Parent Chat

Advanced search  

News:


Don't forget to check your email verification from info@smartparenting.com.ph

Pages: 1 ... 7 8 [9] 10 11 ... 36

Author Topic: About G6PD  (Read 447180 times)

prettyahyeigh

  • Jr. Member
  • **
  • Posts: 61
  • - proud single mom -
    • View Profile
Re: About G6PD
« Reply #120 on: January 29, 2010, 07:39:28 am »

baby ko, gain xia and talagang maganda siya.. sis I advise more on solid food na siya like rice. baby ko kasi di lang siya gatas rice na din. he cant sleep with out eating rice. 3x a day na po siya magrice. we have been doing this since 7mos siya. ayun tipid din sa gatas, imagine kung walang rice siya eh ngayong may rice nakaka2 1.8k siya for 15days.. sakit sa bulsa ah..
 ;)
Logged
i have a handsome prince..

Inay_Mae

  • Full Member
  • ***
  • Posts: 128
  • My baby Heart, My Life, My World
    • View Profile
Re: About G6PD
« Reply #121 on: February 11, 2010, 12:41:49 am »

mga mommies, kahit po ba diagnosed with g6pd ang bata pwedi pa rin magtake ng heraclene??

mommy ahyzeyuh,,, di pa sana ito late reply...ni recommend sa baby ko na may G6PD ang heraclene...1 week ko na syang binibigyan...ok naman...wala namang kakaibang nangyayari kay Heart...
Logged

momgraze24

  • Jr. Member
  • **
  • Posts: 59
    • View Profile
Re: About G6PD
« Reply #122 on: February 12, 2010, 07:31:34 pm »

youngest ko g6pd din lumabas sa newborn screening mommies, he's already 1yr and 4months old..prob is hindi na namin naipaulit yung test that time dahil naging busy ako..nung sinabi namin sa pedia kahit daw hindi na confirm yung initial screening kelangan pa rin niya iavoid yung bawal there's no way na raw to make sure kung positive or negative siya..so sad lang..daming bawal talaga..
Logged

eramata

  • Newbie
  • *
  • Posts: 1
    • View Profile
Re: About G6PD
« Reply #123 on: February 23, 2010, 07:45:42 pm »

anybody in the house knows what brand of milk without SOYA content, para po s may G6PD deficiency babies.
« Last Edit: February 25, 2012, 09:24:29 pm by Mommyjazz »
Logged

janice_mc05

  • Newbie
  • *
  • Posts: 8
    • View Profile
Re: About G6PD
« Reply #124 on: February 26, 2010, 05:24:14 am »

there's no way na raw to make sure kung positive or negative siya..so sad lang..daming bawal talaga..

sis..pwede pa kayo magpaconfirmatory test sa UP NIH.. nag-attend ako ng seminar dun before at sinabi nila na pwede pa naman kahit pa ilang taon na si baby..mas maganda kung sigurado ka kung G6PD deficient ba sya or hindi..
Logged

momgraze24

  • Jr. Member
  • **
  • Posts: 59
    • View Profile
Re: About G6PD
« Reply #125 on: February 26, 2010, 02:15:24 pm »

^talaga sis? panu? need ko ba pumunta sa office nila?
Logged

janice_mc05

  • Newbie
  • *
  • Posts: 8
    • View Profile
Re: About G6PD
« Reply #126 on: March 03, 2010, 11:18:19 pm »

^yup sis..dun mismo sa NIH sa pedro Gil..tas tanong mo na lang sa guard kung saan yung sa new Born screening ia-assist ka na nila..kahit naman daw anong age pwede magpa-test
Logged

riddermark

  • Hero Member
  • *****
  • Posts: 590
  • back to my old name
    • View Profile
Re: About G6PD
« Reply #127 on: March 12, 2010, 11:15:07 am »

accdg to my mom, when i was 8 months old i had diarrhea. she gave me BACTRIM and my red blood cells reacted. i had severe anemia. the doctors from our province could not diagnose my case. they had to lift me to manila, just the same they say they it was mysterious. i had to undergo blood transfusion. im type AB+ my parents had a hard time looking for donors until a certain janitor from the hospital offered his blood (i wish i was able to know him) and so i was saved.

when i had my first born, he was diagnosed positive for G6PD. upon reading what it is, i came to a conclusion that what happened to me 30 years ago was the same as what G6PD sympotms is when triggered. Bactrim is one of those forbidden drugs for G6PD patients. so i pressumed i am also G6PD positive. years ago we dont have newborn screening yet. people were not informed. i eat all those bawal i even touch and use mothballs. good thing nothing bad happened to me after that incident 30 yrs ago. according to my son's pedia, filipinos can tolerate this disease but is advised to still be cautious and for me to start controlling what i eat. she doesnt want my son to take those bawal and never experiment (though my cousin who is taking medicine said his professor mentioned that it "may" be fixed because when our brain sees that there is an enzyme lacking, the brain tends to order production of it).

now that i have my second son, we were expecting he will also be G6PD positive but to our surprise he isnt!!!!  ;D  so now i am thinking, positive ba talaga ako? because this is X-linked so that means i have one X chromosome that is normal pala! so, carrier lang ako? hmmm, i dont know if i'll still confirm this if yes, i have to undergo tests din. kung mahal, wag na lang  :)
Logged
- - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - -
God created little boys for He knew that there should be lots of love and happiness added to a family.

mommyonsale

  • Full Member
  • ***
  • Posts: 164
    • View Profile
Re: About G6PD
« Reply #128 on: March 12, 2010, 01:14:35 pm »

Me also sis my son is positive in G6PD.. I am not shocked the first time coz i already knew that kasi yung pamangkin ko meron.. Pero naawa lang ako sa baby ko kasi marami siya hindi maeexperience na kainin but i still give him pakonti konti lang hindi ko kasi matiis ang anak ko.. Kasi s totoo lang yung mga tumitingin n pedia sa anak ko parang hindi naalarma kapag cnasbi ko sa kanila na may G6Pd ang anak ko.. Un bang kapag ask ko sila na "Doc yan po bang gamot na nireseta nyo pwede sa anak ko kasi may G6PD po sya" sasabihin lang oo pwede daw un hindi na titingnan yung mga list na bawal kay baby.. iniicp ko na lang na memorize nila lahat ng bawal.. Hayzzz. Even me sometimes nawawala na tiwala ko sa mga pedia kasi they dont mind it everytime I ask them if pwede.. Lalo na po nung nagpunta ako s isang matanda ng doctor.. Sarado kasi yung clinic before kaya sa kanya kami nagpunta.. Dati daw kasi wala naman newborn screening e e bakit wala naman daw nangyayari sa mga carrier before ng G6PD??? hayzzz Doctor siya sa akin tinanong... Ano b naman ang alam ko dun diba??? Sa ngaun super healthy c baby at pray ko na magtuloy tuloy.. Gatas niya is Pediasure ok b po un??? ano po mga gatas ng baby nyo??? Vitamins na din po???
Logged

riddermark

  • Hero Member
  • *****
  • Posts: 590
  • back to my old name
    • View Profile
Re: About G6PD
« Reply #129 on: March 12, 2010, 01:34:38 pm »

sis, sa baby ko NANHW sya from the very beginning. di lang sya tabain. nung humina sa milk at huminto sya ngpagkain ng solids at 1yr 4mos, nagvitamins na sya ng appebon pero dati ceelin at nutrillin lang. now he's into pediasure kasi kailangan bumigat ang weight. nalulungkot din ako kasi nakaksawa na ang kinakain niya. sabi ko sa yaya bawal ang me toyo na seasoning. kaya puros rice at konting gulay lang fish din pero very few variety lang.
Logged
- - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - -
God created little boys for He knew that there should be lots of love and happiness added to a family.

momgraze24

  • Jr. Member
  • **
  • Posts: 59
    • View Profile
Re: About G6PD
« Reply #130 on: March 12, 2010, 03:37:10 pm »

sis ako pinapakain q baby ko ng adobo kahit positive pero minimal intake lang, hindi ko siya pinagttry ng taho..minsan iniisip ko din totoo ba talaga ang g6pd? haay ewan
Logged

lady_torque

  • Newbie
  • *
  • Posts: 31
    • View Profile
Re: About G6PD
« Reply #131 on: March 13, 2010, 12:06:18 am »

hi po! my youngest is also G6PD deficient. yung older 2 siblings niya no problem naman.  i'm glad may forum na ganito... what worries me is her 3 week old cough ( productive naman ) but she has no runny nose, less mucus secretions sa nose.  my pedia gave her ambrolex & i continue daw till the cough subsides.

her ate also has this kind of cough pero due to allergens since cats abound our area. my pedia & the eent advised me that the only way to remove the allergy is of course to remove the source pero pasaway na in-laws, mas mahal pa ata ang mga pusa kesa sa mga kids.  is that may be the source of the cough?
Logged
i can be your greatest dream (if treated right) and your worst nightmare (if abused)

maivy

  • Jr. Member
  • **
  • Posts: 64
    • View Profile
Re: About G6PD
« Reply #132 on: March 13, 2010, 12:50:47 am »

Hi mga mommies! ako naman i have two kids...both boys at both din may G6PD. ang eldest ko ay 6 at ang bunso ay 3. When I gave birth to my panganay, at na-New born screening na siya, nag-positive siya..dinala pa namin siya sa NIH(National Institute of Health) sa may Manila. grabe ang liit pa niya noon,nag-travel kami kahit taga-Laguna pa kami. :( Need kasi i-reconfirm yun test,at ayun nag-positive talaga.  :( :( :(
 Scary for me kasi first baby e.Nung nakita ko yun mga bawal, naawa ako sa anak ko kasi ang dami niya ma-mimiss na pagkain.  :-\ :-\ At ako na-praning naman kasi tuwing may bibilhin ako for my baby,lagi ko check sa list.
  Awa ng Diyos ayos naman siya. Nagkaroon lang ako ng isang episode na siguro related nga sa pagkakaroon niya ng G6PD..hindi din kasi nasabi ng pedia niya nuon yun...1 year old  baby ko nun..hindi ko na matandaan ano ba nakain niya noon, pero naging matamlay siya,at iyak ng iyak..tapos ang IHI niya noon ay naging TEA COLORED..isa sa symptoms ng attack ang TEA COLORED URINE.
   Yun bunso ko naman, positive din.pero ayos din siya at with God's help, hindi nangyari sa kanya yun nangyari sa kuya niya noon..healthy at malikot naman.
     Noong naka-1 year pld na sila pareho, unti-unti ni-introduce ko sa kanila yun mga food na may toyo (adobo, pansit..etc..) tapos observe ko sila, okay naman. Pero hanggang ngayon,hindi ko sila pinapakain ng TAHO..at siyempre sa mga medicines dun talaga ako sobrang carefull at paranoid.
     Naku, ang haba na nito mga mommies.. thank you sa pag-read!
      I also joined this group: g6pd_phils@yahoogroups.com   
    Baka nga may mga mommies dito na naka-join na din sa group na ito.
   
Logged

ahyzeyuh

  • Hero Member
  • *****
  • Posts: 1065
  • im a good person,just keep on making bad decisions
    • View Profile
Re: About G6PD
« Reply #133 on: March 16, 2010, 12:13:37 am »

Yung anak ng kasin ko who is diagnosed with g6pd he is now eating taho, he is 2yrs old and 3mos.
At 1st takot din syempre, if g6pd is hereditary then dapat yung parents niya my nangyari na masama sa kanila.


mga mommies, kahit po ba diagnosed with g6pd ang bata pwedi pa rin magtake ng heraclene??

At ako na rin sasagot sa tanong ko, OO pwedi ang heraclene, they asked the pedia ok , its safe
Logged

♥_caramel_♥

  • Hero Member
  • *****
  • Posts: 1755
  • i LOVE my family ,especially, my beloved son AIDAN
    • View Profile
Re: About G6PD
« Reply #134 on: March 18, 2010, 04:02:47 pm »

 my baby is diagnosed with g6pd ,. kasi accdg to his pedia mbaba lang naman daw po ang level but still i worry a lot ,. tas isa p po ngbebreastfeed ako ,. hmmm ,. bwal b q kumaen ng chichirya gya ng piattos Vcut kc my traces sila ng soya ?  :-\ ,.
im willing to sacrifice all for my baby hheheh kht d n q kumaen maski kapirasong chocolate ,.
Logged
  [move]
Pages: 1 ... 7 8 [9] 10 11 ... 36