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Author Topic: About G6PD  (Read 523263 times)

cpasfri

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Re: About G6PD
« Reply #15 on: October 12, 2008, 11:41:48 pm »

hi mommy cpasfri, thanks so much, at least i can gve further xplanation to our secretary, 1st baby din kc niya n shes kinda worid, prand d din niya matangap so gsto niya ulit ipa 2nd test
anyway, cute bib der, san mu nbili hahaha  :D

your welcome..the bib was bought at multiply site heres the link
http://brusselsprouts.multiply.com/

mommy thanx sa website. ngayon ko lang nalaman from u na meron pala website sa mga g6pd. heheh
hay na remember ko talag yung ime nalaman ko na meron g6pd anak ko. 1 week p lang baby kapapanganak ko lang. iyak ng iyak ako ng tumawag hospital. kasi hindo ko pa naintindihan.. nag nternet agad ako pero hindi na ako mkabasa kasi nga puro lang luha mata ko. kaya ayon si hubby na na researxh hehe. then inixplain rin sa pedia. yung pedia ko ngayon meron syang daughter na 5 yrs old na g6pd then healthy naman. kaya i like my pedia kasi alam niya anong gamot ibigay, etc kasi meron syang anak na g6pd rin.. now yung son ko is 1 year ld na. i have 2 kids. yung eldest daughetr ko who is 2 yrs old, ok naman wlang g6pd. ito lang talagang bunso ko. yung anak rin ng cousin ko sabay kami ng month nanganak. nauna lang sya ng 1 week, ganun din meron g6pd anak niya. lahi siguro namin.. buti ngayon meron ng newborn screening! noong araw wala. baka nga siguro meron ako. hehe wala lang symptoms. kasi noon sa panahon natin wala yan newborn screening eh.

your welcome.. ;D , as ive read sa site na when your first baby boy daw has g6pd sa nanay daw nakuha yun but when you first baby girl has g6pd sa tatay naman daw..
by the way san ang pedia mo and where is it?
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melandriaromero

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Re: About G6PD
« Reply #16 on: October 12, 2008, 11:55:36 pm »

i have also seen that in Sp magz but i am not yet aware about that virus.  I will read your posting so that i would be enlighten.  Thanks for the info.
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mhellaizkie

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Re: About G6PD
« Reply #17 on: October 13, 2008, 03:42:14 pm »

meron ba kayong alam na seminars or any websites on g6pd? my officemate's son is positive din, lahat ng minty stuff bawal, soya bawal and i guess pati ang berries..
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mommy-T

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Re: About G6PD
« Reply #18 on: October 13, 2008, 11:09:09 pm »

meron ba kayong alam na seminars or any websites on g6pd? my officemate's son is positive din, lahat ng minty stuff bawal, soya bawal and i guess pati ang berries..

ito mommy www.g6pd.org
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marcroswell

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Re: About G6PD
« Reply #19 on: October 14, 2008, 06:00:49 am »

i have a son turning three this nov 27. when he had his new born screening, he's positive for the g6pd deficiency. we're asked to go to UP-manila for re-confirmation. but, due to our hectic sked, we're not able to go there. right now, i am not sure if he's positive or negative for g6pd deficiency since we never got the chance to reconfirm it. but, i still make precautions, i don't give meds or foods prohibited to g6pd deficient. now, that he's turning three, is it still possible to reconfirm if he's really positive for the deficiency?
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mhellaizkie

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Re: About G6PD
« Reply #20 on: October 15, 2008, 08:21:17 am »

meron ba kayong alam na seminars or any websites on g6pd? my officemate's son is positive din, lahat ng minty stuff bawal, soya bawal and i guess pati ang berries..

ito mommy www.g6pd.org

thanks sis refer ko yan sa officemate ko..  ;)
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rubyrandkervierwin

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Re: About G6PD
« Reply #21 on: October 15, 2008, 10:57:33 pm »

hi mommy T..same situation din..i know hoe you felt, ganyan din the firsttime na nalaman ko eh first baby ko pa siya, worried din ako nung first tapos sobrang baba pa yung result ng confirmatory test niya, but since may mga mommies akong nakausap dito rin sa SP re:g6pd medyo ok nako..basta you know lang talaga yung mga bawal na food, also sa meds importante talaga na don't give meds as long hindi pwede sa baby..nakakalungkot lang hindi nila matitikman angsarap ng adobo, ang taho..etc..pero kahit ganun ok lang lahat naman ng babies na kilala kong may g6pd healthy naman sila..so with my baby.. ;o) hes now 6month old today and hes healthy..
i hope this link would give much info re: G6pd
http://www.g6pd.org/favism/english/index.mv?pgid=intro

to mamommy : hi i hope this link would help you give an idea what is G6pd..in short ko lang..may topic he re sa SP re: g6pd heres the link hope it will give you an idea
http://www.smartparenting.com.ph/parentchat/index.php?topic=949.0
http://www.g6pd.org/favism/english/index.mv?pgid=intro


ang cute ng baby mo! tabachingching! it really shows that ure an excellent mom! (sabi nga ni sweet may cellulite ang cheek..hehhehe  :)))

sana soon pag malaki n sila may new invention ng gamot for g6pd. wawa nmna baby panu pag skul n siya. can u still able to avoid fud na bawal?

god bless momsies.
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myralmedo

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Re: About G6PD
« Reply #22 on: October 16, 2008, 09:23:28 am »

halu mommies!

haay indi ako ngiisa hehe :D

same procedure with mmy cpasfri... my son my son is 2 yrs old na from the time na nalaman namin todo research talaga ako and gumwa ako ng folder for him pnrint ko un meaning ng g6pd down sa lahat ng bwal na food/meds etc. tas nakalgay lang sa baby bag niya...may mga advices din kapag nagschooling inform ang staff ng school as well the teacher lalo na sa ganun na indi natin monitored ang mga kiddos peeps 'round them should be aware din.

bad thing when we found out once lang kami ngpanew born ewan ko ba indi ko naisip mgparetake... pro una ciempre bat ganun anythings wrong with me kasi ako carrier pag bby boy, anyways as the time goes by naaccept and now na eating na my son my son ko ng solid food we trained him kapag nakakita sia ng toyo,offer namin cia to eat ssbhin indi mee bawal toyo tetet (kurt-kurt) hehe kaya kami at ease na.. if you'll ask him ano bwal sbhin niya soya :D..ngaun thank God, palagi kong pinagppray he's healthy and un naman ang nkikita ko... ;) super avoid lang talaga pro minsan kahit minimal pinapatikim ko cia pro cia na rin umaayaw :D... and want ko nga kasi sa blood un naaffect we decided na once a year papaCBC ko kurt pra monitor namin.

ngshare din ako sa link na bngay ni mmy cpasfri.. keep in comin' and keep on sharing mommies! it really helps!  ;)

Godabless!0=)
mwah.mwah  :-*
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mommy-T

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Re: About G6PD
« Reply #23 on: October 16, 2008, 09:47:32 am »

halu mommies!

haay indi ako ngiisa hehe :D

same procedure with mmy cpasfri... my son my son is 2 yrs old na from the time na nalaman namin todo research talaga ako and gumwa ako ng folder for him pnrint ko un meaning ng g6pd down sa lahat ng bwal na food/meds etc. tas nakalgay lang sa baby bag niya...may mga advices din kapag nagschooling inform ang staff ng school as well the teacher lalo na sa ganun na indi natin monitored ang mga kiddos peeps 'round them should be aware din.

bad thing when we found out once lang kami ngpanew born ewan ko ba indi ko naisip mgparetake... pro una ciempre bat ganun anythings wrong with me kasi ako carrier pag bby boy, anyways as the time goes by naaccept and now na eating na my son my son ko ng solid food we trained him kapag nakakita sia ng toyo,offer namin cia to eat ssbhin indi mee bawal toyo tetet (kurt-kurt) hehe kaya kami at ease na.. if you'll ask him ano bwal sbhin niya soya :D..ngaun thank God, palagi kong pinagppray he's healthy and un naman ang nkikita ko... ;) super avoid lang talaga pro minsan kahit minimal pinapatikim ko cia pro cia na rin umaayaw :D... and want ko nga kasi sa blood un naaffect we decided na once a year papaCBC ko kurt pra monitor namin.

ngshare din ako sa link na bngay ni mmy cpasfri.. keep in comin' and keep on sharing mommies! it really helps!  ;)

Godabless!0=)
mwah.mwah  :-*


so far my 1 yr old son ngayon, he's ok naman. wala ko naman sya pinagbawal like toyo, etc. wala naman tayong fava beans dito.. then yogurt di pwede rin. yun lang so far avoid ko sa kanya.
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mhellaizkie

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Re: About G6PD
« Reply #24 on: October 16, 2008, 05:06:06 pm »

sis MY..g6pd pala si kurt? ang hirap talaga yan..yung anak ng officemate ko d puwede sa eucalyptus..nangingitim and ng faint pag naka amoy..bawal din soya talaga na meron sa toyo..

mishoo na sis MY..mwah  :-* hope to see you soon!
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mommy-T

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Re: About G6PD
« Reply #25 on: October 16, 2008, 05:10:08 pm »

bawal din yung parang mothballs ba yan? yung puti na ilalagay ng iba sa cabinet sa damit? di talga pwede yan
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mhellaizkie

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Re: About G6PD
« Reply #26 on: October 16, 2008, 05:23:46 pm »

oo sis bawal din daw yun pati yung albatross daw yung scent para sa CR..
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cpasfri

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Re: About G6PD
« Reply #27 on: October 16, 2008, 10:03:11 pm »

to mommy ruby: hi thanks..ingat lang talaga siyaka tutok ka for all the bawals..may time din kasi na mapapansin mo ngfafaint yung color niya but ..pray lang lagi for good health para kay baby saka monitor talaga and inform ko na lang baby curt pagschooling wawa lang talga di matitikman ang adobo..puting adono hehe, ang cute naman nun natawa ako hehe may cellulite sa cheeks..funny hahaha..

to mommy myra: hello mommy myra...2 years old mo na pala nalaman na may G6pd na baby mo?how come..question ko nga kung pwede bang mgpa repeat confirmatory test para malaman kung may improvement ba yung level ng enzyme niya kasi kay baby curt sobrang baba as in .20 lang siya ang normal is 4.6..kaya may time na maputla siya aware nako nun as advise nung pedia na always check kung maputla yung labi, under ng eye, palms of hands and feet tapos ng DOB siya...possible daw na naexpose siya sa bawal..and true talga na pinakamalakas is yung moth balls sabi ng pedia niya na once naexpose siya sa anything bawal lalo na moth balls or anything like sabi ni mommy mhel and mommy T..yung red blood cells niya magpuputukan at baba yung enzyme ng body niya...hayy..pero no need to worry basta importante aware tayo sa bwal...sabi nga ng cousin ko there is this baller na they put para marecognize if the baby has g6pd..ill check with that.. :)
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rubyrandkervierwin

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Re: About G6PD
« Reply #28 on: October 16, 2008, 11:05:58 pm »

to mommy ruby: hi thanks..ingat lang talaga siyaka tutok ka for all the bawals..may time din kasi na mapapansin mo ngfafaint yung color niya but ..pray lang lagi for good health para kay baby saka monitor talaga and inform ko na lang baby curt pagschooling wawa lang talga di matitikman ang adobo..puting adono hehe, ang cute naman nun natawa ako hehe may cellulite sa cheeks..funny hahaha..
Quote

very cuddly c BABY CURT! sana nga soon may gamot n dyan un ang pag pray ko pra sa lahat ng g6pd! ask ko lang sa new born screening sure b na de detect yan? kc bkit c mom myra 2yrs old n niya nlaman?

go go go momsies!
(buti n lang may SP may sharing like dis it really helps.) :-*

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myralmedo

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Re: About G6PD
« Reply #29 on: October 21, 2008, 10:13:20 am »

halu mommies!

mmy-T thanks uu avoid lang talaga and super monitor... haaay super extra care ;)

mmy mhellai, mishu mishu *hugness* hehe... uu g6pd kurt ko buti my newborn screening diba? hehe.... best cure eh avoid lang talaga ang bawal buti cia recognize na niya, kita lang cia dark na liquid sbhin bwal toyo tetet/kurt2 hehe.. hope to see u soon.. prettyness talaga caine mo hehe... ;) :-*

mmy cpasfri and rubyrandkervierwin, to mmy cpasfri same pa name bbies ntin "c" nga lang sau akin "k" hehe galing! naaliw?! hehe  ;D indi po 2 yrs old na cia ngaun hehe newborn screening ko na cia after ilabas, indi ko lang cia na paretest un ang indi ko nagwa sayang pro avoid lang talaga ;)... ay talaga bwal ang moth balls? naku meron pa man din sa house nun... mmy alam ko included ang mga beans satin indi ko cia pinapkain ng sitaw and beans bsta may buto na veges yung stringbeans ganun... safetyness na rin kasi under ng legumes ba u? bsta pra sureness tska mga berries... ano pa ba? anakis ko feeling ko kapag nakakaeat kasi minsan diba kahit small conetnt lang hyperness sila? nung wed ng friend ko ewan ko ano nakain sa menu nila kasi tumbling sa red carpet ayaw paawat isip ko soup kasi medyo creamy bka may soya hehe... mmy cpasfri udpate mo ko bout sa baller ah gusto ko nun hehe... thanks! mwah mwah.. :-* :-* :-*

Godabless!0=)
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Laugh as much as you breathe and love as long as you live. ♥♥♥
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