mmy myra di ba bawal din yung naphtalene o yung moth balls kahit madikit lang sa skin nla bawal po yun.safe po ba ang vicks sa g6pd positive babies/

halu mmy mhara... yung nga din i just knew it dito re sa naphtalene pro indi pa naman naeencounteer ni kurt ko...i used vicks mmy ala naman side effects mas hiyang kc c kurt lalo na kapag may colds ngpapalagay talaga cia. yogurt bwal talaga? umapela pa haha...

Godabless!0=)
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|myralmedo| I'm not a Princess. I'm a QUEEN.


Laugh as much as you breathe and love as long as you live. ♥♥♥

mhara

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Re: About G6PD
« Reply #40 on: December 03, 2008, 06:32:22 pm »

 so far mga antibiotics lang talaga ang mga delikado sa knila esp yung my sulf sa name.pinapakain mo sya ng my sabaw ng sinigang? (knowing na may sitaw un)
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myralmedo

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Re: About G6PD
« Reply #41 on: December 03, 2008, 06:36:06 pm »

Quote
so far mga antibiotics lang talaga ang mga delikado sa knila esp yung my sulf sa name.pinapakain mo sya ng my sabaw ng sinigang? (knowing na may sitaw un)

kakalurky noh? hehe akin mmy pinapaeat ko cia kahit sabaw lang pro kc ang gwa ng MIL ko bago ilagay yung sitaw separate na yung sabaw niya special treatment talaga kapag adobo ulam may separate na egg cia haaay super avoid lang talaga ;)

Godabless!0=)
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|myralmedo| I'm not a Princess. I'm a QUEEN.


Laugh as much as you breathe and love as long as you live. ♥♥♥

mhara

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Re: About G6PD
« Reply #42 on: December 03, 2008, 06:45:07 pm »

 huh hope na very obedient mga babies natin paglaki at talagang maiwasan nila yung mga foods na dapat iwasan esp pagnapasok na sila sa school.
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myralmedo

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Re: About G6PD
« Reply #43 on: December 04, 2008, 09:27:30 am »

uu nga mmy eh train mo na c bby mo yung bunso ba? ako kc c kurt kapag nakakaita ng dark liquid ssabhin niya bwal toyo tetet kahit anung pilit namin yaw niya talaga..sabi ko nge very good cia sana pati sa school..may nabasa ako kapag schooling yung anak na may g6pd iinform yung teeahcer and yung sa canteen nila iba na talaga yung nag-iingat for their health din kc un.. ;)

Godabless!0=)
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|myralmedo| I'm not a Princess. I'm a QUEEN.


Laugh as much as you breathe and love as long as you live. ♥♥♥

mhara

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Re: About G6PD
« Reply #44 on: December 04, 2008, 02:49:31 pm »

 Hallu mmy Myra! naku not only the teachers and canteen personels kundi pati yung school nurse dapat ma inform sa sakit nila.
 nung hindi pa namin na confirm na positive na talaga sya napakain namin sya ng Cerelac na SOYA AND MILK ata yun ang epekto nung conspitated sya nakakaawa huh!
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